The Incidence of Retinoblastoma in South Africa: Findings from the South African National Cancer Registry (2004–2018)

References

• Young J, Roffers S, Liff J, Bunin G. Retinoblastoma. In: Ries L, Gurney J, Linet M, Tamra T, Young J, Bunin G, eds. Cancer Incidence and Survival among Children and Adolescents: United States SEER Program 1975-1995, National Cancer Institute, SEER Program. Bethesda, MD, USA: National Cancer Institute pp. 73–78 ; 1999.
   Google Scholar
• Dimaras H, Corson TW, Cobrinik D, et al. Retinoblastoma. Nat Rev Dis Prim. 2015;1: p. 15021. doi:10.1038/nrdp.2015.21.
   PubMed Web of Science ®Google Scholar
• Bray F, Znaor A, Cueva P, et al. Planning and Developing Population-based Cancer Registration in Low- and Middle-income Settings. Lyon, France: International Agency for Research on Cancer; 2014.
   Google Scholar
• Park SJ, Woo SJ, Park KH. Incidence of retinoblastoma and survival rate of retinoblastoma patients in Korea using the Korean National Cancer Registry database (1993-2010). Investig Ophthalmol Vis Sci. 2014;55(5): pp. 2816–2821. doi:10.1167/iovs.14-14078.
   PubMed Web of Science ®Google Scholar
• Nyamori JM, Kimani K, Njuguna MW, Dimaras H. The incidence and distribution of retinoblastoma in Kenya. Br J Ophthalmol. 2012;96(1): pp. 141–142. doi:10.1136/bjophthalmol-2011-300739.
   PubMed Web of Science ®Google Scholar
• MacCarthy A, Birch JM, Draper GJ, et al. Retinoblastoma in great Britain 1963-2002. Br J Ophthalmol. 2009;93(1): pp. 33–37. doi:10.1136/bjo.2008.139618.
   PubMed Web of Science ®Google Scholar
• Stefan C, Bray F, Ferlay J, Liu B, Parkin DM. Cancer of childhood in sub-Saharan Africa. Ecancermedicalscience. 2017;11: p. 755. doi:10.3332/ecancer.2017.755.
   PubMed Web of Science ®Google Scholar
• Coovadia H, Jewkes R, Barron P, Sanders D, McIntyre D. The health and health system of South Africa: historical roots of current public health challenges. Lancet. 2009;374(9692): pp. 817–834. doi:10.1016/S0140-6736(09)60951-X.
   PubMed Web of Science ®Google Scholar
• Singh E, Ruff P, Babb C, et al. Establishment of a cancer surveillance programme: the South African experience. Lancet Oncol. 2015;16(8): pp. e414–421. doi:10.1016/S1470-2045(15)00162-X.
   PubMed Web of Science ®Google Scholar
• Singh E, Underwood JM, Nattey C, Babb C, Sengayi M, Kellett P. South African National cancer registry: effect of withheld data from private health systems on cancer incidence estimates. South African Med J. 2015;105(2): pp. 107–109.doi:10.7196/SAMJ.8858.
   PubMed Web of Science ®Google Scholar
• South African National Cancer Registry. National Cancer Registry Methodology. Johannesburg, South Africa: National Health Laboratory Services; 2006.
   Google Scholar
• Kaliki S, Shields CL, Gupta A, et al. Newly diagnosed active retinoblastoma in adults. Retina. 2015;35(12): pp. 2483–2488. doi:10.1097/IAE.0000000000000612.
   PubMed Web of Science ®Google Scholar
• Boniol M, Heanue M . Chapter 7: Age-standardisation and denominators. In: Curado MP, Edwards B, Shin HR, eds. Cancer Incidence in Five Continents. Lyon, France: International Agency for Research on Cancer; 2007: pp. 99–102.
   Google Scholar
• Jensen OM, Parkin DM, MacLennan CS, Muir CS, Skeet RG. Cancer Registration: Principles and Methods. Lyon, France: International Agency for Research on Cancer; 1991.
   Google Scholar
• Kruger M, Reynders D, Omar F, Schoeman J, Wedi O, Harvey J. Retinoblastoma outcome at a single institution in South Africa. South African Med J. 2014;104(12): pp. 859–863.doi:10.7196/SAMJ.8255.
   PubMed Web of Science ®Google Scholar
• Goolam S, Kana H, Welsh N, Wainwright L, Poole J, Mayet I. A 20-Year Retrospective Review of Retinoblastoma at Two Tertiary Academic Hospitals in Johannesburg, South Africa. Ocul Oncol Pathol. 2018;4(3): pp. 170–175. doi:10.1159/000481508.
   PubMed Web of Science ®Google Scholar
• Wong JR, Tucker MA, Kleinerman RA, Devesa SS. Retinoblastoma incidence patterns in the US surveillance, epidemiology, and end results program. JAMA Ophthalmol. 2014;132(4): pp. 478–483. doi:10.1001/jamaophthalmol.2013.8001.
   PubMed Web of Science ®Google Scholar
• Fabian ID, Abdallah E, Abdullahi SU, et al. Global Retinoblastoma Presentation and Analysis by National Income Level. JAMA Oncol. 2020;6(5): pp. 685–695. doi:10.1001/jamaoncol.2019.6716.
   PubMed Web of Science ®Google Scholar
• Stefan DC, Stones DK, Wainwright D, et al. Childhood cancer incidence in South Africa, 1987-2007. South African Med J. 2015;105(11): pp. 939–947. doi:10.7196/SAMJ.2015.v105i11.9780.
   PubMed Web of Science ®Google Scholar
• Freedman J, Goldberg L. Incidence of retinoblastoma in the Bantu of South Africa. Br J Ophthalmol. 1976;60(9): pp. 655–656. doi:10.1136/bjo.60.9.655.
   PubMed Web of Science ®Google Scholar
• Orjuela-Grimm M, Singh N, Bhatt-Carreño S, Singh A. Retinoblastoma: Incidence and Etiologic Factors. In: Berry J, Kim J, Damato B, Singh A eds. Clinical Ophthalmic Oncology. Cham, Switzerland:Springer; 2019: pp. 39–56.
   Google Scholar
• Fabian ID, Reddy A, Sagoo MS. Classification and staging of retinoblastoma. Community Eye Health. 2018;31(101): pp. 11–13.
   Google Scholar
• Kruger M, Wainwright L, Davidson A, et al. Report of First National Collaborative Treatment Protocol of Retinoblastoma in South Africa: An Interim Analysis. Pediatr Blood Cancer. 2018;65: p. e27455:S85.
   Web of Science ®Google Scholar
• Rangamani S, SathishKumar K, Julka PK, et al. Paediatric Retinoblastoma in India: Evidence from the National Cancer Registry Programme. Asian Pacific J Cancer Prev. 2015;16(10): pp. 4193–4198. doi:10.7314/APJCP.2015.16.10.4193.
   PubMedGoogle Scholar
• Peters DH, Garg A, Bloom G, Walker DG, Brieger WR, Hafizur Rahman M. Poverty and access to health care in developing countries. Ann N Y Acad Sci. 2008;1136(): pp. 161–171. doi:10.1196/annals.1425.011.
   PubMed Web of Science ®Google Scholar
• Donders ART, van der Heijden GJMG, Stijnen T, Moons KGM. Review: a gentle introduction to imputation of missing values. J Clin Epidemiol. 2006;59(10): pp. 1087–1091. doi:10.1016/j.jclinepi.2006.01.014.
   PubMed Web of Science ®Google Scholar
• Stefan DC, Stones DK. The South African Paediatric Tumour Registry - 25 years of activity. South African Med J. 2012;102(7): pp. 605–606.doi:10.7196/SAMJ.5719.
   Google Scholar