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Original Articles

What constitutes uncertainty in systemic lupus erythematosus and rheumatoid arthritis?

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Pages 171-188 | Received 14 Jun 2011, Accepted 07 Jun 2012, Published online: 10 Jul 2012

References

  • Adamson , C . 1997 . Existential and clinical uncertainty in the medical encounter: An idiographic account of an illness trajectory defined by inflammatory bowel disease and avascular necrosis . Sociology of Health & Illness , 18 : 133 – 159 .
  • Babrow , AS , Kasch , CR and Ford , LA . 1998 . The many meanings of uncertainty in illness: Toward a systematic accounting . Health Communication , 10 ( 1 ) : 1 – 23 .
  • Bandura , A . 1986 . Social foundations of thought and action: A social cognitive theory , Englewood Cliffs , NJ : Prentice Hall .
  • Bandura , A . 1997 . Self-efficacy: The exercise of control , New York , NY : Freeman .
  • Bowling , A . 2009 . Research methods in health: Investigating health and health services , 3rd , Maidenhead : Open University Press .
  • Brasher , DE , Neidig , DE , Russell , JA , Cardillo , LW , Haas , SM , Dobbs , LK Nemeth , S . 2003 . The medical, personal and social causes of uncertainty in HIV illness . Issues in Mental Health Nursing , 24 : 497 – 522 .
  • Braun , V and Clarke , V . 2006 . Using thematic analysis in psychology . Qualitative Research in Psychology , 3 : 77 – 101 .
  • Bryman , A and Burgess , B . 2002 . Analyzing qualitative data , New York , NY : Routledge .
  • Christman , NJ , McConnel , EA , Pfeiffer , C , Webster , KK , Schmitt , M and Ries , J . 1998 . Uncertainty, coping and distress following myocardial infarction: Transition from hospital to home . Research in Nursing and Health , 11 : 71 – 82 .
  • Cohen , F and Lazarus , RA . 1979 . “ Coping with the stresses of illness ” . In Health psychology: A handbook , Edited by: Stone , GC , Cohen , F and Adler , NE . 82 – 116 . San Francisco , CA : Jossey-Bass .
  • Eastwood , JA , Doering , L , Roper , J and Hays , RD . 2008 . Uncertainty and health-related quality of life 1 year after coronary angiography . American Journal of Critical Care , 17 : 232 – 242 .
  • Ehrenstein , MR and Isenberg , DA . 2004 . “ Systemic lupus erythematosus in adults ” . In Oxford textbook of rheumatology , Edited by: Isenberg , DA , Maddison , P , Woo , P , Glass , D and Breedveld , FC . 819 – 842 . Oxford : Oxford University Press .
  • Haugli , L , Strand , E and Finset , A . 2004 . How do patients with rheumatic disease experience their relationship with their doctors? . Patient Education and Counseling , 52 : 169 – 274 .
  • Hommel , KA , Chaney , JM , Wagner , JL , White , MM , Hoff , AL and Mullins , LL . 2003 . Anxiety and depression in older adolescents with long-standing asthma: The role of illness uncertainty . Children's Health Care , 32 : 51 – 53 .
  • Isenberg, D.A. & Rahman , A . 2004 . SLE management in adults , Oxford : Oxford University Press . In D.A. Isenberg, P. Maddison, P. Woo, D. Glass, & F.C. Breedveld (Eds), Oxford textbook of rheumatology (pp. 842–862).
  • Johnson , LM , Zautra , AJ and Davis , MC . 2006 . The role of illness uncertainty on coping with fibromyalgia symptoms . Health Psychology , 25 : 696 – 703 .
  • Kahneman , D and Tversky , A . 1982a . “ The simulation heuristic ” . In Judgment under uncertainty: Heuristics and biases , Edited by: Kahneman , D , Slovic , P and Tversky , A . New York, NY : Cambridge University Press .
  • Kahneman , D and Tversky , A . 1982b . Variants of uncertainty . Cognition , 11 : 143 – 157 .
  • Kang , Y , Daly , BJ and Kim , JS . 2004 . Uncertainty and its antecedents in patient with atrial fibrillation . Western Journal of Nursing Research , 26 : 770 – 783 .
  • Kasper , J , Geiger , F , Freiberger , S and Schmidt , A . 2008 . Decision-related uncertainties perceived by people with cancer – Modelling the subject of shared decision making . Psychoncology , 17 : 42 – 48 .
  • Klassen , AF , Pusic , AL , Scott , A , Jennifer , K and Cano , SJ . 2009 . Satisfaction and quality of life in women who undergo breast surgery: A qualitative study . BMC Women's Health , 9 : 11
  • Kuper , A , Reeves , S and Levinson , W . 2008 . An introduction to reading and appraising qualitative research . British Medical Journal , 337 : 404 – 409 .
  • Kvien , TK , Scherer , HU and Burmester , G-R . 2009 . “ Rheumatoid arthritis ” . In EULAR compendium on rheumatic diseases , Edited by: Bijlsma , JW . 61 – 81 . London : BMJ Publishing Group .
  • Lawrence , JS . 1961 . Prevalence of rheumatoid arthritis . Annals of Rheumatism Disease , 20 : 11 – 17 .
  • Lazarus , RS and Folkman , S . 1984 . Stress, appraisal, and coping , New York, NY : Springer .
  • Leventhal , H , Leventhal , EA and Cameron , L . 2001 . “ Representations, procedures and affect in illness self-regulation: A perceptual-cognitive model ” . In Handbook of health psychology , Edited by: Baum , A , Taylor , SE and Singer , JE . 19 – 47 . Mahwah , NJ : Lawrence Erlbaum .
  • Leventhal , H , Nerenz , RD and Steele , DJ . 1984 . “ Illness representations and coping with health threats ” . In Handbook of psychology and health: Social psychological aspects of health , Edited by: Baum , A , Taylor , SE and Singer , JE . 219 – 252 . Hillsdale , NJ : Lawrence Erlbaum .
  • Lynch , SG , Kroencke , DC and Denney , DR . 2001 . The relationship between disability and depression in multiple sclerosis: The role of uncertainty, coping and hope . Multiple Sclerosis , 7 : 411 – 416 .
  • Maini , RN and Feldmann , M . 2004 . “ Immunopathogenesis of rheumatoid arthritis in adults ” . In Oxford textbook of rheumatology , Edited by: Isenberg , DA , Maddison , P , Woo , P , Glass , D and Breedveld , FC . 677 – 697 . Oxford : Oxford University Press .
  • Mast , ME . 1995 . Adult uncertainty in illness: A critical review of research and theory for nursing practice . Research and Theory for Nursing Practice , 9 : 3 – 24 .
  • Mattsson , M , Möller , B , Stamm , T , Gards , G and Boström , C . 2012 . Uncertainty and opportunities in patients with established systemic lupus erythematosus: A qualitative study . Musculoskeletal Care , 10 ( 1 ) : 1 – 12 .
  • McCormick , KM , Naimark , BJ and Tate , RB . 2006 . Uncertainty, symptom distress, anxiety, and functional status in patients awaiting coronary artery bypass surgery . Heart Lung , 35 : 34 – 45 .
  • McElhone , K , Abbott , J and Teh , LS . 2006 . A review of health related quality of life in systemic lupus erythematosus . Lupus , 15 : 633 – 643 .
  • McNulty , K , Livnh , H and Wilson , LM . 2004 . Perceived uncertainty, spiritual well-being, and psychosocial adaptation in individuals with multiple sclerosis . Rehabilitation Psychology , 49 : 91 – 99 .
  • Mendelson , C . 2006 . Managing a medically and socially complex life: Women living with lupus . Qualitative Health Research , 16 : 982 – 997 .
  • Mishel , MH . 1981 . The measurement of uncertainty in illness . Nursing Research , 30 : 258 – 263 .
  • Mishel , MH . 1988 . Uncertainty in illness . Image: Journal of Nursing Scholarship , 20 : 225 – 231 .
  • Mishel , MH . 1990 . Reconceptualization of the uncertainty in illness theory . Journal of Nursing Scholarship , 22 : 256 – 262 .
  • Mishel , MH . 1999 . Uncertainty in chronic illness . Annual Review of Nursing Research , 7 : 269 – 294 .
  • Moos , RH . & Schaefer, J.A. (1984). The crisis of physical illness: An overview and conceptual approach. In R.H. Moos (Ed.), Coping with physical illness (pp. 3–25). New York, NY: Plenum
  • Mullins , LL , Chaney , JM , Pace , TM and Hartman , VL . 1997 . Illness uncertainty, attributional style, and psychological adjustment in older adolescents and young adults with asthma . Journal of Pediatric Psychology , 22 : 871 – 880 .
  • Mullins , LL , Cote , MP , Fuemmeler , BF , Jean , VM , Beatty , WW and Paul , RH . 2001 . Illness intrusiveness, uncertainty and distress in individuals with multiple sclerosis . Rehabilitation Psychology , 46 : 139 – 153 .
  • Neville , KL . 2003 . Uncertainty in illness, an integrative review . Orthopaedic Nursing , 22 : 206 – 214 .
  • Nyman , SC and Lutzen , K . 1999 . Caring needs of patients with rheumatoid arthritis . Nursing Science , 12 : 164 – 169 .
  • Pascual-Ramos , V , Contreras-Yanez , I , Villa , AR , Cabiedes , J and Rull-Gabayet , M . 2009 . Medication persistence over 2 years of follow-up in a cohort of early rheumatoid arthritis patients: Associated factors and relationship with disease activity and with disability . Arthritis Research and Therapy , 11 : R26
  • Politi , MC , Han , PKJ and Col , NF . 2007 . Communicating the uncertainty of harms and benefits of medical interventions . Medical Decision Making , 27 : 681 – 695 .
  • Pope , C , Ziebland , S and Mays , N . 2000 . Qualitative research in health care. Analyzing qualitative data . British Medical Journal , 320 : 114 – 116 .
  • Stockl , A . 2007 . Complex syndromes, ambivalent diagnosis, and existential uncertainty: The case of systemic lupus erythematosus (SLE) . Social Science & Medicine , 65 : 1549 – 1559 .
  • Taylor-Piliae , RE and Molassiotis , A . 2001 . An exploration of the relationships between uncertainty, psychological distress and type of coping strategy among Chinese men after cardiac catheterization . Issues and Innovations in Nursing Practice , 33 : 79 – 88 .
  • Teddlie , C and Yu , F . 2007 . Mixed methods sampling: A typology with examples . Journal of Mixed Methods Research , 1 : 77 – 100 .
  • van Pelt , JC , Mullins , LL , Carpentier , MY and Wolf-Christensen , C . 2006 . Brief report: Illness uncertainty and dispositional self-focus in adolescents and young adults with childhood-onset asthma . Journal of Pediatric Psychology , 31 : 840 – 845 .
  • Wallace , DJ . 2002 . “ The clinical presentation of systemic lupus erythematosus ” . In Dubois’ lupus erythematosus , Edited by: Wallace , DJ and Hahn , BH . 621 – 628 . Philadelphia, PA : Lippincott, Williams & Wilkins .
  • Weary , G and Edwards , JA . 1994 . Individual differences in causal uncertainty . Journal of Personality and Social Psychology , 67 : 308 – 318 .
  • Wells , G , Li , T , Maclean , R and Tugwell , P . 2008 . Responsiveness of patient reported outcomes including fatigue, sleep quality, activity limitation, and quality of life following treatment with abatacept for rheumatoid arthritis . Annals or Rheumatism Disease , 67 : 260 – 265 .
  • Wiener , CL . 1975 . The burden of rheumatoid arthritis: Tolerating the uncertainty . Social Science & Medicine , 9 : 97 – 104 .
  • Wiginton , KL . 1999 . Illness representations: Mapping the experience of lupus . Health Education & Behaviour , 26 : 443 – 453 .

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