602
Views
0
CrossRef citations to date
0
Altmetric
Original Articles

Development and Psychometric Properties of the Chronic Uveitis-Specific Quality of Life Instrument for Patients with Chronic Uveitis

, MD, , MD, , MD, , MD, , MD, PhD & , MD, PhD
Pages 194-202 | Received 30 Jun 2022, Accepted 21 Dec 2022, Published online: 13 Jan 2023

References

  • Bloch-Michel E, Nussenblatt RB. International Uveitis Study Group recommendations for the evaluation of intraocular inflammatory disease. Am J Ophthalmol. 1987;103:234–235. doi:10.1016/S0002-9394(14)74235-7.
  • Jabs DA, Nussenblatt RB, Rosenbaum JT, et al. Standardization of uveitis nomenclature for reporting clinical data. Results of the first international workshop. Am J Ophthalmol. 2005;140:509–516.
  • Qian Y, Glaser T, Esterberg E, et al. Depression and visual functioning in patients with ocular inflammatory disease. Am J Ophthalmol. 2012;153:370–378 e372. doi:10.1016/j.ajo.2011.06.028.
  • Schiffman RM, Jacobsen G, Whitcup SM. Visual functioning and general health status in patients with uveitis. Arch Ophthalmol. 2001;119:841–849. doi:10.1001/archopht.119.6.841.
  • Miserocchi E, Modorati G, Mosconi P, et al. Quality of life in patients with uveitis on chronic systemic immunosuppressive treatment. Ocul Immunol Inflamm. 2010;18:297–304. doi:10.3109/09273941003637510.
  • de Smet MD, Taylor SR, Bodaghi B, et al. Understanding uveitis: the impact of research on visual outcomes. Prog Retin Eye Res. 2011;30:452–470. doi:10.1016/j.preteyeres.2011.06.005.
  • Jalil A, Yin K, Coyle L, et al. Vision-related quality of life and employment status in patients with uveitis of working age: a prospective study. Ocul Immunol Inflamm. 2012;20:262–265. doi:10.3109/09273948.2012.684420.
  • Saunders B, Sim J, Kingstone T, et al. Saturation in qualitative research: exploring its conceptualization and operationalization. Qual Quant. 2018;52:1893–1907. doi:10.1007/s11135-017-0574-8.
  • Hou X, Zhu D, Zheng M. Clinical nursing faculty competence inventory - development and psychometric testing. J Adv Nurs. 2011;67:1109–1117. doi:10.1111/j.1365-2648.2010.05520.x.
  • Boateng GO, Neilands TB, Frongillo EA, et al. Best practices for developing and validating scales for health, social, and behavioral research: a primer. Front Public Health. 2018;6:149. doi:10.3389/fpubh.2018.00149.
  • Gothwal VK, Bagga DK. Vision and quality of life index: validation of the Indian version using Rasch analysis. Invest Ophthalmol Vis Sci. 2013;54:4871–4881. doi:10.1167/iovs.13-11892.
  • Klassen AF, Cano SJ, East CA, et al. Development and psychometric evaluation of the FACE-Q scales for patients undergoing rhinoplasty. JAMA Facial Plast Surg. 2016;18:27–35. doi:10.1001/jamafacial.2015.1445.
  • Pesudovs K, Burr JM, Harley C, et al. The development, assessment, and selection of questionnaires. Optom Vis Sci. 2007;84:663–674. doi:10.1097/OPX.0b013e318141fe75.
  • Khadka J, Huang J, Mollazadegan K, et al. Translation, cultural adaptation, and Rasch analysis of the visual function (VF-14) questionnaire. Invest Ophthalmol Vis Sci. 2014;55:4413–4420. doi:10.1167/iovs.14-14017.
  • Khadka J, Pesudovs K, McAlinden C, et al. Reengineering the glaucoma quality of life-15 questionnaire with rasch analysis. Invest Ophthalmol Vis Sci. 2011;52:6971–6977. doi:10.1167/iovs.11-7423.
  • Cronbach LJ. Coefficient alpha and the internal structure of tests. Psychometrika. 1951;16:297–334. doi:10.1007/BF02310555.
  • Terwee CB, Bot SD, de Boer MR, et al. Quality criteria were proposed for measurement properties of health status questionnaires. J Clin Epidemiol. 2007;60:34–42. doi:10.1016/j.jclinepi.2006.03.012.
  • Deyo RA, Diehr P, Patrick DL. Reproducibility and responsiveness of health status measures. Statistics and strategies for evaluation. Control Clin Trials. 1991;12:142S–158S. doi:10.1016/S0197-2456(05)80019-4.
  • Mangione CM, Lee PP, Gutierrez PR, et al. Development of the 25-item National Eye Institute visual function questionnaire. Arch Ophthalmol. 2001;119:1050–1058. doi:10.1001/archopht.119.7.1050.
  • Mazhar K, Varma R, Choudhury F, et al. Severity of diabetic retinopathy and health-related quality of life: the Los Angeles Latino Eye Study. Ophthalmology. 2011;118:649–655. doi:10.1016/j.ophtha.2010.08.003.
  • Bertrand PJ, Jamilloux Y, Kodjikian L, et al. Quality of life in patients with uveitis: data from the ULISSE study (Uveitis: cLInical and medico-economic evaluation of a standardised strategy for the Etiological diagnosis). Br J Ophthalmol. 2021;105:935–940. doi:10.1136/bjophthalmol-2020-315862.
  • Samuelson TW, Singh IP, Williamson BK, et al. Quality of life in primary open-angle glaucoma and cataract: an analysis of VFQ-25 and OSDI from the iStent inject(R) pivotal trial. Am J Ophthalmol. 2021;229:220–229. doi:10.1016/j.ajo.2021.03.007.
  • Marella M, Pesudovs K, Keeffe JE, et al. The psychometric validity of the NEI VFQ-25 for use in a low-vision population. Invest Ophthalmol Vis Sci. 2010;51:2878–2884. doi:10.1167/iovs.09-4494.
  • Pesudovs K, Gothwal VK, Wright T, et al. Remediating serious flaws in the National Eye Institute visual function questionnaire. J Cataract Refract Surg. 2010;36:718–732. doi:10.1016/j.jcrs.2009.11.019.
  • Petrillo J, Bressler NM, Lamoureux E, et al. Development of a new Rasch-based scoring algorithm for the National Eye Institute visual functioning questionnaire to improve its interpretability. Health Qual Life Outcomes. 2017;15:157. doi:10.1186/s12955-017-0726-5.
  • Bhakta B, Tennant A, Horton M, et al. Using item response theory to explore the psychometric properties of extended matching questions examination in undergraduate medical education. BMC Med Educ. 2005;5:9. doi:10.1186/1472-6920-5-9.
  • Tavakol M, Dennick R. Psychometric evaluation of a knowledge based examination using Rasch analysis: an illustrative guide: AMEE guide no. 72. Med Teach. 2013;35:e838–848. doi:10.3109/0142159X.2012.737488.
  • Begley CG, Chalmers RL, Mitchell GL, et al. Characterization of ocular surface symptoms from optometric practices in North America. Cornea. 2001;20:610–618. doi:10.1097/00003226-200108000-00011.
  • Johnson ME, Murphy PJ. Measurement of ocular surface irritation on a linear interval scale with the ocular comfort index. Invest Ophthalmol Vis Sci. 2007;48:4451–4458. doi:10.1167/iovs.06-1253.
  • Lynn MR. Determination and quantification of content validity. Nurs Res. 1986;35:382–385. doi:10.1097/00006199-198611000-00017.
  • Smith GT, McCarthy DM, Anderson KG. On the sins of short-form development. Psychol Assess. 2000;12:102–111. doi:10.1037/1040-3590.12.1.102.
  • Niemeyer KM, Gonzales JA, Rathinam SR, et al. Quality-of-life outcomes from a randomized clinical trial comparing antimetabolites for intermediate, posterior, and panuveitis. Am J Ophthalmol. 2017;179:10–17. doi:10.1016/j.ajo.2017.04.003.
  • Kelly NK, Chattopadhyay A, Rathinam SR, et al. Health- and vision-related quality of life in a randomized controlled trial comparing methotrexate and mycophenolate mofetil for uveitis. Ophthalmology. 2021;128:1337–1345. doi:10.1016/j.ophtha.2021.02.024.
  • Smith GT, McCarthy DM. Methodological considerations in the refinement of clinical assessment instruments. Psychol Assess. 1995;7:300–308. doi:10.1037/1040-3590.7.3.300.