Effective Short Breaks Services for Families with Children with Autism Spectrum Disorders: How One Local Authority in the United Kingdom is Working to Meet the Challenge

References

• Abelson , A. G. 1999 . Respite care needs of families with children with developmental disabilities . Focus on Autism and Other Developmental Disabilities , 14 : 96 – 109 .
   Google Scholar
• Autism Working Group . 2002 . Autistic spectrum disorders: Good practice guidance , London : Department for Education and Skills/Department of Health .
   Google Scholar
• Baird , G. , Simonoff , E. , Pickles , A. , Chandler , S. , Loucas , T. , Meldrum , D. and Charman , T. 2006 . Prevalence of disorders of the autistic spectrum in a population cohort of children in South Thames: The special needs and autism project (SNAP) . Lancet , 368 : 210 – 15 .
   PubMed Web of Science ®Google Scholar
• Barson , C. 1998 . Autism: Supporting the family. A report on the short term care needs of children with autism in Wales , London : National Autistic Society .
   Google Scholar
• Bebbington , A. and Beecham , J. 2007 . Social services support and expenditure for children with autism . Autism , 11 : 43 – 61 .
   PubMed Web of Science ®Google Scholar
• Bogdashina , O. 2003 . Sensory perceptual issues in autism and Asperger syndrome , London : Jessica Kingsley .
   Google Scholar
• Boyd , B. A. 2002 . Examining the relationship between stress and lack of social support in mothers of children with autism . Focus on Autism and Other Developmental Disabilities , 17 : 208 – 15 .
   Google Scholar
• Brady , P. 1998 . Shaping family support: A study of specialist community based support for families of people with autism spectrum disorders , Nottingham : National Autistic Society .
   Google Scholar
• Bristol , M. M. and Schopler , E. 1983 . “ Coping and stress in families of autistic adolescents ” . In Autism in adolescents and adults , Edited by: Schopler , E. and Mesibov , G. B. New York : Plenum .
   Google Scholar
• Carlin , J. , Morrison , J. , Bullock , J. and Nawaz , S. 2004 . All kinds of short breaks: A guide to providing a range of quality services to disabled children and young people , Bristol : Shared Care Network/Department for Education and Skills .
   Google Scholar
• Chan , J. B. and Sigafoos , J. 2001 . Does respite care reduce parental stress in families with developmentally disabled children . Child and Youth Care Forum , 30 : 253 – 63 .
   Google Scholar
• Cocks , A. 2000 . Respite care for disabled children: Micro and macro reflections . Disability and Society , 15 : 507 – 19 .
   Web of Science ®Google Scholar
• Crosby , N. and Miller , C. 2007 . Introducing individual budgets and self-directed support for disabled children, young people and their families and carers: Report for the Department for Children, Schools and Families , London : Office for Public Management .
   Google Scholar
• Department of Health . 1971 . Better services for the mentally handicapped , London : Department of Health .
   Google Scholar
• Frost , L. and Bondy , A. 2002 . The picture exchange communication system — Training manual. , 2nd edition , Newark, DE : Pyramid Educational Products .
   Google Scholar
• Gray , C. and Garard , J. 1993 . Social stories: Improving social responses of students with autism with accurate social information . Focus on Autistic Behaviour , 8 : 1 – 10 .
   Google Scholar
• Gray , D. E. 1994 . Coping with autism: Stresses and strategies . Sociology of Health and Illness , 16 : 275 – 300 .
   Web of Science ®Google Scholar
• Gray , P. 2006 . National audit of support, services and provision for children with low incidence needs , Nottingham : DfES Publications .
   Google Scholar
• HM Treasury/Department for Education and Skills . 2007 . Aiming high for disabled children: Better support for families , Norwich : Office of Public Sector Information .
   Google Scholar
• Knapp , N. , Romeo , R. and Beecham , J. 2007 . The economic consequences of autism in the UK , London : Foundation for People with Learning Disabilities .
   Google Scholar
• Koegel , R. L. , Schriebmann , L. , Loos , L. M. , Dirlich-Wilhelm , H. , Dunlap , G. , Robbins , F. R. and A. J. , Plienis . 1992 . Consistent stress profiles in mothers of children with autism . Journal of Autism and Developmental Disorders , 22 : 205 – 16 .
   PubMed Web of Science ®Google Scholar
• Konstantareas , M. M. , Homatidis , S. and Plowright , C. M. S. 1992 . Assessing resources and stress in parents of severely dysfunctional children through the Clarke modification of Holroyd's questionnaire on resources and stress . Journal of Autism and Developmental Disorders , 22 : 217 – 34 .
   PubMed Web of Science ®Google Scholar
• MacDonald , H. and Callery , P. 2004 . Different meanings of respite: A study of parents, nurses and social workers caring for children with complex needs . Child: Care, Health and Development , 30 : 279 – 88 .
   PubMed Web of Science ®Google Scholar
• Marcus , L. M. 1984 . “ Coping with burnout ” . In The effects of autism on the family , Edited by: Schopler , E. and Mesibov , G. B. New York : Plenum .
   Google Scholar
• Mesibov , G. B. , Shea , V. and Schopler , E. 2005 . The TEACCH approach to autism spectrum disorders , New York : Plenum .
   Google Scholar
• Middleton , L. 1999 . Disabled children: Challenging social exclusion , Oxford : Blackwell Science .
   Google Scholar
• National Initiative for Autism: Screening and Assessment . 2003 . National autism plan for children (NAPC) , London : National Autistic Society .
   Google Scholar
• National Statistics/Department of Health . 2002 . Children in need in England: Results of a survey of activity and expenditure as reported by Local Authorities in England based on a survey week in September/October 2001 , London : National Statistics/Department of Health .
   Google Scholar
• Oberheim , D. 1996 . The support needs of adults and children with autism and their carers in Kent , Gillingham : Kent Autistic Trust .
   Google Scholar
• Olsen , R. and Maslin-Prothero , P. 2001 . Dilemmas in the provision of own-home respite support for parents of young children with complex health care needs: Evidence from an evaluation . Journal of Advanced Nursing , 34 : 603 – 10 .
   PubMed Web of Science ®Google Scholar
• Oswin , M. 1984 . They keep going away: A critical study of short-stay residential facilities for children who are mentally handicapped , London : King's Fund Centre .
   Google Scholar
• Peeters , T. and Jordan , R. 1999 . What makes a good practitioner in the field of autism? . Good Autism Practice , April : 85 – 90 .
   Google Scholar
• Preece , D. 2000 . An investigation into parental satisfaction with a short-term care service for children with an autistic spectrum disorder . Good Autism Practice , 1 : 42 – 56 .
   Google Scholar
• Preece , D. 2003 . Providing an ‘autism-friendly’ service for children with an autistic spectrum disorder within a short-term (respite) care setting . Journal of Integrated Care , 11 : 39 – 44 .
   Google Scholar
• Preece , D. and Jordan , R. 2007a . Short breaks services for children with autistic spectrum disorders: Factors associated with service use and non-use . Journal of Autism and Developmental Disorders , 37 : 374 – 85 .
   PubMed Web of Science ®Google Scholar
• Preece , D. and Jordan , R. 2007b . Social workers' understanding of autistic spectrum disorders: An exploratory investigation . British Journal of Social Work , 37 : 925 – 36 .
   Web of Science ®Google Scholar
• Preece , D. and Jordan , R. 2009 . Obtaining the views of children with autism spectrum disorder about family life and social care support . British Journal of Learning Disabilities , (in press)
   Google Scholar
• Preece , D. and Jordan , R. In preparation . “ Short breaks support and families with children with autism spectrum disorders ” .
   Google Scholar
• Preece , D. R. , Lovett , K. , Lovett , P. and Burke , C. 2000 . The adoption of TEACCH in Northamptonshire, UK . International Journal of Mental Health , 29 : 19 – 31 .
   Web of Science ®Google Scholar
• Prewett , B. 1999 . Short-term break long-term benefit: Family-based short-term care for disabled children and adults , Sheffield : University of Sheffield Joint Unit for Social Services Research .
   Google Scholar
• PriceWaterhouseCoopers . 2007 . Market for disabled children's services — A review , London : PriceWaterhouseCoopers LLP .
   Google Scholar
• Sargent , J. A. 1995 . The future of respite care resources for children with autism in north east Essex , Colchester : Essex County Council .
   Google Scholar
• Social Services Inspectorate/Audit Commission . 1999 . A report of the review of social services in Northamptonshire County Council , Abingdon : Audit Commission .
   Google Scholar
• Stalker , K. 1996 . “ Principles, policy and practice in short-term care ” . In Developments in short-term care: Breaks and opportunities , Edited by: Stalker , K. London : Jessica Kingsley .
   Google Scholar
• Tarleton , B. , Kelly , N. and Macaulay , F. 2004 . Thinking it through , Bristol : Shared Care Network and Norah Fry Research Centre .
   Google Scholar
• Tarleton , B. and Macaulay , F. 2002 . Better for the break? Short break services for children and teenagers with autistic spectrum disorders and their families , York : Shared Care Network .
   Google Scholar
• Van Bourgondien , M. E. and Elgar , S. 1990 . The relationship between existing residential services and the needs of autistic adults . Journal of Autism and Developmental Disorders , 20 : 299 – 308 .
   PubMed Web of Science ®Google Scholar
• Whitaker , P. 2007 . Provision for youngsters with autistic spectrum disorders in mainstream schools: what parents say — And what parents want . British Journal of Special Education , 34 : 170 – 78 .
   Google Scholar
• White , N. and Hastings , R. P. 2004 . Social and professional support for parents of adolescents with severe intellectual disabilities . Journal of Applied Research in Intellectual Disabilities , 17 : 181 – 90 .
   Web of Science ®Google Scholar
• Wing , L. 1993 . The definition and prevalence of autism: A review . European Child and Adolescent Psychiatry , 2 : 61 – 74 .
   PubMedGoogle Scholar