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Accountability in Research
Ethics, Integrity and Policy
Volume 15, 2008 - Issue 4
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Original Articles

What a Tangled Web We Weave: Ethical and Legal Implications of Deception in Recruitment

Pages 262-282 | Published online: 29 Oct 2008

References

  • American Psychiatric Association . 1994 . Diagnostic and Statistical Manual of Mental Disorders: DSM-IV , Washington , DC : American Psychiatric Association .
  • Austin , J. 2005 . Schizophrenia: An update and review . J Genet Couns , 14 ( 5 ) : 329 – 340 .
  • Austin , J. and Honer , W. 2004 . The potential impact of genetic counseling for mental illness . Clinical Genetics , 67 : 134 – 142 .
  • Baas , D. , van't Wout , M. , Aleman , A. and Kahn , R. S. 2008 . Social judgement in clinically stable patients with schizophrenia and healthy relatives: Behavioural evidence of social brain dysfunction . Psychol Med , 38 ( 5 ) : 747 – 754 .
  • Beauchamp , T. and Childress , J. F. 2001 . Principles of Biomedical Ethics , Oxford : Oxford University Press .
  • Beiser , M. , Erickson , D. , Fleming , J. A. and Iacono , W. G. 1993 . Establishing the onset of psychotic illness . Am J Psychiatry , 150 ( 9 ) : 1349 – 1354 .
  • Benham , B. 2008 . The ubiquity of deception and the ethics of deceptive research . Bioethics , 22 ( 3 ) : 147 – 156 .
  • Bok , S. 2002 . “ Ethical issues in th use of placebo in medical practise and clinical trials ” . In The Science of the Placebo:Ttoward an Interdisiplinary Research Agenda , Edited by: Guess , H. A. , Kleinman , A. , Kusek , J. W. and Engel , L. W. London : BMJ Books .
  • Bok , S. 1995 . Shading the truth in seeking informed consent for research purposes . Kennedy Institute of Ethics Journal , 5 ( 1 ) : 1 – 17 .
  • Cannon , T. D. , van Erp , T. G. , Bearden , C. E. , Loewy , R. , Thompson , P. , Toga , A. W. , Huttunen , M. O. , Keshavan , M. S. , Seidman , L. J. and Tsuang , M. T. 2003 . Early and late neurodevelopmental influences in the prodrome to schizophrenia: Contributions of genes, environment, and their interactions . Schizophr Bull , 29 ( 4 ) : 653 – 669 .
  • Carpenter , W. T. Jr. , Gold , J. M. , Lahti , A. C. , Queern , C. A. , Conley , R. R. , Bartko , J. J. , Kovnick , J. and Appelbaum , P. S. 2000 . Decisional capacity for informed consent in schizophrenia research . Arch Gen Psychiatry , 57 ( 6 ) : 533 – 538 .
  • Caulfield , T. , Upshur , R. E. and Daar , A. 2003 . DNA databanks and consent: A suggested policy option involving an authorization model . BMC Med Ethics , 4 : E1
  • Churchland , P. 1995 . The Engine of Reason, the Seat of the Soul: A Philosophical Journey into the Brain , Cambridge : The MIT Press .
  • Colloca , L. , Lopiano , L. , Lanotte , M. and Benedetti , F. 2004 . Overt versus covert treatment for pain, anxiety, and Parkinson's disease . Lancet Neurol , 3 ( 11 ) : 679 – 684 .
  • Corcoran , C. , Malaspina , D. and Hercher , L. 2005 . Prodromal interventions for schizophrenia vulnerability: the risks of being “at risk.” . Schizophr Res , 73 ( 2–3 ) : 173 – 184 .
  • Daugherty , C. K. , Siegler , M. , Ratain , M. J. and Zimmer , G. 1997 . Learning from our patients: One participant's impact on clinical trial research and informed consent . Ann Intern Med , 126 ( 11 ) : 892 – 897 .
  • Dowrick , C. F. , Hughes , J. G. , Hiscock , J. J. , Wigglesworth , M. and Walley , T. J. 2007 . Considering the case for an antidepressant drug trial involving temporary deception: a qualitative enquiry of potential participants . BMC Health Serv Res , 7 : 64
  • Freimuth , V. S. , Quinn , S. C. , Thomas , S. B. , Cole , G. , Zook , E. and Duncan , T. 2001 . African Americans' views on research and the Tuskegee Syphilis Study . Soc Sci Med , 52 ( 5 ) : 797 – 808 .
  • Harris , Y. , Gorelick , P. B. , Samuels , P. and Bempong , I. 1996 . Why African Americans may not be participating in clinical trials . J Natl Med Assoc , 88 ( 10 ) : 630 – 634 .
  • Hechem , M. I. and Gonorazky , S. 2005 . Looking for ways to avoid deception in the pursuit of science . Arch Intern Med , 165 ( 10 ) : 1199 – 1200 .
  • Herrera , C. D. 2001 . Ethics, deception, and ‘Those Milgram experiments,’ . J Appl Philos , 18 ( 3 ) : 245 2 – 56 .
  • Hillman , J. 2007 . Knowledge and attitudes about HIV/AIDS among community- living older women: Reexamining issues of age and gender . J Women Aging , 19 ( 3–4 ) : 53 – 67 .
  • Hull , S. C. , Gooding , H. , Klein , A. P. , Warshauer-Baker , E. , Metosky , S. and Wilfond , B. S. 2004 . Genetic research involving human biological materials: A need to tailor current consent forms . IRB , 26 ( 3 ) : 1 – 7 .
  • Illes , J. , Kirschen , M. P. , Edwards , E. , Bandettini , P. , Cho , M. K. , Ford , P. J. , Glover , G. H. , Kulynych , J. , Macklin , R. , Michael , D. B. , Wolf , S. M. , Grabowski , T. and Seto , B. 2008 . Practical approaches to incidental findings in brain imaging research . Neurology , 70 ( 5 ) : 384 – 390 .
  • Illes , J. , Rosen , A. C. , Huang , L. , Goldstein , R. A. , Raffin , T. A. , Swan , G. and Atlas , S. W. 2004 . Ethical consideration of incidental findings on adult brain MRI in research . Neurology , 62 ( 6 ) : 888 – 890 .
  • Joyce , C. R. 1982 . Placebos and other comparative treatments . Br J Clin Pharmacol , 13 ( 3 ) : 313 – 318 .
  • Leucht , S. , Burkard , T. , Henderson , J. , Maj , M. and Sartorius , N. 2007 . Physical illness and schizophrenia: A review of the literature . Acta Psychiatr Scand , 116 ( 5 ) : 317 – 333 .
  • Levine , R. J. 1982 . Consent to incomplete disclosure as an alternative to deception: Case study . IRB , 4 ( 10 ) : 9 – 11 .
  • Macklin , R. 1999 . The ethical problems with sham surgery in clinical research . N Engl J Med , 341 ( 13 ) : 992 – 996 .
  • McGorry , P. D. , Yung , A. and Phillips , L. 2001 . Ethics and early intervention in psychosis: Keeping up the pace and staying in step . Schizophrenia Research , 51 ( 1 ) : 17 – 29 .
  • McGorry , P. D. and Yung , A. R. 2003 . Early intervention in psychosis: An overdue reform . Aust N Z J Psychiatry , 37 ( 4 ) : 393 – 398 .
  • Miller , F. G. , Wendler , D. and Swartzman , L. C. 2005 . Deception in research on the placebo effect . PLoS Med , 2 ( 9 ) : e262
  • Miller , F. G. and Fins , J. J. 2006 . “ Protecting human subjects in brain research: A pragmatic perspective ” . In Neuroethics: Defining the Issues in Theory, Practice, and Policy , Edited by: Illes , J. Oxford : Oxford University Press .
  • Miller , F. G. and Kaptchuk , T. J. 2008 . Deception of subjects in neuroscience: An ethical analysis . J Neurosci , 28 ( 19 ) : 4841 – 4843 .
  • Morrison , A. P. , French , P. , Walford , L. , Lewis , S. W. , Kilcommons , A. , Green , J. , Parker , S. and Bentall , R. P. 2004 . Cognitive therapy for the prevention of psychosis in people at ultra-high risk: Randomised controlled trial . Br J Psychiatry , 185 : 291 – 297 .
  • Nicks , S. D. , Korn , J. H. and Mainieri , T. 1997 . The rise and fall of deception in social psychology and personality research, 1921 to 1994 . Ethics Behav , 7 ( 1 ) : 69 – 77 .
  • Pierce , K. R. 2008 . Comparative architecture of genetic privacy . Indiana International and Comparative Law Review , 19 (Fall) (Forthcoming).
  • Pullman , D. and Latus , A. 2003 . Clinical trials, genetic add-ons, and the question of benefit-sharing . Lancet , 362 ( 9379 ) : 242 – 244 .
  • Rosen , A. 2006 . Destigmatizing day-to-day practices: What developed countries can learn from developing countries . World Psychiatry , 5 ( 1 ) : 21 – 24 .
  • Saha , S. , Chant , D. , Welham , J. and McGrath , J. 2005 . A systematic review of the prevalence of schizophrenia . PLoS Med , 2 ( 5 ) : e141
  • Shamoo and Adil , E. 1994 . Our responsibilities toward persons with mental illness as human subjects in research . The Journal , 5 : 14 – 16 .
  • Shamoo , Adil , E. and Dunigan , Cheryl D. 2000 . Ethics in Research . Society for Experimental Biology and Medicine , : 205 – 210 .
  • Shamoo , Adil , E. and Irving , Dianne N. 1993 . Accountability in research using persons with mental illness . Accountability in Research , 3 : 1 – 17 .
  • Shamoo , Adil , E. , Dianne , N. Irving and Patricia , Langenberg . 1997 . A review of patient outcomes in pharmacological studies from the psychiatric literature, 1966–1993 . Science and Engineering Ethics , 3 ( 4 ) : 395 – 406 .
  • Shamoo , Adil , E. and Timothy , J. Keay . 1996 . Ethical concerns about relapse studies . Cambridge Quarterly of Healthcare Ethics , 5 : 373 – 386 .
  • Suvisaari , J. , Perala , J. , Saarni , S. I. , Harkanen , T. , Pirkola , S. , Joukamaa , M. , Koskinen , S. , Lonnqvist , J. and Reunanen , A. 2008 . Type 2 diabetes among persons with schizophrenia and other psychotic disorders in a general population survey . Eur Arch Psychiatry Clin Neurosci , 258 : 129 – 136 .
  • Taylor , R. J. , Chiu , A. G. , Palmer , J. N. , Schofield , K. , O'Malley , B. W. Jr. and Wolf , J. S. 2005 . Informed consent in sinus surgery: Link between demographics and patient desires . Laryngoscope , 115 ( 5 ) : 826 – 831 .
  • Tenery , R. , Rakatansky , H. , Riddick , F. A. Jr. , Goldrich , M. S. , Morse , L. J. , O'Bannon , J. M. 3rd , Ray , P. , Smalley , S. , Weiss , M. , Kao , A. , Morin , K. , Maixner , A. and Seiden , S. 2002 . Surgical “placebo” controls . Ann Surg , 235 ( 2 ) : 303 – 307 .
  • Wendler , D. and Miller , F. G. 2004 . Deception in the pursuit of science . Arch Intern Med , 164 ( 6 ) : 597 – 600 .
  • Young , D. R. , Hooker , D. T. and Freeberg , F. E. 1990 . Informed consent documents: Increasing comprehension by reducing reading level . IRB , 12 ( 3 ) : 1 – 5 .

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