“It’s about making adolescents in charge of their health”: policy-makers’ perspectives on optimizing the health care transition among adolescents living with HIV in Kenya

References

• Andiman, W. A. (2011). Transition from pediatric to adult healthcare services for young adults with chronic illnesses: The special case of human immunodeficiency virus infection. Journal of Pediatrics, 159(5), 714–719. https://doi.org/10.1016/j.jpeds.2011.06.040
   PubMed Web of Science ®Google Scholar
• Asad, H., Collins, I., Goodall, R., Crichton, S., Hill, T., Doerholt, K., Foster, C., Lyall, H., Post, F., Welch, S., Winston, A., Sabin, C., & Judd, A. (2021). Mortality and AIDS-defining events among young people following transition from paediatric to adult HIV care in the UK. HIV Medicine., https://doi.org/10.1111/HIV.13096
   Google Scholar
• Attride-Stirling, J. (2001). Thematic networks: An analytic tool for qualitative research. Qualitative Research, 1(3), 385–405. https://doi.org/10.1177/146879410100100307
   Google Scholar
• Bronfenbrenner, U. (1977). Toward an experimental ecology of human development. American Psychologist, 32(7), 513–531. https://doi.org/10.1037/0003-066X.32.7.513
   Web of Science ®Google Scholar
• Bronfenbrenner, U. (1979). The ecology of human development: Experiments by nature and design. Harvard University Press.
   Google Scholar
• Carlson, M., Brennan, R. T., & Earls, F. (2012). Enhancing adolescent self-efficacy and collective efficacy through public engagement around HIV/AIDS competence: A multilevel, cluster randomized-controlled trial. Social Science and Medicine, 75(6), 1078–1087. https://doi.org/10.1016/j.socscimed.2012.04.035
   PubMed Web of Science ®Google Scholar
• Dahourou, D. L., Gautier-Lafaye, C., Teasdale, C. A., Renner, L., Yotebieng, M., Desmonde, S., Ayaya, S., Davies, M. A., & Leroy, V. (2017). Transition from paediatric to adult care of adolescents living with HIV in sub-Saharan Africa: Challenges, youth-friendly models, and outcomes. Journal of the International AIDS Society, 20(Suppl 3), 21528. https://doi.org/10.7448/IAS.20.4.21528
   PubMed Web of Science ®Google Scholar
• Ely, A., Kenny, J., & Williams, A. (2020). Transition for adolescents living with HIV. HIV Nursing, 20(1), 22–29.
   Google Scholar
• Enane, L. A., Apondi, E., Toromo, J., Bosma, C., Ngeresa, A., Nyandiko, W., & Vreeman, R. C. (2020). “A problem shared is half solved” – a qualitative assessment of barriers and facilitators to adolescent retention in HIV care in western Kenya. AIDS Care, 32(1), 104–112. https://doi.org/10.1080/09540121.2019.1668530
   PubMed Web of Science ®Google Scholar
• Enane, L. A., Vreeman, R. C., & Foster, C. (2018). Retention and adherence: Global challenges for the long-term care of adolescents and young adults living with HIV. Current Opinion in HIV and AIDS, 13(3), 212–219. https://doi.org/10.1097/COH.0000000000000459
   PubMed Web of Science ®Google Scholar
• Fair, C. D., Goldstein, B., & Dizney, R. (2015). Congruence of transition perspectives between adolescents with perinatally-acquired HIV and their guardians: An exploratory qualitative study. Journal of Pediatric Nursing, 30(5), 684–690. https://doi.org/10.1016/j.pedn.2015.06.001
   PubMed Web of Science ®Google Scholar
• Foster, C., Ayers, S., McDonald, S., Frize, G., Chhabra, S., Pasvol, T. J., & Fidler, S. (2020). Clinical outcomes post transition to adult services in young adults with perinatally acquired HIV infection: Mortality, retention in care and viral suppression. Aids, 34(2), 261–266. https://doi.org/10.1097/QAD.0000000000002410
   PubMed Web of Science ®Google Scholar
• Gleeson, H. S., Oliveras Rodriguez, C. A., Hatane, L., & Hart, D. (2018). Ending AIDS by 2030: The importance of an interlinked approach and meaningful youth leadership. Journal of the International AIDS Society, 21, e25061. https://doi.org/10.1002/jia2.25061
   Web of Science ®Google Scholar
• Hsieh, H.-F., & Shannon, S. E. (2005). Three approaches to qualitative content analysis. Qual Health Res Citations at Ebsco Electronic Journals Service (EJS) On, 15. https://doi.org/10.1177/1049732305276687
   Google Scholar
• International AIDS Society. (2015). The collaborative initiative for paediatric HIV education and research (CIPHER). https://www.iasociety.org/Web/WebContent/File/CIPHER_Annual_report_2015.pdf
   Google Scholar
• Jao, J., Fairlie, L., Griffith, D. C., & Agwu, A. L. (2016). The challenge of and opportunities for transitioning and maintaining a continuum of care among adolescents and young adults living with HIV in resource limited settings. Current Tropical Medicine Reports, 3(4), 149–157. https://doi.org/10.1007/s40475-016-0091-1
   PubMedGoogle Scholar
• Jill, F. K. (2017). Breadth of the socio-ecological model. 22(4), 295–297. https://doi.org/10.1080/1059924X.2017.1358971
   Google Scholar
• Judd, A., & Davies, M. A. (2018). Adolescent transition among young people with perinatal HIV in high-income and low-income settings. Current Opinion in HIV and AIDS, 13(3), 236–248. https://doi.org/10.1097/COH.0000000000000448
   PubMed Web of Science ®Google Scholar
• Kariminia, A., Law, M., Davies, M., Vinikoor, M., Wools-Kaloustian, K., Leroy, V., Edmonds, A., McGowan, C., Vreeman, R., Fairlie, L., Ayaya, S., Yotebieng, M., Takassi, E., Pinto, J., Adedimeji, A., Malateste, K., Machado, D. M., Penazzato, M., Hazra, R., & Sohn, A. H. (2018). Mortality and losses to follow-up among adolescents living with HIV in the IeDEA global cohort collaboration. Journal of the International AIDS Society, 21(12), e25215. https://doi.org/10.1002/jia2.25215
   PubMedGoogle Scholar
• Kim, B., & White, K. (2018). How can health professionals enhance interpersonal communication with adolescents and young adults to improve health care outcomes?: Systematic literature review. International Journal of Adolescence and Youth, 23(2), 198–218. https://doi.org/10.1080/02673843.2017.1330696
   Web of Science ®Google Scholar
• Lee, S., & Hazra, R. (2015). Achieving 90-90-90 in paediatric HIV: Adolescence as the touchstone for transition success. Journal of the International AIDS Society, 18, 20257. https://doi.org/10.7448/IAS.18.7.20257
   PubMed Web of Science ®Google Scholar
• Magnani, R. J., Karim, A. M., Weiss, L. A., Bond, K. C., Lemba, M., & Morgan, G. T. (2002). Reproductive health risk and protective factors among youth in Lusaka. Zambia Journal of Adolescent Health, 30(1), 76–86. https://doi.org/10.1016/S1054-139X(01)00328-7
   PubMed Web of Science ®Google Scholar
• Martini, J., Tijou Traoré, A., & Mahieu, C. (2019). Chronic patient as intermittent partner for policy-makers: The case of patient participation in the fight against diabetes and HIV/AIDS in Mali. BMC Public Health, 19(1), 1. https://doi.org/10.1186/s12889-019-7453-2
   PubMed Web of Science ®Google Scholar
• Mburu, G., Hodgson, I., Teltschik, A., Ram, M., Haamujompa, C., Bajpai, D., & Mutali, B. (2013). Rights-based services for adolescents living with HIV: Adolescent self-efficacy and implications for health systems in Zambia. Reproductive Health Matters, 21(41), 176–185. https://doi.org/10.1016/S0968-8080(13)41701-9
   PubMed Web of Science ®Google Scholar
• Mburu, G., Ram, M., Oxenham, D., Haamujompa, C., Iorpenda, K., & Ferguson, L. (2014). Responding to adolescents living with HIV in Zambia: A social-ecological approach. Children and Youth Services Review, 45(C), 9–17. https://doi.org/10.1016/j.childyouth.2014.03.033
   Google Scholar
• McLaren, L., & Hawe, P. (2005). Ecological perspectives in health research. Journal of Epidemiology and Community Health, 59(1), 6–14. https://doi.org/10.1136/jech.2003.018044
   PubMed Web of Science ®Google Scholar
• Njuguna, I., Beima-Sofie, K., Mburu, C., Black, D., Evans, Y., Guthrie, B., Wagner, A. D., Mugo, C., Neary, J., Itindi, J., Onyango, A., Wamalwa, D., & John-Stewart, G. (2020). What happens at adolescent and young adult HIV clinics? A national survey of models of care, transition and disclosure practices in Kenya. Tropical Medicine and International Health, 25(5), 558–565. https://doi.org/10.1111/tmi.13374
   PubMed Web of Science ®Google Scholar
• Njuguna, I., Beima-Sofie, K., Mburu, C., Mugo, C., Black, D. A., Neary, J., Itindi, J., Onyango, A., Slyker, J., Oyiengo, L., John-Stewart, G., & Wamalwa, D. (2019). Managing the transition from paediatric to adult care for HIV, Kenya. Bulletin of the World Health Organization, 97(12), 837–845. https://doi.org/10.2471/BLT.19.232702
   PubMed Web of Science ®Google Scholar
• Njuguna, I. N., Beima-Sofie, K., Mburu, C. W., Mugo, C., Neary, J., Itindi, J., Onyango, A., Richardson, B. A., Rubin Means, A., Sharma, M., Weiner, B. J., Wagner, A. D., Oyiengo, L., Wamalwa, D., & John-Stewart, G. (2020). Adolescent transition to adult care for HIV-infected adolescents in Kenya (ATTACH): Study protocol for a hybrid effectiveness-implementation cluster randomised trial. BMJ Open, 10(12), e039972. https://doi.org/10.1136/bmjopen-2020-039972
   PubMed Web of Science ®Google Scholar
• Oliveras Rodriguez, C. A. (2017). Engaging adolescents with HIV to ensure better health and more informed research. In Journal of the International AIDS Society (Vol. 20, Issue Suppl 3). International AIDS Society. https://doi.org/10.7448/IAS.20.4.21569
   Google Scholar
• Pettit, E., Greifinger, R., Phelps, B., & Bowsky, S. (2013). Improving health services for adolescents living with HIV in Sub-Saharan Africa: A multi-country assessment. African Journal of Reproductive Health, 17(4), 17–31.
   PubMedGoogle Scholar
• Slogrove, A. L., Mahy, M., Armstrong, A., & Davies, M.-A. (2017). Living and dying to be counted: What we know about the epidemiology of the global adolescent HIV epidemic. Journal of the International AIDS Society, 20, 21520. https://doi.org/10.7448/IAS.20.4.21520
   PubMed Web of Science ®Google Scholar
• Slogrove, A. L., Schomaker, M., Davies, M. A., Williams, P., Balkan, S., Ben-Farhat, J., Calles, N., Chokephaibulkit, K., Duff, C., Eboua, T. F., Kekitiinwa-Rukyalekere, A., Maxwell, N., Pinto, J., Seage, G., Teasdale, C. A., Wanless, S., Warszawski, J., Wools-Kaloustian, K., Yotebieng, M., … Leroy, V. (2018). The epidemiology of adolescents living with perinatally acquired HIV: A cross-region global cohort analysis. PLoS Medicine, 15, 3. https://doi.org/10.1371/journal.pmed.1002514
   Web of Science ®Google Scholar
• Stokols, D. (1996). Translating social ecological theory into guidelines for community health promotion. American Journal of Health Promotion, 10(4), 282–298. https://doi.org/10.4278/0890-1171-10.4.282
   PubMed Web of Science ®Google Scholar
• Tsondai, P. R., Sohn, A. H., Phiri, S., Sikombe, K., Sawry, S., Chimbetete, C., Fatti, G., Hobbins, M. A., Technau, K., Rabie, H., Bernheimer, J., Fox, M. P., Judd, A., Collins, I. J., Davies, M., Hoffmann, C., Vinikoor, M., Wood, R., Boulle, A., … Sawry, S. (2020). Characterizing the double-sided cascade of care for adolescents living with HIV transitioning to adulthood across Southern Africa. Journal of the International AIDS Society, 23(1), 1. https://doi.org/10.1002/jia2.25447
   Web of Science ®Google Scholar
• UN. (2012). Committee on population and development 2012 resolution on adolescents and youth. https://www.un.org/en/development/desa/population/pdf/commission/2012/country/Agenda%20item%208/Decisions%20and%20resolution/Resolution%202012_1_Adolescents%20and%20Youth.pdf
   Google Scholar
• UNAIDS. (2018). AIDSinfo data sheet. http://aidsinfo.unaids.org/
   Google Scholar
• UNFPA. (2013). UNFPA strategy on adolescents and youth. https://www.unfpa.org/sites/default/files/resource-pdf/UNFPA%20Adolescents%20and%20Youth%20Strategy.pdf
   Google Scholar
• Wamai, R. G. (2009). The Kenya health system-analysis of the situation and enduring challenges. Japan Medical Association Journal, 52(2), 134–140.
   Google Scholar
• WHO. (2015). WHO | Report of the consultation on the treatment of HIV among adolescents. WHO.
   Google Scholar
• WHO. (2017a). Adolescent development. WHO.
   Google Scholar
• WHO. (2017b). Global Accelerated Action for the Health of Adolescents (AA-HA!) Guidance to Support Country Implementation. https://www.who.int/life-course/publications/engaging-young-people-for-health-and-sustainable-development/en/
   Google Scholar
• WHO. (2018). Engaging young people for health and sustainable development. https://www.who.int/life-course/publications/engaging-young-people-for-health-and-sustainable-development/en/
   Google Scholar
• WHO. (2019). Global Strategy for women’s, children’s and adolescent’s health. WHO.
   Google Scholar
• Wiener, L. S., Kohrt, B.-A., Battles, H. B., & Pao, M. (2011). The HIV experience: Youth identified barriers for transitioning from pediatric to adult care. Journal of Pediatric Psychology, 36(2), 141. https://doi.org/10.1093/jpepsy/jsp129
   PubMed Web of Science ®Google Scholar
• Williams, S., Renju, J., Ghilardi, L., & Wringe, A. (2017). Scaling a waterfall: A meta-ethnography of adolescent progression through the stages of HIV care in sub-Saharan Africa. Journal of the International AIDS Society, 20(1), 21922. https://doi.org/10.7448/IAS.20.1.21922
   PubMed Web of Science ®Google Scholar
• Wilson, K. S., Beima-Sofie, K. M., Moraa, H., Wagner, A. D., Mugo, C., Mutiti, P. M., Wamalwa, D., Bukusi, D., John-Stewart, G. C., Slyker, J. A., Kohler, P. K., & O’Malley, G. (2017). At our age, we would like to do things the way we want:” A qualitative study of adolescent HIV testing services in Kenya. AIDS (London, England), 31(Suppl 3), S213. https://doi.org/10.1097/QAD.0000000000001513
   PubMedGoogle Scholar
• Wolf, H. T., Davidoff, K., Auerswald, C. L., Halpern-Felsher, B. L., Bukusi, E. A., Lyon, M., & Cohen, C. R. (2019). Health care experiences of youth living With HIV who were lost to follow-up in western Kenya. Journal of the Association of Nurses in AIDS Care, 30(5), 539–547. https://doi.org/10.1097/JNC.0000000000000044.
   PubMed Web of Science ®Google Scholar