Communitarian societies and public engagement in public health

References

• Adebamowo, C., Bah-Sow, O., Binka, F., Bruzzone R., Caplan A., Delfraissy J. F., … Whitehead J. (2014). Randomised controlled trials for Ebola: Practical and ethical issues. The Lancet, 384, 1423–1424.10.1016/S0140-6736(14)61734-7
   PubMed Web of Science ®Google Scholar
• Alexander, K. A., Sanderson, C. E., Marathe, M., Lewis, B. L., Rivers, C. M., Shaman, J., … Eubank, S. (2015). What factors might have led to the emergence of Ebola in West Africa? PLoS Neglected Tropical Diseases, 9, e0003652.10.1371/journal.pntd.0003652
   Web of Science ®Google Scholar
• Amazigo, U. (2008). The African Programme for Onchocerciasis Control (APOC). Annals of Tropical Medicine & Parasitology, 102, 19–22.10.1179/136485908X337436
   PubMed Web of Science ®Google Scholar
• Amazigo, U. V., Leak, S. G. A., Zoure, H. G. M., Njepuome, N., & Lusamba-Dikassa, P.-S. (2012). Community-driven interventions can revolutionise control of neglected tropical diseases. Trends in Parasitology, 28, 231–238.10.1016/j.pt.2012.03.002
   PubMed Web of Science ®Google Scholar
• Bah, C. A. M. (2015). The Ebola outbreak in West Africa: Corporate gangsters, multinationals and rogue politicians. Philadelphia, PA: Africanist Press.
   Google Scholar
• BBC. (2014, September 19). Ebola outbreak: Guinea health team killed. Retrieved September 14, 2016, from http://www.bbc.com/news/world-africa-29256443
   Google Scholar
• Callahan, D. (2003). Individual good and common good: A communitarian approach to bioethics. Perspectives in Biology and Medicine, 46, 496–507.
   PubMed Web of Science ®Google Scholar
• Caplan, A. L., Plunkett, C., & Levin, B. (2015). Selecting the right tool for the job. The American Journal of Bioethics, 15, 4–10.10.1080/15265161.2015.1010993
   PubMed Web of Science ®Google Scholar
• Carrión Martín, A. I., Derrough, T., Honomou, P., Kolie, N., Diallo, B., Koné, M., … Jansà, J. M. (2016). Social and cultural factors behind community resistance during an Ebola outbreak in a village of the Guinean Forest region, February 2015: A field experience. International Health, 8, 227–229.10.1093/inthealth/ihw018
   PubMed Web of Science ®Google Scholar
• Corrigan, P. W., Larson, J. E., & Rüsch, N. (2009). Self-stigma and the “why try” effect: Impact on life goals and evidence-based practices. World Psychiatry, 8, 75–81.10.1002/wps.2009.8.issue-2
   PubMed Web of Science ®Google Scholar
• Degeling, C., Johnson, J., & Mayes, C. (2015). Impure politics and pure science: Efficacious Ebola medications are only a palliation and not a cure for structural disadvantage. The American Journal of Bioethics, 15, 43–45.10.1080/15265161.2015.1009563
   PubMed Web of Science ®Google Scholar
• Etzioni, A. (1999). The limits of privacy. New York, NY: Basic Books.
   Google Scholar
• Etzioni, A. (2002). Public health law: A communitarian perspective. Health Affairs, 21, 102–104.10.1377/hlthaff.21.6.102
   PubMed Web of Science ®Google Scholar
• Folayan, M., Brown, B., Yakubu, A., Peterson, K., & Haire, B. (2014). Compassionate use of experimental drugs in the Ebola outbreak. The Lancet, 384, 1843–1844.10.1016/S0140-6736(14)61605-6
   PubMed Web of Science ®Google Scholar
• Folayan, M. O., Haire, B., & Peterson, K. (2015). Ethical testing of experimental Ebola treatments. JAMA, 313, 421.10.1001/jama.2014.17256
   PubMed Web of Science ®Google Scholar
• Folayan, M. O., & Peterson, K. (in press). Can communities declare clinical trials unethical: A case study of the oral tenofovir pre-exposure prophylaxis controversies. Medical Anthropology Theory.
   Google Scholar
• Folayan, M. O., Peterson, K., & Kombe, F. (2015). Ethics, emergencies and Ebola clinical trials: The role of governments and communities in offshored research. Pan African Medical Journal, 22, 10.
   PubMedGoogle Scholar
• Folayan, M. O., Yakubu, A., Haire, B., & Peterson, K. (2016). Ebola vaccine development plan: Ethics, concerns and proposed measures. BMC Medical Ethics, 17, 10.10.1186/s12910-016-0094-4
   PubMed Web of Science ®Google Scholar
• Garson, P. (2014). Liberians in US face worsening Ebola stigma. 17th October, 2014. Retrieved September 3, 2016, from http://www.irinnews.org/feature/2014/10/17
   Google Scholar
• Gostin, L. O. (2000). Public health law: Power, duty, restraint. Berkeley: University of California Press.
   Google Scholar
• Grant, C. (2014). Local beliefs and behaviour change for preventing Ebola in Sierra Leone. Retrieved August 1, 2016, from http://www.ebola-anthropology.net/key_messages/ebola-local-beliefs-and-behaviour-change/
   Google Scholar
• Heymann, D. L. (2015). Ebola: Burying the bodies. The Lancet, 385, 2455–2456.
   PubMed Web of Science ®Google Scholar
• International Centre for Investigative Reporting. (2016, May 8). How Nigerian officials embezzled HIV/AIDS donor funds. Retrieved September 3, 2016, from http://icirnigeria.org/how-nigerian-officials-embezzled-hivaids-donor-funds/
   Google Scholar
• Joffe, S. (2014). Evaluating novel therapies during the Ebola epidemic. JAMA, 312, 1299–1300.10.1001/jama.2014.12867
   PubMed Web of Science ®Google Scholar
• Laverack, G., & Manoncourt, E. (2016). Key experiences of community engagement and social mobilization in the Ebola response. Global Health Promotion, 23, 79–82.10.1177/1757975915606674
   PubMed Web of Science ®Google Scholar
• Levin, B. W., & Fleischman, A. R. (2002). Public health and bioethics: The benefits of collaboration. American Journal of Public Health, 92, 165–167.10.2105/AJPH.92.2.165
   PubMed Web of Science ®Google Scholar
• Marsh, V., Kamuya, D., Rowa, Y., Gikonyo, C., & Molyneux, S. (2008). Beginning community engagement at a busy biomedical research programme: Experiences from the KEMRI CGMRC-Wellcome Trust Research Programme, Kilifi, Kenya. Social Science & Medicine, 67, 721–733.10.1016/j.socscimed.2008.02.007
   PubMed Web of Science ®Google Scholar
• Masolo, D. A. (2005). Western and African communitarianism: A comparison. In K. Wiredu (Ed.), A companion to African philosophy. Oxford: Blackwell. doi: 10.1002/9780470997154.ch41
   Google Scholar
• Medecins San Frontiers. (2014, August 29). Ebola: The failure of the international outbreak response. Retrieved September 14, 2016, from http://www.msf.org/en/article/ebola-failures-international-outbreak-response
   Google Scholar
• Morrison, C., & Dearden, A. (2013). Beyond tokenistic participation: Using representational artefacts to enable meaningful public participation in health service design. Health Policy, 112, 179–186.10.1016/j.healthpol.2013.05.008
   PubMed Web of Science ®Google Scholar
• Nelson, R. M., Roth-Cline, M., Prohaska, K., Cox, E., Borio, L., & Temple, R. (2015). Right job, wrong tool: A commentary on designing clinical trials for Ebola virus disease. The American Journal of Bioethics, 15, 33–36.10.1080/15265161.2015.1010018
   PubMed Web of Science ®Google Scholar
• Newman, P. A., Rubincam, C., Slack, C., Essack, Z., Chakrapani, V., Chuang, D. M., … Lindegger, G. (2015). Towards a science of community stakeholder engagement in biomedical HIV prevention trials: An embedded four-country case study. PLoS ONE, 10, e0135937.10.1371/journal.pone.0135937
   Web of Science ®Google Scholar
• Rauprich, O. (2008). Utilitarianism or communitarianism as the foundation of public health ethics? Bundesgesundheitsblatt Gesundheitsforschung Gesundheitsschutz, 51, 137–150.10.1007/s00103-008-0442-8
   PubMed Web of Science ®Google Scholar
• Rid, A., & Emanuel, E. J. (2014). Ethical considerations of experimental interventions in the Ebola outbreak. The Lancet, 384, 1896–1899.10.1016/S0140-6736(14)61315-5
   PubMed Web of Science ®Google Scholar
• Ukpong, M., & Peterson, K. (2009). Oral tenofovir controversy II: Voices from the field: A series of reports of the oral tenofovir trials from the perspectives of active community voices engaged on the field in Cambodia, Cameroon, Nigeria, Thailand and Malawi. New HIV Vaccine and Microbicide Advocacy Society. Retrieved September 3, 2016, from http://www.nhvmas-ng.org/publication/TDF2.pdf
   Google Scholar
• Wilcox, D. (1994). Community participation and empowerment: Putting theory into practice. RRA Notes, 21, 78–82.
   Google Scholar
• Wilkinson, A., & Leach, M. (2014). Briefing: Ebola – Myths, realities and structural violence. African Affairs, 114, 136–148.
   Web of Science ®Google Scholar
• Winkel, R. E., & Leary, M. R. (2004). Reactions to acceptance and rejection: Effects of level and sequence of relational evaluation. Journal of Experimental Social Psychology, 40, 14–28.
   Web of Science ®Google Scholar
• World Health Organisation. (2014, December). Democratic Republic of the Congo: The country that knows how to beat Ebola. Retrieved September 14, 2016, from http://www.who.int/features/2014/drc-beats-ebola/en/
   Google Scholar
• World Health Organisation. (2015a, January). Factors that contributed to undetected spread of the Ebola virus and impeded rapid containment. Retrieved September 14, 2016, from http://www.who.int/csr/disease/ebola/one-year-report/factors/en/
   Google Scholar
• World Health Organisation. (2016). Ebola situation report – 30 March 2016. Retrieved September 14, 2016, from http://apps.who.int/ebola/ebola-situation-reports
   Google Scholar
• World Health Organization. (2015b, April). Liberia succeeds in fighting Ebola with local, sector response. Retrieved September 14, 2016, from http://www.who.int/features/2015/ebola-sector-approach/en/
   Google Scholar
• Zvonareva, O., Engel, N., Ross, E., Berghmans, R., Dhai, A., & Krumeich, A. (2015). Engaging diverse social and cultural worlds: Perspectives on benefits in international clinical research from South African communities. Developing World Bioethics, 15, 8–17.10.1111/dewb.2015.15.issue-1
   PubMed Web of Science ®Google Scholar