- Atkinson , J. M. and Elliott , L. 1994 . “ Evaluation and consumers ” . In Caring far People in the Community: The New Welfare , Edited by: Titterton , M. London : Jessica Kingsley .
- Barnes , C. and Mercer , G. , eds. 1997 . Doing Disability Research , Leeds : Disability Press .
- Barnes , M. and Shardlow , P. 1996 . Effective consumers and active citizens: strategies for users' influence on service and beyond . Research Policy and Planning , 14 (1) : 3 – 38 .
- Barnes , M. and Wistow , G. 1994a . Achieving a strategy for user involvement in community care . Health and Social Care in the Community , 2 : 347 – 356 .
- Barnes , M. and Wistow , G. 1994b . Learning to hear voices: listening to users of mental health services . Journal of Mental Health , 3 : 525 – 540 .
- Beeforth , M. , Conlan , E. and Graley , R. 1994 . Have We Got Views for You: User Evaluation of Case Management , London : Sainsbury Centre for Mental Health .
- Beresford , P. 1997 . “ New movements, new politics: making participation possible ” . In Storming the Millennium: The New Politics of Change , Edited by: Jordan , T. and Lent , A. London : Lawrence & Wishart .
- Biehal , N. 1993 . Changing practice: participation, rights and community care . British Journal of Social Work , 23 : 443 – 458 .
- Booth , R. M. , Clardy , J. , Smith , L. G. and Smith , J. G. R. 1998 . Outcomes assessment: evaluation in routine practice . Scandinavian Journal of Social Welfare , 7 (2) : 132 – 136 .
- Britton , A. , Thorogood , M. , Coombes , Y. and Lewando-Hunt , G. 1998 . Quantitative outcome evaluation with qualitative process evaluation is best . British Medical Journal , 316 : 703 – 704 .
- Chamberlin , J. and Rogers , J.A. 1990 . Planning a community-based mental health system: perspectives of service recipients . American Psychologist , 45 (11) : 1241 – 1244 .
- Cornwall , A. 1996 . “ Towards participatory practice: participatory rural appraisal and the participatory process. In ” . In Participatory Research in Health: Issues and Experiences , Edited by: de Koning , K. and Martin , M. London : Zed Books .
- De Koning , K. and Martin , M. , eds. 1996 . Participatory Research in Health: Issues and Experiences , London : Zed Books .
- Department of Health . 1989 . Caring for People: Community Care in the Next Decade and Beyond, Cmnd. 849 , London : HMSO .
- Department of Health . 1994 . The Health of the Nation: Key Area Handbook, Mental Illness, , 2nd edn , London : HMSO .
- Department of Health . 2000a . Research: Who's Learning?, Consumers in NHS Conference Report, January 2000 , London : HMSO .
- Department of Health . 2000b . Working Partnerships: Consumers in NHS 3rd Annual Report , London : HMSO .
- Dullea , K. and Mullender , A. 1999 . “ Evaluation and empowerment ” . In Evaluation and Social Work Practice , Edited by: Shaw , I. and Lishman , J. London : Sage .
- Godfrey , M. and Wistow , G. 1997 . The user perspective on managing for health outcomes: the case of mental health . Health and Social Care in the Community , 5 (5) : 325 – 332 .
- Hanley , B. , Bradburn , J. , Gorin , S. , Barnes , M. , Evans , C. , Goodare , H. , Kelson , M. , Kent , A. , Oliver , S. and Wallcraft , J. 2000 . Involving Consumers in Research and Development in the NHS: Briefing Notes for Researchers , Winchester : Consumers in NHS Research Support Unit .
- Harrison , S. , Barnes , M. and Mort , M. 1997 . Praise and damnation: mental health user groups and the construction of organisational legitimacy . Public Policy and Administration , 12 (2) : 4 – 16 .
- Hickey , G. and Kipping , C. 1998 . Exploring the concept of user involvement in mental health through a participation continuum . Journal of Clinical Nursing , 7 : 83 – 88 .
- Hugman , R. 1992 . Rehabilitation and community support: a case study of social care . Applied Community Studies , 1 (2)
- Israel , B. , Schulz , A. , Parker , E. and Becker, , A . 1998 . Review of community-based research: assessing partnership approaches to improve public health . Annual Review of Public Health , 19 : 173 – 202 .
- Keen , J. 1995 . Qualitative research: case study evaluation . British Medical Journal , 311 : 444 – 446 .
- Lindow , V. and Morris , J. 1995 . Service User Involvement: Synthesis of Findings and Experience in the Field of Community Care , York : Joseph Rowntree Foundation .
- Macaulay , A. , Commanda , L. , Freeman , W. , Gibson , N. , McCabe , M. , Robbins , C. and Twohig , P. 1999 . Participatory research maximises community and lay involvement . British Medical Journal , 319 : 774 – 778 .
- Maguire , P. 1987 . Doing Participatory Research: A Feminist Approach , Amtierst : University of Massachusetts, Centre for International Education .
- Maguire , P. 1996 . “ Proposing a more feminist participatory research: knowing and being embraced openly ” . In Participatory Research in Health: Issues and Experiences , Edited by: de Koning , K. and Martin , M. London : Zed Books .
- Martin , M. 1994 . “ Developing a feminist participative research framework: evaluating the process ” . In Re-thinking Social Research , Edited by: Humphries , B. and Truman , C. Aldershot : Avebury .
- Milne , D. , ed. 1987 . Evaluating Mental Health Practice: Methods and Applications , Beckenham : Groom Helm .
- Minkes , J. , Townsley , R. , Weston , C. and Williams , C. 1995 . Having a voice: involving people with learning difficulties in research . British Journal of Learning Disabilities , 23 (3) : 94 – 97 .
- Mort , M. , Harrison , J. and Wistow , G. 1996 . The user card: picking through the organisational undergrowth in health and social care . Contemporary Political Studies , 2 : 1133 – 1140 .
- Myers , F. and MacDonald , C. 1996 . Power to the people? Involving users and carers in needs assessments and care planning--views from the practitioner . Health and Social Care in the Community , 4 (2) : 86 – 95 .
- Pawson , R. and Tilley , N. 1997 . Realistic Evaluation , London : Sage .
- Perkins , R. and Repper , J. 1998 . Dilemmas in Community Mental Health Practice: Choice and Control , Abingdon : Radcliffe Medical Press .
- Plough , A. and Olafson , F. 1994 . Implementing the Boston Healthy Start Initiative: a case study of community empowerment and public health . Health Education Quarterly , 21 : 221 – 234 .
- Pollitt , C. 1988 . Bringing consumers into performance measurement: concepts, consequences and constraints . Policy and Politics , 16 (2) : 77 – 87 .
- Rose , D. , Ford , R. , Lindley , P. , Gawith , L. and the KCW Mental Health Monitoring Users' Group . 1998 . In Our Experience: User-focused Monitoring of Mental Health Services in Kensington and Chelsea and Westminster Health Authority , London : Sainsbury Centre for Mental Health .
- Sapsford , R. and Abbott , P. 1992 . Research Methods for Nurses and the Caring Professions , Buckingham : Open University Press .
- Shaw , I. 1997a . Assessing quality in health care services: lessons from mental health nursing . Journal of Advanced Nursing , 26 : 758 – 764 .
- Shaw , I. 199 Tb . Assessing quality in mental health care: the United Kingdom experience . Evaluation Review , 21 (3) : 364 – 370 .
- Shaw , I. 1997c . Evaluation in health and social care: exploring lost dimensions . Evaluation , 3 (4) : 469 – 480 .
- Sheldon , T. , Sowden , A. and Lister-Sharp , A. 1998 . Systematic reviews include studies other than randomised control trials . British Medical Journal , 316 : 703 – 704 .
- Speller , V. , Learmonth , A. and Harrison , D. 1997 . The search for evidence of effective health promotion . British Medical Journal , 315 : 361 – 363 .
- Tandon , R. 1988 . Social transformation and participatory research . Convergence , XXI (2-3)
- Tandon , R. 1996 . “ The historical roots and contemporary tendencies in participatory research: implications for health care ” . In Participatory Research in Health: Issues and Experiences , Edited by: de Koning, , K and Martin , M. London : Zed Books . 1996
- Truman , C. 1999 . “ User involvement in large-scale research: bridging the gap between service users and service providers? ” . In The Politics of Research and Evaluation, Social Work Research Association Series , Edited by: Broad , B. Birmingham : Venture Press .
- Truman , C. 2000 . “ New social movements and social research ” . In Research and Inequality , Edited by: Truman , C. , Humphries , B. and Mertens , D. London : UCL Press .
- Walmsley , J. 1993 . “ Explaining ” . In Reflecting on Research Practice: Issues in Health and Social Welfare , Edited by: Shakespeare , P. , Atkinson , D. and French , S. Buckingham : Open University Press .
- Ward , L. 1997a . “ Funding for change: translating emancipatory disability research from theory to practice ” . In Doing Disability Research , Edited by: Bames , C. and Mercer , G. Leeds : Disability Press .
- Ward , L. 1997b . Seen and Heard: Involving Disabled Children and Young People in Research and Development Projects , York : York Publishing .
- Zarb , G. 1992 . On the road to Damascus: first steps towards changing the relations of research production . Disability, Handicap and Society , 7 (2) : 125 – 138 .
Involving users in evaluation: The social relations of user participation in health research
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