The efficacy of a pilot pediatric cognitive remediation summer program to prepare for transition of care

References

• Adamson, A. M., O’Toole, K., & Petersen, C. (2012). Establishing a pediatric cognitive rehabilitation program: Insurance issues and clinical rationale. The Clinical Neuropsychologist, 26(1), 59–73. doi:10.1080/13854046.2011.639313
   PubMed Web of Science ®Google Scholar
• American Academy of Pediatrics, American Academy of Family Physicians, and American College of Physicians, Transitions Clinical Report Authoring Group. (2011). Clinical report—Supporting the health care transition from adolescence to adulthood in the medical home. Pediatrics, 128(1), 1–6. doi:10.1542/peds.2011-0969
   PubMed Web of Science ®Google Scholar
• Annunziato, R. A., Freiberger, D., Martin, K., Helcer, J., Fitzgerald, C., & Lefkowitz, D. S. (2014). An empirically based practice perspective on the transition to adulthood for solid organ transplant recipients. Pediatric Transplant, 18, 794–802. doi:10.1111/petr.12359
   PubMed Web of Science ®Google Scholar
• Antshel, K. M., Faraone, S. V., & Gordon, M. (2012). Cognitive behavioral treatment outcomes in adolescent ADHD. Focus, 10(3), 334–345. doi:10.1176/appi.focus.10.3.334
   Google Scholar
• Baumrind, D. (1991). Parenting styles and adolescent development. In J. Brooks-Gunn, R. Lerner, & A. C. Peterson (Eds.), The encyclopedia of adolescence (pp. 746–758). New York, NY: Garland.
   Google Scholar
• Boll, T. (1993). Children’s category test. San Antonio, TX: Psychological Corporation.
   Google Scholar
• Borlot, F., Tellez-Zenteno, J. F., Allen, A., Ali, A., Snead, O. C., & Andrade, D. M. (2014). Epilepsy transition: Challenges of caring for adults with childhood-onset seizures. Epilepsia, 55(10), 1659–1666. doi:10.1111/epi.12752
   PubMed Web of Science ®Google Scholar
• Butler, R. W., & Copeland, D. R. (2002). Attentional processes and their remediation in children treated for cancer: A literature review and the development of a therapeutic approach. Journal of the International Neuropsychological Society, 8, 115–124. doi:10.1017/S1355617702811110
   PubMed Web of Science ®Google Scholar
• Butler, R. W., Copeland, D. R., Fairclough, D. L., Mulhern, R. K., Katz, E. R., Kazak, A. E., et al. (2008). A multicenter, randomized clinical trial of a cognitive remediation program for childhood survivors of a pediatric malignancy. Journal of Consulting and Clinical Psychology, 76(3), 367–378. doi:10.1037/0022-006X.76.3.367
   PubMed Web of Science ®Google Scholar
• Davis, A. M., Brown, R. F., Taylor, J. L., Epstein, R. A., & McPheeters, M. L. (2014). Transition care for children with special health care needs. Pediatrics, 134(5), 901–908. doi:10.1542/peds.2014-1909
   Web of Science ®Google Scholar
• Delis, D. C., Kaplan, E., & Kramer, J. (2001). Delis-Kaplan executive function system. San Antonio, TX: Psychological Corporation.
   Google Scholar
• Doll, C., McLaughlin, T. F., & Barretto, A. (2013). The token economy: A recent review and evaluation. International Journal of Basic and Applied Science, 2(01), 131–149.
   Google Scholar
• Farina, E., Raglio, A., & Giovagnoli, A. R. (2015). Cognitive rehabilitation in epilepsy: An evidence-based review. Epilepsy Research, 109, 210–218. doi:10.1016/j.eplepsyres.2014.10.017
   PubMed Web of Science ®Google Scholar
• Felsenstein, S., Reif, A. O., & Ramanathan, A. (2015). Transition of care and health-related outcomes in pediatric onset systemic lupus erythematosus. Arthritis Care and Research, 67(11), 1521–1528. doi:10.1002/acr.22611
   Web of Science ®Google Scholar
• Fredericks, E. M., Dore‐Stites, D., Well, A., Magee, J. C., Freed, G. L., Shieck, V., & James Lopez, M. (2010). Assessment of transition readiness skills and adherence in pediatric liver transplant recipients. Pediatric Transplantation, 14(8), 944–953. doi:10.1111/petr.2010.14.issue-8
   PubMed Web of Science ®Google Scholar
• Freed, G. L., & Hudson, E. J. (2006). Transitioning children with chronic diseases to adult care: Current knowledge, practices, and directions. The Journal of Pediatrics, 148(6), 824–827. doi:10.1016/j.jpeds.2006.02.010
   PubMed Web of Science ®Google Scholar
• Galbiati, S., Recla, M., Pastore, V., Liscio, M., Bardoni, A., Castelli, E., & Strazzer, S. (2009). Attention remediation following traumatic brain injury in childhood and adolescence. Neuropsychology, 23(1), 40. doi:10.1037/a0013409
   PubMed Web of Science ®Google Scholar
• Gioia, G. A., Isquith, P. K., Guy, S. C., & Kenworthy, L. (2000). Behavior rating inventory of executive functions. Odessa, FL: Psychological Assessment Resources.
   Google Scholar
• Granek, L., Nathan, P. C., Rosenberg-Yunger, Z. R. S., D’Agostino, L. A., Barr, R. D., Greenberg, M. L., … Klassen, A. F. (2012). Psychological factors impacting transition from pediatric to adult care by childhood cancer survivors. Journal of Cancer Survivorship, 6, 260–269. doi:10.1007/s11764-012-0223-0
   PubMed Web of Science ®Google Scholar
• Hardy, K. K., Willard, V. W., & Bonner, M. J. (2011). Computerized cognitive training in survivors of childhood cancer: A pilot study. Journal of Pediatric Oncology Nursing, 28, 27–33. doi:10.1177/1043454210377178
   PubMed Web of Science ®Google Scholar
• Harrison, P. L., & Oakland, T. (2003). Adaptive behavior assessment system (Vol. 2). San Antonio, TX: Harcourt Assessment, Inc.
   Google Scholar
• Hume, K., Loftin, R., & Lantz, J. (2009). Increasing independence in autism spectrum disorders: A review of three focused interventions. Journal of Autism and Developmental Disorders, 39(9), 1329–1338. doi:10.1007/s10803-009-0751-2
   PubMed Web of Science ®Google Scholar
• Isquith, P. K., Roth, R. M., & Gioia, G. A. (2010). Tasks of executive control. Lutz, FL: Psychological Assessment Resources, Inc.
   Google Scholar
• Krasny-Pacini, A., Limond, J., Evans, J., Hiebel, J., Bendjelida, K., & Chevignard, M. (2014). Context-sensitive goal management training for everyday executive dysfunction in children after severe traumatic brain injury. The Journal of Head Trauma Rehabilitation, 29(5), E49–E64. doi:10.1097/HTR.0000000000000015
   PubMed Web of Science ®Google Scholar
• Langenbahn, D. M., Ashman, T., Cantor, J., & Trott, C. (2013). An evidence-based review of cognitive rehabilitation in medical conditions affecting cognitive function. Archives of Physical Medicine and Rehabilitation, 94(2), 271–286. doi:10.1016/j.apmr.2012.09.011
   PubMed Web of Science ®Google Scholar
• Lawson, E. F., Hersh, A. O., Applebaum, M. A., Yelin, E. H., Okumura, M. J., & von Scheven, E. (2011). Self-management skills in adolescents with chronic rheumatic disease: A cross-sectional survey. Pediatric Rheumatology, 9(1), 35. doi:10.1186/1546-0096-9-35
   PubMed Web of Science ®Google Scholar
• Limond, J., Adlam, A. R., & Cormack, M. (2014). A model for pediatric neurocognitive interventions: Considering the role of development and maturation in rehabilitation planning. The Clinical Neuropsychologist, 28(2), 181–198. doi:10.1080/13854046.2013.873083
   PubMed Web of Science ®Google Scholar
• Mahan, J. D., Betz, C. L., Okumura, M. J., & Ferris, M. E. (2017). Self-management and transition to adult health care in adolescents and young adults: A team process. Pediatrics in Review, 38(7), 305–319. doi:10.1542/pir.2016-0074
   PubMed Web of Science ®Google Scholar
• Mariano, M. A., Tang, K., Kurtz, M., & Kates, W. R. (2015). Cognitive remediation for adolescents with 22q11 deletion syndrome (22q11DS): A preliminary study examining effectiveness, feasibility, and fidelity of a hybrid strategy, remote and computer-based intervention. Schizophrenia Research, 166(1), 283–289. doi:10.1016/j.schres.2015.05.030
   PubMed Web of Science ®Google Scholar
• Mazur‐Mosiewicz, A., Carlson, H. L., Hartwick, C., Dykeman, J., Lenders, T., Brooks, B. L., & Wiebe, S. (2015). Effectiveness of cognitive rehabilitation following epilepsy surgery: Current state of knowledge. Epilepsia, 56(5), 735–744. doi:10.1111/epi.2015.56.issue-5
   PubMed Web of Science ®Google Scholar
• McDonagh, J. E., & Viner, R. M. (2006). Lost in transition? Between paediatric and adult services: It’s time to improve the transition of adolescents from paediatric to adult services. BMJ: British Medical Journal, 332(7539), 435. doi:10.1136/bmj.332.7539.435
   Web of Science ®Google Scholar
• Moore, I. M., Hockenberry, M. J., Anhalt, C., McCarthy, K., & Krull, K. R. (2012). Mathematics intervention for prevention of neurocognitive deficits in childhood leukemia. Pediatric Blood & Cancer, 59, 278–284. doi:10.1002/pbc.23354
   PubMed Web of Science ®Google Scholar
• Morales, V. A., Ledford, J. R., & Chazin, K. T. (2016). Graduated guidance. In evidence-based instructional practices for young children with autism and other disabilities. Retrieved from http://vkc.mc.vanderbilt.edu/ebip/graduated-guidance
   Google Scholar
• Olson, K., & Sands, S. A. (2016). Cognitive training programs for childhood cancer patients and survivors: A critical review and future directions. Child Neuropsychology, 22(5), 509–536. doi:10.1080/09297049.2015.1049941
   PubMed Web of Science ®Google Scholar
• Reiss, J., & Gibson, R. (2002). Health care transition: Destinations unknown. Pediatrics, 110(Supplement 3), 1307–1314.
   PubMedGoogle Scholar
• Reiss, J. G., Gibson, R. W., & Walker, L. R. (2005). Health care transition: Youth, family, and provider perspectives. Pediatrics, 115(1), 112–120. doi:10.1542/peds.2004-1321
   PubMed Web of Science ®Google Scholar
• Robinson, C. C., Mandleco, B., Olsen, S. F., & Hart, C. H. (1995). Authoritative, authoritarian, and permissive parenting practices: Development of a new measure. Psychological Reports, 77, 819–830. doi:10.2466/pr0.1995.77.3.819
   Web of Science ®Google Scholar
• Sharma, N., O’Hare, K., Antonelli, R. C., & Sawicki, G. S. (2014). Transition care: Future directions in education, health policy, and outcomes research. Academic Pediatrics, 14(2), 120–127. doi:10.1016/j.acap.2013.11.007
   PubMed Web of Science ®Google Scholar
• Sohlberg, M. M., Avery, J., Kennedy, M., Ylvisaker, M., Coelho, C., Turkstra, L., & Yorkston, K. (2003). Practice guidelines for direct attention training. Journal of Medical Speech-language Pathology, 11(3).
   Google Scholar
• Solberg, M. M., & Mateer, C. A. (1987). Effectiveness of an attention-training program. Journal of Clinical & Experimental Neuropsychology, 9, 117–130. doi:10.1080/01688638708405352
   PubMed Web of Science ®Google Scholar
• Spera, C. (2005). A review of the relationship among parenting practices, parenting styles, and adolescent school achievement. Educational Psychology Review, 17(2), 125–146. doi:10.1007/s10648-005-3950-1
   Web of Science ®Google Scholar
• Tarazi, R. A., Mahone, M., & Zabel, A. (2007). Self-care independence in children with neurological disorders: An interactional model of adaptive demands and executive dysfunction. Rehabilitation Psychology, 52(2), 196–205. doi:10.1037/0090-5550.52.2.196
   Web of Science ®Google Scholar
• Thiele, E. A., Granata, T., Satricardi, S., & Chugani, H. T. (2014). Transition into adulthood: Tuberous sclerosis complex, Sturge-Weber syndrome, and Rasmussen encephalitis. Epilepsia, 55(Suppl. 3), 29–33. doi:10.1111/epi.12722
   PubMed Web of Science ®Google Scholar
• Treble-Barna, A., Sohlberg, M. M., Harn, B. E., & Wade, S. L. (2016). Cognitive intervention for attention and executive function impairments in children with traumatic brain injury: A pilot study. The Journal of Head Trauma Rehabilitation, 31(6), 407–418. doi:10.1097/HTR.0000000000000200
   PubMed Web of Science ®Google Scholar
• van’t Hooft, I., & Norberg, A. L. (2010). SMART cognitive training combined with a parental coaching programme for three children treated for medulloblastoma. NeuroRehabilitation, 26(2), 105–113.
   PubMed Web of Science ®Google Scholar
• Wechsler, D. (1999). Wechsler Abbreviated Scale of Intelligence (WASI). San Antonio, TX: Harcourt Assessment.
   Google Scholar
• Wechsler, D. (2003). Wechsler intelligence scale for children (4th ed.). San Antonio, TX: The Psychological Corporation.
   Google Scholar
• Wechsler, D. (2014). Wechsler intelligence scale for children (5th ed.). San Antonio, TX: The Psychological Corporation.
   Google Scholar