2,871
Views
48
CrossRef citations to date
0
Altmetric
Articles

Day-to-day living with severe chronic obstructive pulmonary disease: Towards a family-based approach to the illness impacts

, , , &
Pages 967-983 | Received 18 Sep 2013, Accepted 04 Mar 2014, Published online: 03 Apr 2014

References

  • Barnett, M. (2005). Chronic obstructive pulmonary disease: A phenomenological study of patients’ experiences. Journal of Clinical Nursing, 14, 805–812. doi:10.1111/j.1365-2702.2005.01125.x
  • Bergs, D. (2002). ‘The hidden client’ – Women caring for husbands with COPD: Their experience of quality of life. Journal of Clinical Nursing, 11, 613–621. doi:10.1046/j.1365-2702.2002.00651.x
  • Booth, S., Silvester, S., & Todd, C. (2003). Breathlessness in cancer and chronic obstructive pulmonary disease: Using a qualitative approach to describe the experience of patients and carers. Palliative and Supportive Care, 1, 337–344. doi:10.1017/S1478951503030499
  • Boyle, A. H. (2009). An integrative review of the impact of COPD on families. Southern Online Journal of Nursing Research, 9(3), 1–12.
  • Cain, C. J., & Wicks, M. N. (2000). Caregiver attributes as correlates of burden in family caregivers coping with chronic obstructive pulmonary disease. Journal of Family Nursing, 6, 46–68. doi:10.1177/107484070000600104
  • Campbell, T. L. (2003). The effectiveness of family interventions for physical disorders. Journal of Marital and Family Therapy, 29, 263–281. doi:10.1111/j.1752-0606.1995.tb00178.x
  • Creswell, J. W., & Miller, D. L. (2000). Determining validity in qualitative inquiry. Theory into Practice, 39, 124–130. doi:10.1207/s15430421tip3903_2
  • Croog, S. H., Burleson, J. A., Sudilovsky, A., & Baume, R. M. (2006). Spouse caregivers of Alzheimer patients: Problem responses to caregiver burden. Aging and Mental Health, 10, 87–100. doi:10.1080/13607860500492498
  • Curtis, J. R., Wenrich, M. D., Carline, J. D., Shannon, S. E., Ambrozy, D. M., & Ramsey, P. G. (2002). Patients’ perspectives on physician skill in end-of-life care: Differences between patients with COPD, cancer, and AIDS. CHEST Journal, 122, 356–362. doi:10.1378/chest.122.1.356
  • Doherty, D. E., Belfer, M. H., Brunton, S. A., Fromer, L., Morris, C. M., & Snader, T. C. (2006). Chronic obstructive pulmonary disease: Consensus recommendations for early diagnosis and treatment. Journal of Family Practice, 55(suppl), S1–S8. Retrieved October 2011, from, http://www.jfponline.com/fileadmin/jfp_archive/uploadedFiles/Journal_Site_Files/Journal_of_Family_Practice/supplement_archive/JFPSupp_COPD_1106.pdf
  • Edwards, H., & Noller, P. (1998). Factors influencing caregiver–care receiver communication and its impact on the well-being older care receivers. Health Communication, 10, 317–341. doi:10.1207/s15327027hc1004_2
  • Ek, K., & Ternestedt, B.-M. (2008). Living with chronic obstructive pulmonary disease at the end of life: A phenomenological study. Journal of Advanced Nursing, 62, 470–478. doi:10.1111/j.1365-2648.2008.04611.x
  • Figueiredo, D., Gabriel, R., Jácome, C., & Marques, A. (2013). Caring for people with early and advanced chronic obstructive pulmonary disease: How do family carers cope? Journal of Clinical Nursing, 23, 211–220. doi:10.1111/jocn.12363
  • Fisher, L., & Weihs, K. L. (2000). Can addressing family relationships improve outcomes in chronic disease? Report of the national working group on family-based interventions in chronic disease. The Journal of Family Practice, 49, 561–566.
  • Gardiner, C., Gott, M., Payne, S., Small, N., Barnes, S., Halpin, D., … Seamark, D. (2010). Exploring the care needs of patients with advanced COPD: An overview of the literature. Respiratory Medicine, 104, 159–165. doi:10.1016/j.rmed.2009.09.007
  • Grant, M., Cavanagh, A., & Yorke, J. (2012). The impact of caring for those with chronic obstructive pulmonary disease (COPD) on carers’ psychological well-being: A narrative review. International Journal of Nursing Studies, 49, 1459–1471. doi:10.1016/j.ijnurstu.2012.02.010
  • Gullick, J. (2012). Psychosocial dimensions of COPD for the patient and family. In K.-C. Ong (Ed.), Chronic obstructive pulmonary disease – Current concepts and practice (pp. 153–178). Rijeka: InTech.
  • Hagedoorn, M., Kuijer, R. G., Buunk, B. P., DeJong, G. M., Wobbes, T., & Sanderman, R. (2000). Marital satisfaction in patients with cancer: Does support from intimate partners benefit those who need it most? Health Psychology, 19, 274–282. doi:10.1037/0278-6133.19.3.274
  • Herzer, M., Godiwala, N., Hommel, K. A., Driscoll, K., Mitchell, M., Crosby, L. E., … Modi, A. C. (2010). Family functioning in the context of pediatric chronic conditions. Journal of Developmental and Behavioral Pediatrics, 31, 26–34. doi:10.1097/DBP.0b013e3181c7226b
  • Holtzman, S., Abbey, S. E., Singer, L. G., Ross, H. J., & Stewart, D. E. (2011). Both patient and caregiver gender impact depressive symptoms among organ transplant caregivers: Who is at risk and why? Journal of Health Psychology, 16, 843–856. doi:10.1177/1359105310393542
  • Knafl, K. A., & Gilliss, C. L. (2002). Families and chronic illness: A synthesis of current research. Journal of Family Nursing, 8, 178–198. doi:10.1177/107484070200800302
  • Kramer, B. J. (1997). Differential predictors of strain and gain among husbands caring for wives with dementia. The Gerontologist, 37, 239–249. doi:10.1093/geront/37.2.239
  • Kuijer, R. G., Ybema, J. F., Buunk, B. P., De Jong, G. M., Thijs-Boer, F., & Sanderman, R. (2000). Active engagement, protective buffering, and overprotection: Three ways of giving support by intimate partners of patients with cancer. Journal of Social and Clinical Psychology, 19, 256–275. doi:10.1521/jscp.2000.19.2.256
  • Larsen, P. D. (2009). Chronicity. In I. M. Lubkin & P. D. Larsen (Eds.), Chronic illness: Impact and interventions (7th ed., pp. 3–25). Sudbury, MA: Jones and Bartlett.
  • Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. Beverly Hills, CA: Sage.
  • Martire, L. M., Lustig, A. P., Schulz, R., Miller, G. E., & Helgeson, V. S. (2004). Is it beneficial to involve a family member? A meta-analysis of psychosocial interventions for chronic illness. Health Psychology, 23, 599–611. doi:10.1037/0278-6133.23.6.599
  • Martire, L. M., Stephens, M. A. P., Druley, J. A., & Wojno, W. C. (2002). Negative reactions to received spousal care: Predictors and consequences of miscarried support. Health Psychology, 21, 167–176. doi:10.1037/0278-6133.21.2.167
  • Mathers, C. D., & Loncar, D. (2006). Projections of global mortality and burden of disease from 2002 to 2030. PLoS Medicine, 3, 2011–2030. doi:10.1371/journal.pmed.0030442
  • Meyrick, J. (2006). What is good qualitative research?: A first step towards a comprehensive approach to judging rigour/quality. Journal of Health Psychology, 11, 799–808. doi:10.1177/1359105306066643
  • Miles, M. B., & Huberman, M. (1994). Qualitative data analysis: An expanded sourcebook. Newbury Park, CA: Sage.
  • Miller, M. R., Hankinson, J., Brusasco, V., Burgos, F., Casaburi, R., Coates, A., … Wanger, J. (2005). Standardisation of spirometry. European Respiratory Journal, 26, 319–338. doi:10.1183/09031936.05.00034805
  • Moos, R. H., & Holahan, C. J. (2007). Adaptive tasks and methods of coping with illness and disability. In E. Martz & H. Livneh (Eds.), Coping with chronic illness and disability (pp. 107–126). New York, NY: Springer.
  • Patterson, J. M., & Garwick, A. W. (1994). The impact of chronic illness on families: A family systems perspective. Annals of Behavioral Medicine, 16, 131–142.
  • Pearlin, L. I., Mullan, J. T., Semple, S. J., & Skaff, M. M. (1990). Caregiving and the stress process: An overview of concepts and their measures. The Gerontologist, 30, 583–594. doi:10.1093/geront/30.5.583
  • Pinto, R. A., Holanda, M. A., Medeiros, M. M. C., Mota, R. M. S., & Pereira, E. D. B. (2007). Assessment of the burden of caregiving for patients with chronic obstructive pulmonary disease. Respiratory Medicine, 101, 2402–2408. doi:10.1016/j.rmed.2007.06.001
  • Rohrbaugh, M. J., Shoham, V., Coyne, J. C., Cranford, J. A., Sonnega, J. S., & Nicklas, J. M. (2004). Beyond the ‘self’ in self-efficacy: Spouse confidence predicts patient survival following heart failure. Journal of Family Psychology, 18, 184–193. doi:10.1037/0893-3200.18.1.184
  • Rolland, J. S. (1984). Toward a psychosocial typology of chronic and life-threatening illness. Family Systems Medicine, 2, 245–262. doi:10.1037/h0091663
  • Rolland, J. S. (1987). Chronic illness and the life cycle: A conceptual framework. Family Process, 26, 203–221. doi:10.1111/j.1545-5300.1987.00203.x
  • Rolland, J. S. (1994). Families, illness, and disability: An integrative treatment model. New York, NY: Basic Books.
  • Rolland, J. S. (1999). Parental illness and disability: A family systems framework. Journal of Family Therapy, 21, 242–266. doi:10.1111/1467-6427.00118
  • Rolland, J. S. (2003). Mastering family challenges in illness and disability. In F. Walsh (Ed.), Normal family processes (3rd ed., pp. 460-489). New York, NY: Guilford.
  • Rolland, J. S. (2005). Cancer and the family: An integrative model. Cancer, 104, 2584–2595. doi:10.1002/cncr.21489
  • Shields, C. G., Finley, M. A., Chawla, N., & Meadors, W. P. (2012). Couple and family interventions in health problems. Journal of Marital and Family Therapy, 38, 265–280. doi:10.1111/j.1752-0606.2011.00269.x
  • Sieh, D. S., Dikkers, A. L. C., Visser-Meily, J. M. A., & Meijer, A. M. (2012). Stress in adolescents with a chronically ill parent: Inspiration from Rolland’s family systems-illness model. Journal of Developmental and Physical Disabilities, 24, 591–606. doi:10.1007/s10882-012-9291-3
  • Simpson, A. C., Young, J., Donahue, M., & Rocker, G. (2010). A day at a time: Caregiving on the edge in advanced COPD. International Journal of Chronic Obstructive Pulmonary Disease, 5, 141–151. doi:10.2147/COPD.S9881
  • Spence, A., Hasson, F., Waldron, M., Kernohan, G., McLaughlin, D., Cochrane, B., & Watson, B. (2008). Active carers: Living with chronic obstructive pulmonary disease. International Journal of Palliative Nursing, 14, 368–372.
  • Thommessen, B., Aarsland, D., Braekhus, A., Oksengaard, A. R., Engedal, K., & Laake, K. (2002). The psychosocial burden on spouses of the elderly with stroke, dementia and Parkinson’s disease. International Journal of Geriatric Psychiatry, 17, 78–84. doi:10.1002/gps.524
  • Thompson, S. C., & Sobolew-Shubin, A. (1993). Overprotective relationships: A nonsupportive side of social networks. Basic and Applied Social Psychology, 14, 363–383. doi:10.1207/s15324834basp1403_8
  • Urcuyo, K. R., Boyers, A. E., Carver, C. S., & Antoni, M. H. (2005). Finding benefit in breast cancer: Relations with personality, coping, and concurrent well-being. Psychology and Health, 20, 175–192. doi:10.1080/08870440512331317634
  • Vestbo, J., Hurd, S. S., Agustí, A. G., Jones, P. W., Vogelmeier, C., Anzueto, A., … Rodriguez-Roisin, R. (2013). Global strategy for the diagnosis, management, and prevention of chronic obstructive pulmonary disease. American Journal of Respiratory and Critical Care Medicine, 187, 347–365. doi:10.1164/rccm.201204-0596PP
  • Walsh, F. (1996). The concept of family resilience: Crisis and challenge. Family Process, 35, 261–281. doi:10.1111/j.1545-5300.1996.00261.x
  • Walsh, F. (2002). A family resilience framework: Innovative practice applications. Family Relations, 51, 130–137. doi:10.1111/j.1741-3729.2002.00130.x
  • Walsh, F. (2003). Changing families in a changing world. In F. Walsh (Ed.), Normal family processes: Growing diversity and complexity (3rd ed., pp. 3–26). New York, NY: Guilford Press.
  • Weihs, K., Fisher, L., & Baird, M. (2002). Families, health, and behavior: A section of the commissioned report by the Committee on Health and Behavior: Research, Practice, and Policy Division of Neuroscience and Behavioral Health and Division of Health Promotion and Disease Prevention Institute of Medicine, National Academy of Sciences. Families, Systems, and Health, 20, 7–46.
  • Widows, M. R., Jacobsen, P. B., Booth-Jones, M., & Fields, K. K. (2005). Predictors of posttraumatic growth following bone marrow transplantation for cancer. Health Psychology, 24, 266–273. doi:10.1037/0278-6133.24.3.266
  • Williams, V., Bruton, A., Ellis-Hill, C., & McPherson, K. (2007). What really matters to patients living with chronic obstructive pulmonary disease? An exploratory study. Chronic Respiratory Disease, 4, 77–85. doi:10.1177/1479972307078482
  • World Health Organization. (2005). Preparing a health care workforce for the 21st century: The challenge of chronic conditions. Geneva: Author.
  • World Health Organization. (2007). Global surveillance, prevention and control of chronic respiratory diseases: A comprehensive approach. Geneva: Author.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.