Health Literacy, Medication Adherence, and Quality of Life in Patients With Uveitis

References

• Suttorp-Schulten MS, Rothova A. The possible impact of uveitis in blindness: a literature survey. Br J Ophthalmol. 1996;80:844–848.
   PubMed Web of Science ®Google Scholar
• Rosenbaum JT. Uveitis. An internist’s view. Arch Intern Med. 1989;149(5):1173–1176. doi:10.1001/archinte.1989.00390050129026.
   PubMedGoogle Scholar
• Rodriguez A, Calonge M, Pedroza-Seres M, et al. Referral patterns of uveitis in a tertiary eye care center. Arch Ophthalmol. 1996;114(5):593–599. doi:10.1001/archopht.1996.01100130585016.
   PubMed Web of Science ®Google Scholar
• Miserocchi E, Modorati G, Mosconi P, et al. Quality of life in patients with uveitis on chronic systemic immunosuppressive treatment. Ocul Immunol Inflamm. 2010;18(4):297–304. doi:10.3109/09273941003637510.
   PubMed Web of Science ®Google Scholar
• Kaleemunnisha S, Sudharshan S, Biswas J. Quality of life in non-infectious uveitis patients on immunosuppressive therapy. Middle East Afr J Ophthalmol. 2014;21(3):225–231. doi:10.4103/0974-9233.134675.
   PubMedGoogle Scholar
• Haasnoot AJW, Sint Jago NF, Tekstra J, et al. Impact of uveitis on quality of life in adult patients with juvenile idiopathic arthritis. Arthritis Care Res (Hoboken). 2017;69(12):1895–1902. doi:10.1002/acr.23224.
   PubMed Web of Science ®Google Scholar
• Berlinberg EJ, Gonzales JA, Doan T, Acharya NR. Association Between noninfectious uveitis and psychological stress. JAMA Ophthalmol. 2019 Feb 1;137(2):199–205. doi:10.1001/jamaophthalmol.2018.5893. PMID: 30520957; PMCID: PMC6439831.
   PubMedGoogle Scholar
• Sittivarakul WM, Wongkot PM. Anxiety and depression among patients with uveitis and ocular inflammatory disease at a tertiary center in southern thailand: vision-related quality-of-life, sociodemographics, and clinical characteristics associated. Ocul Immunol Inflamm. 2019;27(5):731–742. doi:10.1080/09273948.2018.1484495. Epub 2018 Jul 3. PMID: 29969331.
   PubMed Web of Science ®Google Scholar
• Onal S, Oray M, Yasa C, et al. Screening for depression and anxiety in patients with active uveitis. Ocul Immunol Inflamm. 2018;26(7):1078–1093. doi:10.1080/09273948.2017.1319959.
   PubMed Web of Science ®Google Scholar
• Muir KW, Lee PP. Health literacy and ophthalmic patient education. Surv Ophthalmol. 2010;55(5):454–459. doi:10.1016/j.survophthal.2010.03.005.
   PubMed Web of Science ®Google Scholar
• Juzych MS, Randhawa S, Shukairy A, et al. Functional health literacy in patients with glaucoma in urban settings. Arch Ophthalmol. 2008;126(5):718–724. doi:10.1001/archopht.126.5.718.
   PubMedGoogle Scholar
• Papagiannuli E, Edmunds MR, Scollo P, et al. Do demographic factors influence uveitis patients’ understanding of uveitis? Ocul Immunol Inflamm. 2017;25(6):790–796. doi:10.1080/09273948.2016.1175638.
   PubMed Web of Science ®Google Scholar
• Norell SE, Granstrom PA. Self-medication with pilocarpine among outpatients in a glaucoma clinic. Br J Ophthalmol. 1980;64(2):137–141. doi:10.1136/bjo.64.2.137.
   PubMed Web of Science ®Google Scholar
• Kass MA, Meltzer DW, Gordon M, et al. Compliance with topical pilocarpine treatment. Am J Ophthalmol. 1986;101(5):515–523. doi:10.1016/0002-9394(86)90939-6.
   PubMed Web of Science ®Google Scholar
• Winfield AJ, Jessiman D, Williams A, et al. A study of the causes of non-compliance by patients prescribed eyedrops. Br J Ophthalmol. 1990;74(8):477–480. doi:10.1136/bjo.74.8.477.
   PubMed Web of Science ®Google Scholar
• Sommer A, Tielsch JM, Katz J, et al. Racial differences in the cause-specific prevalence of blindness in east Baltimore. N Engl J Med. 1991;325(20):1412–1417. doi:10.1056/NEJM199111143252004.
   PubMed Web of Science ®Google Scholar
• Danesh-Meyer HV, Deva NC, Slight C, et al. What do people with glaucoma know about their condition? A comparative cross-sectional incidence and prevalence survey. Clin Exp Ophthalmol. 2008;36(1):13–18. doi:10.1111/j.1442-9071.2007.01624.x.
   PubMed Web of Science ®Google Scholar
• Lam WY, Fresco P. Medication adherence measures: an overview. Biomed Res Int. 2015;2015:217047. doi:10.1155/2015/217047.
   PubMed Web of Science ®Google Scholar
• Sabate E Adherence to Long-Term Therapies: evidence for Action. Geneva, Switzerland: World Health Organization (WHO). https://www.who.int/chp/knowledge/publications/adherence_full_report.pdf. 2003. Accessed 5 May 2020.
   Google Scholar
• Chehab G, Sauer GM, Richter JG, et al. Medical adherence in patients with systemic lupus erythematosus in Germany: predictors and reasons for non-adherence - a cross-sectional analysis of the LuLa-cohort. Lupus. 2018;27(10):1652–1660. doi:10.1177/0961203318785245.
   PubMed Web of Science ®Google Scholar
• Cossart AR, Staatz CE, Campbell SB, et al. Investigating barriers to immunosuppressant medication adherence in renal transplant patients. Nephrology (Carlton). 2019;24(1):102–110. doi:10.1111/nep.13214.
   PubMed Web of Science ®Google Scholar
• Javidi H, Poonit N, Patel RP, Barry RJ, Rauz S, Murray PI. Adherence to Topical Medication in Patients with Inflammatory Eye Disease. Ocul Immunol Inflamm. 2020;16:1–6. doi:10.1080/09273948.2019.1699122.
   Google Scholar
• Dolz-Marco R, Gallego-Pinazo R, Díaz-Llopis M, et al. Noninfectious uveitis: strategies to optimize treatment compliance and adherence. Clin Ophthalmol. 2015;9:1477–1481.
   PubMed Web of Science ®Google Scholar
• Mielck A, Vogelmann M, Leidl R. Health-related quality of life and socioeconomic status: inequalities among adults with a chronic disease. Health Qual Life Outcomes. 2014;12:58. doi:10.1186/1477-7525-12-58.
   PubMed Web of Science ®Google Scholar
• Mohanty G, Dash S. Adherence to treatment regimen in uveitis patients in a tertiary hospital in Orissa. Sch J App Med Sci. 2017; 5(7C):2710.
   Google Scholar
• Miraldi Utz V, Bulas S, Lopper S, et al. Effectiveness of long-term infliximab use and impact of treatment adherence on disease control in refractory, non-infectious pediatric uveitis. Pediatr Rheumatol. 2019;17:79. doi:10.1186/s12969-019-0383-9
   PubMed Web of Science ®Google Scholar
• Morse AR. Improving medication adherence to reduce vision loss in patients with glaucoma: low hanging fruit? Ophthalmology. 2015;122(7):1280–1282. doi:10.1016/j.ophtha.2015.04.019.
   PubMed Web of Science ®Google Scholar
• Baker DW, Wolf MS, Feinglass J, et al. Health literacy and mortality among elderly persons. Arch Intern Med. 2007;167(14):1503–1509. doi:10.1001/archinte.167.14.1503.
   PubMed Web of Science ®Google Scholar
• Lee SY, Stucky BD, Lee JY, et al. Short assessment of health literacy-spanish and english: a comparable test of health literacy for Spanish and English speakers. Health Serv Res. 2010;45(4):1105–1120. doi:10.1111/j.1475-6773.2010.01119.x.
   PubMed Web of Science ®Google Scholar
• Horne R, Chapman SC, Parham R, et al. Understanding patients’ adherence-related beliefs about medicines prescribed for long-term conditions: a meta-analytic review of the Necessity-Concerns Framework. PLoS One. 2013;8(12):e80633.
   PubMed Web of Science ®Google Scholar
• Ware J Jr., Kosinski M, Keller SD. A 12-Item Short-Form Health Survey: construction of scales and preliminary tests of reliability and validity. Med Care. 1996;34(3):220–233. doi:10.1097/00005650-199603000-00003.
   PubMed Web of Science ®Google Scholar
• Acharya NR, Tham VM, Esterberg E, et al. Incidence and prevalence of uveitis: results from the Pacific Ocular Inflammation Study. JAMA Ophthalmol. 2013;131(11):1405–1412. doi:10.1001/jamaophthalmol.2013.4237.
   PubMed Web of Science ®Google Scholar
• Darrell RW, Wagener HP, Kurland LT. Epidemiology of uveitis. Incidence and prevalence in a small urban community. Arch Ophthalmol. 1962;68:502–514. doi:10.1001/archopht.1962.00960030506014.
   PubMed Web of Science ®Google Scholar
• Gritz DC, Wong IG. Incidence and prevalence of uveitis in Northern California; the Northern California Epidemiology of Uveitis Study. Ophthalmology. 2004;111(3):491–500. doi:10.1016/j.ophtha.2003.06.014.
   PubMed Web of Science ®Google Scholar
• Suhler EB, Lloyd MJ, Choi D, et al. Incidence and prevalence of uveitis in veterans affairs medical centers of the pacific Northwest. Am J Ophthalmol. 2008;146(6):890–6.e8. doi:10.1016/j.ajo.2008.09.014.
   PubMed Web of Science ®Google Scholar
• Chauhan K, Scaife S, Rosenbaum JT. Uveitis and health disparities: results from the National Inpatient Sample. Br J Ophthalmol. 2019 Sep;103(9):1301–1305. doi:10.1136/bjophthalmol-2018-312048. Epub 2018 Dec 21. PMID: 30578244.
   Web of Science ®Google Scholar
• Schmidt E, 2018. U.S. population more educated than ever before. [online] The United States Census Bureau. https://www.census.gov/library/stories/2018/07/educational-attainment.html#:~:text=For%20the%20First%20Time%2C%2090%20Percent%20Completed%20High%20School%20or%20More&text=For%20the%20first%20time%2C%20the,reached%2090%20percent%20in%202017. Accessed 24 November 2020.
   Google Scholar
• Yin HS, Dreyer BP, van Schaick L, et al. Randomized controlled trial of a pictogram-based intervention to reduce liquid medication dosing errors and improve adherence among caregivers of young children. Arch Pediatr Adolesc Med. 2008;162(9):814–822. doi:10.1001/archpedi.162.9.814.
   PubMed Web of Science ®Google Scholar
• Rothman RL, DeWalt DA, Malone R, et al. Influence of patient literacy on the effectiveness of a primary care-based diabetes disease management program. JAMA. 2004;292(14):1711–1716. doi:10.1001/jama.292.14.1711.
   PubMed Web of Science ®Google Scholar
• Keefe EB, Copelad SR. What is literacy? The power of a definition. Res Pract Persons Severe Disabl. 2011;36(3–4):92–99. doi:10.2511/027494811800824507.
   Google Scholar
• Health literacy: report of the Council on Scientific Affairs. Ad hoc committee on health literacy for the council on scientific affairs, american medical association. JAMA. 1999;281(6):552–557. doi:10.1001/jama.281.6.552.
   PubMedGoogle Scholar
• Neame R, Hammond A. Beliefs about medications: a questionnaire survey of people with rheumatoid arthritis. Rheumatology (Oxford). 2005;44(6):762–767. doi:10.1093/rheumatology/keh587.
   PubMed Web of Science ®Google Scholar
• Cunningham ET Jr. Exogenous factors influencing endogenous inflammation: what can patients do to improve control of their own uveitis? Br J Ophthalmol. 2010;94(7):813–814. doi:10.1136/bjo.2009.178780.
   PubMed Web of Science ®Google Scholar
• de Smet MD, Taylor SRJ, Bodaghi B, et al. Understanding uveitis: the impact of research on visual outcomes. Prog Retin Eye Res. 2011;30(6):452–470. doi:10.1016/j.preteyeres.2011.06.005.
   PubMed Web of Science ®Google Scholar
• Hogewind B, Ciggaar I. No significant gender difference in vision-related quality of life of anterior uveitis patients. Austin J Clin Ophthalmol. 2018; 5(2):1094.
   Google Scholar
• Hoeksema L, Los LI, Taylor AW. Vision-related quality of life in patients with inactive HLA-B27-associated-spectrum anterior uveitis. PLoS One. 2016;11(1):e0146956. doi:10.1371/journal.pone.0146956.
   PubMed Web of Science ®Google Scholar
• Hui MM, Wakefield D, Patel I, et al. Visual Functioning and Health-related Quality-of-Life are Compromised in Patients with Uveitis. Ocul Immunol Inflamm. 2017;25(4):486–491. doi:10.3109/09273948.2016.1139734.
   PubMed Web of Science ®Google Scholar
• Murphy CC, Hughes EH, Frost NA, et al. Quality of life and visual function in patients with intermediate uveitis. Br J Ophthalmol. 2005;89(9):1161–1165. doi:10.1136/bjo.2005.067421.
   PubMed Web of Science ®Google Scholar
• Shamdas M, Bassilious K, Murray PI. Health-related quality of life in patients with uveitis. Br J Ophthalmol. 2019 Sep;103(9):1284–1288. doi:10.1136/bjophthalmol-2018-312882. Epub 2018 Oct 25. PMID: 30361275.
   PubMed Web of Science ®Google Scholar
• Zhang J, Yan HG, Chi Y, et al. [Vision-and health-related quality of life in patients with uveitis]. Zhonghua Yan Ke Za Zhi. 2016;52(6):429–436.
   PubMedGoogle Scholar
• Neimeyer KM, Gonzales JA, Rathinam SR, et al. Quality of life outcomes from a randomized clinical trial comparing antimetabolites for intermediate, posterior, and panuveitis. Am J Ophthalmol. 2017;179:10–17. doi:10.1016/j.ajo.2017.04.003.
   PubMed Web of Science ®Google Scholar