Advanced search
Publication Cover
AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 31, 2019 - Issue 7
Submit an article Journal homepage
390
Views
4
CrossRef citations to date
0
Altmetric
Articles

Measuring empowerment among people living with HIV: a systematic review of available measures and their properties

Vanessa CooperThe Lawson Unit, Brighton and Sussex University Hospitals NHS Trust, Brighton, UKView further author information
,
Jane ClatworthyThe Lawson Unit, Brighton and Sussex University Hospitals NHS Trust, Brighton, UKView further author information
,
Richard HardingDepartment of Palliative Care, Policy and Rehabilitation, King’s College London, Faculty of Life Sciences and Medicine, Cicely Saunders Institute, London, UKView further author information
,
Jennifer WhethamThe Lawson Unit, Brighton and Sussex University Hospitals NHS Trust, Brighton, UKCorrespondence[email protected]
View further author information
& EmERGE Consortium
Pages 798-802 | Received 08 Jan 2018, Accepted 08 Oct 2018, Published online: 14 Nov 2018

References

  • Alpay, L., van der Boog, P., & Dumaij, A. (2011). An empowerment-based approach to developing innovative e-health tools for self-management. Health Informatics Journal, 17(4), 247–255. doi: 10.1177/1460458211420089
  • Barr, P. J., Scholl, I., Bravo, P., Faber, M. J., Elwyn, G., & McAllister, M. (2015). Assessment of patient empowerment--a systematic review of measures. PLoS One, 10(5), e0126553. doi: 10.1371/journal.pone.0126553
  • Bravo, P., Edwards, A., Barr, P. J., Scholl, I., Elwyn, G., McAllister, M., & Cochrane Healthcare Quality Research Group, C. U. (2015). Conceptualising patient empowerment: A mixed methods study. BMC Health Services Research, 15, 252. doi: 10.1186/s12913-015-0907-z
  • Eller, L. S., Rivero-Mendez, M., Voss, J., Chen, W. T., Chaiphibalsarisdi, P., Iipinge, S., … Brion, J. M. (2014). Depressive symptoms, self-esteem, HIV symptom management self-efficacy and self-compassion in people living with HIV. Aids Care-Psychological and Socio-Medical Aspects of AIDS/HIV, 26(7), 795–803. doi: 10.1080/09540121.2013.841842
  • Herbert, R. J., Gagnon, A. J., Rennick, J. E., & O’Loughlin, J. L. (2009). A systematic review of questionnaires measuring health-related empowerment. Research and Theory for Nursing Practice, 23(2), 107–132. doi: 10.1891/1541-6577.23.2.107
  • Hibbard, J. H., Mahoney, E. R., Stockard, J., & Tusler, M. (2005). Development and testing of a short form of the patient activation measure. Health Services Research, 40(6 Pt 1), 1918–1930. doi: 10.1111/j.1475-6773.2005.00438.x
  • Hibbard, J. H., Stockard, J., Mahoney, E. R., & Tusler, M. (2004). Development of the patient activation measure (pam): conceptualizing and measuring activation in patients and consumers. Health Services Research, 39(4 Pt 1), 1005–1026. doi: 10.1111/j.1475-6773.2004.00269.x
  • Houston, E., & Fominaya, A. W. (2015). Antiretroviral therapy adherence in a sample of men with low socioeconomic status: The role of task-specific treatment self-efficacy. Psychology Health & Medicine, 20(8), 896–905. doi: 10.1080/13548506.2014.986137
  • Ironson, G., Weiss, S., Lydston, D., Ishii, M., Jones, D., Asthana, D., … Antoni, M. (2005). The impact of improved self-efficacy on HIV viral load and distress in culturally diverse women living with aids: The smart/est women’s project. AIDS Care-Psychological and Socio-Medical Aspects of AIDS/HIV, 17(2), 222–236. doi: 10.1080/09540120512331326365
  • Johnson, M. O., Rose, C. D., Dilworth, S. E., & Neilands, T. B. (2012). Advances in the conceptualization and measurement of health care empowerment: Development and validation of the health care empowerment inventory. PLoS One, 7(9). doi: 10.1371/journal.pone.0045692
  • The Kings Fund. (2017). The future of HIV services in England: Shaping the response to changing needs. London: Author.
  • Lev, E. L., & Owen, S. V. (1996). A measure of self-care self-efficacy. Research in Nursing & Health, 19(5), 421–429. doi:10.1002/(SICI)1098-240X(199610)19:5<421::AID-NUR6>3.0.CO;2-S
  • Lorig, K. R., Stewart, A., Ritter, P. L., Gonzalez, V., Laurent, D., & Lynch, J. (1996). Outcome measures for health education and other health care interventions. Thousand Oaks, CA: Sage Publications.
  • McAllister, M., Dunn, G., Payne, K., Davies, L., & Todd, C. (2012). Patient empowerment: The need to consider it as a measurable patient-reported outcome for chronic conditions. BMC Health Services Research, 12(157). doi: 10.1186/1472-6963-12-157
  • Náfrádi, L., Nakamoto, K., & Schulz, P. J. (2017). Is patient empowerment the key to promote adherence? A systematic review of the relationship between self-efficacy, health locus of control and medication adherence. PLoS One, 12(10). doi: 10.1371/journal.pone.0186458
  • Pulvirenti, M., McMillan, J., & Lawn, S. (2014). Empowerment, patient centred care and self-management. Health Expectations, 17(3), 303–310. doi: 10.1111/j.1369-7625.2011.00757.x
  • Risling, T., Martinez, J., Young, J., & Thorp-Froslie, N. (2017). Evaluating patient empowerment in association with ehealth technology: Scoping review. Journal of Medical Internet Research, 19(9), e329. doi: 10.2196/jmir.7809
  • Ritter, P. L., & Lorig, K. (2014). The English and spanish self-efficacy to manage chronic disease scale measures were validated using multiple studies. Journal of Clinical Epidemiology, 67(11), 1265–1273. doi: 10.1016/j.jclinepi.2014.06.009
  • Shively, M., Smith, T. L., Bormann, J., & Gifford, A. L. (2002). Evaluating self-efficacy for HIV disease management skills. AIDS and Behavior, 6(4), 371–379. doi: 10.1023/A:1021156914683
  • Terwee, C. B., Bot, S. D., de Boer, M. R., van der Windt, D. A., Knol, D. L., Dekker, J., … de Vet, H. C. (2007). Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology, 60(1), 34–42. doi: 10.1016/j.jclinepi.2006.03.012
  • Wallston, K. A., Osborn, C. Y., Wagner, L. J., & Hilker, K. A. (2011). The perceived medical condition self-management scale applied to persons with HIV/aids. Journal of Health Psychology, 16(1), 109–115. doi: 10.1177/1359105310367832
  • Webel, A. R., & Okonsky, J. (2011). Psychometric properties of a symptom management self-efficacy scale for women living with HIV/aids. Journal of Pain and Symptom Management, 41(3), 549–557. doi: 10.1016/j.jpainsymman.2010.05.013

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Order Reprints Request Corporate Permissions

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

Request Academic Permissions

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.

Supercharge Your Next Research Paper: Research and write your next paper with Jenni AI.

Related research

People also read lists articles that other readers of this article have read.

Recommended articles lists articles that we recommend and is powered by our AI driven recommendation engine.

Cited by lists all citing articles based on Crossref citations.
Articles with the Crossref icon will open in a new tab.