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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 31, 2019 - Issue 3
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Articles

Need and acceptability of story books intended to help with the process of informing children about their HIV status in Malawi: a mixed methods study

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Pages 298-305 | Received 14 Jan 2018, Accepted 27 Jun 2018, Published online: 11 Jul 2018

References

  • Alemu, A., Berhanu, B., & Emishaw, S. (2013). Challenges of caregivers to disclose their children’s HIV positive status receiving highly active antiretroviral therapy at pediatric antiretroviral therapy clinics in Bahir Dar, North West Ethiopia. Journal of AIDS & Clinical Research, 4(253), 1–7.
  • Beima-Sofie, K. M., Brandt, L., Hamunime, N., Shepard, M., Uusiku, J., John-Stewart, G. C., & O’malley, G. (2017). Pediatric HIV disclosure intervention improves knowledge and clinical outcomes in HIV-infected children in Namibia. JAIDS Journal of Acquired Immune Deficiency Syndromes, 75(1), 18–26. doi: 10.1097/QAI.0000000000001290
  • Beima-Sofie, K., John-Stewart, G., Shah, B., Wamalwa, D., Maleche-Obimbo, E., & Kelley, M. (2014). Using health provider insights to inform pediatric HIV disclosure: A qualitative study and practice framework from Kenya. AIDS Patient Care and STDs, 28(10), 555–564. doi: 10.1089/apc.2014.0040
  • Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. doi: 10.1191/1478088706qp063oa
  • Creswell, J. W. (2003). Research design qualitative, quantitative. And mixed methods approaches. Thousand Oaks, CA: SAGE Publications.
  • Creswell, J. W. (2007). Qualitative inquiry and research design: Choosing among five approaches (2nd ed.). Thousand Oaks, CA, US: Sage Publications, Inc.
  • Dachew, B. A., Tesfahunegn, T. B., & Birhanu, A. M. (2014). Adherence to highly active antiretroviral therapy and associated factors among children at the university of gondar hospital and gondar poly clinic, northwest Ethiopia: A cross-sectional institutional based study. BMC Public Health, 14(875), 1–6. doi: 10.1186/1471-2458-14-875
  • Gwatkin, D. R., Rutstein, S., Johnson, K., Pande, R. P., & Wagstafff, A. (2000). Socioeconomic differences in health, nutrition, and population. Washington, DC: The World Bank.
  • Jensen, J. A. G., Moreno, E. L., & Rice, T. M. (2014). Office of adolescent health medical accuracy review process—helping ensure the medical accuracy of teen pregnancy prevention program materials. Journal of Adolescent Health, 54(3), S21–S23. doi: 10.1016/j.jadohealth.2013.11.022
  • Kajubi, P., Whyte, S., Muhumuza, S., Kyaddondo, D., & Katahoire, A. R. (2014). Communication between HIV-infected children and their caregivers about HIV medicines: A cross-sectional study in Jinja district, Uganda. Journal of the International AIDS Society, 17(1), 1–8. doi: 10.7448/IAS.17.1.19012
  • Kennedy, A. P., Robinson, A. J., Thompson, D. G., & Wilkin, D. (1999). Development of a guidebook to promote patient participation in the management of ulcerative colitis. Health & Social Care in the Community, 7(3), 177–186. doi: 10.1046/j.1365-2524.1999.00174.x
  • Kidia, K. K., Mupambireyi, Z., Cluver, L., Ndhlovu, C. E., Borok, M., & Ferrand, R. A. (2014). HIV status disclosure to perinatally-infected adolescents in Zimbabwe: A qualitative study of adolescent and healthcare worker perspectives. PLoS One, 9(1), 1–7. doi: 10.1371/journal.pone.0087322
  • Kim, M. H., Mazenga, A. C., Yu, X., Devandra, A., Nguyen, C., Ahmed, S., & Sharp, C. (2015). Factors associated with depression among adolescents living with HIV in Malawi. BMC Psychiatry, 15(264), 1–12. doi: 10.1186/s12888-015-0649-9
  • Lowenthal, E. D., Jibril, H. B., Sechele, M. L., Mathuba, K., Tshume, O., & Anabwani, G. M. (2014). Disclosure of HIV status to HIV-infected children in a large African treatment center: Lessons learned in Botswana. Children and Youth Services Review, 45(0), 143–149. http://doi.org/10.1016/j.childyouth.2014.03.031
  • Madiba, S., & Mokgatle, M. (2015a). Health care workers’ perspectives about disclosure to HIV-infected children; cross-sectional survey of health facilities in Gauteng and Mpumalanga provinces, South Africa. PeerJ, 2015(3), 1–15. doi: 10.7717/peerj.893
  • Madiba, S., & Mokgatle, M. (2015b). Health care workers’ perspectives about disclosure to HIV-infected children; cross-sectional survey of health facilities in Gauteng and Mpumalanga provinces, South Africa. PeerJ, 2015(3), 1–12.
  • Mahloko, J. M., & Madiba, S. (2012). Disclosing HIV diagnosis to children in Odi district, South Africa: Reasons for disclosure and non-disclosure: Original research. African Journal of Primary Health Care and Family Medicine, 4(1), 1–7. doi: 10.4102/phcfm.v4i1.345
  • Mandalazi, P., Bandawe, C., & Umar, E. (2014). HIV disclosure: Parental dilemma in informing HIV infected children about their HIV status in Malawi. Malawi Medical Journal, 26(4), 101–104.
  • Martínez-Mesa, J., González-Chica, D. A., Duquia, R. P., Bonamigo, R. R., & Bastos, J. L. (2016). Sampling: How to select participants in my research study? Anais Brasileiros de Dermatologia, 91(3), 326–330. doi: 10.1590/abd1806-4841.20165254
  • McCleary-Sills, J., Kanesathasan, A., Brakarsh, J., Vujovic, M., Dlamini, K., Namisango, E., & Bowsky, S. (2013). Foundation for the future: Meeting the psychosocial needs of children living With HIV in South Africa and Uganda. Journal of HIV/AIDS & Social Services, 12(1), 49–62. doi: 10.1080/15381501.2012.749818
  • Nduati, R., & Kiai, W. (1997). Communicating with adolescents about AIDS: Experience from Eastern and Southern Africa. Ottawa,Canada: IDRC.
  • Nelms, T. P., & Zeigler, V. L. (2008). A study to develop a disclosure to children intervention for HIV-infected women. Journal of the Association of Nurses in AIDS Care, 19(6), 461–469. doi: 10.1016/j.jana.2008.05.005
  • Nyando, M. C. (2014). The experiences of caregivers looking after a child living with HIV and AIDS in rural Malawi. Cardiff, United Kingdom: Cardiff University.
  • O’Malley, G., Beima-Sofie, K., Feris, L., Shepard-Perry, M., Hamunime, N., John-Stewart, G., & Brandt, L. (2015). “If I take My medicine, I will Be strong:” evaluation of a pediatric HIV disclosure intervention in Namibia. JAIDS Journal of Acquired Immune Deficiency Syndromes, 68(1), e1–e7. doi: 10.1097/QAI.0000000000000387
  • Rudd, R. E. (2011). Resources for developing and assessing materials. Health Literacy Studies. www.hsph.harvard.edu/healthliteracy (Accessed 25 March 2011)
  • Sariah, A., Rugemalila, J., Somba, M., Minja, A., Makuchilo, M., Tarimo, E., & Siril, H. (2016). “Experiences with disclosure of HIV-positive status to the infected child”: Perspectives of healthcare providers in Dar es Salaam, Tanzania. BMC Public Health, 16, 1–10. doi:10.1186/s12889-016-3749-7
  • United Nations programme for HIV/AIDS Malawi. (2016). HIV and estimates. Retrieved from http://www.unaids.org/en/regionscountries/countries/malawi
  • WHO. (2014). Process of translation and adaptation of instruments. WHO website, 2014, 1. www.who.int/substance_abuse/research_tools/translation/en/. Retrieved from http://whqlibdoc.who.int/substance_abuse/research_tools/translation/en/
  • World Health Organisation. (2011). Guideline on HIV disclosure counselling for children up to 12 years of age. Geneva: WHO. Retrieved from http://whqlibdoc.who.int/publications/2011/9789241502863_eng.pdf?ua=1
  • Wright, S., Amzel, A., Ikoro, N., Srivastava, M., Leclerc-Madlala, S., Bowsky, S., & Phelps, B. R. (2017). Talking to children about their HIV status: A review of available resources, tools, and models for improving and promoting pediatric disclosure. AIDS Care, 29(8), 1019–1025. doi: 10.1080/09540121.2016.1273471

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