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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 29, 2017 - Issue 8
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Articles

Talking to children about their HIV status: a review of available resources, tools, and models for improving and promoting pediatric disclosure

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Pages 1019-1025 | Received 19 May 2016, Accepted 07 Dec 2016, Published online: 12 Jan 2017

References

  • Abadia-Barrero, C. E., & Larusso, M. D. (2006). The disclosure model versus a developmental illness experience model for children and adolescents living with HIV/AIDS in Sao Paulo, Brazil. AIDS Patient Care and STDs, 20(1), 36–43.
  • Allison, S. M., & Siberry, G. K. (2015). National institutes of health investment in studies of HIV disclosure to children. AIDS, 29, S109–S118.
  • Arrive, E., Dicko, F., Amghar, H., Aka, A., Dior, H., Bouah, B., … Leroy, V. (2012). HIV status disclosure and retention in care in HIV-infected adolescents on antiretroviral therapy (ART) in West Africa. PLoS ONE, 7, e33690.
  • Beck-Sague, C. M., Devieux, J., Pinzon-Iregui, M. C., Lerebours-Nadal, L., Abreu-Perez, R., Bertrand, R., … Blasini, I. (2015). Disclosure of their HIV status to perinatally infected youth using the adapted Blasini disclosure model in Haiti and the Dominican Republic: Preliminary results. AIDS, 29, S91–S98.
  • Beima-Sofie, K., John-Stewart, G., Shah, B., Wamalwa, D., Maleche-Obimbo, E., & Kelley, M. (2014). Using health provider insights to inform pediatric HIV disclosure: A qualitative study and practice framework from Kenya. AIDS Patient Care and STDs, 28, 555–564.
  • Bhattacharya, M., Dubey, A. P., & Sharma, M. (2010). Patterns of diagnosis disclosure and its correlates in HIV-infected North Indian children. Journal of Tropical Pediatrics, 57(6), 405–411. PMID: 21149240. doi:10.1093/tropej/fmq115
  • Biadgilign, S., Deribew, A., Amberbirm, A., Escuerdo, H. R., & Deribe, K. (2011). Factors associated with HIV/AIDS diagnostic disclosure to HIV infected children receiving HAART: A multi-center study in Addis Ababa, Ethiopia. PLoS One, 6(3), e17572. PMID: 21445289. doi:10.1371/journal.pone.0017572
  • Bikaako-Kajura, W., Luyirika, E., Purcell, D. W., Downing, J., Kaharuza, F., Mermin, J., … Bunnell, R. (2006). Disclosure of HIV status and adherence to daily drug regimens among HIV-infected children in Uganda. Journal of AIDS Behavior, 10, 85–93.
  • Blasini, I., Chantry, C., Cruz, C., Ortiz, L., Salabarria, A. I., Scalley, N., … Diac, C. (2004). Disclosure model for pediatric patients living with HIV in Puerto Rico: Design, implementation, and evaluation. Journal of Developmental & Behavioral Pediatrics, 25, 181–189. Retrieved from https://www.ncbi.nlm.nih.gov/pubmed. PMID: 15194903. doi:10.1097/00004703-200406000-00007
  • Boon-yasidhi, V., Chokephaibulkit, K., McConnell, M. S., Vanprapar, N., Leowsrisook, P., Prasitsurbsai, W., … Chotpitayasunond, T. (2013). Development of a diagnosis disclosure model for perinatally HIV-infected children in Thailand. AIDS Care, 25, 756–762.
  • Boon-yasidhi, V., Kottapat, U., Durier, Y., Plipat, N., Phongsamart, W., Chokephaibulkit, K., & Vanprapar, N. (2005). Diagnosis disclosure in HIV-infected Thai children. Journal of the Medical Association of Thailand, 88, S100–S105. Retrieved from https://www.ncbi.nlm.nih.gov/pubmed. PMID: 16858851.
  • Boon-yasidhi, V., Naiwatanakul, T., Chokephaibulkit, K., Lolekha, R., Leowsrisook, P., Chotpitayasunond, T., & Wolfe, M. (2016). Effect of HIV diagnosis disclosure on psychosocial outcomes in Thai children with perinatal HIV-Infection. International Journal of STD & AIDS, 27, 288–295.
  • Brada, B. (2013). How to do things to children with words: Language, ritual, and apocalypse in pediatric HIV treatment in Botswana. American Ethnologist, 40, 437–451.
  • Brandt, L., Beima-Sofie, K., Hamunime, N., Shepard, M., Ferris, L., Ingo, P., … O’Malley, G. (2015). Growing-up just like everyone else: Key components of a successful pediatric HIV disclosure intervention in Namibia. AIDS, 29, S81–S89.
  • Brown, B. J., Oladokun, R. E., Osinusi, K., Ochigbo, S., Adewole, I. F., & Kanki, P. (2011). Disclosure of HIV status to infected children in a Nigerian HIV care programme. AIDS Care, 23(9), 1053–1058. PMID:21476150. doi:10.1080/09540121.2011.554523
  • Butler, A. M., Williams, P. L., Howland, L. C., Storm, D, Hutton, N, Seage, G. R., & Pediatric AIDS Clinical Trials Group 219C Study Team. (2009). Impact of disclosure of HIV infection on health-related quality of life among children and adolescents with HIV infection. Pediatrics, 123, 935–943.
  • Cluver, L. D., Hodes, R. J., Toska, E., Kidia, K. K., Orkin, F. M., Sherr, L., & Meinck, F. (2015). ‘HIV is like a tsotsi. ARVs are your guns’: Associations between HIV-disclosure and adherence to antiretroviral treatment among adolescents in South Africa. AIDS, 29, S57–S65.
  • Corneli, A., Vaz, L., Dulyx, J., Omba, S., Rennie, S., & Behets, F. (2009). The role of disclosure in relation to assent to participate in HIV-related research among HIV-infected youth: A formative study. Journal of International AIDS Society, 12(1), 12–17. PMID:19712468. doi:10.1186/1758-2652-12-17
  • Demmer, C. (2011). Experiences of families caring for an HIV-infected child in KwaZulu-Natal, South Africa: An exploratory study. AIDS Care, 23(7), 873–879. PMID: 21400305. doi:10.1080/09540121.2010.542123
  • Ferris, M., Burau, K., Schweitzer, A. M., Mihale, S., Murray, N., Preda, A., … Kline, M. (2007). The influence of disclosure of HIV diagnosis on time to disease progression in a cohort of Romanian children and teens. AIDS Care, 19, 1088–1094.
  • Fetzer, B. C., Mupenda, B., Lusiama, J., Kitetele, F., Golin, C., & Behets, F. (2011). Barriers to and facilitators of adherence to pediatric antiretroviral therapy in a sub-Saharan setting: Insights from a qualitative study. AIDS Patient Care STDS, 25(10), 611–621. PMID:21823909. doi:10.1089/apc.2011.0083
  • Hejoaka, F. (2009). Care and secrecy: Being a mother of children living with HIV in Burkina Faso. Social Science & Medicine, 69, 869–876.
  • Kallem, S., Renner, L., Ghebremichael, M., & Paintsil, E. (2011). Prevalence and pattern of disclosure of HIV status in HIV-infected children in Ghana. AIDS Behavior, 15(6), 1121–1127. PMID: 20607381. doi:10.1007/s10461-010-9741-9
  • Kouyoumdjiam, F. G., Meyers, T., & Mtshizana, S. (2005). Barriers to disclosure to children with HIV. Journal of Tropical Pediatrics, 51(5), 285–207. PMID: 16014763. doi:10.1093/tropej/fmi014
  • Lowenthal, E. D., Jibril, H. B., Sechele, M., Mathuba, K., Tshume, O., & Anabwani, G. (2014). Disclosure of HIV status to HIV-infected children in a large African treatment center: Lessons learned in Botswana. Children and Youth Services Review, 45, 143–149.
  • Marques, H. H., Silva, N. G., Gutierrez, P. L., Lacerda, R., Ayres, J. R., Dellanegra, M., … Silva, M. H. (2006). Disclosure of HIV infection from the perspective of adolescents living with HIV/AIDS and their parents and caregivers. Cadernos de Saúde Pública, 22, 619–629.
  • Midtbo¸, V., Shirima, V., Skovdal, M., & Daniel, M. (2012). How disclosure and antiretroviral therapy help HIV-infected adolescents in sub-Saharan Africa cope with stigma. African Journal of AIDS Research, 11, 261–271.
  • Moodley, K., & Myer, L. (2006). Paediatric HIV disclosure in South/Africa – caregivers’ perspectives on discussing HIV with infected children. South African Medical Journal, 96(3), 201–204. PMID:16607427.
  • Myer L., Moodley K., Hendricks F., et al. (2006). Health care providers’ perspectives on discussing HIV status with infected children. Journal of Tropical Pediatrics, 52, 293–295. PMID: 16533799. doi:10.1093/tropej/fml004
  • Oberdorfer, P., Puthankakit, T., Louthrenoo, O., Charnsil, C., Sirisanthana, V., & Sirisanthana, T. (2006). Disclosure of HIV/AIDS diagnosis in HIV-infected children in Thailand. Journal of Pediatric Child Health, 42, 283–288. PMID: 16712559. doi:10.1111/j.1440-1754.2006.00855.x
  • O’Malley, G., Beima-Sofie, K., Feris, L., Shepard-Perry, M., Hamunime, N., John-Stewart, G., Brandt, L., MOHSS Study Group. (2015). “If I Take My Medicine, I Will Be Strong:” Evaluation of a pediatric HIV disclosure intervention in Namibia. Journal of Acquired Immune Deficiency Syndromes, 68(1), e1–e7.
  • Petersen, I., Bhana, A., Myeza, N., Alcea, S., John, S., Holst, H.,  …  Mellins, C. (2010). Psychosocial challenges and protective influences for socio-emotional coping of HIV+ adolescents in South Africa: A qualitative investigation. AIDS Care, 22, 970–978.
  • Punpanich, W., Detels, R., Gorbach, P. M., & Leowsrisook, P. (2008). Understanding the psychosocial needs of HIV-infected children and families: a qualitative study. Journal of Medical Association of Thailand, 91(Suppl 3), S76–84. PMID:19253500.
  • Qiao, S., Li, X., Zhou, Y., Shen, Z., Tang, Z., & Stanton, B. (2015). Factors influencing the decision-making of parental HIV disclosure: A socio-ecological approach. AIDS, 29, S25–S34.
  • Reynolds, N. R., Ofori-Atta, A., Lartey, M., Renner, L., Antwi, S., Enimil, A., … Paintsil, E. (2015). SANKOFA: A multisite collaboration on paediatric HIV disclosure in Ghana. AIDS, 29, S35–S45.
  • Schaurich, D. (2011). Disclosure of AIDS diagnosis to children from the family members’ perspective. Revista da Escola de Enfermagem da USP, 45, 480–486.
  • UNAIDS Fact sheet 2015. (2015). Retrieved from http://www.unaids.org/en/resources/campaigns/HowAIDSchangedeverything/factsheet
  • Vaz, L., Corneli, A., Dulyx, J., Rennie, S., Omba, S., Kitetele, F., & AD Research Group. (2008). The process of HIV status disclosure to HIV-positive youth in Kinshasa, democratic Republic of the Congo. AIDS Care, 20, 842–852.
  • Vaz, L. M., Eng, E., Maman, S., Tshikandu, T., & Behets, F. (2010). Telling children they have HIV: Lessons learned from findings of a qualitative study in Sub-Saharan Africa. AIDS Patient Care and STDs, 24, 247–256.
  • Vaz, L. M., Maman, S., Eng, E., Barbarin, O. A., Tshikandu, T., Behets, F. (2011). Patterns of disclosure of HIV status to infected children in a sub-Saharan African setting. Journal of Developmental & Behavioral Pediatrics. doi:10.1097/DBP.0b013e31820f7a47
  • Vreeman, R. C., Gramelspacher, A., Gisore, P. O., Scanlon, M. L., & Nyandiko, W. M. (2013). Disclosure of HIV status to children in resource-limited settings: A systematic review. Journal of the International AIDS Society, 16, 1–14.
  • Vreeman, R. C., Nyandiko, W. M., Ayaya, S. O., Walumbe, E. G., Marrero, D. G., & Inui, T. S. (2010). The perceived impact of disclosure of pediatric HIV status on pediatric antiretroviral therapy adherence, child well-being, and social relationships in a resource-limited setting. AIDS Patient Care and STDs, 24, 639–649.
  • Wardlow, H. (2012). The task of the HIV translator: Transforming global AIDS knowledge in an awareness workshop. Medical Anthropology, 31, 404–419.
  • World Health Organization. (2011). Guideline on HIV disclosure counselling for children up to 12 years of age. Retrieved from: http://apps.who.int/iris/bitstream/10665/44777/1/9789241502863_eng.pdf
  • Yeap, A. D., Hamilton, R., Charalambous, S., Dwadwa, T., Churchyard, G. J., Geissler, P. W., & Grant, A. D. (2010). Factors influencing uptake of HIV care and treatment among children in South Africa: A qualitative study of caregivers and clinic staff. AIDS Care, 22, 1101–1107.

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