2,381
Views
37
CrossRef citations to date
0
Altmetric
Articles

The Psychological and Health Consequences of Caring for a Spouse With Dementia: A Critical Comparison of Husbands and Wives

, , , , , & show all

REFERENCES

  • Acton , G. J. 2002 . Health-promoting self-care in family caregivers . Western Journal of Nursing Research , 24 ( 1 ) : 73 – 86 .
  • Arai , Y. , Sugiura , M. , Miura , H. , Washio , M. and Kudo , K. 2000 . Undue concern for other's opinions deters caregivers of impaired elderly from using public services in rural Japan . International Journal of Geriatric Psychiatry , 15 ( 10 ) : 961 – 968 .
  • Batt-Leiba , M. I. , Hills , G. A. , Johnson , P. M. and Bloch , E. 1998 . Implications of coping strategies for spousal caregivers of elders with dementia . Topics in Geriatric Rehabilitation , 14 ( 1 ) : 54 – 62 .
  • Bédard , M. , Chambers , L. , Molloy , D. W. , Lever , J. A. , Stones , M. J. and Martin , N. J. 1999 . The impact of Alzheimer's disease on caregivers is gender-specific . Annals of the Royal College of Physicians and Surgeons of Canada , 32 : 21 – 28 .
  • Bédard , M. , Kuzik , R. , Chambers , L. , Molloy , D. W. , Dubois , S. and Lever , J. A. 2005 . Understanding burden differences between men and women caregivers: The contribution of care recipient problem behaviors . International Psychogeriatrics , 17 ( 1 ) : 1 – 20 . doi: 10.1017/S1041610204000857
  • Bédard , M. , Molloy , D. W. , Pedlar , D. , Lever , J. A. and Stones , M. J. 1997 . Associations between dysfunctional behaviors, gender and burden in spousal caregivers of cognitively impaired older adults . International Psychogeriatrics , 9 : 277 – 290 .
  • Bédard , M. , Molloy , D. W. , Squire , L. , Dubois , S. , Lever , J. A. and O'Donnell , M. 2001 . The Zarit Burden Interview: A new short version and screening version . The Gerontologist , 41 : 652 – 657 . doi: 10.1093/geront/41.5.652
  • Bédard , M. , Pedlar , D. , Martin , N. J. , Malott , O. and Stones , M. J. 2000 . Burden in caregivers of cognitively impaired older adults living in the community: Methodological issues and determinants . International Psychogeriatrics , 12 : 307 – 332 .
  • Bédard , M. , Raney , D. , Molloy , D. W. , Lever , J. , Pedlar , D. and Dubois , S. 2001 . The experience of primary and secondary caregivers caring for the same adult with Alzheimer's disease . Journal of Mental Health and Aging , 7 : 287 – 296 .
  • Bertrand , R. M. , Fredman , L. and Saczynski , J. 2006 . Are all caregivers created equal? Stress in caregivers to adults with and without dementia . Journal of Aging and Health , 18 ( 4 ) : 534 – 551 .
  • Biegel , D. E. , Bass , D. B. , Schulz , R. and Morycz , R. 1993 . Predictors of in-home and out-of-home service use by caregivers of Alzheimer's disease patients . Journal of Aging and Health , 5 ( 4 ) : 419 – 438 . doi: 10.1177/089826439300500401
  • Brazier , J. , Jones , N. and Kind , P. 1993 . Testing the validity of the euroqol and comparing it with the SF-36 health survey questionnaire . Quality of Life Research: An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation , 2 ( 3 ) : 169 – 180 .
  • Buono , M. D. , Busato , R. , Mazzetto , M. , Paccagnella , B. , Aleotti , F. , Zanetti , O., … and De Leo , D. 1999 . Community care for patients with Alzheimer's disease and non-demented elderly people: Use and satisfaction with services and unmet needs in family caregivers . International Journal of Geriatric Psychiatry , 14 : 915 – 924 .
  • Cahill , S. and Shapiro , M. 1993 . “I think he might have hit me once”: Aggression towards caregivers in dementia care . Australian Journal on Ageing , 12 ( 4 ) : 10 – 15 .
  • Campbell , P. , Wright , J. , Oyebode , J. , Job , D. , Crome , P. , Bentham , P., … and Lendon , C. 2008 . Determinants of burden in those who care for someone with dementia . International Journal of Geriatric Psychiatry , 23 ( 10 ) : 1078 – 1085 .
  • Canadian Study on Health and Aging . 1994 . Canadian Study of Health and Aging: Study methods and prevalence of dementia . Canadian Medical Association Journal , 150 : 899 – 912 .
  • Clyburn , L. D. , Stones , M. J. , Hadjistavropoulos , T. and Tuokko , H. 2000 . Predicting caregiver burden and depression in Alzheimer's disease . Journals of Gerontology Series B: Psychological Sciences and Social Sciences , 55 ( 1 ) : S2 – 13 .
  • Coen , R. F. , Swanwick , G. R. J. , O'Boyle , C. A. and Coakley , D. 1997 . Behavior disturbance and other predictors of carer burden in Alzheimer's disease . International Journal of Geriatric Psychiatry , 12 : 331 – 336 .
  • Cohen-Mansfield , J. , Marx , M. S. and Rosenthal , A. S. 1989 . A description of agitation in a nursing home . Journal of Gerontology , 44 ( 3 ) : M77 – 84 .
  • Cohen-Mansfield , J. , Werner , P. , Watson , V. and Pasis , S. 1995 . Agitation among elderly persons at adult day-care centers: The experiences of relatives and staff members . International Psychogeriatrics , 7 ( 3 ) : 447 – 458 .
  • Collins , C. and Jones , R. 1997 . Emotional distress and morbidity in dementia carers: A matched comparison of husbands and wives . International Journal of Geriatric Psychiatry , 12 : 1168 – 1173 .
  • Cranswick, K.Dosman, D.2008Eldercare: What we know today. http://www.statcan.gc.ca/pub/11-008-x/2008002/article/10689-eng.pdf (http://www.statcan.gc.ca/pub/11-008-x/2008002/article/10689-eng.pdf)
  • Croog , S. H. , Sudilovsky , A. , Burleson , J. A. and Baume , R. M. 2001 . Vulnerability of husband and wife caregivers of Alzheimer disease patients to caregiving stressors . Alzheimer Disease & Associated Disorders , 15 ( 4 ) : 201 – 210 .
  • Cullen , J. S. , Grayson , D. A. and Jorm , A. F. 1997 . Clinical diagnosis and disability of cognitively impaired older persons as predictors of stress in their carers . International Journal of Geriatric Psychiatry , 12 : 1019 – 1028 .
  • Dahlem , N. W. , Zimet , G. D. and Walker , R. R. 1991 . The multidimensional scale of perceived social support: A confirmation study . Journal of Clinical Psychology , 47 ( 6 ) : 756 – 761 .
  • Eastley , R. and Wilcock , G. K. 1997 . Prevalence and correlates of aggressive behaviours occurring in patients with Alzheimer's disease . International Journal of Geriatric Psychiatry , 12 : 484 – 487 .
  • Eker , D. and Arkar , H. 1995 . Perceived social support: Psychometric properties of the MSPSS in normal and pathological groups in a developing country . Social Psychiatry and Psychiatric Epidemiology , 30 ( 3 ) : 121 – 126 .
  • Folstein , M. F. , Folstein , S. E. and McHugh , P. R. 1975 . “Mini-mental state”: A practical method for grading the cognitive state of patients for the clinician . Journal of Psychiatric Research , 12 : 189 – 198 .
  • Gallicchio , L. , Siddiqi , N. , Langenberg , P. and Baumgarten , M. 2002 . Gender differences in burden and depression among informal caregivers of demented elders in the community . International Journal of Geriatric Psychiatry , 17 : 154 – 163 .
  • Gaugler , J. E. , Davey , A. , Pearlin , L. I. and Zarit , S. H. 2000 . Modeling caregiver adaptation over time: The longitudinal impact of behavior problems . Psychology and Aging , 15 ( 3 ) : 437 – 450 .
  • Gilleard , C. J. , Belford , H. , Gilleard , E. , Whittick , J. E. and Gledhill , K. 1984 . Emotional distress amongst the supporters of the elderly mentally infirm . British Journal of Psychiatry , 145 : 172 – 177 .
  • Goode , K. T. , Haley , W. E. , Roth , D. L. and Ford , G. R. 1998 . Predicting longitudinal changes in caregiver physical and mental health: A stress process model . Health Psychology , 17 ( 2 ) : 190 – 198 .
  • Guberman , N. , Maheu , P. and Maille , C. 1992 . Women as family caregivers: Why do they care? . The Gerontologist , 32 ( 5 ) : 607 – 617 .
  • Hamel , M. , Gold , D. P. , Andres , D. , Reis , M. , Dastoor , D. , Grauer , H. and Bergman , H. 1990 . Predictors and consequences of aggressive behavior by community-based dementia patients . The Gerontologist , 30 ( 2 ) : 206 – 211 .
  • Haywood , K. L. , Garratt , A. M. and Fitzpatrick , R. 2005 . Quality of life in older people: A structured review of generic self-assessed health instruments . Quality of Life Research : An International Journal of Quality of Life Aspects of Treatment, Care and Rehabilitation , 14 ( 7 ) : 1651 – 1668 .
  • Hébert , R. , Bravo , G. and Préville , M. 2000 . Reliability, validity and reference values of the zarit Burden Interview for assessing informal caregivers of community-dwelling older persons with dementia . Canadian Journal on Aging , 19 ( 4 ) : 494 – 507 .
  • Hepburn , K. W. , Tornatore , J. , Center , B. and Ostwald , S. W. 2001 . Dementia family caregiver training: Affecting beliefs about caregiving and caregiver outcomes . Journal of the American Geriatrics Society , 49 : 450 – 457 .
  • Hogan , D. B. , Jennett , P. , Freter , S. , Bergman , H. , Chertkow , H. , Gold , S. and Clarfield , A. M. 2001 . Recommendations of the Canadian Consensus Conference on Dementia—Dissemination, implementation, and evaluation of impact . Canadian Journal of Neurological Science , 28 : S115 – 121 .
  • Kane , R. and Kane , R. 2000 . Assessing older persons: Measures, meaning, and practical applications , New York , NY : Oxford University Press .
  • Kim , Y. and Schulz , R. 2008 . Family caregivers’ strains: Comparative analysis of cancer caregiving with dementia, diabetes, and frail elderly caregiving . Journal of Aging and Health , 20 ( 5 ) : 483 – 503 .
  • Lawton , M. P. and Brody , E. M. 1969 . Assessment of older people: Self-maintaining and instrumental activities of daily living . The Gerontologist , 9 ( 3 ) : 179 – 186 .
  • Leinonen , E. , Korpisammal , L. , Pulkkinen , L. M. and Pukuri , T. 2001 . The comparison of burden between caregiving spouses of depressive and demented patients . International Journal of Geriatric Psychiatry , 16 : 387 – 393 .
  • Levesque , L. , Cossette , S. and Laurin , L. 1995 . A multidimensional examination of the psychological and social well-being of caregivers of a demented relative . Research on Aging , 17 ( 3 ) : 332 – 360 .
  • McHorney , C. A. , Kosinski , M. and Ware , J. E. Jr. 1994 . Comparisons of the costs and quality of norms for the SF-36 health survey collected by mail versus telephone interview: Results from a national survey . Medical Care , 32 ( 6 ) : 551 – 567 .
  • McKhann , G. , Drachman , D. , Folstein , M. F. , Katzman , R. , Price , D. and Stadlan , E. M. 1984 . Clinical diagnosis of Alzheimer's disease: Report of the NINCDS-ADRDA work group under the auspices of the Department of Health and Human Services Task Force on Alzheimer's Disease . Neurology , 34 : 939 – 944 .
  • Miller , B. and Cafasso , L. 1992 . Gender differences in caregiving: Fact or artifact? . The Gerontologist , 32 : 498 – 507 .
  • Miller , B. and Guo , S. 2000 . Social support for spouse caregivers of persons with dementia . Journal of Gerontology: Social Sciences , 55B ( 3 ) : S163 – S172 .
  • Miller , B. , Townsend , A. , Carpenter , E. , Montgomery , R. V. J. , Stull , D. and Young , R. F. 2001 . Social support and caregiver distress: A replication analysis . Journal of Gerontology: Social Sciences , 56B ( 4 ) : S249 – S256 .
  • Molloy , D. W. , Alemayehu , E. and Roberts , R. 1991 . Reliability of a standardized mini-mental state examination compared with the traditional mini-mental state examination . The American Journal of Psychiatry , 148 ( 1 ) : 102 – 105 .
  • Nagatomo , I. , Akasaki , Y. , Uchida , M. , Tominaga , M. , Hashiguchi , W. and Takigawa , M. 1999 . Gender of demented patients and specific family relationship of caregiver to patients influence mental fatigue and burdens on relatives as caregivers . International Journal of Geriatric Psychiatry , 14 : 618 – 625 .
  • Neal , M. B. , Ingersoll-Dayton , B. and Starrels , M. E. 1997 . Gender and relationship differences in caregiving patterns and consequences among employed caregivers . The Gerontologist , 37 ( 6 ) : 804 – 816 .
  • Office of Technological Assessment . 1990 . Confused minds, burdened families: Finding help for people with Alzheimer's disease and other dementias. (No. OTA-BA-403) , Washington , DC : U.S. Government Printing Office .
  • Ory , M. G. , Hoffman , R. R. I. , Yee , J. L. , Tennstedt , S. and Schulz , R. 1999 . Prevalence and impact of caregiving: A detailed comparison between dementia and nondementia caregivers . The Gerontologist , 39 ( 2 ) : 177 – 185 .
  • Pimlott , N. J. , Siegel , K. , Persaud , M. , Slaughter , S. , Cohen , C. , Hollingworth , G., … and Eliasziw , T. 2006 . Management of dementia by family physicians in academic settings . Canadian Family Physician Medecin de Famille Canadien , 52 ( 9 ) : 1108 – 1109 .
  • Radloff , L. S. 1977 . The CES-D scale: A self-report depression scale for research in the general population . Applied Psychological Measurement , 1 ( 3 ) : 385 – 401 .
  • Robinson , K. M. , Adkisson , P. and Weinrich , S. 2001 . Problem behavior, caregiver reactions, and impact among caregivers of persons with Alzheimer's disease . Journal of Advanced Nursing , 36 ( 4 ) : 573 – 582 .
  • Ros , L. , Latorre , J. M. , Aguilar , M. J. , Serrano , J. P. , Navarro , B. and Ricarte , J. J. 2011 . Factor structure and psychometric properties of the Center for Epidemiologic Studies Depression Scale (CES-D) in older populations with and without cognitive impairment . International Journal of Aging & Human Development , 72 ( 2 ) : 83 – 110 .
  • Rosen , C. S. , Chow , H. C. , Greenbaum , M. A. , Finney , J. F. , Moos , R. H. , Sheikh , J. I. and Yesavage , J. A. 2002 . How well are clinicians following dementia practice guidelines? . Alzheimer Disease & Associated Disorders , 16 ( 1 ) : 15 – 23 .
  • Schoenmakers , B. , Buntinx , F. and Delepeleire , J. 2010 . Factors determining the impact of care-giving on caregivers of elderly patients with dementia. A systematic literature review . Maturitas , 66 ( 2 ) : 191 – 200 . doi: 10.1016/j.maturitas.2010.02.009
  • Schulz , R. and Beach , S. R. 1999 . Caregiving as a risk factor for mortality: The caregiver health effects study . Journal of the American Medical Association , 282 ( 23 ) : 2215 – 2219 .
  • Shanks-McElroy , H. A. and Strobino , J. 2001 . Male caregivers of spouses with Alzheimer's disease: Risk factors and health status . American Journal of Alzheimer's Disease and Other Dementias , 16 ( 3 ) : 167 – 175 .
  • Sorensen , S. , Pinquart , M. and Duberstein , P. 2002 . How effective are interventions with caregivers? An updated meta-analysis . The Gerontologist , 42 ( 3 ) : 356 – 372 .
  • Stanley , M. A. , Beck , J. G. and Zebb , B. J. 1996 . Psychometric properties of four anxiety measures in older adults . Behaviour Research and Therapy , 34 ( 10 ) : 827 – 838 .
  • Steadman , P. L. , Tremont , G. and Davis , J. D. 2007 . Premorbid relationship satisfaction and caregiver burden in dementia caregivers . Journal of Geriatric Psychiatry and Neurology , 20 ( 2 ) : 115 – 119 .
  • Third Canadian Consensus Conference on Diagnosis and Treatment of Dementia2007146 approved recommendations. http://www.cccdtd.ca/pdfs/Final_Recommendations_CCCDTD_2007.pdf (http://www.cccdtd.ca/pdfs/Final_Recommendations_CCCDTD_2007.pdf)
  • Torti , F. M. Jr. , Gwyther , L. P. , Reed , S. D. , Friedman , J. Y. and Schulman , K. A. 2004 . A multinational review of recent trends and reports in dementia caregiver burden . Alzheimer Disease and Associated Disorders , 18 ( 2 ) : 99 – 109 .
  • Walker , S. N. , Sechrist , K. R. and Pender , N. J. 1987 . The health-promoting lifestyle profile: Development and psychometric characteristics . Nursing Research , 36 ( 2 ) : 76 – 81 .
  • Ware , J., Jr. , Kosinski , M. and Keller , S. D. 1996 . A 12-item short-form health survey: Construction of scales and preliminary tests of reliability and validity . Medical Care , 34 ( 3 ) : 220 – 233 .
  • Ware , J. E. and Kosinski , M. 2001 . “ mental health summary: A manual for users of version 1 ” . In SF-36 physical and , Lincoln , RI : QualityMetric .
  • Whitlatch , C. J. , Zarit , S. H. and Von Eye , A. 1991 . Efficacy of interventions with caregivers: A reanalysis . The Gerontologist , 31 : 9 – 14 .
  • Wijeratne , C. and Lovestone , S. 1996 . A pilot study comparing psychological and physical morbidity in carers of elderly people with dementia and those with depression . International Journal of Geriatric Psychiatry , 11 : 741 – 744 .
  • Yeager , C. A. , Hyer , L. A. , Hobbs , B. and Coyne , A. C. 2010 . Alzheimer's disease and vascular dementia: The complex relationship between diagnosis and caregiver burden . Issues in Mental Health Nursing , 31 ( 6 ) : 376 – 384 . doi: 10.3109/01612840903434589
  • Yee , J. L. and Schulz , R. 2000 . Gender differences in psychiatric morbidity among family caregivers: A review and analysis . The Gerontologist , 40 ( 2 ) : 147 – 164 .
  • Zimet , G. D. , Dahlem , N. W. , Zimet , S. G. and Farley , G. K. 1988 . The multidimensional scale of perceived social support . Journal of Personality Assessment , 52 ( 1 ) : 30 – 41 .
  • Zuidema , S. U. , de Jonghe , J. F. , Verhey , F. R. and Koopmans , R. T. 2009 . Predictors of neuropsychiatric symptoms in nursing home patients: Influence of gender and dementia severity . International Journal of Geriatric Psychiatry , 24 ( 10 ) : 1079 – 1086 . doi: 10.1002/gps.2225

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.