References
- American Physical Therapy Association. (2015). Designation of individuals with intellectual disabilities and developmental disabilities, or both disabilities as a medically underserved population. https://www.apta.org/uploadedFiles/APTAorg/About_Us/Policies/Health_Social_Environment/DesignationIndividualsDisabilities.pdf
- American Rescue Plan Act of 2021. H.R. 1319 § 9817 et seq. 117th Cong. (2021). https://www.congress.gov/bill/117th-congress/house-bill/1319/text
- Campaign, B.-H. (2020a). Nursing home policy brief. https://joebiden.com/caregiving/
- Campaign, B.-H. (2020b). The Biden plan for mobilizing American talent and heart to create a 21st century caregiving and education workforce. https://joebiden.com/wp-content/uploads/2020/10/Nursing-Home-Policy.pdf
- Casado, B. L., & Lee, S. E. (2012). Access barriers to and unmet needs for home- and community-based services among older Korean Americans. Home Health Care Services Quarterly, 31(3), 219–242. https://doi.org/10.1080/01621424.2012.703540
- Casey, R. P., Booker, C. A. (2021). Letter to Biden, J. R. & Harris, K. D. https://www.aging.senate.gov/imo/media/doc/Casey-Booker%20HCBS%20Letter%20to%20Pres%20Biden.pdf
- Centers for Medicare & Medicaid Services. (2020). Home- and community-based services. https://www.cms.gov/Outreach-and-Education/American-Indian-Alaska-Native/AIAN/LTSS-TA-Center/info/hcbs
- Christ, A., & Kean, N. (2021). HCBS 101: Access to home & community-based care for older adults. [Webinar]. Justice in Aging. https://justiceinaging.org/free-webinarhcbs-101-access-to-home-community-based-care-for-older-adults/
- Congressional Research Service. (2020). Who pays for long-term services and supports?. https://crsreports.congress.gov/product/pdf/IF/IF10343#:~:text=Using%20this%20definition%2C%20total%20U.S.,spent%20on%20personal%20health%20care
- Duckett, M. J., & Guy, M. R. (2000). Home and community-based services waivers. Health Care Financing Review, 22(1), 123–125. https://pubmed.ncbi.nlm.nih.gov/25372343/
- Eiken, S., Sredl, K., Burwell, B., & Amos, A. (2018). Medicaid expenditures for long-term services and supports in FY 2016. Advancing States. http://www.advancingstates.org/sites/nasuad/files/ltssexpenditures2016.pdf
- Fabius, C. D., Thomas, K. S., Zhang, T., Ogarek, J., & Shireman, T. I. (2018). Racial disparities in Medicaid home and community-based service utilization and expenditures among persons with multiple sclerosis. BMC Health Services Research, 18(1), 773. https://doi.org/10.1186/s12913-018-3584-x
- Fabius, C. D., Ogarek, J., & Shireman, T. I. (2019). Racial disparities in Medicaid home and community-based service utilization among white, black, and Hispanic adults with multiple sclerosis: Implications of state policy. Journal of Racial and Ethnic Health Disparities, 6(6), 1200–1207. https://doi.org/10.1007/s40615-019-00621-9
- Felix, H. C., Mays, G. P., Stewart, K., Cottoms, N., & Olson, M. (2011). The care span: Medicaid savings resulted when community health workers matched those with needs to home and community care. Health Affairs, 30(7), 1366–1374. https://doi.org/10.1377/hlthaff.2011.0150
- Felix, H. C., Ali, M., Bird, T. M., Cottoms, N., & Stewart, M. K. (2019). Are community health workers more effective in identifying persons in need of home and community-based long-term services than standard-passive approaches. Home Health Care Services Quarterly, 38(3), 194–208. https://doi.org/10.1080/01621424.2019.1604461
- Feng, Z., Fennell, M. L., Tyler, D. A., Clark, M., & Mor, V. (2011). The Care Span: Growth of racial and ethnic minorities in US nursing homes driven by demographics and possible disparities in options. Health Affairs (Project Hope), 30(7), 1358–1365. https://doi.org/10.1377/hlthaff.2011.0126
- Ferris, R. E., Glicksman, A., & Kleban, M. H. (2016). Environmental predictors of unmet home- and community-based service needs of older adults. Journal of Applied Gerontology, 35(2), 179–208. https://doi.org/10.1177/0733464814525504
- Fox, P. D., & Clauser, S. B. (1980). Trends in nursing home expenditures: Implications for aging. Health Care Financing Review, 2(2), 65–70. https://pubmed.ncbi.nlm.nih.gov/10309332/
- Friedman, C., & Rizzolo, M. C. (2016). The state of transportation for people with intellectual and developmental disabilities in Medicaid home and community-based services 1915(c) waivers. Journal of Disability Policy Studies, 27(3), 168–177. https://doi.org/10.1177/1044207316644413
- Friedman, C. (2017). Stakeholders’ home and community based services settings rule knowledge. Research and Practice for Persons with Severe Disabilities, 43(1), 54–61. https://doi.org/10.1177/1540796917743210
- Friedman, C., & VanPuymbrouck, L. (2018). Community-based services for people with brain injury: A national analysis. Rehabilitation Research, Policy, and Education, 32(2), 123–138. https://doi.org/10.1891/2168-6653.32.2.123
- Friedman, C., & McNamara, E. (2018). Home- and community-based speech, language, and hearing services for people with intellectual and developmental disabilities. Research & Practice for Persons with Severe Disabilities, 43(2), 111–125. https://doi.org/10.1177/1540796918775595
- Friedman, C., & Feldner, H. A. (2018). Physical therapy services for people with intellectual and developmental disabilities: The role of Medicaid home- and community-based service waivers. Physical Therapy, 98(10), 844–854. https://doi.org/10.1093/ptj/pzy082
- Friedman, C., & VanPuymbrouck, L. (2019). The relationship between disability prejudice and Medicaid home and community-based services spending. Disability and Health Journal, 12(3), 359–365. https://doi.org/10.1016/j.dhjo.2019.01.012
- Gonzalez, L. (2020). Predicting racial disparities in nursing home admission: The role of discrimination, stressors, and neighborhood context. The Sociological Quarterly, 61(1), 1–21. https://doi.org/10.1080/00380253.2019.1580542
- Gorges, R. J., Sanghavi, P., & Konetzka, R. T. (2019). A national examination of long-term care setting, outcomes, and disparities among elderly dual eligibles. Health Affairs, 38(7), 1110–1118. https://doi.org/10.1377/hlthaff.2018.05409
- Harrington, C., & Kang, T. (2010). Personal care services utilization by individuals with developmental disabilities. Family Relations, 59(2), 136–151. https://doi.org/10.1111/j.1741-3729.2010.00591.x
- Harrington, C., Ng, T., & Kitchener, M. (2011). Do Medicaid home and community based service waivers save money? Home Health Care Services Quarterly, 30(4), 198–213. https://doi.org/10.1080/01621424.2011.622249
- Harrington, C., Ng, T., LaPlante, M., & Kaye, H. S. (2012). Medicaid home- and community-based services: Impact of the Affordable Care Act. Journal of Aging & Social Policy, 24(2), 169–187. https://doi.org/10.1080/08959420.2012.659118
- Herer, G. R. (2012). Intellectual disabilities and hearing loss. Communication Disorders Quarterly, 33(4), 252–260. https://doi.org/10.1177/1525740112448214
- Joint Session of Congress Address. (2021). https://www.politico.com/interactives/2021/joe-biden-speech-to-congress-2021-live-analysis-transcript-highlights-4-28-21/
- Kaye, H. S., LaPlante, M. P., & Harrington, C. (2009). Do noninstitutional long-term care services reduce Medicaid spending? Health Affairs (Project Hope), 28(1), 262–272. https://doi.org/10.1377/hlthaff.28.1.262
- Kaye, H. S., & Harrington, C. (2015). Long-term services and supports in the community: Toward a research agenda. Disability and Health Journal, 8(1), 3–8. https://doi.org/10.1016/j.dhjo.2014.09.003
- Knight, A. (2021). Unfinished business: Deinstitutionalization and Medicaid policy. Politics, Groups, and Identities, 9(2), 395–408. https://doi.org/10.1080/21565503.2020.1854324
- Leslie, D. L., Iskandarani, K., Dick, A. W., Mandell, D. S., Yu, H., Velott, D., Agbese, E., & Stein, B. D. (2017). The effects of Medicaid home and community-based services waivers on unmet needs among children with autism spectrum disorder. Medical Care, 55(1), 57–63. https://doi.org/10.1097/MLR.0000000000000621
- Lin, F. R., Yaffe, K., Xia, J., Xue, Q.-L., Harris, T. B., Purchase-Helzner, E., Satterfield, S., Ayonayon, H. N., Ferrucci, L., Simonsick, E. M., & Health ABC Study Group, F. T. (2013). Hearing loss and cognitive decline among older adults. JAMA Internal Medicine, 173(4), 293. https://doi.org/10.1001/jamainternmed.2013.1868
- McLean, K. J., Hoekstra, A. M., & Bishop, L. (2020). United States Medicaid home and community‐based services for people with intellectual and developmental disabilities: A scoping review. Journal of Applied Research in Intellectual Disabilities, 34(3), 684–694. https://doi.org/10.1111/jar.12837
- Medicaid and CHIP Payment and Access Commission. (2020). Medicaid 101: Waivers. https://www.macpac.gov/medicaid-101/waivers/
- Meucci, M. R., Kurth, N. K., Shireman, T. I., & Hall, J. P. (2018). Availability of Medicaid home- and community-based services for older Americans and people with physical disabilities. Home Health Care Services Quarterly, 37(1), 41–59. https://doi.org/10.1080/01621424.2018.1425175
- Miller, E. A., Intrator, O., Gadbois, E., Gidmark, S., & Rudolph, J. L. (2019). VA Staff Perceptions of Barriers and Facilitators to Home-and Community-Based Placement Post-Hospital Discharge. Journal of Aging & Social Policy, 31(1), 1–29. https://doi.org/10.1080/08959420.2018.1444889
- Musumeci, M. B., Chidambaram, P., & Watts, M. O. (2019, April 4). Key questions about Medicaid home and community-based services waiver waiting lists. Kaiser Family Foundation. https://www.kff.org/medicaid/issue-brief/key-questions-about-medicaid-home-and-community-based-services-waiver-waiting-lists/
- Olmstead v. L. C., 527 U.S. 581 (1999). https://www.oyez.org/cases/1998/98-536
- Pegels, C. C. (1980). Institutional versus noninstitutional care for the elderly. Journal of Health Politics, Policy and Law, 5(2), 205–212. https://doi.org/10.1215/03616878-5-2-205
- Penchansky, R., & Thomas, J. W. (1981). The concept of access: Definition and relationship to consumer satisfaction. Medical Care, 19(2), 127–140. https://doi.org/10.1097/00005650-198102000-00001
- Polivka, L., & Luo, B. (2019). Neoliberal long-term care: From community to corporate control. The Gerontologist, 59(2), 222–229. https://doi.org/10.1093/geront/gnx139
- Scan Foundation. (2013). Who pays for long term care in the U.S.?. Scan Foundation. https://www.thescanfoundation.org/sites/default/files/who_pays_for_ltc_us_jan_2013_fspdf
- Skracic, I., Bond, T., & Doonan, D. (2020). Accessing long-term care coverage through Medicaid. https://www.nirsonline.org/reports/medicaid/Social-Security-Act,42U.S.C.§1396etseq
- Snell, M. E., Brady, N., McLean, L., Ogletree, B. T., Siegel, E., Sylvester, L., Mineo, B., Paul, D., Romski, M. A., & Sevcik, R. (2010). Twenty years of communication intervention research with individuals who have severe intellectual and developmental disabilities. American Journal on Intellectual and Developmental Disabilities, 115(5), 364–380. https://doi.org/10.1352/1944-7558-115-5.364
- Social Security Act of 1983. H.R. 1900. Social Security Act of 1983. (1900). https://www.congress.gov/bill/98th-congress/house-bill/1900
- Sonnega, A., Robinson, K., & Levy, H. (2017). Home and community-based service and other senior service use: Prevalence and characteristics in a national sample. Home Health Care Services Quarterly, 36(1), 16–28. https://doi.org/10.1080/01621424.2016.1268552
- Stuber, J., & Kronebusch, K. (2004). Stigma and other determinants of participation in TANF and Medicaid. Journal of Policy Analysis and Management: [The Journal of the Association for Public Policy Analysis and Management], 23(3), 509–530. https://doi.org/10.1002/pam.20024
- U.S. Department of Health and Human Services: Office of Minority Health. (2013). National standards for Culturally and Linguistically Appropriate Services in health and health care: A Blueprint for advancing and sustaining CLAS policy and practice. https://thinkculturalhealth.hhs.gov/assets/pdfs/EnhancedCLASStandardsBlueprint.pdf
- Vento, N. (2015). There’s no place like home: How PPACA falls short in expanding home care services to the elderly. Journal of Law and Health, 28(2), 347–378. https://engagedscholarship.csuohio.edu/jlh/vol28/iss2/8/
- Watts, M. O., Musumeci, M. B., & Chidambaram, P. (2020, February 4). KFF Issue Brief: Medicaid home- and community-based services enrollment and spending. Kaiser Family Foundation. https://www.kff.org/report-section/medicaid-home-and-community-based-services-enrollment-and-spending-issue-brief/
- Wegman, M. P., Herndon, J. B., Muller, K. E., Graham, G. N., Vogel, W. B., Case, K. H., Lee, J. A., Van Voorhis, M. F., & Shenkman, E. A. (2015). Quality of care for chronic conditions among disabled Medicaid enrollees an evaluation of a 1915 (b) and (c) Waiver Program. Medical Care, 53(7), 599–606. https://doi.org/10.1097/MLR.0000000000000371
- White House Briefing Room. (2021, March 31). Fact sheet: The American jobs plan. https://www.whitehouse.gov/briefing-room/statements-releases/2021/03/31/fact-sheet-the-american-jobs-plan/