References
- Afseth, J., Neubeck, L., Karatzias, T., & Grant, R. (2019). Holistic needs assessment in brain cancer patients: A systematic review of available tools. European Journal of Cancer Care, 28(3), e12931. https://doi.org/https://doi.org/10.1111/ecc.12931
- Ahnen, D. J., Ade, S. W., Jones, W. F., Sifri, R., Silveiras, J. M., Greenamyer, J., Guiffre, S., Axilbund, J., Spiegel, A., & You, Y. N. (2014). The increasing incidence of young-onset colorectal cancer: A call to action. Mayo Clinic Proceedings, 89(2), 216–224. https://doi.org/https://doi.org/10.1016/j.mayocp.2013.09.006
- All.Can. (2019). Patient insights on cancer care: Opportunities for improving efficiency: Findings from the international All.Can patient survey. https://www.all-can.org/reports/all-can-patient-survey/
- Anderson, A. S., Steele, R., & Coyle, J. (2013, January 1). Lifestyle issues for colorectal cancer survivors-perceived needs, beliefs and opportunities. Support Care Cancer, 21(1), 35–42. https://doi.org/https://doi.org/10.1007/s00520-012-1487-7
- Appleton, L., Goodlad, S., Irvine, F., Poole, H., & Wall, C. (2013). Patients' experiences of living beyond colorectal cancer: A qualitative study. European Journal of Oncology Nursing : The Official Journal of European Oncology Nursing Society, 17(5), 610–617. https://doi.org/https://doi.org/10.1016/j.ejon.2013.01.002
- Bains, M., Munir, F., Yarker, J., Steward, W., & Thomas, A. (2011). Return-to-work guidance and support for colorectal cancer patients: A feasibility study. Cancer Nursing, 34(6), E1–E12. https://doi.org/https://doi.org/10.1097/NCC.0b013e31820a4c68
- Beaver, K., Latif, S., Williamson, S., Procter, D., Sheridan, J., Heath, J., Susnerwala, S., & Luker, K. (2010). An exploratory study of the follow-up care needs of patients treated for colorectal cancer. Journal of Clinical Nursing, 19(23–24), 3291–3300. https://doi.org/https://doi.org/10.1111/j.1365-2702.2010.03407.x
- Berman, R., Davies, A., Cooksley, T., Gralla, R., Carter, L., Darlington, E., Scotté, F., & Higham, C. (2020). Supportive care: An indispensable component of modern oncology. Clinical Oncology, 32(11), 781–788. https://doi.org/https://doi.org/10.1016/j.clon.2020.07.020
- Blows, E., Bird, L., Seymour, J., & Cox, K. (2012). Liminality as a framework for understanding the experience of cancer survivorship: A literature review. Journal of Advanced Nursing, 68(10), 2155–2164. https://doi.org/https://doi.org/10.1111/j.1365-2648.2012.05995.x
- Boulton, M., Adams, E., Horne, A., Durrant, L., Rose, P., & Watson, E. (2015). A qualitative study of cancer survivors' responses to information on the long-term and late effects of pelvic radiotherapy 1-11 years post treatment . European Journal of Cancer Care, 24(5), 734–747. https://doi.org/https://doi.org/10.1111/ecc.12356
- Bregendahl, S., Emmertsen, K. J., Lindegaard, J. C., & Laurberg, S. (2015). Urinary and sexual dysfunction in women after resection with and without preoperative radiotherapy for rectal cancer: A population-based cross-sectional study . Colorectal Disease : The Official Journal of the Association of Coloproctology of Great Britain and Ireland, 17(1), 26–37. https://doi.org/https://doi.org/10.1111/codi.12758
- Brown, S., Greenfield, D., & Thompson, J. (2016). Knowledge and awareness of long-term and late treatment consequences amongst colorectal cancer survivors: A qualitative study. European Journal of Oncology Nursing : The Official Journal of European Oncology Nursing Society, 20, 191–198. https://doi.org/https://doi.org/10.1016/j.ejon.2015.08.005
- Browne, S., Dowie, A., Mitchell, E., Mitchell, L., Wyke, S., Ziebland, S., Campbell, N., & Macleod, U. (2011). Patients' needs following colorectal cancer diagnosis: Where does primary care fit in? The British Journal of General Practice : The Journal of the Royal College of General Practitioners, 61(592), e692–ee699. https://doi.org/https://doi.org/10.3399/bjgp11X606582
- Brummell, S., Tod, A. M., McDonnell, A., Guerin, M., Beattie, V., & Ibbotson, R. (2015). An evaluation of the role of support workers in lung cancer. Cancer Nursing Practice, 14(1), 22–27. https://doi.org/https://doi.org/10.7748/cnp.14.1.22.e1147
- Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health & Illness, 4(2), 167–182. https://doi.org/https://doi.org/10.1111/1467-9566.ep11339939
- Cancer Research UK. (2018). Cancer statistics for the UK. Retrieved June 14 2018 from http://www.cancerresearchuk.org/health-professional/cancer-statistics-for-the-uk
- Cancer Research UK. (2020). Worldwide cancer statistics. Retrieved May 1 2020 from http://www.cancerresearchuk.org/health-professional/cancer-statistics/worldwide-cancer
- Charmaz, K. (1983). Loss of self: A fundemental form of sufering in the chronically ill. Sociology of Health and Illness, 5(2), 168–195. https://doi.org/https://doi.org/10.1111/1467-9566.ep10491512
- Cheung, Y. L., Molassiotis, A., & Chang, A. M. (2003). The effect of progressive muscle relaxation training on anxiety and quality of life after stoma surgery in colorectal cancer patients. Psycho-Oncology, 12(3), 254–266. https://doi.org/https://doi.org/10.1002/pon.638
- Chow, S. L., Ting, A. S., & Su, T. T. (2014). Development of conceptual framework to understand factors associated with return to work among cancer survivors: A systematic review. Iranian Journal of Public Health, 43(4), 391–405. https://europepmc.org/article/PMC/5395904
- Clarke, A. L., Roscoe, J., Appleton, R., Parashar, D., Muthuswamy, R., Khan, O., Dale, J., & Nanton, V. (2020). Promoting integrated care in prostate cancer through online prostate cancer-specific holistic needs assessment: A feasibility study in primary care. Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer, 28(4), 1817–1827. https://doi.org/https://doi.org/10.1007/s00520-019-04967-y
- Critical Appraisal Skills Programme. (2018). CASP qualitative study checklist. http://www.casp-uk.net/checklists
- Custers, J. A. E., Gielissen, M. F. M., Janssen, S. H. V., de Wilt, J. H. W., & Prins, J. B. (2016). Fear of cancer recurrence in colorectal cancer survivors | SpringerLink. Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer, 24(2), 555–562. https://doi.org/https://doi.org/10.1007/s00520-015-2808-4
- den Bakker, C. M., Schaafsma, F. G., Huirne, J. A. F., Consten, E. C. J., Stockmann, H. B. A. C., Rodenburg, C. J., de Klerk, G. J., Bonjer, H. J., & Anema, J. R. (2018). Cancer survivors' needs during various treatment phases after multimodal treatment for colon cancer - is there a role for eHealth? BMC Cancer, 18(1), 1–12. https://doi.org/https://doi.org/10.1186/s12885-018-5105-z
- DeSnoo, L., & Faithfull, S. (2006). A qualitative study of anterior resection syndrome: The experiences of cancer survivors who have undergone resection surgery. European Journal of Cancer Care, 15(3), 244–251. https://doi.org/https://doi.org/10.1111/j.1365-2354.2005.00647.x
- Drageset, S., Lindstrøm, T. C., & Underlid, K. (2016). I just have to move on”: Women's coping experiences and reflections following their first year after primary breast cancer surgery. European Journal of Oncology Nursing, 21, 205–211. https://doi.org/https://doi.org/10.1016/j.ejon.2015.10.005
- Faul, L. A., Rivers, B., Shibata, D., Townsend, I., Cabrera, P., Quinn, G. P., & Jacobsen, P. B. (2012). Survivorship care planning in colorectal cancer: Feedback from survivors & providers. Journal of Psychosocial Oncology, 30(2), 198–216. https://doi.org/https://doi.org/10.1080/07347332.2011.651260
- Favoriti, P., Carbone, G., Greco, M., Pirozzi, F., Pirozzi, R. E. M., & Corcione, F. (2016). Worldwide burden of colorectal cancer: A review. Updates in Surgery, 68(1), 7–11. https://doi.org/https://doi.org/10.1007/s13304-016-0359-y
- Foster, C., & Fenlon, D. (2011). Recovery and self-management support following primary cancer treatment. British Journal of Cancer, 105(S1), S21–S28. https://doi.org/https://doi.org/10.1038/bjc.2011.419
- Gilbert, E., Ussher, J. M., & Perz, J. (2013). Embodying sexual subjectivity after cancer: A qualitative study of people with cancer and intimate partners. Psychology & Health, 28(6), 603–619. (https://doi.org/https://doi.org/10.1080/08870446.2012.737466
- Gruß, I., Hanson, G., Bradley, C., McMullen, C., Ritzwoller, D., Hodge, S., Varga, A., & Banegas, M. P. (2019). Colorectal cancer survivors' challenges to returning to work: A qualitative study. European Journal of Cancer Care, 28(4), e13044. https://doi.org/https://doi.org/10.1111/ecc.13044
- Hardcastle, S. J., Maxwell-Smith, C., Hagger, M. S., O'Connor, M., & Platell, C. (2018). Exploration of information and support needs in relation to health concerns, diet and physical activity in colorectal cancer survivors. European Journal of Cancer Care, 27(1), e12679. https://doi.org/https://doi.org/10.1111/ecc.12679
- Hardcastle, S. J., Maxwell-Smith, C., Zeps, N., Platell, C., O'Connor, M., & Hagger, M. S. (2017). A qualitative study exploring health perceptions and factors influencing participation in health behaviors in colorectal cancer survivors. Psycho-oncology, 26(2), 199–205. https://doi.org/https://doi.org/10.1002/pon.4111
- Haviland, J., Sodergren, S., Calman, L., Corner, J., Din, A., Fenlon, D., Grimmett, C., Richardson, A., Smith, P. W., Winter, J., & Foster, C. (2017). Social support following diagnosis and treatment for colorectal cancer and associations with health‐related quality of life: Results from the UK ColoREctal Wellbeing (CREW) cohort study - Haviland - 2017 - Psycho-Oncology - Wiley Online Library. Psycho-Oncology, 26(12), 2276–2284. https://doi.org/https://doi.org/10.1002/pon.4556
- Ho, M. Y., McBride, M. L., Gotay, C., Grunfeld, E., Earle, C. C., Relova, S., Tsonis, M., Ruan, J. Y., Chang, J. T., & Cheung, W. Y. (2016). A qualitative focus group study to identify the needs of survivors of stage II and III colorectal cancer. Psycho-Oncology, 25(12), 1470–1476. https://doi.org/https://doi.org/10.1002/pon.3988
- Hoedjes, M., de Kruif, A., Mols, F., Bours, M., Beijer, S., Winkels, R., Westerman, M. J., Seidell, J. C., & Kampman, E. (2017). An exploration of needs and preferences for dietary support in colorectal cancer survivors: A mixed-methods study. PLOS One, 12(12), e0189178. https://doi.org/https://doi.org/10.1371/journal.pone.0189178
- Hubbard, G., Kidd, L., & Kearney, N. (2010). Disrupted lives and threats to identity: The experiences of people with colorectal cancer within the first year following diagnosis. Health & Social Care in the Community, 14(2), 131–146.
- Independent Cancer Taskforce. (2015). Achieving world class cancer outcomes: A strategy for England 2015–2020. www.cancerresearchuk.org
- Jakobsson, J., Idvall, E., & Kumlien, C. (2017). The lived experience of recovery during the first 6 months after colorectal cancer surgery. Journal of Clinical Nursing, 26(23–24), 4498–4505. https://doi.org/https://doi.org/10.1111/jocn.13780
- Jiwa, M., Saunders, C. M., Thompson, S. C., Rosenwax, L. K., Sargant, S., Khong, E. L., Halkett, G. K. B., Sutherland, G., Ee, H. C., Packer, T. L., Merriman, G., & Arnet, H. R. (2008). Timely cancer diagnosis and management as a chronic condition: Opportunities for primary care. The Medical Journal of Australia, 189(2), 78–82. https://doi.org/https://doi.org/10.5694/j.1326-5377.2008.tb01921.x
- Jones, M., & Pietilä, I. (2020). Expertise, advocacy and activism: A qualitative study on the activities of prostate cancer peer support workers. Health (London, England : 1997)), 24(1), 21–37. https://doi.org/https://doi.org/10.1177/1363459318785711
- Kent, E. E., Arora, N. K., Rowland, J. H., Bellizzi, K. M., Forsythe, L. P., Hamilton, A. S., Oakley-Girvan, I., Beckjord, E. B., & Aziz, N. M. (2012). Health information needs and health-related quality of life in a diverse population of long-term cancer survivors. Patient Education and Counseling, 89(2), 345–352. https://doi.org/https://doi.org/10.1016/j.pec.2012.08.014
- Koch, L., Jansen, H., Brenner, H., & Arndt, V. (2013). Fear of recurrence and disease progression in long‐term (≥5 years) cancer survivors—A systematic review of quantitative studies. Psycho-Oncology, 22(1), 1–11. https://doi.org/https://doi.org/10.1002/pon.3022
- McGeechan, G. J., McPherson, K. E., & Roberts, K. (2018). An interpretative phenomenological analysis of the experience of living with colorectal cancer as a chronic illness. Journal of Clinical Nursing, 27(15–16), 3148–3156. https://doi.org/https://doi.org/10.1111/jocn.14509
- Mititelu, R., Aruljothy, A., & Fitzpatrick, T. R. (Ed.). (2016). Physical activity, locus of control, and fear of recurrence among cancer survivors from a community-based cancer support program. In Treating Vulnerable Populations of Cancer Survivors: A Biopsychosocial Approach (pp. 93–110). Springer, Cham. https://doi.org/https://doi.org/10.1007/978-3-319-32364-0_7.
- Mullens, A. B., McCaul, K. D., Erickson, S. C., & Sandgren, A. K. (2003). Coping after cancer: Risk perceptions, worry, and health behaviors among colorectal cancer survivors. Psycho‐Oncology: Journal of the Psychological, Social and Behavioral Dimensions of Cancer, 16(6), 367–376.
- Muntlin Athlin, Å., Brovall, M., Wengström, Y., Conroy, T., & Kitson, A. L. (2018). Descriptions of fundamental care needs in cancer care-An exploratory study. Journal of Clinical Nursing, 27(11–12), 2322–2332. https://doi.org/https://doi.org/10.1111/jocn.14251
- Navon, L., & Morag, A. (2004). Liminality as biographical disruption: Unclassifiability following hormonal therapy for advanced prostate cancer. Social Science & Medicine (1982)), 58(11), 2337–2347. https://doi.org/https://doi.org/10.1016/j.socscimed.2003.08.029
- Palmer, N. R. A., Bartholomew, L. K., McCurdy, S. A., Basen-Engquist, K. M., & Naik, A. D. (2013). Transitioning from active treatment: Colorectal cancer survivors' health promotion goals. Palliative & Supportive Care, 11(2), 101–109. https://doi.org/https://doi.org/10.1017/S1478951512000788
- Parton, C., Ussher, J. M., & Perz, J. (2019). Hope, burden or risk: A discourse analytic study of the construction and experience of fertility preservation in the context of cancer. Psychology & Health, 34(4), 422–456. https://doi.org/https://doi.org/10.1080/08870446.2018.1543764
- Playdon, M., Ferrucci, L. M., McCorkle, R., Stein, K. D., Cannady, R., Sanft, T., & Cartmel, B. (2016). Health information needs and preferences in relation to survivorship care plans of long-term cancer survivors in the American Cancer Society’s Study of Cancer Survivors-I | SpringerLink. Journal of Cancer Survivorship, 10(4), 674–685. https://doi.org/https://doi.org/10.1007/s11764-015-0513-4
- Ramirez, M., Altschuler, A., McMullen, C., Grant, M., Hornbrook, M., & Krouse, R. (2014). “I didn't feel like I was a person anymore”: Realigning full adult personhood after ostomy surgery. Medical Anthropology Quarterly, 28(2), 242–259. https://doi.org/https://doi.org/10.1111/maq.12095
- Restivo, A., Zorcolo, L., D'Alia, G., Cocco, F., Cossu, A., Scintu, F., & Casula, G. (2016). Risk of complications and long-term functional alterations after local excision of rectal tumors with transanal endoscopic microsurgery (TEM). International Journal of Colorectal Disease, 31(2), 257–266. https://doi.org/https://doi.org/10.1007/s00384-015-2371-y
- Rosman, S. (2004). Cancer and stigma: Experience of patients with chemotherapy-induced alopecia. Patient Education and Counseling, 52(3), 333–339. https://doi.org/https://doi.org/10.1016/S0738-3991(03)00040-5
- Salamonsen, A., Kiil, M. A., Kristoffersen, A. E., Stub, T., & Berntsen, G. R. (2016). “My cancer is not my deepest concern”: Life course disruption influencing patient pathways and health care needs among persons living with colorectal cancer. Patient Preference and Adherence, 10, 1591–1600. https://doi.org/https://doi.org/10.2147/PPA.S108422
- Saunders, S., & Brunet, J. (2019). A qualitative study exploring what it takes to be physically active with a stoma after surgery for rectal cancer. Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer, 27(4), 1481–1489. https://doi.org/https://doi.org/10.1007/s00520-018-4516-3
- Savard, J., & Ivers, H. (2013). The evolution of fear of cancer recurrence during the cancer care trajectory and its relationship with cancer characteristics. Journal of Psychosomatic Research, 74(4), 354–360. https://doi.org/https://doi.org/10.1016/j.jpsychores.2012.12.013
- Shay, L. A., Carpentier, M. Y., & Vernon, S. W. (2016). Prevalence and correlates of fear of recurrence among adolescent and young adult versus older adult post-treatment cancer survivors | SpringerLink. Supportive Care in Cancer, 24(11), 4689–4696. https://doi.org/https://doi.org/10.1007/s00520-016-3317-9
- Steele, N., Haigh, R., Knowles, G., & Mackean, M. (2007). Carcinoembryonic antigen (CEA) testing in colorectal cancer follow up: What do patients think? Postgraduate Medical Journal, 83(983), 612–614. https://doi.org/https://doi.org/10.1136/pgmj.2007.059634
- Sterba, K. R., Zapka, J., LaPelle, N., Armeson, K., & Ford, M. E. (2015, December 01). A Formative study of colon cancer surveillance care: Implications for survivor-centered interventions. Journal of Cancer Education : The Official Journal of the American Association for Cancer Education, 30(4), 719–727. https://doi.org/https://doi.org/10.1007/s13187-014-0756-1
- Stuhlfauth, S., Melby, L., & Hellesø, R. (2018). Everyday life after colon cancer: The visible and invisible challenges. Cancer Nursing, 41(6), E48–E57. https://doi.org/https://doi.org/10.1097/NCC.0000000000000506
- Sun, V., Grant, M., McMullen, C. K., Altschuler, A., Mohler, M. J., Hornbrook, M. C., Herrinton, L. J., Baldwin, C. M., & Krouse, R. S. (2013, January–February). Surviving colorectal cancer: Long-term, persistent ostomy-specific concerns and adaptations. Journal of Wound, Ostomy, and Continence Nursing : Official Publication of the Wound, Ostomy and Continence Nurses Society, 40(1), 61–72. https://doi.org/https://doi.org/10.1097/WON.0b013e3182750143
- Sun, V., Grant, M., McMullen, C. K., Altschuler, A., Mohler, M. J., Hornbrook, M. C., Herrinton, L. J., & Krouse, R. S. (2014, June 1). From diagnosis through survivorship: Health-care experiences of colorectal cancer survivors with ostomies. Supportive Care in Cancer : Official Journal of the Multinational Association of Supportive Care in Cancer, 22(6), 1563–1570. https://doi.org/https://doi.org/10.1007/s00520-014-2118-2
- Taylor, C., Cummings, R., & McGilly, C. (2012). Holistic needs assessment following colorectal cancer treatment. Gastrointestinal Nursing, 10(9), 42–49. https://doi.org/https://doi.org/10.12968/gasn.2012.10.9.42
- Thomas, J., & Harden, A. (2008). Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Medical Research Methodology, 8(1), 45. https://doi.org/https://doi.org/10.1186/1471-2288-8-45
- Tong, A., Flemming, K., McInnes, E., Oliver, S., & Craig, J. (2012). Enhancing transparency in reporting the synthesis of qualitative research: ENTREQ. BMC Med Res Methodol, 12(1), 181. https://doi.org/https://doi.org/10.1186/1471-2288-12-181
- Tritter, J. Q., & Calnan, M. (2002). Cancer as a chronic illness? Reconsidering categorization and exploring experience. European Journal of Cancer Care, 11(3), 161–165. https://doi.org/https://doi.org/10.1046/j.1365-2354.2002.00345.x
- Trusson, D., Pilnick, A., & Roy, S. (2016). A new normal?: Women's experiences of biographical disruption and liminality following treatment for early stage breast cancer. Social Science & Medicine (1982)), 151, 121–129. https://doi.org/https://doi.org/10.1016/j.socscimed.2016.01.011
- Turner, V. (1969). Liminality and communitas. The Ritual Process: Structure and anti-Structure, 94(113), 125–130.
- Urquhart, R., Folkes, A., Babineau, J., & Grunfeld, E. (2012). Views of breast and colorectal cancer survivors on their routine follow-up care. Current Oncology (Toronto, Ont.).), 19(6), 294–301. https://doi.org/https://doi.org/10.3747/co.19.1051
- Wallston, B. S., & Wallston, K. A. (1978). Locus of control and health: A review of the literature. Health Education Monographs, 6(2), 107–117. https://doi.org/https://doi.org/10.1177/109019817800600102
- Wang, J. W., Shen, Q., Ding, N., Zhang, T. R., Yang, Z. Q., Liu, C., Chen, S. J., Berry, H. L., Yuan, Z. P., & Yu, J. M. (2016). A qualitative exploration of the unmet psychosocial rehabilitation needs of cancer survivors in China. Psycho-Oncology, 25(8), 905–912. https://doi.org/https://doi.org/10.1002/pon.4023
- Wells, M., Semple, C. J., & Lane, C. (2015). A national survey of healthcare professionals' views on models of follow-up, holistic needs assessment and survivorship care for patients with head and neck cancer. European Journal of Cancer Care, 24(6), 873–883. https://doi.org/https://doi.org/10.1111/ecc.12285
- Wieldraaijer, T., Duineveld, L. A. M., Donkervoort, S. C., Busschers, W. B., van Weert, H. C. P. M., & Wind, J. (2018). Colorectal cancer patients' preferences for type of caregiver during survivorship care. Scandinavian Journal of Primary Health Care, 36(1), 14–19. https://doi.org/https://doi.org/10.1080/02813432.2018.1426141
- Wilson, C., Giles, K., Nettelbeck, T., & Hutchinson, A. (2018). Locus of control, optimism, and recollections of depression and self‐reported cognitive functioning following treatment for colorectal cancer - Wilson - 2018 - Psycho-Oncology - Wiley Online Library. Psycho-Oncology, 27(2), 676–682. https://doi.org/https://doi.org/10.1002/pon.4567
- Zamanzadeh, V., Valizadeh, L., Rahmani, A., Zirak, M., & Desiron, H. (2018). Cancer survivors' experiences of return to work: A qualitative study. Psycho-Oncology, 27(10), 2398–2404. https://doi.org/https://doi.org/10.1002/pon.4840