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Articles

Refused-knowledge during the COVID-19 Pandemic: Mobilising Experiential Expertise for Care and Well-being

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References

  • Armstrong, P. W. and Naylor, C. D. (2019) Counteracting health misinformation: A role for medical journals?, JAMA, 321, pp. 1863–1864.
  • Ball, J. (2017) Post-truth: How Bullshit Conquered the World (London: Biteback Publishing).
  • Barbosa, S. and Milan, S. (2019) Do not harm in private chat apps: Ethical issues for research on and with WhatsApp, Westminster Papers in Communication and Culture, 14(1), pp. 49–65.
  • Bory, P., Crabu, S., Morsello, B., Tomasi, M. and Tosoni, S. (2022a) Rethinking the nexus between science, politics and society in the age of the SARS-CoV-2 pandemic, Tecnoscienza: Italian Journal of Science & Technology Studies, 12(2), pp. 141–188.
  • Bory, P., Giardullo, P., Tosoni, S. and Turrini, V. (2022b) We will multiply the fires of resistance: The catalysts of dissent against institutional science and their interplay with refused knowledge communities. Public Understanding of Science, Online First. https://doi.org/10.1177/09636625221113524
  • British Psychological Society (2009) Code of Ethics and Conduct Guidance Published by the Ethics Committee of the British Psychological Society (Leicester: The British Psychological Society).
  • British Sociological Association 2016. Ethics guidelines and collated resources for digital research. statement of ethical practice annexe. Available at https://www.britsoc.co.uk/media/24309/bsa_statement_of_ethical_practice_annexe.pdf
  • Brosnan, C., Vuolanto, P. and Brodin Danell, J-A. (Eds) (2018) Complementary and Alternative Medicine: Knowledge Production and Social Transformation (London: Palgrave Macmillan).
  • Cattaneo, E. and Corbellini, G. (2014) Stem cells: Taking a stand against pseudoscience, Nature, 510, pp. 333–335.
  • Charmaz, K. (2009) Shifting the grounds: Constructivist grounded theory methods, in: J. M. Morse, P. N. Stern, J. Corbin, B. Bowers, A. E. Clarke, and K. Charmaz (Eds) Developing Grounded Theory: The Second Generation, pp. 127–193 (Walnut Creek, CA: University of Arizona Press).
  • Cloatre, E. (2019) Traditional medicines, law, and the (dis)ordering of temporalities, in: S. M. Beynon-Jones, and E. Grabham (Eds) Law and Time, pp. 128–144 (London: Routledge).
  • D’Amato, I. (2019) Dossier Hamer: The role of investigative journalism in exposing pseudomedicine, in: A. Lavorgna, and A. Di Ronco (Eds) Medical Misinformation and Social Harm in Non-Science-Based Health Practices, pp. 162–177 (London: Routledge).
  • D’Ancona, M. (2017) Post-truth: The New War on Truth and How to Fight Back (London: Ebury Press).
  • Davis, E. (2017) Post-truth: Why We Have Reached Peak Bullshit and What We Can Do About It (London: Hachette UK).
  • De Graaff, M. B. and Bröer, C. (2012) We are the canary in a coal mine’: Establishing a disease category and a new health risk, Health, Risk & Society, 14(2), pp. 129–147.
  • Del Vicario, M., Bessi, A., Zollo, F., Petroni, F., Scala, A., Caldarelli, G., Stanley, H. E. and Quattrociocchi, W. (2016) Echo chambers in the age of misinformation, Proceedings of the National Academy of Sciences, 113(3), pp. 554–559.
  • Desta, T. and Mulgeta, T. (2020) Living with COVID-19-triggered pseudoscience and conspiracies, International Journal of Public Health, 65(6), pp. 713–714.
  • Falcioni, L., Bua, L., Tibaldi, E., Lauriola, M., De Angelis, L., Gnudi, F., Mandrioli, D., Manservigi, M., Manservisi, F., Manzoli, I. and Menghetti, I. (2018) Report of final results regarding brain and heart tumors in Sprague-Dawley rats exposed from prenatal life until natural death to mobile phone radiofrequency field representative of a 1.8 GHz GSM base station environmental emission, Environmental Research, 165, pp. 496–503.
  • Farkas, J. and Schou, J. (2018) Fake news as a floating signifier: Hegemony, antagonism and the politics of falsehood, Javnost – The Public, 25(3), pp. 298–314.
  • Fenton, T. R. and Huang, T. (2016) Systematic review of the association between dietary acid load, alkaline water and cancer, BMJ Open, 6, pp. e010438.
  • Fleck, L. (1935) Genesis and Development of a Scientific Fact (Basel: Benno Schwabe). (English translation by F. Bardley and T. J. Trenn, University of Chicago Press, 1979)).
  • Foucault, M. (1973) The Birth of the Clinic: An Archaeology of Medical Perception (New York: Pantheon).
  • Fuch, C. (2013) Social Media: A Critical Introduction (London: SAGE).
  • Fuller, S. (2018) Post-truth: Knowledge as a Power Game (London: Anthem Press).
  • Gentilcore, D. (2006) Medical Charlatanism in Early Modern Italy (Oxford: Oxford University Press).
  • Genuis, S. J. and Lipp, C. T. (2012) Electromagnetic hypersensitivity: Fact or fiction?, Science of the Total Environment, 414, pp. 103–112.
  • Glaser, Z. (1984) Cumulated Index to the Bibliography of Reported Biological Phenomena (‘Effects’) and Clinical Manifestations Attributed to Microwave and Radio-Frequency Radiation: Report, Supplements (no. 1–9), BEMS Newsletter (Riverside, CA: Julie Moore & Associates).
  • Goldenberg, M. J. (2016) Public misunderstanding of science? Reframing the problem of vaccine hesitancy, Perspectives on Science, 24(5), pp. 552–581.
  • Gustafson, A. and Rice, R. E. (2020) A review of the effects of uncertainty in public science communication, Public Understanding of Science, 29(6), pp. 614–633.
  • Hacking, I. (1992) Style’ for historians and philosophers, Studies in the History and Philosophy of Science Part A, 23(1), pp. 1–20.
  • Hale, T. M., Chou, W. Y. S., Cotten, S. R. and Khilnani, A. (Eds) (2018) eHealth: Current Evidence, Promises, Perils and Future Directions (Emerald Publishing Limited: Bingley).
  • Hamer, R. G. (2005) The Five Biological Laws of the New Medicine (Malaga: Amici di Dirk, Ediciones de la Nueva Medicina SL).
  • Harambam, J. (2020a) Contemporary Conspiracy Culture Truth and Knowledge in an Era of Epistemic Instability (New York, NY: Routledge).
  • Harambam, J. (2020b) The corona truth wars where have all the sts’ers gone when we need them most?, Science & Technology Studies, 33(4), pp. 60–67.
  • Harambam, J. and Aupers, S. (2015) Contesting epistemic authority: Conspiracy theories on the boundaries of science, Public Understanding of Science, 24(4), pp. 466–480.
  • Harambam, J. and Aupers, S. (2017) I am not a conspiracy theorist’: Relational identifications in the Dutch conspiracy milieu, Cultural Sociology, 11(1), pp. 113–129.
  • Heyen, N. B. (2020) From self-tracking to self-expertise: The production of self-related knowledge by doing personal science, Public Understanding of Science, 29(2), pp. 124–138.
  • Heyman, B., Alaszewski, A., Shaw, M. and Titterton, M. (2010) Risk, Safety, and Clinical Practice: Health Care Through the Lens of Risk (Oxford: Oxford University Press).
  • Hine, C. (2004) Social research methods and the internet: A thematic review. Sociological Research Online, 9(2), pp. 110–116. https://doi.org/10.5153/sro.924
  • Hine, C. (2017) Ethnographies of online communities and social media: Modes, varieties, affordances, in: N. G. Fielding, R. M. Lee, and G. Blank (Eds) The SAGE Handbook of Online Research Methods, pp. 401–415 (London: Sage).
  • Jackson, J. E. (1990) I am a fieldnote’: Fieldnotes as a symbol of professional identity, in: R. Sanjek (Eds) Fieldnotes: The Makings of Anthropology, pp. 3–33 (Ithaca, NY: Cornell University Press).
  • Larson, H. J. (2018) The biggest pandemic risk? Viral misinformation, Nature, 562, pp. 309.
  • Lasco, G. (2020) Medical populism and the COVID-19 pandemic, Global Public Health, 15(10), pp. 1417–1429.
  • Lavorgna, A. and Di Ronco, A. (Eds) (2019) Medical Misinformation and Social Harm in Non-Science-Based Health Practices (London: Routledge).
  • Lewis, J., Hughes, J. and Atkinson, P. (2014) Relocation, realignment and standardisation: Circuits of translation in Huntington’s disease, Social Theory & Health, 12(4), pp. 396–415.
  • Löwy, I. (1990) The Polish School of Philosophy of Medicine: From Tytus Chalubinski (1820–1889) to Ludwik Fleck (1896–1961) (Boston, MA: Dordrecht).
  • Löwy, I. (2004) Ludwik Fleck: Epistemology and biomedical sciences, Studies in History and Philosophy of Biological and Biomedical Sciences, 35(3), pp. 437–559.
  • Lynch, M. (2017) STS, symmetry and post-truth, Social Studies of Science, 47(4), pp. 593–599.
  • Lynch, M. (2020) We have never been anti-science: Reflections on science wars and post-truth, Engaging Science, Technology, and Society, 6, pp. 49–57.
  • Mancosu, M. and Vegetti, F. (2020) What you can scrape and what is right to scrape: A proposal for a tool to collect public Facebook data, Social Media + Society, 6(3), pp. 1–11.
  • McIntyre, L. (2018) Post-truth (Cambridge, MA: MIT Press).
  • Morganti, E., Bolelli, L., Novelli, G., Freeman, C. and Girotti, S. (2017) Alkaline water better than plain water? A critical review, in: V. Popescu, and S. Dobrinas (Eds) International Conference “Chemia” Book of Abstracts, pp. 74 (Constanta: Ovidius University Press).
  • National Toxicology Program (NTP). (2018) Technical Report on the Toxicology and Carcinogenesis Studies in Sprague Dawley (Hsd:Sprague Dawley® SD®) Rats Exposed to Whole-Body Radio Frequency Radiation at a Frequency (900 MHz) and Modulations (GSM and CDMA) Used by Cell Phones Technical Report No. 595 (Research Triangle Park, NC: National Toxicology Program).
  • Oreskes, N. (2019) Why Trust Science? (Princeton: Princeton University Press).
  • Peine, A. (2011) Challenging incommensurability: What we can learn from Ludwik Fleck for the analysis of configurational innovation, Minerva, 49(4), pp. 489–508.
  • Pellizzoni, L. (2019) Innocent, guilty or reluctant midwife? On the reciprocal relevance of STS and post-truth, Tecnoscienza: Italian Journal of Science & Technology Studies, 10(1), pp. 115–130.
  • Polichetti, A. 2019. Emissioni elettromagnetiche del 5g e rischi per la salute. Available at https://www.iss.it/documents/20126/2265547/5G_e_rischi_per_la_salute.pdf/d50f25e6-25e4-48c8-b8c3-7da28cc57827?t=1575725274470https://www.iss.it/documents/20126/2265547/5G_e_rischi_per_la_salute.pdf/d50f25e6-25e4-48c8-b8c3-7da28cc57827?t=1575725274470. (accessed 18 February 2021).
  • Prasad, A. (2021) Anti-science misinformation and conspiracies: COVID–19, post-truth, and science & technology studies (STS), Science, Technology and Society, 7(1), pp. 88–112.
  • Rapp, R. (2011) Chasing science: Children’s brains, scientific inquiries and family labors, Science, Technology and Human Values, 36(5), pp. 662–684.
  • Rose, N. (2007) The Politics of Life Itself: Biomedicine, Power, and Subjectivity in the Twenty-First Century (Princeton, NJ: Princeton University Press).
  • Sadchikova, M. (1960) State of the nervous system under the influence of UHF, in: A. A. Letavet, and Z. V. Gordon (Eds) The Biological Action of Ultrahigh Frequencies, pp. 25–29 (Moscow: Academy of Medical Sciences).
  • Stake, R. E. (1994) Case studies, in: N. K. Denzin, and Y. S. Lincoln (Eds) Handbook of Qualitative Research, pp. 443–466 (Thousand Oaks, London and New Delhi: SAGE).
  • Topol, E. (2015) The Patient will See You Now: The Future of Medicine is in Your Hands (New York, NY: Basic Books).
  • Trethewey, S. P. (2020) Strategies to combat medical misinformation on social media, Postgraduate Medical Journal, 96, pp. 4–6.
  • van Zoonen, L. (2012) I-pistemology: Changing truth claims in popular and political culture, European Journal of Communication, 27(1), pp. 56–67.
  • Vuolanto, P., Bergroth, H., Nurmi, J. and Salmenniemi, S. (2020) Reconfiguring health knowledges? Contemporary modes of self-care as ‘everyday fringe medicine’, Public Understanding of Science, 29(5), pp. 508–523.
  • Wahlberg, A. and Rose, N. (2015) The governmentalization of living: Calculating global health, Economy and Society, 44(1), pp. 60–90.
  • West, J. D. and Bergstrom, C. T. (2021) Misinformation in and about science, Proceedings of the National Academy of Sciences, 118(15), pp. e1912444117.
  • World Health Organization. 2020. Radiation: 5G mobile networks and health. Available at https://www.who.int/news-room/q-a-detail/radiation-5g-mobile-networks-and-health (accessed 24 February 2021).
  • Zayed, H. (2021) Researching digital sociality: Using WhatsApp to study educational change, Journal of Digital Social Research, 3(2), pp. 44–69.