Experiences and support needs of informal caregivers of people with multimorbidity: a scoping literature review

References

• Allen, A. P., Curran, E. A., Duggan, Á., Cryan, J. F., Chorcoráin, A. N., Dinan, T. G., … & Clarke, G. (2017). A systematic review of the psychobiological burden of informal caregiving for patients with dementia: Focus on cognitive and biological markers of chronic stress. Neuroscience & Biobehavioral Reviews, 73, 123–164. doi: 10.1016/j.neubiorev.2016.12.006
   PubMed Web of Science ®Google Scholar
• Arksey, H., & O'Malley, L. (2005). Scoping studies: Towards a methodological framework. International Journal of Social Research Methodology, 8(1), 19–32. doi: 10.1080/1364557032000119616
   Google Scholar
• Aschbacher, K., Mills, P. J., von Känel, R., Hong, S., Mausbach, B. T., Roepke, S. K., … & Grant, I. (2008). Effects of depressive and anxious symptoms on norepinephrine and platelet P-selectin responses to acute psychological stress among elderly caregivers. Brain, Behavior, and Immunity, 22(4), 493–502. doi: 10.1016/j.bbi.2007.10.002
   PubMed Web of Science ®Google Scholar
• Ashley, L., O'Connor, D. B., & Jones, F. (2011). Effects of emotional disclosure in caregivers: Moderating role of alexithymia. Stress and Health, 27(5), 376–387. doi: 10.1002/smi.1388
   Web of Science ®Google Scholar
• Bähler, C., Huber, C.A., Brüngger, B., & Reich, O. (2015). Multimorbidity, health care utilisation and costs in an elderly community-dwelling population: A claims data based observational study. BMC Health Services Research, 15(1), 23.
   PubMedGoogle Scholar
• Bayliss, E. A., Steiner, J. F., Fernald, D. H., Crane, L. A., & Main, D. S. (2003). Descriptions of barriers to self-care by persons with comorbid chronic diseases. The Annals of Family Medicine, 1(1), 15–21.
   PubMedGoogle Scholar
• *Biegel, D. E., Katz-Saltzman, S., Tracy, E. M., & Townsend, A. (2006). Predictors of dyadic relationship quality of women in substance abuse treatment. Journal of Dual Diagnosis, 3(1), 87–112. doi: 10.1300/J374v03n01_07
   Google Scholar
• Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi: 10.1191/1478088706qp063oa
   Google Scholar
• Buckner, L., & Yeandle, S. (2015). Valuing carers 2015: The rising value of carers support. London: Carers UK. Retrieved from: https://www.researchgate.net/publication/283726481_Valuing_Carers_2015_-_The_rising_value_of_carers'_support
   Google Scholar
• *Bunn, F., Burn, A-M., Robinson, L., Poole, M., Rait, G., Brayne, C. … & Goodman, C. (2017) Healthcare organisation and delivery for people with dementia and comorbidity: A qualitative study exploring the views of patients, carers and professionals. BMJ Open, 7(1), e013067.
   PubMed Web of Science ®Google Scholar
• Calderón-Larrañaga, A., Poblador-Plou, B., González-Rubio, F., Gimeno-Feliu, L. A., Abad-Díez, J. M., & Prados-Torres, A. (2012). Multimorbidity, polypharmacy, referrals, and adverse drug events: Are we doing things well?. British Journal of General Practice, 62(605), e821–e826. doi: 10.3399/bjgp12X659295
   PubMed Web of Science ®Google Scholar
• *Chia, Y. H., & Lunsky, Y. (2003). Dual diagnosis and access to services. Journal of Developmental Disabilities, 10, 79–82.
   Google Scholar
• *Clark, R. E. (1994). Family costs associated with severe mental illness and substance use. Hospital and Community Psychiatry, 45(8), 808–813.
   PubMedGoogle Scholar
• *Clark, R. E. (2001). Family support and substance use outcomes for persons with mental illness and substance use disorders. Schizophrenia Bulletin, 27(1), 93. doi: 10.1093/oxfordjournals.schbul.a006862
   PubMed Web of Science ®Google Scholar
• *Clark, R. E., & Drake, R. E. (1994). Expenditures of time and money by families of people with severe mental illness and substance use disorders. Community Mental Health Journal, 30(2), 145–163. doi: 10.1007/BF02188626
   PubMed Web of Science ®Google Scholar
• *Corvin, J., Chan, I., Tezak, A., Carpenter, K., Aguado Loi, C., Gonzales, J., & Hoare, I. (2017). Caring for individuals with chronic illness and minor depression: Latino perceptions of caregiver burden. Journal of Gerontological Social Work, 60(1), 79–95. doi: 10.1080/01634372.2016.1268230
   PubMed Web of Science ®Google Scholar
• *Dauphinot, V., Ravier, A., Novais, T., Delphin-Combe, F., Moutet, C., Xie, J., … & Krolak-Salmon, P. (2016). Relationship between comorbidities in patients with cognitive complaint and caregiver burden: A cross-sectional study. Journal of the American Medical Directors Association, 17(3), 232–237. doi: 10.1016/j.jamda.2015.10.011
   PubMedGoogle Scholar
• Deeken, J. F., Taylor, K. L., Mangan, P., Yabroff, K. R., & Ingham, J. M. (2003). Care for the caregivers: A review of self-report instruments developed to measure the burden, needs, and quality of life of informal caregivers. Journal of Pain and Symptom management, 26(4), 922–953. doi: 10.1016/S0885-3924(03)00327-0
   PubMed Web of Science ®Google Scholar
• Department of Health. (2012). Long term conditions compendium of information: third edition. Leeds, UK. Retrieved from: https://assets.publishing.service.gov.uk/government/uploads/system/uploads/attachment_data/file/216528/dh_134486.pdf
   Google Scholar
• Dixon-Woods, M., Agarwal, S., Jones, D., Young, B., & Sutton, A. (2005). Synthesising qualitative and quantitative evidence: A review of possible methods. Journal of Health Services Research & Policy, 10(1), 45–53. doi: 10.1177/135581960501000110
   PubMedGoogle Scholar
• Doessing, A., & Burau, V. (2015). Care coordination of multimorbidity: A scoping study. Journal of Comorbidity, 5, 15–28. doi: 10.15256/joc.2015.5.39
   PubMedGoogle Scholar
• *Doos, L., Bradley, E., Rushton, C. A., Satchithananda, D., Davies, S. J., & Kadam, U. T. (2014). Heart failure and chronic obstructive pulmonary disease multimorbidity at hospital discharge transition: A study of patient and carer experience. Health Expectations, 18(6), 2401–2412. doi: 10.1111/hex.12208
   PubMed Web of Science ®Google Scholar
• *Duggleby, W., Williams, A., Ghosh, S., Moquin, H., Ploeg, J., Markle-Reid, M., & Peacock, S. (2016). Factors influencing changes in health-related quality of life of caregivers of persons with multiple chronic conditions. Health and Quality of Life Outcomes, 14(1), 81.
   PubMedGoogle Scholar
• Duguay, C., Gallagher, F., & Fortin, M. (2014). The experience of adults with multimorbidity: A qualitative study. Journal of Comorbidity, 4, 11–21. doi: 10.15256/joc.2014.4.31
   PubMedGoogle Scholar
• *Ellis, K. R., Janevic, M. R., Kershaw, T., Caldwell, C. H., Janz, N. K., & Northouse, L. (2017). Meaning‐based coping, chronic conditions and quality of life in advanced cancer & caregiving. Psycho‐oncology, 26(9), 1316–1323. doi: 10.1002/pon.4146
   PubMed Web of Science ®Google Scholar
• *El-Mallakh, P., Yates, B. E., & Adkins, S. (2013). Family caregiving for adults with schizophrenia and diabetes mellitus. Issues in Mental Health Nursing, 34(8), 566–577. doi: 10.3109/01612840.2013.785615
   PubMed Web of Science ®Google Scholar
• *Espie, C. A., Watkins, J., Curtice, L., Espie, A., Duncan, R., Ryan, J. A., … & Sterrick, M. (2003). Psychopathology in people with epilepsy and intellectual disability; an investigation of potential explanatory variables. Journal of Neurology, Neurosurgery & Psychiatry, 74(11), 1485–1492. doi: 10.1136/jnnp.74.11.1485
   PubMed Web of Science ®Google Scholar
• Fortin, M., Soubhi, H., Hudon, C., Bayliss, E. A., & van den Akker, M. (2007). Multimorbidity's many challenges. BMJ: British Medical Journal, 334(7602), 1016. doi: 10.1136/bmj.39201.463819.2C
   Web of Science ®Google Scholar
• *García‐Fernández, F. P., Arrabal‐Orpez, M. J., Rodríguez‐Torres, M. D. C., Gila‐Selas, C., Carrascosa‐García, I., & Laguna‐Parras, J. M. (2014). Effect of hospital case‐manager nurses on the level of dependence, satisfaction and caregiver burden in patients with complex chronic disease. Journal of Clinical Nursing, 23(19-20), 2814–2821.
   PubMed Web of Science ®Google Scholar
• Garin, N., Koyanagi, A., Chatterji, S., Tyrovolas, S., Olaya, B., Leonardi, M., … & Haro, J. M. (2016). Global multimorbidity patterns: A cross-sectional, population-based, multi-country study. Journals of Gerontology Series A: Biomedical Sciences and Medical Sciences, 71(2), 205–214. doi: 10.1093/gerona/glv128
   PubMed Web of Science ®Google Scholar
• *Gill, A., Kuluski, K., Jaakkimainen, L., Naganathan, G., Upshur, R., & Wodchis, W. P. (2014). “Where Do We Go from Here?” Health system frustrations expressed by patients with multimorbidity, their caregivers and family physicians. Healthcare Policy, 9(4), 73–89.
   PubMedGoogle Scholar
• *Giovannetti, E. R., Reider, L., Wolff, J. L., Frick, K. D., Boult, C., Steinwachs, D., & Boyd, C. M. (2013). Do older patients and their family caregivers agree about the quality of chronic illness care?. International Journal for Quality in Health Care, 25(5), 515–524. doi: 10.1093/intqhc/mzt052
   PubMed Web of Science ®Google Scholar
• *Giovannetti, E. R., Wolff, J. L., Xue, Q. L., Weiss, C. O., Leff, B., Boult, C., … & Boyd, C. M. (2011). Difficulty assisting with health care tasks among caregivers of multimorbid older adults. Journal of General Internal Medicine, 27(1), 37–44. doi: 10.1007/s11606-011-1831-5
   PubMed Web of Science ®Google Scholar
• Girgis, A., Lambert, S. D., McElduff, P., Bonevski, B., Lecathelinais, C., Boyes, A., & Stacey, F. (2013). Some things change, some things stay the same: A longitudinal analysis of cancer caregivers' unmet supportive care needs. Psycho‐Oncology, 22(7), 1557–1564. doi: 10.1002/pon.3166
   PubMed Web of Science ®Google Scholar
• Glynn, L. G., Valderas, J. M., Healy, P., Burke, E., Newell, J., Gillespie, P., & Murphy, A. W. (2011). The prevalence of multimorbidity in primary care and its effect on health care utilization and cost. Family Practice, 28(5), 516–523. doi: 10.1093/fampra/cmr013
   PubMed Web of Science ®Google Scholar
• *González-Ortega, M., Gené-Badia, J., Kostov, B., García-Valdecasas, V., & Pérez-Martín, C. (2016). Randomized trial to reduce emergency visits or hospital admissions using telephone coaching to complex patients. Family Practice, 34(2), 219–226. doi: 10.1093/fampra/cmw119
   Web of Science ®Google Scholar
• Grant, M. J., & Booth, A. (2009). A typology of reviews: An analysis of 14 review types and associated methodologies. Health Information & Libraries Journal, 26(2), 91–108. doi: 10.1111/j.1471-1842.2009.00848.x
   PubMed Web of Science ®Google Scholar
• Gray, C. S., Miller, D., Kuluski, K., & Cott, C. (2014). Tying eHealth tools to patient needs: exploring the use of ehealth for community-dwelling patients with complex chronic disease and disability. JMIR Research Protocols, 3(4), e67.
   PubMedGoogle Scholar
• Guthrie, B., Makubate, B., Hernandez-Santiago, V., & Dreischulte, T. (2015). The rising tide of polypharmacy and drug-drug interactions: Population database analysis 1995–2010. BMC Medicine, 13(1), 74.
   PubMed Web of Science ®Google Scholar
• Hagger, M. S., Koch, S., Chatzisarantis, N. L., & Orbell, S. (2017). The common sense model of self-regulation: Meta-analysis and test of a process model. Psychological Bulletin, 143(11), 1117. doi: 10.1037/bul0000118
   PubMed Web of Science ®Google Scholar
• Halkett, G. K. B., Lobb, E. A., Shaw, T., Sinclair, M. M., Miller, L., Hovey, E., & Nowak, A. K. (2018). Do carer’s levels of unmet needs change over time when caring for patients diagnosed with high-grade glioma and how are these needs correlated with distress?. Supportive Care in Cancer, 26(1), 275–286. doi: 10.1007/s00520-017-3846-x
   PubMed Web of Science ®Google Scholar
• Harding, R., List, S., Epiphaniou, E., & Jones, H. (2012). How can informal caregivers in cancer and palliative care be supported? An updated systematic literature review of interventions and their effectiveness. Palliative Medicine, 26(1), 7–22. doi: 10.1177/0269216311409613
   PubMed Web of Science ®Google Scholar
• *Hjelm, M., Holmgren, A. C., Willman, A., Bohman, D., & Holst, G. (2015). Family members of older persons with multi-morbidity and their experiences of case managers in Sweden: an interpretive phenomenological approach. International Journal of Integrated Care, 15(1), e011.
   PubMedGoogle Scholar
• *Jowsey, T., Jeon, Y. H., Dugdale, P., Glasgow, N. J., Kljakovic, M., & Usherwood, T. (2009). Challenges for co-morbid chronic illness care and policy in Australia: A qualitative study. Australia and New Zealand Health Policy, 6(1), 22.
   PubMedGoogle Scholar
• Kim, Y., Carver, C. S., Rocha‐Lima, C., & Shaffer, K. M. (2013). Depressive symptoms among caregivers of colorectal cancer patients during the first year since diagnosis: A longitudinal investigation. Psycho‐Oncology, 22(2), 362–367.
   PubMed Web of Science ®Google Scholar
• Kingston, A., Robinson, L., Booth, H., Knapp, M., Jagger, C. (2018). Projections of multi-morbidity in the older population in England to 2035: Estimates from the Population Ageing and Care Simulation (PACSim) model. Age and ageing, 47(3), 374–380. doi: 10.1093/ageing/afx201
   PubMed Web of Science ®Google Scholar
• Koller, D., Schön, G., Schäfer, I., Glaeske, G., van den Bussche, H., & Hansen, H. (2014). Multimorbidity and long-term care dependency—a five-year follow-up. BMC Geriatrics, 14(1), 70.
   PubMedGoogle Scholar
• Koné Pefoyo, A.J., Bronskill, S.E., Gruneir, A., Calzavara, A., Thavorn K, Petrosyan, Y., … & Wodchis, W.P. (2015). The increasing burden and complexity of multimorbidity. BMC Public Health, 15, 415. doi: 10.1186/s12889-015-1733-2
   PubMed Web of Science ®Google Scholar
• Koroukian, S. M., Warner, D. F., Owusu, C., & Given, C. W. (2015). Multimorbidity redefined: Prospective health outcomes and the cumulative effect of co-occurring conditions. Preventing Chronic Disease, 12, e55.
   PubMed Web of Science ®Google Scholar
• *Kuluski, K., Gill, A., Naganathan, G., Upshur, R., Jaakkimainen, R. L., & Wodchis, W. P. (2013). A qualitative descriptive study on the alignment of care goals between older persons with multi-morbidities, their family physicians and informal caregivers. BMC Family Practice, 14(1), 133.
   PubMedGoogle Scholar
• Lavela, S. L., & Ather, N. (2010). Psychological health in older adult spousal caregivers of older adults. Chronic Illness, 6(1), 67–80. doi: 10.1177/1742395309356943
   PubMedGoogle Scholar
• *Lawrence, V., Murray, J., & Banerjee, S. (2009). “Out of sight, out of mind”: A qualitative study of visual impairment and dementia from three perspectives. International Psychogeriatrics, 21(3), 511–518. doi: 10.1017/S1041610209008424
   PubMed Web of Science ®Google Scholar
• *Lebrec, J., Ascher-Svanum, H., Chen, Y. F., Reed, C., Kahle-Wrobleski, K., Hake, A. M., … & Kendall, D. M. (2016). Effect of diabetes on caregiver burden in an observational study of individuals with Alzheimer’s disease. BMC Geriatrics, 16(1), 93.
   PubMedGoogle Scholar
• *Lee, V. Y., Seah, W. Y., Kang, A. W., Khoo, E. Y., Mooppil, N., & Griva, K. (2016). Managing multiple chronic conditions in Singapore–Exploring the perspectives and experiences of family caregivers of patients with diabetes and end stage renal disease on haemodialysis. Psychology & Health, 31(10), 1220–1236. doi: 10.1080/08870446.2016.1203921
   PubMed Web of Science ®Google Scholar
• Lehnert, T., Heider, D., Leicht, H., Heinrich, S., Corrieri, S., Luppa, M., … & König, H. H. (2011). Health care utilization and costs of elderly persons with multiple chronic conditions. Medical Care Research and Review, 68(4), 387–420. doi: 10.1177/1077558711399580
   PubMed Web of Science ®Google Scholar
• Levac, D., Colquhoun, H., & O’Brien, K. K. (2010). Scoping studies: Advancing the methodology. Implementation Science, 5(1), 1–9.
   PubMed Web of Science ®Google Scholar
• Liddy, C., Blazkho, V., & Mill, K. (2014). Challenges of self-management when living with multiple chronic conditions: Systematic review of the qualitative literature. Canadian Family Physician, 60(12), 1123–1133.
   PubMed Web of Science ®Google Scholar
• *Lo, C., Ilic, D., Teede, H., Cass, A., Fulcher, G., Gallagher, M., … & Polkinghorne, K. (2016). The perspectives of patients on health-care for Co-Morbid Diabetes and Chronic Kidney Disease: A qualitative study. PLoS One, 11(1), e0146615. doi: 10.1371/journal.pone.0146615
   PubMed Web of Science ®Google Scholar
• Lovell, B., & Wetherell, M. A. (2011). The cost of caregiving: Endocrine and immune implications in elderly and non elderly caregivers. Neuroscience & Biobehavioral Reviews, 35(6), 1342–1352. doi: 10.1016/j.neubiorev.2011.02.007
   PubMed Web of Science ®Google Scholar
• Maher, R. L., Hanlon, J., & Hajjar, E. R. (2014). Clinical consequences of polypharmacy in elderly. Expert Opinion on Drug Safety, 13(1), 57–65. doi: 10.1517/14740338.2013.827660
   PubMed Web of Science ®Google Scholar
• Marengoni, A., Angleman, S., Melis, R., Mangialasche, F., Karp, A., Garmen, A., … & Fratiglioni, L. (2011). Aging with multimorbidity: A systematic review of the literature. Ageing Research Reviews, 10(4), 430–439. doi: 10.1016/j.arr.2011.03.003
   PubMed Web of Science ®Google Scholar
• *Mason, B., Nanton, V., Epiphaniou, E., Murray, S. A., Donaldson, A., Shipman, C., … & Boyd, K. (2016). ‘My body’s falling apart.’ Understanding the experiences of patients with advanced multimorbidity to improve care: Serial interviews with patients and carers. BMJ Supportive & Palliative Care, 6, 60–65. doi: 10.1136/bmjspcare-2013-000639
   PubMed Web of Science ®Google Scholar
• *Matthews, T., Weston, N., Baxter, H., Felce, D., & Kerr, M. (2008). A general practice‐based prevalence study of epilepsy among adults with intellectual disabilities and of its association with psychiatric disorder, behaviour disturbance and carer stress. Journal of Intellectual Disability Research, 52(2), 163–173.
   PubMedGoogle Scholar
• *Mengoni, S. E., Gates, B., Parkes, G., Wellsted, D., Barton, G., Ring, H., … & Durand, M. A. (2016). “Sometimes, it just stops me from doing anything”: A qualitative exploration of epilepsy management in people with intellectual disabilities and their carers. Epilepsy & Behavior, 64, 133–139. doi: 10.1016/j.yebeh.2016.09.029
   PubMed Web of Science ®Google Scholar
• Mittelman, M. (2005). Taking care of the caregivers. Current Opinion in Psychiatry, 18(6), 633–639. doi: 10.1097/01.yco.0000184416.21458.40
   PubMed Web of Science ®Google Scholar
• Moffat, K., & Mercer, S. W. (2015). Challenges of managing people with multimorbidity in today's healthcare systems. BMC Family Practice, 16, 129. doi: 10.1186/s12875-015-0344-4
   PubMed Web of Science ®Google Scholar
• *Morales‐Asencio, J. M., Martin‐Santos, F., Kaknani, S., Morilla‐Herrera, J., Cuevas Fernández‐Gallego, M., García‐Mayor, S., … & Morales‐Gil, I. M. (2016). Living with chronicity and complexity: Lessons for redesigning case management from patients' life stories–a qualitative study. Journal of Evaluation in Clinical Practice, 22(1), 122–132. doi: 10.1111/jep.12300
   PubMed Web of Science ®Google Scholar
• Murphy, N. A., Christian, B., Caplin, D. A., & Young, P. C. (2007). The health of caregivers for children with disabilities: Caregiver perspectives. Child: Care, Health and Development, 33(2), 180–187. doi: 10.1111/j.1365-2214.2006.00644.x
   PubMed Web of Science ®Google Scholar
• National Alliance for Caregiving (2009). Caregiving in the U.S. 2009. Report. Retrieved from http://www.caregiving.org/data/Caregiving_in_the_US_2009_full_report.pdf
   Google Scholar
• National Institute for Health and Care Excellence. (2016). Multimorbidity: clinical assessment and management (NICE Guideline NG56). Retrieved from https://www.nice.org.uk/guidance/ng56
   Google Scholar
• *Nicholas, D. B., Calhoun, A., McLaughlin, A. M., Shankar, J., Kreitzer, L., & Uzande, M. (2017). Care experiences of adults with a dual diagnosis and their family caregivers. Global Qualitative Nursing Research, 4, 2333393617721646. doi: 10.1177/2333393617721646
   Web of Science ®Google Scholar
• Office for National Statistics (2013). 2011 Census. Detailed Characteristics for England and Wales. UK Data Service.
   Google Scholar
• Oken, B. S., Fonareva, I., & Wahbeh, H. (2011). Stress-related cognitive dysfunction in dementia caregivers. Journal of Geriatric Psychiatry and Neurology, 24(4), 191–198. doi: 10.1177/0891988711422524
   PubMed Web of Science ®Google Scholar
• Patterson, S. M., Hughes, C., Kerse, N., Cardwell, C. R., & Bradley, M. C. (2012). Interventions to improve the appropriate use of polypharmacy for older people. Cochrane Database of Systematic Reviews, 5(5).
   Google Scholar
• *Ploeg, J., Matthew-Maich, N., Fraser, K., Dufour, S., McAiney, C., Kaasalainen, S., … & Emili, A. (2017). Managing multiple chronic conditions in the community: A Canadian qualitative study of the experiences of older adults, family caregivers and healthcare providers. BMC Geriatrics, 17(1), 40.
   PubMed Web of Science ®Google Scholar
• Pluye, P., Gagnon, M. P., Griffiths, F., & Johnson-Lafleur, J. (2009). A scoring system for appraising mixed methods research, and concomitantly appraising qualitative, quantitative and mixed methods primary studies in Mixed Studies Reviews. International Journal of Nursing Studies, 46(4), 529–546. doi: 10.1016/j.ijnurstu.2009.01.009
   PubMed Web of Science ®Google Scholar
• Pluye, P., Robert, E., Cargo, M., Bartlett, G., O’Cathain, A., Griffiths, F., … & Rousseau, M. C. (2011). Proposal: A mixed methods appraisal tool for systematic mixed studies reviews. Retrieved 2018 from http://mixedmethodsappraisaltoolpublic.pbworks.com.
   Google Scholar
• Reeve, E., Wiese, M. D., Hendrix, I., Roberts, M. S., & Shakib, S. (2013). People's attitudes, beliefs, and experiences regarding polypharmacy and willingness to deprescribe. Journal of the American Geriatrics Society, 61(9), 1508–1514. doi: 10.1111/jgs.12418
   PubMed Web of Science ®Google Scholar
• Roland, K. P., Jenkins, M. E., & Johnson, A. M. (2010). An exploration of the burden experienced by spousal caregivers of individuals with Parkinson's disease. Movement Disorders, 25(2), 189–193. doi: 10.1002/mds.22939
   PubMed Web of Science ®Google Scholar
• Røthing, M., Malterud, K., & Frich, J. C. (2015). Balancing needs as a family caregiver in Huntington's disease: A qualitative interview study. Health & Social Care in the Community, 23(5), 569–576. doi: 10.1111/hsc.12174
   PubMed Web of Science ®Google Scholar
• Schuling, J., Gebben, H., Veehof, L. J. G., & Haaijer-Ruskamp, F. M. (2012). Deprescribing medication in very elderly patients with multimorbidity: The view of Dutch GPs. A qualitative study. BMC Family Practice, 13(1), 56.
   PubMedGoogle Scholar
• Signal, L., Semper, K., Stairmand, J., Davies, C., Millar, E., Dowell, T., … Sarfati, D. (2017). A walking stick in one hand and a chainsaw in the other: Patients’ perspectives of living with multimorbidity. New Zealand Medical Journal, 130, 65–76.
   PubMed Web of Science ®Google Scholar
• Sin, J., Gillard, S., Henderson, C., Spain, D., Cornelius, V., & Chen, T. (2018). eHealth interventions for family carers of people with long term illness: A promising approach?. Clinical Psychology Review, 60, 109–125. doi: 10.1016/j.cpr.2018.01.008
   PubMed Web of Science ®Google Scholar
• Sinnott, C., Mc Hugh, S., Browne, J., & Bradley, C. (2013). GPs’ perspectives on the management of patients with multimorbidity: Systematic review and synthesis of qualitative research. BMJ Open, 3(9), e003610. doi: 10.1136/bmjopen-2013-003610
   PubMed Web of Science ®Google Scholar
• Sklenarova, H., Krümpelmann, A., Haun, M. W., Friederich, H. C., Huber, J., Thomas, M., … & Hartmann, M. (2015). When do we need to care about the caregiver? Supportive care needs, anxiety, and depression among informal caregivers of patients with cancer and cancer survivors. Cancer, 121(9), 1513–1519.
   PubMed Web of Science ®Google Scholar
• St Sauver, J. L., Boyd, C. M., Grossardt, B. R., Bobo, W. V., Rutten, L. J. F., Roger, V. L., … & Rocca, W. A. (2015). Risk of developing multimorbidity across all ages in an historical cohort study: Differences by sex and ethnicity. BMJ Open, 5(2), e006413. doi: 10.1136/bmjopen-2014-006413
   PubMed Web of Science ®Google Scholar
• Thompson, C. A., Spilsbury, K., Hall, J., Birks, Y., Barnes, C., & Adamson, J. (2007). Systematic review of information and support interventions for caregivers of people with dementia. BMC Geriatrics, 7(1), 18.
   PubMedGoogle Scholar
• Tinetti, M. E., Fried, T. R., & Boyd, C. M. (2012). Designing health care for the most common chronic condition—multimorbidity. JAMA, 307(23), 2493–2494.
   PubMed Web of Science ®Google Scholar
• Tsulukidze, M., Durand, M. A., Barr, P. J., Mead, T., & Elwyn, G. (2014). Providing recording of clinical consultation to patients–a highly valued but underutilized intervention: A scoping review. Patient Education and Counselling, 95(3), 297–304. doi: 10.1016/j.pec.2014.02.007
   PubMed Web of Science ®Google Scholar
• Van Oostrom, S. H., Picavet, H. S. J., De Bruin, S. R., Stirbu, I., Korevaar, J. C., Schellevis, F. G., & Baan, C. A. (2014). Multimorbidity of chronic diseases and health care utilization in general practice. BMC family practice, 15, 61. doi: 10.1186/1471-2296-15-61
   PubMed Web of Science ®Google Scholar
• Van Ryn, M., Sanders, S., Kahn, K., Van Houtven, C., Griffin, J. M., Martin, M., … & Rowland, J. (2011). Objective burden, resources, and other stressors among informal cancer caregivers: A hidden quality issue?. Psycho‐Oncology, 20(1), 44–52. doi: 10.1002/pon.1703
   PubMed Web of Science ®Google Scholar
• Vogeli, C., Shields, A. E., Lee, T. A., Gibson, T. B., Marder, W. D., Weiss, K. B., & Blumenthal, D. (2007). Multiple chronic conditions: Prevalence, health consequences, and implications for quality, care management, and costs. Journal of General Internal Medicine, 22(3), 391–395. doi: 10.1007/s11606-007-0322-1
   PubMedGoogle Scholar
• Waldron, E. A., Janke, E. A., Bechtel, C. F., Ramirez, M., & Cohen, A. (2013). A systematic review of psychosocial interventions to improve cancer caregiver quality of life. Psycho-Oncology, 22(6), 1200–1207. doi: 10.1002/pon.3118
   PubMed Web of Science ®Google Scholar
• Wawrziczny, E., Antoine, P., Ducharme, F., Kergoat, M. J., & Pasquier, F. (2016). Couples' experiences with early-onset dementia: An interpretative phenomenological analysis of dyadic dynamics. Dementia, 15(5), 1082–1099. doi: 10.1177/1471301214554720
   PubMedGoogle Scholar
• *Williams, A., Sethi, B., Duggleby, W., Ploeg, J., Markle-Reid, M., Peacock, S., & Ghosh, S. (2016). A Canadian qualitative study exploring the diversity of the experience of family caregivers of older adults with multiple chronic conditions using a social location perspective. International Journal for Equity in Health, 15(1), 40.
   PubMedGoogle Scholar
• Wolderslund, M., Kofoed, P. E., Holst, R., & Ammentorp, J. (2015). Patients' use of digital audio recordings in four different outpatient clinics. International Journal for Quality in Health Care, 27(6), 466–472. doi: 10.1093/intqhc/mzv069
   PubMed Web of Science ®Google Scholar
• *Wolff, J. L., Giovannetti, E. R., Boyd, C. M., Reider, L., Palmer, S., Scharfstein, D., … & Frick, K. D. (2010). Effects of guided care on family caregivers. The Gerontologist, 50(4), 459–470. doi: 10.1093/geront/gnp124
   PubMed Web of Science ®Google Scholar
• *Wolff, J. L., Rand-Giovannetti, E., Palmer, S., Wegener, S., Reider, L., Frey, K., … & Boult, C. (2009). Caregiving and chronic care: The guided care program for families and friends. Journals of Gerontology Series A: Biomedical Sciences and Medical Sciences, 64(7), 785–791. doi: 10.1093/gerona/glp030
   PubMed Web of Science ®Google Scholar
• Wong, M. C., Liu, J., Zhou, S., Li, S., Su, X., Wang, H. H., … & Lau, J. T. (2014). The association between multimorbidity and poor adherence with cardiovascular medications. International journal of cardiology, 177(2), 477–482. doi: 10.1016/j.ijcard.2014.09.103
   PubMed Web of Science ®Google Scholar
• Zulman, D. M., Jenchura, E. C., Cohen, D. M., Lewis, E. T., Houston, T. K., & Asch, S. M. (2015). How can eHealth technology address challenges related to multimorbidity? Perspectives from patients with multiple chronic conditions. Journal of General Internal Medicine, 30(8), 1063–1070.
   PubMed Web of Science ®Google Scholar