1,809
Views
1
CrossRef citations to date
0
Altmetric
Articles

Healthcare professionals’ perceptions of dignity-preserving care for older home-dwelling women with incurable cancer in Norway

ORCID Icon, , ORCID Icon, & ORCID Icon

References

  • The Act on medical and health research (the Health Research Act). (2008). [Lov om medisinsk og helsefaglig forskning (helseforskningsloven)]. Retrieved February 7, 2021, from https://www.regjeringen.no/no/dokumenter/helseforskningsloven/id570542/
  • Atkinson, P., & Coffey, A. (2003). Revisiting the relationship between participant observation and interviewing. In Postmodern interviewing (pp. 109–122). Gubrium, J.F., & Holstein, J.A. (Eds.), SAGE Publications, Inc., https://doi.org/10.4135/9781412985437
  • Baillie, L., Gallagher, A., & Wainwright, P. (2008). Defending dignity in care: Challenges and opportunities for nurses. Royal College of Nursing.
  • Barclay, L. (2016). In sickness and in dignity: A philosophical account of the meaning of dignity in health care. International Journal of Nursing Studies 2016, 61: 136–141. https://doi.org/10.1016/j.ijnurstu.2016.06.010
  • Bartz, D., Chitnis, T., Kaiser, U. B., Rich-Edwards, J. W., Rexrode, K. M., Pennell, P. B., … Manson, J. E. (2020). Clinical advances in sex- and gender-informed medicine to improve the health of all: A review. JAMA Internal Medicine, 180(4), 574–583. https://doi.org/10.1001/jamainternmed.2019.7194
  • Berglund, H., Dunér, A., Blomberg, S., & Kjellgren, K. (2012). Care planning at home: A way to increase the influence of older people? International Journal of Integrated Care, 12(5), e134. https://doi.org/10.5334/ijic.817
  • Bovero, A., Sedghi, N. A., Botto, R., Tosi, C., Ieraci, V., & Torta, R. (2018). Dignity in cancer patients with a life expectancy of a few weeks. Implementation of the factor structure of the patient dignity inventory and dignity assessment for a patient-centered clinical intervention: A cross-sectional study. Palliative and Supportive Care, 16(6), 648–655. https://doi.org/10.1017/s147895151700102x
  • Bray, F., Ferlay, J., Soerjomataram, I., Siegel, R. L., Torre, L. A., & Jemal, A. (2018). Global cancer statistics 2018: GLOBOCAN estimates of incidence and mortality worldwide for 36 cancers in 185 countries. CA: A Cancer Journal for Clinicians, 68(6), 394–424. https://doi.org/10.3322/caac.21492
  • Brinkmann, S. (2015). InterViews : Learning the craft of qualitative research interviewing (3rd ed.). Sage.
  • Cain, J. M., & Denny, L. (2018). Palliative care in women’s cancer care: Global challenges and advances. International Journal of Gynecology & Obstetrics, 143(S2), 153–158. https://doi.org/10.1002/ijgo.12624
  • Christensen, K. (2018). The myth of the ʽElder boom’. In Christensen & Syltevik (Eds.), The myth of the welfare state (pp. 75–98). Cappelen Damm Akademisk.
  • Christensen, K., & Wærness, K. (2021). Alderdom og ulikhet [Age and inequality]. In S. Grønmo, A. Nilsen, & K. Christensen (Eds.), Ulikhet: Sosiologiske perspektiver og analyser (pp. 197–219). Fagbokforlaget.
  • Commission for Social Care Inspection [CSCI] and Audit Commission. (2006). Living well in later life: A review of progress against the national service framework for older people. Commission for Healthcare Audit and Inspection.
  • Creswell, J. W., & Poth, C. N. (2018). Qualitative inquiry & research design: Choosing among five approaches (4th ed.). Sage.
  • da Rocha Rodrigues, M. G., Pautex, S., & Zumstein-Shaha, M. (2019). Revie ⊕: An intervention promoting the dignity of individuals with advanced cancer: A feasibility study. European Journal of Oncology Nursing, 39, 81–89. https://doi.org/10.1016/j.ejon.2019.01.006
  • Dahlberg, L., Andersson, L., McKee, K. J., & Lennartsson, C. (2015). Predictors of loneliness among older women and men in Sweden: A national longitudinal study. Aging & Mental Health, 19(5), 409–417. https://doi.org/10.1080/13607863.2014.944091
  • Danielsen, B. V., Sand, A. M., Rosland, J. H., & Førland, O. (2018). Experiences and challenges of home care nurses and general practitioners in home-based palliative care – A qualitative study. BMC Palliative Care, 17(1), 95. https://doi.org/10.1186/s12904-018-0350-0
  • Danielsen, H. (2009). Husmorarbeid og yrkesarbeid. [Houswife-work and employments]. In K. Christensen & L. J. Syltevik (Eds.), Kvinners arbeid (pp. 65–81). Unipub.
  • Depaola, S. J., Griffin, M., Young, J. R., & Neimeyer, R. A. (2003). Death anxiety and attitudes toward the elderly among older adults: The role of gender and ethnicity. Death Studies, 27(4), 335–354. https://doi.org/10.1080/07481180302904
  • Eriksson, K. (1987). Vårdandets idé. [The idea of caring]. Almqvist & Wiksell.
  • Eriksson, K. (1994). Den lidande människan. [The suffering human being]. Liber Utbildning.
  • Eriksson, K. (1996). Om människans värdighet. [on human dignity]. In J. M. I. T. Bjerkreim & R. Nord (Eds.), Visjon, viten og virke (pp. 76–86). Universitetsforlaget.
  • Fillingim, R. B. (2017). Individual differences in pain: Understanding the mosaic that makes pain personal. Pain, 158(Suppl 1), S11–s18. https://doi.org/10.1097/j.pain.0000000000000775
  • Fiva, J. H., Sørensen, R. J., & Hagen, T. P. (2014). Kommunal organisering : Effektivitet, styring og demokrati [Municipal organization: Efficiency, steering and democracy] (7. utg ed.). Universitetsforl.
  • Fjose, M., Eilertsen, G., Kirkevold, M., & Grov, E. K. (2018). ʽNon-palliative care’ – A qualitative study of older cancer patients’ and their family members’ experiences with the health care system. BMC Health Services Research, 18(1), 745. https://doi.org/10.1186/s12913-018-3548-1
  • Fleming, V., Gaidys, U., & Robb, Y. (2003). Hermeneutic research in nursing: Developing a Gadamerian‐based research method. Nursing Inquiry, 10(2), 113–120. https://doi.org/10.1046/j.1440-1800.2003.00163.x
  • Gadamer, H.-G. 1989. Truth and method ( 2nd, rev. ed. translation revised by Joel Weinsheimer and Donald G. Marshall. ed.). Sheed & Ward.
  • Gallagher, A., Li, S., Wainwright, P., Jones, I. R., & Lee, D. (2008). Dignity in the care of older people – A review of the theoretical and empirical literature. BMC Nursing, 7(1), 11. https://doi.org/10.1186/1472-6955-7-11
  • Gemmati, D., Varani, K., Bramanti, B., Piva, R., Bonaccorsi, G., Trentini, A., … Bellini, T. (2019). ʽBridging the gap’ everything that could have been avoided if we had applied gender medicine, pharmacogenetics and personalized medicine in the gender-omics and sex-omics era. International Journal of Molecular Sciences, 21(1), 296. https://doi.org/10.3390/ijms21010296
  • Hiles, D., & Čermák, I. (2007,July). Qualitative research: Transparency and narrative oriented inquiry. Paper presented at the 10th European congress of psychology, Faculty of Health and Life Sciences, De Montfort University, Leicester, UK and Institute of Psychology, Academy of Science, Brno, CZ.
  • Holtslander, L., & Duggleby, W. (2010). The psychosocial context of bereavement for older women who were caregivers for a spouse with advanced cancer. Journal of Women & Aging, 22(2), 109. https://doi.org/10.1080/08952841003716147
  • Jaworska, S., & Ryan, K. (2018). Gender and the language of pain in chronic and terminal illness: A corpus-based discourse analysis of patients‘ narratives. Social Science & Medicine, 215, 107–114. https://doi.org/10.1016/j.socscimed.2018.09.002
  • Johansen, M.-L., & Ervik, B. (2018). Teamwork in primary palliative care: General practitioners’ and specialised oncology nurses’ complementary competencies. BMC Health Services Research, 18(1), 159. https://doi.org/10.1186/s12913-018-2955-7
  • Johnson, S. B., Butow, P. N., Bell, M. L., Detering, K., Clayton, J. M., Silvester, W., … Tattersall, M. H. N. (2018). A randomised controlled trial of an advance care planning intervention for patients with incurable cancer. British Journal of Cancer, 119(10), 1182–1190. https://doi.org/10.1038/s41416-018-0303-7
  • Johnston, B., Ostlund, U., & Brown, H. (2012). Evaluation of the dignity care pathway for community nurses caring for people at the end of life. International Journal of Palliative Nursing, 18(10), 483–489. https://doi.org/10.12968/ijpn.2012.18.10.483
  • Karlsson, V., Forsberg, A., & Bergbom, I. (2012). Communication when patients are conscious during respirator treatment – A hermeneutic observation study. Intensive and Critical Care Nursing, 28(4), 197–207. https://doi.org/10.1016/j.iccn.2011.12.007
  • Kim, H.-I., Lim, H., & Moon, A. (2018). Sex differences in cancer: Epidemiology, genetics and therapy. Biomolecules & Therapeutics, 26(4), 335–342. https://doi.org/10.4062/biomolther.2018.103
  • Kirchhoff, R., Bøyum-Folkeseth, L., Gjerde, I., & Aarseth, T. (2016). Samhandlingsreformen og fastlegene – Et avstandsforhold? [The competence reform and GPs – A distance relationship?]. Tidsskrift for Omsorgsforskning, 2(2), 95–106. https://doi.org/10.18261/.2387-5984-2016-02-04E
  • Kjellevold, A., & Skippervik, L. J. B. (2020). Retten til individuell plan: Samt koordinator, kvalifiseringsprogram og andre planverktøy [The right to an individual plan: A coordinator, qualifyprogram and other measurments] (5 ed.). Fagbokforlaget.
  • Kjellstadli, C., Allore, H., Husebo, B. S., Flo, E., Sandvik, H., & Hunskaar, S. (2020). General practitioners’ provision of end-of-life care and associations with dying at home: A registry-based longitudinal study. Family Practice, 37(3), 340–347. https://doi.org/10.1093/fampra/cmz059
  • Krueger, R. A., & Casey, M. A. (2015). Focus groups: A practical guide for applied research (5th ed.). Sage.
  • Lie, N. K., Hauken, M. A., & Solvang, P. K. (2018). Providing coordinated cancer care-a qualitative study of Norwegian cancer coordinators’ experiences of their role. Cancer Nursing, 41(6), 463–472. https://doi.org/10.1097/ncc.0000000000000504
  • Lincoln, Y. S., & Guba, E. G. (1985). Naturalistic inquiry. (75). SAGE.
  • Lindstrøm, U. Å., Lindholm, L., & Zetterlund, J. E. (2018). Theory of caritative caring. In M. R. Alligood (Ed.), Nursing theorists and their work (9th ed., pp. 140–164). Elsevier.
  • Lorentsen, V. B., Nåden, D., & Sæteren, B. (2019). Understanding the meaning of the ambiguous body – A hermeneutic concept analysis of flesh and fleshly. International Journal of Caring, 12(2), 1–10. https://www.poquest-com.pva.uib.no/docview/2303669154?pq-origsite=primo
  • Mann, J. (1998). Dignity and health: The UDHR’s revolutionary first article. Health and Human Rights, 3(2), 30–38. https://doi.org/10.2307/4065297
  • Måseide, P. (2011). Morality and expert systems: Problem solving in medical team meetings. Behaviour & Information Technology: Medical Team Meetings: Utilising Technology to Enhance Communication, Collaboration and Decision-Making, 30(4), 525–532. https://doi.org/10.1080/0144929X.2011.553748
  • Miller, D., & Nevadunsky, N. (2018). Palliative care and symptom management for women with advanced ovarian cancer. Hematology/Oncology Clinics of North America, 32(6), 1087–1102. https://doi.org/10.1016/j.hoc.2018.07.012
  • Ministry of Health and Care Services. (2008-2009). No. 47 (2008-2009) to the storting: The coordination reform. Proper treatment – At the right place and right time. (Retrieved February 7, 2021, from https://www.regjeringen.no/en/dokumenter/report.no.-47-to-the-storting-2008-2009/id567201/
  • Ministry of Health and Care Services. (2010). Verdighetsgarantiforskriften, Forskrift om en verdig eldreomsorg (verdighetsgarantien) [Regulation concerning dignified care for older people (The dignity guarantee)]. Retrieved February 7, 2021, from https://lovdata.no/dokument/SF/forskrift/2010-11-12-1426
  • Ministry of Health and Care Services. (2019-2020). No. 24 (2019-2020) to the storting: Palliative care and treatment - Some day we will all die. But on all the other days, we will not. Retrieved February 7, 2021, from https://www.regjeringen.no/no/dokumenter/meld.-st.-24-20192020/id2700942/
  • Nåden, D. (2010). Hermeneutics and observation – A discussion. Nursing Inquiry, 17(1), 75–81. https://doi.org/10.1111/j.1440-1800.2009.00472.x
  • Nåden, D., & Eriksson, K. (2000). The phenomenon of confirmation: An aspect of nursing as an art. International Journal of Human Caring, 4(3), 23–28. https://doi.org/10.20467/1091-5710.4.3.23
  • Persson, C., Benzein, E., & Morberg Jämterud, S. (2020). Dignity as an intersubjective phenomenon: experiences of dyads living with serious illness. Qualitative Health Research, 30(13), 1989–2000. https://doi.org/10.1177/1049732320938343
  • Polit, D., & Beck, C. T. (2017). Nursing research: Generating and assessing evidence for nursing practice (10 ed.). United States of America: Wolters Kluwer.
  • Regulations of the regular GP’s scheme. (2012). Regulations of the regular GP’s scheme. Retrieved February 7, 2021, from https://lovdata.no/dokument/SF/forskrift/2012-08-29-842-KAPITTEL_3
  • Rochon, P. A., Mason, R., & Gurwitz, J. H. (2020). Increasing the visibility of older women in clinical research. Lancet, 395(10236), 1530–1532. 10.1016/s0140-6736(20)30849-7.
  • Segev, Y., Segev, L., Schmidt, M., Auslender, R., & Lavie, O. (2017). Palliative care in ovarian carcinoma patients-a personalized approach of a team work: A review. Archives of Gynecology and Obstetrics, 296(4), 691–700. https://doi.org/10.1007/s00404-017-4484-8
  • Spradley, J. P. (2016). Participant observation. Waveland Press, INC.
  • SSB. (2020). Befolkningsframskrivingene [National population projections], 2020-2060. Tabell 3: Forventet levealder. Retrieved February 7, 2021, from https://www.ssb.no/folkfram
  • Staats, K., Grov, E. K., Husebø, B., & Tranvåg, O. (2020a). Dignity and loss of dignity: Experiences of older women living with incurable cancer at home. Health Care Women International 41, 1–23. https://doi.org/10.1080/07399332.2020.1797035
  • Staats, K., Grov, E. K., Husebø, B., & Tranvåg, O. (2020b). Framework for patient and informal caregiver participation in research (PAICPAIR): Part 1. Advances in Nursing Science, 43(2), E58–E70. https://doi.org/10.1097/ANS.0000000000000289
  • Svedahl, E. R., Pape, K., Toch-Marquardt, M., Skarshaug, L. J., Kaspersen, S.-L., Bjørngaard, J. H., & Austad, B. (2019). Increasing workload in Norwegian general practice – A qualitative study. BMC Family Practice, 20(1), 68. https://doi.org/10.1186/s12875-019-0952-5
  • Torre, L. A., Islami, F., Siegel, R. L., Ward, E. M., & Jemal, A. (2017). Global cancer in women: Burden and trends. Cancer Epidemiology Biomarkers & Prevention, 26(4), 444. https://doi.org/10.1158/1055-9965.EPI-16-0858
  • Tranvåg, O., Petersen, K. A., & Nåden, D. (2015). Relational interactions preserving dignity experience: Perceptions of persons living with dementia. Nursing Ethics, 22(5), 577–593. https://doi.org/10.1177/0969733014549882
  • United Nations. (1948). United nations universal declaration of human rights. Retrieved February 7, 2021, from http://www.un.org/en/documents/udhr/
  • WHO. (2020). World health organization. We are not all ‘old’ at the same age: Life expectancy is a policy matter. Retrieved April 27, 2021, from https://extranet.who.int/agefriendlyworld/we-are-not-all-old-at-the-same-age-life-expectancy-is-a-policy-matter/
  • World Medical Association. (2013). World medical association declaration of Helsinki. JAMA, 310(20)), 2191–2194. https://doi.org/10.1001/jama.2013.281053
  • Wright, E. M., El-Jawahri, A., Temel, J. S., Carr, A., Safren, S. A., Park, E. R., … Traeger, L. (2019). Patient patterns and perspectives on using opioid regimens for chronic cancer pain. Journal of Pain and Symptom Management, 57(6), 1062–1070. https://doi.org/10.1016/j.jpainsymman.2019.02.023