Familial silence surrounding HIV and non-disclosure of HIV status to older children and adolescents

References

• Arrivé, E., Dicko, F., Amghar, H., Aka, A. E., Dior, H., Bouah, B., … Leroy, V. (2012). HIV status disclosure and retention in care in HIV-infected adolescents on antiretroviral therapy (ART) in West Africa. PloS One, 7(3), e33690. doi: 10.1371/journal.pone.0033690
   PubMed Web of Science ®Google Scholar
• Battles, H. B., & Wiener, L. S. (2002). From adolescence through young adulthood: Psychosocial adjustment associated with long-term survival of HIV. Journal of Adolescent Health, 30(3), 161–168. doi: 10.1016/S1054-139X(01)00341-X
   PubMed Web of Science ®Google Scholar
• Ben-Farhat, J., Schramm, B., Nicolay, N., Wanjala, S., Szumilin, E., Balkan, S., & Pujades-Rodríguez, M. (2017). Mortality and clinical outcomes in children treated with antiretroviral therapy in four African vertical programmes during the first decade of paediatric HIV care, 2001-2010. Tropical Medicine & International Health, 22(3), 340–350. doi: 10.1111/tmi.12830
   PubMed Web of Science ®Google Scholar
• Blasini, I., Chantry, C., Cruz, C., Ortiz, L., Salabarría, I., Scalley, N., … Díaz, C. (2004). Disclosure model for pediatric patients living with HIV in Puerto Rico: Design, implementation, and evaluation. Journal of Developmental & Behavioral Pediatrics, 25(3), 181–189. doi: 10.1097/00004703-200406000-00007
   PubMed Web of Science ®Google Scholar
• Busza, J., Strode, A., Dauya, E., & Ferrand, R. A. (2016). Falling through the gaps: How should HIV programmes respond to families that persistently deny treatment to children? Journal of the International AIDS Society, 19(1), 20789. doi: 10.7448/IAS.19.1.20789
   PubMedGoogle Scholar
• Domek, G. J. (2006). Social consequences of antiretroviral therapy: Preparing for the unexpected futures of HIV-positive children. The Lancet, 367(9519), 1367–1369. doi: 10.1016/S0140-6736(06)68584-X
   PubMed Web of Science ®Google Scholar
• Gross, R., Bandason, T., Langhaug, L., Mujuru, H., Lowenthal, E., & Ferrand, R. (2015). Factors associated with self-reported adherence among adolescents on antiretroviral therapy in Zimbabwe. AIDS Care, 27(3), 322–326. doi: 10.1080/09540121.2014.969676
   PubMed Web of Science ®Google Scholar
• Hallett, T. B., Lewis, J. J. C., Lopman, B. A., Nyamukapa, C. A., Mushati, P., Wambe, M., … Gregson, S. (2007). Age at first sex and HIV infection in rural Zimbabwe. Studies in Family Planning, 38(1), 1–10. doi: 10.1111/j.1728-4465.2007.00111.x
   PubMed Web of Science ®Google Scholar
• Kidia, K. K., Mupambireyi, Z., Cluver, L., Ndhlovu, C. E., Borok, M., & Ferrand, R. A. (2014). HIV status disclosure to perinatally-infected adolescents in Zimbabwe: A qualitative study of adolescent and healthcare worker perspectives. PloS One, 9(1), e87322. doi: 10.1371/journal.pone.0087322
   PubMed Web of Science ®Google Scholar
• Kiwanuka, J., Mulogo, E., & Haberer, J. E. (2014). Caregiver perceptions and motivation for disclosing or concealing the diagnosis of HIV infection to children receiving HIV care in Mbarara, Uganda: A qualitative study. PloS One, 9(3), e93276. doi: 10.1371/journal.pone.0093276
   PubMed Web of Science ®Google Scholar
• Madiba, S. (2013). The impact of fear, secrecy, and stigma on parental disclosure of HIV status to children: A qualitative exploration with HIV positive parents attending an ART clinic in South Africa. Global Journal of Health Science, 5(2), 49–61. doi: 10.5539/gjhs.v5n2p49
   Google Scholar
• Mandalazi, P., Bandawe, C., & Umar, E. (2014). HIV disclosure: Parental dilemma in informing HIV infected children about their HIV status in Malawi. Malawi Medical Journal: The Journal of Medical Association of Malawi, 26(4), 101–104.
   PubMed Web of Science ®Google Scholar
• Manderson, L., Block, E., & Mkhwanazi, N. (2016). Fragility, fluidity, and resilience: Caregiving configurations three decades into AIDS. AIDS Care, 28(sup4), 1–7. doi: 10.1080/09540121.2016.1195487
   PubMed Web of Science ®Google Scholar
• Mburu, G., Hodgson, I., Kalibala, S., Haamujompa, C., Cataldo, F., Lowenthal, E. D., & Ross, D. (2014). Adolescent HIV disclosure in Zambia: Barriers, facilitators and outcomes. Journal of the International AIDS Society, 17, 18866. doi: 10.7448/IAS.17.1.18866
   PubMed Web of Science ®Google Scholar
• McHugh, G., Rylance, J., Mujuru, H., Nathoo, K., Chonzi, P., Dauya, E., … Ferrand, R. A. (2016). Chronic morbidity among older children and adolescents at diagnosis of HIV infection. Journal of Acquired Immune Deficiency Syndromes. doi: 10.1097/QAI.0000000000001073
   PubMed Web of Science ®Google Scholar
• Mokgatle, M. M., & Madiba, S. (2015). The burden of disease on HIV-infected orphaned and non-orphaned children accessing primary health facilities in a rural district with poor resources in South Africa: A cross-sectional survey of primary caregivers of HIV-infected children aged 5-18 years. Infectious Diseases of Poverty, 4, S235. doi: 10.1186/s40249-015-0049-x
   Web of Science ®Google Scholar
• Mupambireyi, Z., Bernays, S., Bwakura-Dangarembizi, M., & Cowan, F. M. (2014). “I don’t feel shy because I will be among others who are just like me … ”: The role of support groups for children perinatally infected with HIV in Zimbabwe. Children and Youth Services Review, 45, 106–113. doi: 10.1016/j.childyouth.2014.03.026
   PubMed Web of Science ®Google Scholar
• Mweemba, M., Musheke, M. M., Michelo, C., Halwiindi, H., Mweemba, O., & Zulu, J. M. (2015). “When am i going to stop taking the drug?” enablers, barriers and processes of disclosure of HIV status by caregivers to adolescents in a rural district in Zambia. BMC Public Health, 15(1), 207. doi: 10.1186/s12889-015-2372-3
   PubMedGoogle Scholar
• Nyamukapa, C. A., Gregson, S., Lopman, B., Saito, S., Watts, H. J., Monasch, R., & Jukes, M. C. H. (2008). HIV-associated orphanhood and children’s psychosocial distress: Theoretical framework tested with data from Zimbabwe. American Journal of Public Health, 98(1), 133–141. doi: 10.2105/AJPH.2007.116038
   PubMed Web of Science ®Google Scholar
• O’Malley, G., Beima-Sofie, K., Feris, L., Shepard-Perry, M., Hamunime, N., John-Stewart, G., … Brandt, L. (2015). “If I take my medicine, I will be strong:” evaluation of a pediatric HIV disclosure intervention in Namibia. Journal of Acquired Immune Deficiency Syndromes (1999). doi: 10.1097/QAI.0000000000000387
   PubMed Web of Science ®Google Scholar
• Pettifor, A. E., van der Straten, A., Dunbar, M. S., Shiboski, S. C., & Padian, N. S. (2004). Early age of first sex: A risk factor for HIV infection among women in Zimbabwe. AIDS (London, England), 18(10), 1435–1442. doi: 10.1097/01.aids.0000131338.61042.b8
   PubMed Web of Science ®Google Scholar
• Pinzon-Iregui, M. C., Beck-Sague, C. M., & Malow, R. M. (2013). Disclosure of their HIV status to infected children: A review of the literature. Journal of Tropical Pediatrics, 59(2), 84–89. doi: 10.1093/tropej/fms052
   PubMed Web of Science ®Google Scholar
• Skovdal, M., Campbell, C., Madanhire, C., Nyamukapa, C., & Gregson, S. (2011). Challenges faced by elderly guardians in sustaining the adherence to antiretroviral therapy in HIV-infected children in Zimbabwe. AIDS Care, 23(8), 957–964. doi: 10.1080/09540121.2010.542298
   PubMed Web of Science ®Google Scholar
• Sohn, A. H., & Hazra, R. (2013). The changing epidemiology of the global paediatric HIV epidemic: Keeping track of perinatally HIV-infected adolescents. Journal of the International AIDS Society, 16(1). doi: 10.7448/IAS.16.1.18555
   Google Scholar
• UNAIDS. (2014). 90-90-90 an ambitious treatment target to help end the AIDS epidemic. Geneva: UN Joint Programme on HIV/AIDS(UNAIDS).
   Google Scholar
• UNAIDS. (2016). Children and HIV. Retrieved from http://www.unaids.org/sites/default/files/media_asset/FactSheet_Children_en.pdf
   Google Scholar
• Waugh, S. (2003). Parental views on disclosure of diagnosis to their HIV-positive children. AIDS Care, 15(2), 169–176. doi: 10.1080/0954012031000068317
   PubMed Web of Science ®Google Scholar
• World Health Organsiation. (2011). Antiretroviral therapy for HIV infection in adults and adolescents. Retrieved from http://www.who.int/hiv/pub/arv/adult2010/en/
   Google Scholar