“I look forward. I feel insecure but I am ok with it”. The experience of young HIV+ people attending transition preparation events: a qualitative investigation

References

• Bitsindou , P. , Nzounza , P. , Diafouka , M. , Sibillle , B. , Tran-Minh , T. , Mouala , C. , et al. . 2007 , July 1–4 . Need for dialogue in talking to children and adolescents living with HIV . AIDS Impact Conference, Marseille, France, Abstract No. 155 .
   Google Scholar
• Blum , R. , Garrell , D. and Hodgman , C. 1993 . Transition from child-centred to adult health-care systems for adolescents with chronic conditions. A position paper for the Society for Adolescent Medicine . Journal of Adolescent Health , 14 : 570 – 576 .
   PubMed Web of Science ®Google Scholar
• Braun , V. and Clarke , V. 2006 . Using thematic analysis in psychology . Qualitative Research in Psychology , 3 : 77 – 101 .
   Google Scholar
• Burgess , V. , Dziegielewski , S.F. and Evans Green , C. 2005 . Improving comfort about sex communication between parents and their adolescents: Practice-based research within a teen sexuality group . Brief Treatment and Crisis Intervention , 5 ( 4 ) : 379 – 390 .
   Google Scholar
• Cameron , J.S. 2001 . The continued care of children with renal disease into adult life . Pediatric Nephrology , 16 ( 8 ) : 680 – 685 .
   PubMed Web of Science ®Google Scholar
• Campbell , T. , Beer , H. and Wilkins , B. 2008 . Group work with HIV+ teenagers to facilitate transition to adult services and avoid loss to follow-up . HIV Medicine , 9 ( Suppl. 1 ) : 45
   Google Scholar
• Campbell , T. , Beer , H. , Wilkins , R. , Parrett , N. and Jauslin , L. 2009 . “Sex, love and one-night stands: Getting the relationship you want”: Evaluation of a sexual health workshop for HIV+ young people . Education and Health , 27 ( 2 ) : 23 – 27 .
   Google Scholar
• Fielden , S.J. , Sheckter , L. , Chapman , G.E. , Alimenti , A. , Forbes , J.C. Sheps , S. 2006 . Growing up: Perspectives of children, families and service providers regarding the needs of older children with perinatally-acquired HIV . AIDS Care , 18 ( 8 ) : 1050 – 1053 .
   PubMed Web of Science ®Google Scholar
• Green , G. and Smith , R. 2003 . The psychosocial and health care needs of HIV-positive people in the United Kingdom: A review . HIV Medicine , 5 ( Suppl. 1 ) : 5 – 46 .
   Google Scholar
• Judd , A. , Doerholt , K. , Tookey , P. , Sharland , M. , Riordan , A. Menson , E. 2007 . Morbidity, mortality, and response to treatment by children in the United Kingdom and Ireland with perinatally acquired HIV infection during 1996–2006: Planning for teenage and adult care . Clinical Infectious Diseases , 45 ( 7 ) : 918 – 924 .
   PubMed Web of Science ®Google Scholar
• Kipps , S. , Bahu , T. , Ong , K. , Ackland , F.M. , Brown , R.S. and Fox , C.T. 2002 . Current methods of transfer of young people with type 1 diabetes to adult services . Diabetes Medicine , 19 : 649 – 654 .
   PubMed Web of Science ®Google Scholar
• Lesch , A. , Swartz , L. , Kagee , A. , Moodley , K. , Kafaar , Z. Myer , L. 2007 . Paediatric HIV/AIDS disclosure: Towards a developmental and process-oriented approach . AIDS Care , 19 ( 6 ) : 811 – 816 .
   PubMed Web of Science ®Google Scholar
• Lewis-Gary , M.D. 2001 . Transitioning to adult health care facilities for young adults with a chronic condition . Pediatric Nursing , 27 ( 5 ) : 521 – 525 .
   PubMedGoogle Scholar
• Martinez , J. , Bell , D. , Camacho , R. , Henry-Reid , L.M. , Bell , M. and Watson , C. 2000 . Adherence to antiviral drug regimes in HIV-infected adolescent patients engaged in care in a comprehensive young adult clinic . Journal of the National Medical Association , 92 : 55 – 61 .
   PubMedGoogle Scholar
• McDonagh , J.E. 2000 . The adolescent challenge . Nephrology Dialysis Transplantation , 15 : 1761 – 1765 .
   PubMed Web of Science ®Google Scholar
• Miles , K. , Edwards , S. and Clapson , M. 2004 . Transition from paediatric to adult services: Experiences of HIV-positive adolescents . AIDS Care , 16 ( 3 ) : 305 – 314 .
   PubMed Web of Science ®Google Scholar
• Murphy , D.A. 2008 . HIV-positive mothers’ disclosure of their serostatus to their young children: A review . Clinical Child Psychology and Psychiatry , 13 : 105 – 122 .
   PubMedGoogle Scholar
• National Study of HIV in Pregnancy and Childhood . 2009 . Summary data , January. Retrieved February 27, 2009, fromhttp://www.nshpc.ucl.ac.uk/
   Google Scholar
• Ostrom , R.A. , Serovich , J.M. , Lim , J.Y. and Mason , T.L. 2006 . The role of stigma in reasons for HIV disclosure and non-disclosure to children . AIDS Care , 18 ( 1 ) : 60 – 65 .
   PubMed Web of Science ®Google Scholar
• Prime , K.P. , Jungmann , E.A. and Edwards , S.G. 2004 . Decline in mortality in children with HIV in the UK and Ireland . BMJ , 328 : 524
   PubMed Web of Science ®Google Scholar
• Prime , K.P. , Sethio , G. , Dean , G.L. , Fox , E. , De Ruiter , A. and Taploe , C.B. 2001 . Teenagers and HIV: What's the problem? . HIV Medicine , 2 : 11
   PubMedGoogle Scholar
• Rettig , P. and Athreya , B.H. 1991 . Adolescents with chronic disease: Transition to adult health care . Arthritis Care Research , 4 : 174 – 180 .
   PubMedGoogle Scholar
• Robertson , L.P. , McDonagh , J.E. , Southwood , T.R. and Shaw , K.L. 2006 . Growing up and moving on. A multicentre UK audit of the transfer of adolescents with juvenile idiopathic arthritis from paediatric to adult centred care . Annals of Rheumatic Disease , 65 : 74 – 80 .
   PubMed Web of Science ®Google Scholar
• Rosen , D.S. , Blum , R.W. , Britto , M. , Sawyer , S.M. and Siegel , D.M. 2003 . Transition from child-centred to adult health care for adolescents and young adults with chronic conditions. Position paper for the Society for Adolescent Medicine . Journal of Adolescent Health , 33 ( 4 ) : 309 – 311 .
   PubMed Web of Science ®Google Scholar
• Rotherham-Borus , M.J. , Flannery , D. , Rice , E. and Lester , P. 2005 . Families living with HIV . AIDS Care , 17 ( 8 ) : 978 – 987 .
   PubMed Web of Science ®Google Scholar
• Uzoebo , V. , Kioko , M. and Jones , R. 2008 . Deconstructing youth transition to adulthood services: Lessons learned from the VISIONS program . Vulnerable Children and Youth Studies , 3 ( 1 ) : 37 – 41 .
   Google Scholar
• Viner , R. 1999 . Transition from paediatric to adult care: Bridging the gaps or passing the buck? . Archives of Childhood Diseases , 81 : 271 – 275 .
   PubMed Web of Science ®Google Scholar
• Waugh , S. 2003 . Parental views on disclosure of diagnosis to their HIV-positive children . AIDS Care , 15 ( 2 ) : 169 – 176 .
   PubMed Web of Science ®Google Scholar
• Weiner , L. , Zobel , M. , Battles , H. and Ryder , C. 2007 . Transition from a pediatric HIV intramural clinical research program to adolescent and adult community-based care services: Assessing transition readiness . Social Work Health Care , 46 ( 1 ) : 1 – 19 .
   PubMed Web of Science ®Google Scholar
• Weiner , L.S. , Battles , H.B. , Heilman , N. , Siegelman , C.K. and Pizzo , P.A. 1996 . Factors associated with disclosure of diagnosis to children with HIV/AIDS . Pediatric AIDS & HIV Infection , 7 ( 5 ) : 310 – 324 .
   PubMedGoogle Scholar
• Wilkins , R. , Campbell , T. Beer , H. 2007 . Preparing HIV-positive young people for the challenges of adult life: A group work approach . AIDS & Hepatitis Digest , 119 May , 1 4 .
   Google Scholar