228
Views
1
CrossRef citations to date
0
Altmetric
Letter

The role of pain rehabilitation in an adolescent sickle cell disease population: a case series

ORCID Icon, ORCID Icon & ORCID Icon
Pages 637-644 | Received 08 Jan 2020, Accepted 24 Apr 2020, Published online: 13 May 2020

References

  • Hassell KL. Population estimates of sickle cell disease in the U.S. Am J Prev Med. 2010;38(4):S512–S521. doi:10.1016/j.amepre.2009.12.022.
  • Yawn BP, Buchanan GR, Afenyi-Annan AN, et al. Management of sickle cell disease: summary of the 2014 evidence-based report by expert panel members. JAMA. 2014;312(10):1033–1048. doi:10.1001/jama.2014.10517.
  • Smith WR, Penberthy LT, Bovbjerg VE, et al. Daily assessment of pain in adults with sickle cell disease. Ann Intern Med. 2008;148(2):94–101. doi:10.7326/0003-4819-148-2-200801150-00004.
  • Dampier C, Palermo TM, Darbari DS, Hassell K, Smith W, Zempsky W. AAPT diagnostic criteria for chronic sickle cell disease pain. J Pain. 2017;18(5):4890–4898.
  • Dampier C. New and emerging treatments for vaso-occlusive pain in sickle cell disease. Expert Rev Hematol. 2019;12(10):857–872. doi:10.1080/17474086.2019.1649131.
  • Bou-Maroun LM, Meta F, Hanba CJ, Campbell AD, Yanik GA. An analysis of inpatient pediatric sickle cell disease: Incidence, costs, and outcomes. Pediatr Blood Cancer. 2018;65(1):e26758. doi:10.1002/pbc.26758.
  • Brandow AM, DeBaun MR. Key components of pain management for children and adults with sickle cell disease.  Hematol Oncol Clin North Am. 2018;32(3):535–550. doi:10.1016/j.hoc.2018.01.014.
  • Field JJ, Ballas SK, Campbell CM, et al. AAAPT diagnostic criteria for acute sickle cell disease pain.  J Pain. 2019;20(7):746–759. doi:10.1016/j.jpain.2018.12.003.
  • Campbell CM, Moscou-Jackson G, Carrol CP, et al. An evaluation of central sensitization in patients with sickle cell disease. J Pain. 2016;17(5):617–627. doi:10.1016/j.jpain.2016.01.475.
  • Rees DC, Olujohungbe AD, Parker NE, Stephens AD, Telfer P, Wright J. Guidelines for the management of the acute painful crisis in sickle cell disease. Br J Haematol. 2003;120(5):744–752. doi:10.1046/j.1365-2141.2003.04193.x.
  • Walker LS, Greene JW. The functional disability inventory: measuring a neglected dimension of child health status. J Pediatr Psychol. 1991;16(1):39–58. doi:10.1093/jpepsy/16.1.39.
  • Lynch-Jordan AM, Sil S, Peugh J, Cunningham N, Kashikar-Zuck S, Goldschneider KR. Differential changes in functional disability and pain intensity over the course of psychological treatment for children with chronic pain. Pain. 2014;155(10):1955–1961. doi:10.1016/j.pain.2014.06.008.
  • Connolly ME, Bills SE, Hardy SJ. Neurocognitive and psychological effects of persitant pain in pediatric sickle cell disease. Pediatr Blood Cancer. 2019;66(9):e27823. doi:10.1002/pbc.27823.
  • Sil S, Cohen LL, Dampier C. Psychosocial and functional outcomes in youth with chronic sickle cell pain. Clin J Pain. 2016;32(6):527–533.
  • Karlson CW, Baker AM, Bromberg MH, Elkin TD, Majumdar S, Palermo TM. Daily pain, physical activity, and home fluid intake in pediatric sickle cell disease. J Pediatr Psychol. 2017;1(3):335–344. 42
  • Darbari DS, Ballas SK, Clauw K. Thinking beyond sickling to better understand pain in sickle cell disease. Eur J Haematol. 2014;93(2):89–95. doi:10.1111/ejh.12340.
  • Harrison LE, Pate JW, Richardson PA, Ickmans K, Wicksell RK, Simons LE. Best-evidence for the rehabilitation of chronic pain part 1: pediatric pain. JCM. 2019;8(9):1267. doi:10.3390/jcm8091267.
  • Stahlschmidt L, Zernikow B, Wager J. Specialized rehabilitation programs for children and adolescents with severe disabling chronic pain: indications, treatment and outcomes. Children. 2016;3(4):33. doi:10.3390/children3040033.
  • Balsamo L, Shabanova V, Carbonella J, et al. Improving care for sickle cell pain crisis using a multidisciplinary approach. Pediatrics. 2019;143(5):e20182218. doi:10.1542/peds.2018-2218.
  • Hechler T, Ruhe AK, Schmidt P, et al. Inpatient-based intensive interdisciplinary pain treatment for highly impaired children with severe chronic pain: randomized controlled trial of efficacy and economic effects. Pain. 2014;155(1):118–128.
  • Evans JR, Benore E, Banez GA. The cost-effectiveness of intensive interdisciplinary pediatric chronic pain rehabilitation. J Pediatr Psychol. 2016;41(8):849–856. doi:10.1093/jpepsy/jsv100.
  • Williams SE, Homan KJ, Crowley SL, et al. The Impact of spatial distribution of pain on long term trajectories for chronic pain outcomes after intensive interdisciplinary pain treatment. Clin J Pain. 2020;16(3):181–188.
  • Kashikar-Zuck S, Flowers SR, Claar RL, et al. Clinical utility and validity of the Functional Disability Inventory among a multicenter sample of youth with chronic pain. Pain. 2011;152(7):1600–1607. doi:10.1016/j.pain.2011.02.050.
  • Von Baeyer CL, Spagrud LJ, McCormick JC, Choo E, Neville K, Connelly MA. Three new datasets supporting use of the Numerical Rating Scale (NRS-11) for children’s self-reports of pain intensity. Pain. 2009;143(3):223–227.
  • Salaffi F, Stancati A, Silvestri CA, Ciapetti A, Grassi W. Minimal clinically important changes in chronic musculoskeletal pain intensity measured on a numerical rating scale. Eur J Pain Lond Engl. 2004;8(4):283–291. doi:10.1016/j.ejpain.2003.09.004.
  • Sil S, Arnold LM, Lynch-Jordan A, et al. Identifying treatment responders and predictors of improvement after cognitive-behavioral therapy for juvenile fibromyalgia. Pain. 2014;155(7):1206–1212. doi:10.1016/j.pain.2014.03.005.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.