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AIDS Care
Psychological and Socio-medical Aspects of AIDS/HIV
Volume 35, 2023 - Issue 12
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Research Article

Disclosure of HIV status and associated clinical outcomes of children and adolescents living with HIV in Asia

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Pages 1928-1937 | Received 28 Oct 2021, Accepted 24 Jan 2023, Published online: 15 Feb 2023

References

  • Abegaz, B. F., Walle, T. A., & Tilahun, A. D. (2019). HIV positive status disclosure and associated factor among HIV infected children in pediatric ART clinics in Gondar town public health facilities, North West Ethiopia, 2018. Journal of Infection and Public Health, 12(6), 873–877. https://doi.org/10.1016/j.jiph.2019.05.018
  • Arage, G., Tessema, G. A., & Kassa, H. (2014). Adherence to antiretroviral therapy and its associated factors among children at South Wollo Zone Hospitals, Northeast Ethiopia: A cross-sectional study. BMC Public Health, 14(1), 365. https://doi.org/10.1186/1471-2458-14-365
  • Arrivé, E., Dicko, F., Amghar, H., Aka, A. E., Dior, H., Bouah, B., Traoré, M., Ogbo, P., Dago-Akribi, H. A., Eboua, T. K. F., Kouakou, K., Sy, H. S., Alioum, A., Dabis, F., Ekouévi, D. K., Leroy, V., & for the Pediatric IeDEA West Africa Working Group. (2012). HIV status disclosure and retention in care in HIV-infected adolescents on antiretroviral therapy (ART) in West Africa. PLoS ONE, 7(3), e33690. https://doi.org/10.1371/journal.pone.0033690
  • Bhattacharya, M., Dubey, A. P., & Sharma, M. (2011). Patterns of diagnosis disclosure and its correlates in HIV-infected north Indian children. Journal of Tropical Pediatrics, 57(6), 405–411. https://doi.org/10.1093/tropej/fmq115
  • Boon-yasidhi, V., Naiwatanakul, T., Chokephaibulkit, K., Lolekha, R., Leowsrisook, P., Chotpitayasunond, T., & Wolfe, M. (2016). Effect of HIV diagnosis disclosure on psychosocial outcomes in Thai children with perinatal HIV infection. International Journal of STD & AIDS, 27(4), 288–295. https://doi.org/10.1177/0956462415579590
  • Bulali, R. E., Kibusi, S. M., & Mpondo, B. C. T. (2018). Factors associated with HIV status disclosure and its effect on treatment adherence and quality of life among children 6–17 years on antiretroviral therapy in southern highlands zone, Tanzania: Unmatched case control study. International Journal of Pediatrics, 2018, 1–10. https://doi.org/10.1155/2018/8058291
  • Cluver, L. D., Hodes, R. J., Toska, E., Kidia, K. K., Orkin, F. M., Sherr, L., & Meinck, F. (2015). ‘HIV is like a tsotsi. ARVs are your guns’: Associations between HIV-disclosure and adherence to antiretroviral treatment among adolescents in South Africa. AIDS, 29(Suppl. 1), S57–S65. https://doi.org/10.1097/QAD.0000000000000695
  • Committee on Pediatric AIDS. (1999). Disclosure of illness status to children and adolescents with HIV infection. Pediatrics, 103(1), 164–166. https://doi.org/10.1542/peds.103.1.164
  • Dorrell, J., & Katz, J. (2013). “I knew I had something bad because no-one spoke about it” – Disclosure discovery: Experiences of young people with perinatally acquired HIV in the UK. Vulnerable Children and Youth Studies, 8(4), 353–361. https://doi.org/10.1080/17450128.2013.774453
  • Ferris, M., Burau, K., Schweitzer, A. M., Mihale, S., Murray, N., Preda, A., Ross, M., & Kline, M. (2007). The influence of disclosure of HIV diagnosis on time to disease progression in a cohort of Romanian children and teens. AIDS Care, 19(9), 1088–1094. https://doi.org/10.1080/09540120701367124
  • Fine, J. P., & Gray, R. J. (1999). A proportional hazards model for the subdistribution of a competing risk. Journal of the American Statistical Association, 94(446), 496–509. https://doi.org/10.1080/01621459.1999.10474144
  • Hayfron-Benjamin, A., Obiri-Yeboah, D., Ayisi-Addo, S., Siakwa, P. M., & Mupepi, S. (2018). HIV diagnosis disclosure to infected children and adolescents; challenges of family caregivers in the Central Region of Ghana. BMC Pediatrics, 18(1), 365. https://doi.org/10.1186/s12887-018-1330-5
  • Jantarapakde, J., Pancharoen, C., Teeratakulpisarn, S., Mathajittiphan, P., Kriengsinyot, R., Channgam, T., Pengnonyang, S., Plodgratok, P., Lakhonphon, S., Luesomboon, W., Jadwattanakul, T., Avihingsanon, A., Ananworanich, J., Ungaro, P., & Phanuphak, P. (2019). An integrated approach to HIV disclosure for HIV-affected families in Thailand. Journal of the International Association of Providers of AIDS Care (JIAPAC), 18, 232595821983102. https://doi.org/10.1177/2325958219831021
  • Kariminia, A., Chokephaibulkit, K., Pang, J., Lumbiganon, P., Hansudewechakul, R., Amin, J., Kumarasamy, N., Puthanakit, T., Kurniati, N., Nik Yusoff, N. K., Saphonn, V., Fong, S. M., Razali, K., Nallusamy, R., Sohn, A. H., & Sirisanthana, V. (2011). Cohort profile: The TREAT Asia pediatric HIV observational database. International Journal of Epidemiology, 40(1), 15–24. https://doi.org/10.1093/ije/dyp358
  • Krauss, B., Letteney, S., Baets, A., de Murugi, J., Okero, F. A., & World Health Organization. (2011). Guideline on HIV disclosure counselling for children up to 12 years of age. http://whqlibdoc.who.int/publications/2011/9789241502863_eng.pdf.
  • Madiba, S. (2012). Patterns of HIV diagnosis disclosure to infected children and family members: Data from a paediatric antiretroviral program in South Africa. World Journal of AIDS, 02(03), 212–221. https://doi.org/10.4236/wja.2012.23027
  • Montalto, G. J., Sawe, F. K., Miruka, A., Maswai, J., Kiptoo, I., Aoko, A., Oreyo, C., Obiero, E., Korir, S., Bii, S. K., Song, K. X., & Kunz, A. N. (2017). Diagnosis disclosure to adolescents living with HIV in rural Kenya improves antiretroviral therapy adherence and immunologic outcomes: A retrospective cohort study. PLOS ONE, 12(10), e0183180. https://doi.org/10.1371/journal.pone.0183180
  • Nachega, J. B., Morroni, C., Zuniga, J. M., Sherer, R., Beyrer, C., Solomon, S., Schechter, M., & Rockstroh, J. (2012). HIV-related stigma, isolation, discrimination, and serostatus disclosure: A global survey of 2035 HIV-infected adults. Journal of the International Association of Physicians in AIDS Care, 11(3), 172–178. https://doi.org/10.1177/1545109712436723
  • Ngeno, B., Waruru, A., Inwani, I., Nganga, L., Wangari, E. N., Katana, A., Gichangi, A., Mwangi, A., Mukui, I., & Rutherford, G. W. (2019). Disclosure and clinical outcomes among young adolescents living with HIV in Kenya. Journal of Adolescent Health, 64(2), 242–249. https://doi.org/10.1016/j.jadohealth.2018.08.013
  • Odiachi, A. (2017). The impact of disclosure on health and related outcomes in human immunodeficiency virus-infected children: A literature review. Frontiers in Public Health, 5, 1–12. https://doi.org/10.3389/fpubh.2017.00231.
  • Pinzon-Iregui, M. C., Beck-Sague, C. M., & Malow, R. M. (2013). Disclosure of their HIV status to infected children: A review of the literature. Journal of Tropical Pediatrics, 59(2), 84–89. https://doi.org/10.1093/tropej/fms052
  • Ramos, J. V., Mmbaga, B. T., Turner, E. L., Rugalabamu, L. L., Luhanga, S., Cunningham, C. K., & Dow, D. E. (2018). Modality of primary HIV disclosure and association with mental health, stigma, and antiretroviral therapy adherence in Tanzanian youth living with HIV. AIDS Patient Care and STDs, 32(1), 31–37. https://doi.org/10.1089/apc.2017.0196
  • Sahay, S. (2013). Coming of age with HIV: A need for disclosure of HIV diagnosis among children/adolescents. Journal of HIV/AIDS and Infectious Diseases, 1, 1–7. https://doi.org/10.17303/jaid.2013.103.
  • Shallo, Seifadin Ahmed, & Tassew, Mesfin. (2020). HIV positive status disclosure and its associated factors among children on antiretroviral therapy in West Shoa Zone, Western Ethiopia, 2019: A mixed method cross-sectional study. Journal of Multidisciplinary Healthcare, 13, 507–517. http://doi.org/10.2147/JMDH.S258851.
  • Sirikum, C., Sophonphan, J., Chuanjaroen, T., Lakonphon, S., Srimuan, A., Chusut, P., Do, T. C., Prasitsuebsai, W., Puthanakit, T., Ananworanich, J., Bunupuradah, T., & on behalf of HIV-NAT 015 study team. (2014). HIV disclosure and its effect on treatment outcomes in perinatal HIV-infected Thai children. AIDS Care, 26(9), 1144–1149. https://doi.org/10.1080/09540121.2014.894614
  • Siripong, A., Bunupuradah, T., Apateerapong, W., Boonrak, P., Pancharoe, C., & Ananworanich, J. (2007). Attitudes of Thai caregivers of children with HIV infection towards HIV disclosure. Vulnerable Children and Youth Studies, 2(3), 191–197. https://doi.org/10.1080/17450120701593696
  • UNAIDS. (2022). Global HIV statistics—Fact sheet 2022. https://www.unaids.org/en/resources/fact-sheet.
  • Vreeman, R. C., Gramelspacher, A. M., Gisore, P. O., Scanlon, M. L., & Nyandiko, W. M. (2013). Disclosure of HIV status to children in resource-limited settings: A systematic review. Journal of the International AIDS Society, 16(1), 18466. https://doi.org/10.7448/IAS.16.1.18466
  • Vreeman, R. C., Nyandiko, W. M., Ayaya, S. O., Walumbe, E. G., Marrero, D. G., & Inui, T. S. (2010). The perceived impact of disclosure of pediatric HIV status on pediatric antiretroviral therapy adherence, child well-being, and social relationships in a resource-limited setting. AIDS Patient Care and STDs, 24(10), 639–649. https://doi.org/10.1089/apc.2010.0079
  • Vreeman, R. C., Scanlon, M. L., Mwangi, A., Turissini, M., Ayaya, S. O., Tenge, C., & Nyandiko, W. M. (2014). A cross-sectional study of disclosure of HIV status to children and adolescents in western Kenya. PLoS ONE, 9(1), e86616. https://doi.org/10.1371/journal.pone.0086616
  • Wiener, L., Mellins, C. A., Marhefka, S., & Battles, H. B. (2007). Disclosure of an HIV diagnosis to children: History, current research, and future directions. Journal of Developmental & Behavioral Pediatrics, 28(2), 155–166. https://doi.org/10.1097/01.DBP.0000267570.87564.cd
  • World Health Organization. (2007). Growth reference data for 5-19 years.
  • World Health Organization. (2019). Child growth standards. https://www.who.int/tools/child-growth-standards/software.

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