Disclosure to South African children about their own HIV status over time

References

• Armistead, L., Tannenbaum, L., Forehand, R., Morse, E., & Morse, P. (2001). Disclosing HIV status: Are mothers telling their children? Journal of Pediatric Psychology, 26(1), 11–20. https://doi.org/10.1093/jpepsy/26.1.11
   PubMed Web of Science ®Google Scholar
• Atwiine, B., Kiwanuka, J., Musinguzi, N., Atwine, D., & Haberer, J. E. (2015). Understanding the role of age in HIV disclosure rates and patterns for HIV-infected children in southwestern Uganda. AIDS Care, 27(4), 424–430. https://doi.org/10.1080/09540121.2014.978735
   PubMed Web of Science ®Google Scholar
• Berk, D. R., Falkovitz-Halpern, M. S., Hill, D. W., Albin, C., Arrieta, A., Bork, J. M., Cohan, D., Nilson, B., Petru, A., Ruiz, J., Weintrub, P. S., Wenman, W., Maldonado, Y. A., & California pediatric HIV Study Group, f. t. (2005). Temporal trends in early clinical manifestations of perinatal HIV infection in a population-based cohort. JAMA, 293(18), 2221–2231. https://doi.org/10.1001/jama.293.18.2221
   PubMedGoogle Scholar
• Brown, B. J., Oladokun, R. E., Osinusi, K., Ochigbo, S., Adewole, I. F., & Kanki, P. (2011). Disclosure of HIV status to infected children in a Nigerian HIV care programme. AIDS Care, 23(9), 1053–1058. https://doi.org/10.1080/09540121.2011.554523
   PubMed Web of Science ®Google Scholar
• Butler, A. M., Williams, P. L., Howland, L. C., Storm, D., Hutton, N., & Seage, G. R. (2009). Impact of disclosure of HIV Infection on health-related quality of life among children and adolescents with HIV infection. Pediatrics, 123(3), 935–943. https://doi.org/10.1542/peds.2008-1290
   PubMed Web of Science ®Google Scholar
• Davies, M.-A., Gibb, D., & Turkova, A. (2016). Survival of HIV-1 vertically infected children. Current Opinion in HIV and AIDS, 11(5), 455–464. https://doi.org/10.1097/COH.0000000000000303
   PubMed Web of Science ®Google Scholar
• Department of Health, Republic of South Africa. (2015). National consolidated guidelines for the prevention of mother-to-child transmission of HIV (PMTCT) and the management of HIV in children, adolescents and adults. NDoH Pretoria.
   Google Scholar
• Eneh, A., Ugwu, R., & Paul, N. (2019). HIV disclosure in children in this millenium–should it still be an issue? Advances in Research, 20(5), 1–11. https://doi.org/10.9734/air/2019/v20i530170
   Google Scholar
• Fatti, G., Bock, P., Eley, B., Mothibi, E., & Grimwood, A. (2011). Temporal trends in baseline characteristics and treatment outcomes of children starting antiretroviral treatment. JAIDS Journal of Acquired Immune Deficiency Syndromes, 58(3), e60–67. https://doi.org/10.1097/QAI.0b013e3182303c7e
   PubMed Web of Science ®Google Scholar
• Finnegan, A., Langhaug, L., Schenk, K., Puffer, E. S., Rusakaniko, S., Choi, Y., Mahaso, S., & Green, E. P. (2019). The prevalence and process of pediatric HIV disclosure: A population-based prospective cohort study in zimbabwe. PloS One, 14(5), e0215659. https://doi.org/10.1371/journal.pone.0215659
   PubMed Web of Science ®Google Scholar
• Guta, A., Areri, H. A., Anteab, K., Abera, L., & Umer, A. (2020). HIV-positive status disclosure and associated factors among children in public health facilities in Dire Dawa, Eastern Ethiopia: A cross-sectional study. PloS One, 15(10), e0239767. https://doi.org/10.1371/journal.pone.0239767
   PubMed Web of Science ®Google Scholar
• Kalembo, F. W., Kendall, G. E., Ali, M., & Chimwaza, A. F. (2019). Socio-demographic, clinical, and psychosocial factors associated with primary caregivers’ decisions regarding HIV disclosure to their child aged between 6 and 12 years living with HIV in Malawi. PloS One, 14(1), e0210781. https://doi.org/10.1371/journal.pone.0210781
   PubMed Web of Science ®Google Scholar
• Madiba, S., & Diko, C. (2020). The consequences of delaying telling children with perinatal HIV about their diagnosis as perceived by healthcare workers in the Eastern Cape; a qualitative study. Children, 7(12), 289. https://www.mdpi.com/2227-9067/7/12/289 https://doi.org/10.3390/children7120289
   PubMedGoogle Scholar
• Menon, A., Glazebrook, C., Campain, N., & Ngoma, M. (2007). Mental health and disclosure of HIV status in Zambian adolescents with HIV infection: implications for peer-support programs. JAIDS Journal of Acquired Immune Deficiency Syndromes, 46(3), 349–354. https://doi.org/10.1097/QAI.0b013e3181565df0
   PubMed Web of Science ®Google Scholar
• Murnane, P. M., Sigamoney, S.-L., Pinillos, F., Shiau, S., Strehlau, R., Patel, F., Liberty, A., Abrams, E. J., Arpadi, S., Coovadia, A., Violari, A., & Kuhn, L. (2017). Extent of disclosure: What perinatally HIV-infected children have been told about their own HIV status. AIDS Care, 29(3), 378–386. https://doi.org/10.1080/09540121.2016.1224310
   PubMed Web of Science ®Google Scholar
• Odiachi, A. (2017). The impact of disclosure on health and related outcomes in Human Immunodeficiency Virus-infected children: A literature review. Frontiers in Public Health, 5, 231. https://doi.org/10.3389/fpubh.2017.00231
   PubMed Web of Science ®Google Scholar
• Patel, K., Herná n, M. A., Williams, P. L., Seeger, J. D., McIntosh, K., Dyke, R. B. V., Seage, G. R., III, & Team, P. A. C. T. G. C. S. (2008). Long-term effectiveness of highly active antiretroviral therapy on the survival of children and adolescents with HIV infection: A 10-year follow-up study. Clinical Infectious Diseases, 46(4), 507–515. https://doi.org/10.1086/526524
   PubMed Web of Science ®Google Scholar
• Pinzón-Iregui, M. C., Beck-Sagué, C. M., & Malow, R. M. (2013). Disclosure of their HIV status to infected children: A review of the literature. Journal of Tropical Pediatrics, 59(2), 84–89. https://doi.org/10.1093/tropej/fms052
   PubMed Web of Science ®Google Scholar
• Ramteke, S. M., Shiau, S., Foca, M., Strehlau, R., Pinillos, F., Patel, F., Violari, A., Liberty, A., Coovadia, A., Kuhn, L., & Arpadi, S. M. (2018). Patterns of growth, body composition, and lipid profiles in a South African cohort of human immunodeficiency virus-infected and uninfected children: A cross-sectional study. Journal of the Pediatric Infectious Diseases Society, 7(2), 143–150. https://doi.org/10.1093/jpids/pix026
   PubMed Web of Science ®Google Scholar
• Santamaria, E. K., Dolezal, C., Marhefka, S. L., Hoffman, S., Ahmed, Y., Elkington, K., & Mellins, C. A. (2011). Psychosocial implications of HIV serostatus disclosure to youth with perinatally acquired HIV. AIDS Patient Care and STDs, 25(4), 257–264. https://doi.org/10.1089/apc.2010.0161
   PubMed Web of Science ®Google Scholar
• Sutcliffe, C. G., Drogt, C. S., van Dijk, J. H., Hamangaba, F., Muleka, M., Munsanje, B., Munsanje, J., Thuma, P. E., & Moss, W. J. (2020). Timing of and factors associated with HIV disclosure among perinatally infected children in rural Zambia. AIDS, 34(4), 579–588. https://doi.org/10.1097/qad.0000000000002411
   PubMed Web of Science ®Google Scholar
• Tadesse, B. T., Foster, B. A., & Berhan, Y. (2015). Cross sectional characterization of factors associated with pediatric HIV status disclosure in southern Ethiopia. PloS One, 10(7), e0132691–e0132691. https://doi.org/10.1371/journal.pone.0132691
   PubMed Web of Science ®Google Scholar
• Vreeman, R. C., Gramelspacher, A. M., Gisore, P. O., Scanlon, M. L., & Nyandiko, W. M. (2013). Disclosure of HIV status to children in resource-limited settings: A systematic review. Journal of the International AIDS Society, 16(1), 18466–18466. https://doi.org/10.7448/IAS.16.1.18466
   PubMed Web of Science ®Google Scholar
• Vreeman, R. C., Nyandiko, W. M., Ayaya, S. O., Walumbe, E. G., Marrero, D. G., & Inui, T. S. (2010). The perceived impact of disclosure of pediatric HIV status on pediatric antiretroviral therapy adherence, child well-being, and social relationships in a resource-limited setting. AIDS Patient Care and STDs, 24(10), 639–649. https://doi.org/10.1089/apc.2010.0079
   PubMed Web of Science ®Google Scholar
• Wiener, L., Mellins, C. A., Marhefka, S., & Battles, H. B. (2007). Disclosure of an HIV diagnosis to children: History, current research, and future directions. Journal of Developmental & Behavioral Pediatrics, 28(2), 155–166. https://doi.org/10.1097/01.DBP.0000267570.87564.cd
   PubMed Web of Science ®Google Scholar
• World Health Organization. (2011). Guideline on HIV disclosure counselling for children up to 12 years of age.
   Google Scholar
• Young, S., Wheeler, A. C., McCoy, S. I., & Weiser, S. D. (2014). A review of the role of food insecurity in adherence to care and treatment among adult and pediatric populations living with HIV and AIDS. AIDS and Behavior, 18(Suppl 5), 505–515. https://doi.org/10.1007/s10461-013-0547-4
   PubMed Web of Science ®Google Scholar