What quality of life domains are most important to older adults in residential care?

References

• Abbasi, J. (2020). Social isolation—the other COVID-19 threat in nursing homes. Jama, 324(7), 619–620. https://doi.org/10.1001/jama.2020.13484
   PubMed Web of Science ®Google Scholar
• Aller, L. J., & Coeling, H. V. E. (1995). Quality of life: Its meaning to the long-term care resident. Journal of Gerontological Nursing, 21(2), 20–25. https://doi.org/10.3928/0098-9134-19950201-06
   PubMedGoogle Scholar
• Australian Bureau of Statistics. (2017). Australian Demographic Statistics, Australia, June 2016 (ABS Catalogue No. 3101.0). Retrieved December 14, 2020, from https://www.abs.gov.au/AUSSTATS/[email protected]/DetailsPage/3101.0Jun%202016?OpenDocument
   Google Scholar
• Australian Bureau of Statistics. (2018). Disability, Ageing and Carers, Australia: Summary of Finding, Australia, 2015 (ABS Catalogue No. 4430.09). Retrieved December 16, 2020, from https://www.abs.gov.au/AUSSTATS/[email protected]/Lookup/4430.0Main+Features1022015?OpenDocument
   Google Scholar
• Australian Institute for Health and Welfare. (2015). Australia’s welfare. Retrieved December 7, 2020, from https://www.aihw.gov.au/getmedia/231c6801-9956-46b4-af2c-7c778290122c/AW15-6-3-Older-Australians-and-the-use-of-aged-care.pdf.aspx
   Google Scholar
• Australian Institute of Health and Welfare. (2018). Older Australia at a glance (Catalogue. No. AGE 87). Retrieved May 19, 2020, from https://www.aihw.gov.au/reports/older-people/older-australia-at-a-glance
   Google Scholar
• Australian Institute of Health and Welfare. (2021, September 20) Dementia in Australia, Web Report. Retrieved April 26, 2022, from https://www.aihw.gov.au/reports/dementia/dementia-in-aus/contents/aged-care-and-support-services-used-by-people-with-dementia/residential-aged-care
   Google Scholar
• Ball, M. M., Whittington, F. J., Perkins, M. M., Patterson, V. L., Hollingsworth, C., King, S. V., & Combs, B. L. (2000). Quality of life in assisted living facilities: Viewpoints of residents. Journal of Applied Gerontology, 19(3), 304–325. https://doi.org/10.1177/073346480001900304
   Web of Science ®Google Scholar
• Barker, A. L., Nitz, J. C., Low Choy, N. L., & Haines, T. (2009). Measuring fall risk and predicting who will fall: Clinimetric properties of four fall risk assessment tools for residential aged care. Journals of Gerontology Series A: Biomedical Sciences and Medical Sciences, 64(8), 916–924. https://doi.org/10.1093/gerona/glp041
   PubMed Web of Science ®Google Scholar
• Bergland, A., & Kirkevold, M. (2005). Resident-Caregiver Relationships and Thriving among Nursing Home Residents. Research in Nursing & Health, 28(5), 365–375. https://doi.org/10.1002/nur.20097
   PubMed Web of Science ®Google Scholar
• Bethell, J., Aelick, K., Babineau, J., Bretzlaff, M., Edwards, C., Gibson, J.-L., Hewitt Colborne, D., Iaboni, A., Lender, D., Schon, D., & McGilton, K. S. (2021). Social connection in long-term care homes: A scoping review of published research on the mental health impacts and potential strategies during COVID-19. Journal of the American Medical Directors Association, 22(2), 228–237. https://doi.org/10.1016/j.jamda.2020.11.025
   PubMed Web of Science ®Google Scholar
• Bhar, S. S., Silver, M., Campbell, J., Lawson, M., O’brien, S., & Rehm, I. (2015). Counselling older adults living in residential aged care settings: Four illustrative case studies. Australian Psychologist, 50(2), 141–147. https://doi.org/10.1111/ap.12098
   Web of Science ®Google Scholar
• Boldy, D., Grenade, L., Lewin, G., Karol, E., & Burton, E. (2011). Older people’s decisions regarding ‘ageing in place’: A Western Australian case study. Australasian Journal on Ageing, 30(3), 136–142. https://doi.org/10.1111/j.1741-6612.2010.00469.x
   PubMed Web of Science ®Google Scholar
• Bowling, A., & Gabriel, Z. (2007). Lay theories of quality of life in older age. Ageing and Society, 27(6), 827–848. https://doi.org/10.1017/S0144686X07006423
   Google Scholar
• Braun, V., & Clarke, V. (2021, May 13). Conceptual and design thinking for thematic analysis. Qualitative Psychology, Advance online publication. https://doi.org/10.1037/qup0000196
   Google Scholar
• Bryant, C., Brown, L., Polacsek, M., Batchelor, F., Capon, H., & Dow, B. (2020). Volunteer-led behavioural activation to reduce depression in residential care: A feasibility study. Pilot and Feasibility Studies, 6(1), 1–10. https://doi.org/10.1186/s40814-020-00640-y
   PubMedGoogle Scholar
• Cahill, S., & Diaz-Ponce, A. M. (2011). ‘I hate having nobody here. I’d like to know where they all are’: Can qualitative research detect differences in quality of life among nursing home residents with different levels of cognitive impairment? Aging & mental health, 15(5), 562–572. https://doi.org/10.1080/13607863.2010.551342
   PubMed Web of Science ®Google Scholar
• Canham, S., Battersby, L., Fang, M., Sixsmith, J., Woolrych, R., & Sixsmith, A. (2017). From familiar faces to family: Staff and resident relationships in long-term care. Journal of Aging and Health, 29(5), 842–857. https://doi.org/10.1177/0898264316645550
   PubMed Web of Science ®Google Scholar
• Coast, J., Flynn, T. N., Natarajan, L., Sproston, K., Lewis, J., Louviere, J. J., & Peters, T. J. (2008). Valuing the ICECAP capability index for older people. Social Science & Medicine, 67(5), 874–882. https://doi.org/10.1016/j.socscimed.2008.05.015
   PubMed Web of Science ®Google Scholar
• Connell, J., Brazier, J., O’Cathain, A., Lloyd-Jones, M., & Paisley, S. (2012). Quality of life of people with mental health problems: A synthesis of qualitative research. Health and Quality of Life Outcomes, 10(1), 1–16. https://doi.org/10.1186/1477-7525-10-138
   PubMedGoogle Scholar
• Courtney, M., Edwards, H., Stephan, J., O’Reilly, M., & Duggan, C. (2003). Quality of life measures for residents of aged care facilities: A literature review. Australasian Journal on Ageing, 22(2), 58–64. https://doi.org/10.1111/j.1741-6612.2003.tb00467.x
   Web of Science ®Google Scholar
• Drageset, J., Haugan, G., & Tranvåg, O. (2017). Crucial aspects promoting meaning and purpose in life: Perceptions of nursing home residents. BMC Geriatrics, 17(1), 1–9. https://doi.org/10.1186/s12877-017-0650-x
   PubMedGoogle Scholar
• Dyer, S. M., Valeri, M., Arora, N., Tilden, D., & Crotty, M. (2020). Is Australia over‐reliant on residential aged care to support our older population? The Medical Journal of Australia, 213(8), 1–3. https://doi.org/10.5694/mja2.50670
   Google Scholar
• Edwards, H., Courtney, M., & O’Reilly, M. (2003). Involving older people in research to examine quality of life in residential aged care. Quality in Ageing and Older Adults, 4(4), 38–44. https://doi.org/10.1108/14717794200300027
   Google Scholar
• Fallon, A., Dukelow, T., Kennelly, S. P., & O’Neill, D. (2020). COVID-19 in nursing homes. QJM: An International Journal of Medicine, 113(6), 391–392. https://doi.org/10.1093/qjmed/hcaa136
   PubMed Web of Science ®Google Scholar
• Fethney, J., Jeon, Y. H., Ludford, I., & Stewart, K. (2013). Validity and reliability of the client perception of value questionnaire. Contemporary Nurse, 43(2), 183–190. https://doi.org/10.5172/conu.2013.43.2.183
   PubMed Web of Science ®Google Scholar
• Gill, L., Bradley, S. L., Cameron, I. D., & Ratcliffe, J. (2018). How do clients in Australia experience consumer directed care? BMC Geriatrics, 18(1), 148. https://doi.org/10.1186/s12877-018-0838-8
   PubMedGoogle Scholar
• Gill, L., McCaffrey, N., Cameron, I. D., Ratcliffe, J., Kaambwa, B., Corlis, M., Fiebig, J., & Gresham, M. (2017). Consumer Directed Care in Australia: Early perceptions and experiences of staff, clients and carers. Health & Social Care in the Community, 25(2), 478–491. https://doi.org/10.1111/hsc.12328
   PubMed Web of Science ®Google Scholar
• Hackert, M. Q., van Exel, J., & Brouwer, W. B. (2021). Content validation of the Well-being of Older People measure (WOOP). Health and Quality of Life Outcomes, 19(1), 1–24. https://doi.org/10.1186/s12955-021-01834-5
   PubMed Web of Science ®Google Scholar
• Hall, S., Dodd, R. H., & Higginson, I. J. (2014). Maintaining dignity for residents of care homes: A qualitative study of the views of care home staff, community nurses, residents and their families. Geriatric Nursing, 35(1), 55–60. https://doi.org/10.1016/j.gerinurse.2013.10.012
   PubMed Web of Science ®Google Scholar
• Hill, C. L., Baird, W. O., & Walters, S. J. (2014). Quality of life in children and adolescents with Osteogenesis Imperfecta: A qualitative interview based study. Health and Quality of Life Outcomes, 12(1), 1–9. https://doi.org/10.1186/1477-7525-12-54
   PubMedGoogle Scholar
• Hirdes, J. P., Ljunggren, G., Morris, J. N., Frijters, D. H., Finne Soveri, H., Gray, L., Björkgren, M., & Gilgen, R. (2008). Reliability of the interRAI suite of assessment instruments: A 12-country study of an integrated health information system. BMC Health Services Research, 8(1), 1–11. https://doi.org/10.1186/1472-6963-8-277
   PubMedGoogle Scholar
• Hjaltadóttir, I., & Gústafsdóttir, M. (2007). Quality of life in nursing homes: Perception of physically frail elderly residents. Scandinavian Journal of Caring Sciences, 21(1), 48–55. https://doi.org/10.1111/j.1471-6712.2007.00434.x
   PubMed Web of Science ®Google Scholar
• Hoe, J., Katona, C., Roch, B., & Livingston, G. (2005). Use of the QOL-AD for measuring quality of life in people with severe dementia—the LASER-AD study. Age and Ageing, 34(2), 130–135. https://doi.org/10.1093/ageing/afi030
   PubMed Web of Science ®Google Scholar
• Holtkamp, C. C., Kerkstra, A., Ribbe, M. W., Van Campen, C., & Ooms, M. E. (2000). The relation between quality of co‐ordination of nursing care and quality of life in Dutch nursing homes. Journal of Advanced Nursing, 32(6), 1364–1373. https://doi.org/10.1046/j.1365-2648.2000.01626.x
   PubMed Web of Science ®Google Scholar
• Johs-Artisensi, J. L., Hansen, K. E., & Olson, D. M. (2020). Qualitative analyses of nursing home residents’ quality of life from multiple stakeholders’ perspectives. Quality of Life Research, 1–10. https://doi.org/10.1007/s11136-019-02395-3
   Web of Science ®Google Scholar
• Jorm, A. F., Mackinnon, A. J., Henderson, A. S., Scott, R., Christensen, H., Korten, A. E., Cullen, J. S., & Mulligan, R. (1995). The Psychogeriatric Assessment Scales: A multidimensional alternative to categorical diagnoses of dementia and depression in the elderly. Psychological Medicine, 25(3), 447–460. https://doi.org/10.1017/S0033291700033377
   PubMed Web of Science ®Google Scholar
• Kane, R. A. (2003). Definition, measurement, and correlates of quality of life in nursing homes: Toward a reasonable practice, research, and policy agenda. The Gerontologist, 43(suppl_2), 28–36. https://doi.org/10.1093/geront/43.suppl_2.28
   PubMedGoogle Scholar
• Kane, R. A., Kling, K. C., Bershadsky, B., Kane, R. L., Giles, K., Degenholtz, H. B., Lui, J., & Cutler, L. J. (2003). Quality of life measures for nursing home residents. The Journals of Gerontology Series A: Biological Sciences and Medical Sciences, 58(3), M240–M248. https://doi.org/10.1093/gerona/58.3.M240
   PubMed Web of Science ®Google Scholar
• Kelley-Gillespie, N. (2012). A secondary analysis of perceptions of quality of life of older adults residing in a nursing home and assisted living setting using an integrated conceptual model of measurement. Applied Research in Quality of Life, 7(2), 137–154. https://doi.org/10.1007/s11482-011-9154-6
   Web of Science ®Google Scholar
• Kendig, H., Gong, C. H., Cannon, L., & Browning, C. (2017). Preferences and predictors of aging in place: Longitudinal evidence from Melbourne, Australia. Journal of Housing for the Elderly, 31(3), 259–271. https://doi.org/10.1080/02763893.2017.1280582
   Web of Science ®Google Scholar
• Kennedy, K. J., Forsythe, D., Wagner, J., & Eckert, M. (2021). Clinical pathways for the evidence‐based management of behavioural and psychological symptoms of dementia in a residential aged care facility: A rapid review. Australasian Journal on Ageing, 40(4), 347–355. https://doi.org/10.1111/ajag.12990
   PubMed Web of Science ®Google Scholar
• Khadka, J., Lang, C., Ratcliffe, J., Corlis, M., Wesselingh, S., Whitehead, C., & Inacio, M. (2019). Trends in the utilisation of aged care services in Australia, 2008-2016. BMC Geriatric, 19(1). https://doi.org/10.1186/s12877-019-1209-9
   PubMed Web of Science ®Google Scholar
• Khadka, J., Ratcliffe, J., Chen, G., Kumaran, S., Milte, R., Hutchinson, C., Savvas, S., & Batchelor, F. (2020). A new measure of quality of care in aged care: Psychometric assessment, and validation of the Quality of Care Experience (QCE) questionnaire. A research study commissioned by the Royal Commission into Age Care Quality and Safety (Research Paper 20). Caring Futures Institute, Flinders University. Retrieved April 27, 2022, from https://agedcare.royalcommission.gov.au/publications/research-paper-20-quality-care-experience-and-community-expectations
   Google Scholar
• Kotwal, A. A., Holt‐Lunstad, J., Newmark, R. L., Cenzer, I., Smith, A. K., Covinsky, K. E., Escueta, D. P., Lee, J. M., & Perissinotto, C. M. (2021). Social isolation and loneliness among San Francisco Bay Area older adults during the COVID‐19 shelter‐in‐place orders. Journal of the American Geriatrics Society, 69(1), 20–29. https://doi.org/10.1111/jgs.16865
   PubMed Web of Science ®Google Scholar
• Magennis, T., & Chenoweth, L. (2009). How can we improve residents’ quality of life? Assessing the value and practicality of routine quality of life measurement in a residential aged care facility. Geriaction, 27(1), 25–32. https://doi.org/10.3316/ielapa.735921553371237
   Google Scholar
• McGilton, K. S., & Boscart, V. M. (2007). Close care provider–resident relationships in long‐term care environments. Journal of Clinical Nursing, 16(11), 2149–2157. https://doi.org/10.1111/j.1365-2702.2006.01636.x
   PubMed Web of Science ®Google Scholar
• Miller, E., Donoghue, G., & Buys, L. (2014). Key facilitators and barriers to quality of life in residential aged care: The role of design. International Journal of Arts and Sciences, 7(1), 397–412. http://universitypublications.net/ijas/0701/pdf/U3K424.pdf
   Google Scholar
• Moyle, W., Fetherstonhaugh, D., Greben, M., & Beattie, E. (2015). Influencers on quality of life as reported by people living with dementia in long-term care: A descriptive exploratory approach. BMC Geriatrics, 15(1), 50. https://doi.org/10.1186/s12877-015-0050-z
   PubMed Web of Science ®Google Scholar
• Murphy, K., Cooney, A., & Casey, D. (2014). Improving the quality of life for older people in long-term care settings. Journal of Comparative Effectiveness Research, 3(3), 301–315. https://doi.org/10.2217/cer.14.20
   PubMed Web of Science ®Google Scholar
• Netten, A., Burge, P., Malley, J., Potoglou, D., Towers, A. M., Brazier, J., … Forder, J. (2012). Outcomes of social care for adults: Developing a preference-weighted measure. Health Technology Assessment, 16(16), 1–166. https://doi.org/10.3310/hta16160
   PubMed Web of Science ®Google Scholar
• Ostaszkiewicz, J., Dickson-Swift, V., Hutchinson, A., & Wagg, A. (2020). A concept analysis of dignity-protective continence care for care dependent older people in long-term care settings. BMC Geriatrics, 20(1), 1–12. https://doi.org/10.1186/s12877-020-01673-x
   Web of Science ®Google Scholar
• Palacios-Ceña, D., Gómez-Calero, C., Cachón-Pérez, J. M., Velarde-García, J. F., Martínez-Piedrola, R., & Pérez-De-Heredia, M. (2016). Is the experience of meaningful activities understood in nursing homes? A qualitative study. Geriatric Nursing, 37(2), 110–115. https://doi.org/10.1016/j.gerinurse.2015.10.015
   PubMed Web of Science ®Google Scholar
• QSR International. (1999) NVivo Qualitative Data Analysis Software [Software, version 12]. https://qsrinternational.com/nvivo/nvivo-products/
   Google Scholar
• Ratcliffe, J., Cameron, I., Lancsar, E., Walker, R., Milte, R., Hutchinson, C., Swaffer, K., & Parker, S. (2019). Developing a new quality of life instrument with older people for economic evaluations in aged care: Study protocol. BMJ Open, 9(5), e028647. https://doi.org/10.1136/bmjopen-2018-028647
   PubMed Web of Science ®Google Scholar
• Ratcliffe, J., Lancsar, E., Flint, T., Kaambwa, B., Walker, R., Lewin, G., Luszcz, M., & Cameron, I. D. (2017). Does one size fit all? Assessing the preferences of older and younger people for attributes of quality of life. Quality of Life Research, 26(2), 299–309. https://doi.org/10.1007/s11136-016-1391-6
   PubMed Web of Science ®Google Scholar
• Royal Commission into Aged Care Quality and Safety. (2020). Counsel Assisting’s Final Submissions, Commonwealth of Australia, Canberra. Retrieved January 28, 2020, from https://agedcare.royalcommission.gov.au/media/29099
   Google Scholar
• Scheffelaar, A., Hendriks, M., Bos, N., Luijkx, K., & van Dulmen, S. (2019). Determinants of the quality of care relationships in long-term care - a participatory study. BMC Health Services Research, 19(1), 1–14. https://doi.org/10.1186/s12913-019-4195-x
   PubMedGoogle Scholar
• Schenk, L., Meyer, R., Behr, A., Kuhlmey, A., & Holzhausen, M. (2013). Quality of life in nursing homes: Results of a qualitative resident survey. Quality of Life Research, 22(10), 2929–2938. https://doi.org/10.1007/s11136-013-0400-2
   PubMed Web of Science ®Google Scholar
• Shippee, T. P., Henning-Smith, C., Kane, R. L., & Lewis, T. (2015). Resident-and facility-level predictors of quality of life in long-term care. The Gerontologist, 55(4), 643–655. https://doi.org/10.1093/geront/gnt148
   PubMed Web of Science ®Google Scholar
• Siette, J., Knaggs, G. T., Zurynski, Y., Ratcliffe, J., Dodds, L., & Westbrook, J. (2021). Systematic review of 29 self-report instruments for assessing quality of life in older adults receiving aged care services. BMJ open, 11(11), e050892. https://doi.org/10.1136/bmjopen-2021-050892
   PubMed Web of Science ®Google Scholar
• Smith, S. C., Lamping, D. L., Banerjee, S., Harwood, R., Foley, B., Smith, P., and Knapp, M. (2005). Measurement of health-related quality of life for people with dementia: Development of a new instrument (DEMQOL) and an evaluation of current methodology. Health Technology Assessment (Winchester, England), 9(10), 1–iv. https://doi.org/10.3310/hta9100
   Web of Science ®Google Scholar
• Straker, J. K., Ejaz, F. K., McCarthy, C., & Jones, J. A. (2007). Developing and testing a satisfaction survey for nursing home residents: The Ohio experience. Journal of Aging & Social Policy, 19(2), 83–105. https://doi.org/10.1300/J031v19n02_05
   PubMedGoogle Scholar
• The EuroQol Group. (1990). EuroQol-a new facility for the measurement of health-related quality of life. Health Policy, 16(3), 199–208. https://doi.org/10.1016/0168-8510(90)90421-9
   PubMed Web of Science ®Google Scholar
• Taylor, J. S., DeMers, S. M., Vig, E. K., & Borson, S. (2012). The disappearing subject: Exclusion of people with cognitive impairment and dementia from geriatrics research. Journal of the American Geriatrics Society, 60(3), 413–419. https://doi.org/10.1111/j.1532-5415.2011.03847.x
   PubMed Web of Science ®Google Scholar
• Tester, S., Hubbard, G., Downs, M., MacDonald, C., & Murphy, J. (2004). What does quality of life mean for frail residents? Nursing and Residential Care, 6(2), 89–92. https://doi.org/10.12968/nrec.2004.6.2.12052
   Google Scholar
• Train, G. H., Nurock, S. A., Manela, M., Kitchen, G., & Livingston, G. A. (2005). A qualitative study of the experiences of long-term care for residents with dementia, their relatives and staff. Aging & Mental Health, 9(2), 119–128. https://doi.org/10.1080/13607860412331310236
   PubMed Web of Science ®Google Scholar
• United Nations Department of Economic and Social Affairs Population Division. (2019). World Population Prospects 2019; Highlights. Retrieved February 13, 2020, from https://population.un.org/wpp/
   Google Scholar
• Wilhelmson, K., Andersson, C., Waern, M., & Allebeck, P. (2005). Elderly people’s perspectives on quality of life. Ageing and Society, 25(4), 585–600. https://doi.org/10.1017/S0144686X05003454
   Web of Science ®Google Scholar
• World Health Organization. (2012). WHOQOL: User Manual. WHO. https://www.who.int/tools/whoqol
   Google Scholar
• Yaxley, L. (2017, October 25). Up to 40 per cent of aged care resident get no visitors, minister Ken Wyatt says. ABC News.https://www.abc.net.au/news/2017-10-25/aged-care-residents-suffering-from-loneliness,-ken-wyatt-says/9085782
   Google Scholar