‘Behind closed doors, no one sees, no one knows’: hepatitis C, stigma and treatment-as-prevention in prison

References

• Australian Bureau of Statistics. 2017. Retrieved from http://www.abs.gov.au/ausstats/[email protected]/Lookup/4517.0main+features12017
   Google Scholar
• Australian Government Department of Health. (2014). Fourth national hepatitis C strategy 2014–2017. Canberra ACT: Commonwealth of Australia.
   Google Scholar
• Bacchi, C., & Goodwin, S. (2016). Poststructural policy analysis: A guide to practice. New York: Palgrave.
   Google Scholar
• Bonnycastle, K. D., & Villebrun, C. (2011). Injecting risk into prison sentences: A quantitative analysis of a prisoner-driven survey to measure HCV/HIV seroprevalence, risk practices and viral testing at one Canadian male federal prison. The Prison Journali, 91, 325–346.
   Web of Science ®Google Scholar
• Brener, L., Horwitz, R., von Hippel, C., Bryant, J, & Treloar C. (2015). Discrimination by health care workers versus discrimination by others: Countervailing forces on HCV treatment intentions. Psychology, Health & Medicine, 20, 148–153.
   PubMed Web of Science ®Google Scholar
• Bretaña, N., Boelen, L., Bull, R., Teutsch, S., White, P. A., Lloyd, & A.R., Lucian, F. (2015). Transmission of hepatitis C virus among prisoners, Australia, 2005–2012. Emerging Infectious Diseases, 21, 765–774.
   PubMed Web of Science ®Google Scholar
• Butler, J. (1993). Bodies that matter. London & New York: Routledge.
   Google Scholar
• Butler, T., & Simpson, M. (2017) National prison entrants’ blood-borne virus survey report 2004, 2007, 2010, 2013, and 2016. Sydney: Kirby Institute.
   Google Scholar
• Clark, J. A., & Gifford, A. L. (2015). Resolute efforts to cure hepatitis C: Understanding patients’ reasons for completing antiviral treatment. Health, 19, 473–489.
   PubMed Web of Science ®Google Scholar
• Clemmer, D. (1940). The prison community. New York: Holt, Rinehart & Winston.
   Google Scholar
• Cunningham, E. B., Hajarizadeh, B., Bretana, N. A., Amin, J., Betz‐Stablein, B., Dore, G. J., … & Grebely, J. (2017). Ongoing incident hepatitis C virus infection among people with a history of injecting drug use in an Australian prison setting, 2005–2014: The HITS-p study. Journal of Viral Hepatitis, 24, 733–741.
   PubMed Web of Science ®Google Scholar
• de Viggiani, N. (2007). Unhealthy prisons: Exploring structural determinants of prison health. Sociology of Health & Illness, 29, 115–135.
   PubMed Web of Science ®Google Scholar
• Dolan, K., Wirtz, A. L., Moazen, B., Ndeffo-mbah, M., Galvani, A., Kinner, S. A., … & Hellard, M. (2016). Global burden of HIV, viral hepatitis, and tuberculosis in prisoners and detainees. The Lancet, 388, 1089–1102.
   PubMed Web of Science ®Google Scholar
• Foucault. (1982). The subject and power. Critical Inquiry, 8, 777–795.
   Web of Science ®Google Scholar
• Foucault, M. (1979). Discipline and punish: The birth of the prison. ( A. Sheridan, Trans.). New York: Vintage Books.
   Google Scholar
• Fraser, S., Pienaar, K., Dilkes-Frayne, E., Moore, D., Kokanovic, R., Treloar, C., & Dunlop, A. (2017). Addiction stigma and the biopolitics of liberal modernity: A qualitative analysis. International Journal of Drug Policy, 44, 192–201
   PubMed Web of Science ®Google Scholar
• Fraser, S., & Seear, K. (2011). Making disease, making citizens: The politics of hepatitis C. Farnham, England: Ashgate.
   Google Scholar
• Fraser, S., & Treloar, C. (2006). ‘Spoiled identity’ in hepatitis C infection: The binary logic of despair. Critical Public Health, 16, 99–110.
   Google Scholar
• Goffman, E. (1973/1963). Stigma: Notes on the management of spoiled identity. Harmondsworth and Ringwood: Penguin.
   Google Scholar
• Hajarizadeh, B., Grebely, J., Martinello, M., Matthews, G. V., Lloyd, A. R., & Dore, G. J. (2016). Hepatitis C treatment as prevention: Evidence, feasibility, and challenges. The Lancet Gastroenterology & Hepatology, 1, 317–327.
   PubMed Web of Science ®Google Scholar
• Harris, M. (2005). Living with hepatitis C: The medical encounter. New Zealand Sociology, 20, 4–19.
   Google Scholar
• Harris, M. (2009). Injecting, infection, illness: Abjection and hepatitis C stigma. Body and Society, 15, 33–51.
   Web of Science ®Google Scholar
• Harris, M., Albers, E., & Swan, T. (2015). The promise of treatment as prevention for hepatitis C: Meeting the needs of people who inject drugs? The International Journal on Drug Policy, 26, 963–969.
   PubMed Web of Science ®Google Scholar
• Hatzenbuehler, M. L., Phelan, J. C., & Link, B. G. (2013). Stigma as a fundamental cause of population health inequalities. American Journal of Public Health, 103, 813–821.
   PubMed Web of Science ®Google Scholar
• Hellard, M., Rolls, D. A., Sacks‐Davis, R., Robins, G., Pattison, P., Higgs, P., … & McBryde, E. (2014). The impact of injecting networks on hepatitis C transmission and treatment in people who inject drugs. Hepatology, 60, 1861–1870.
   PubMed Web of Science ®Google Scholar
• Hepworth, J., & Krug, G. (1999). Hepatitis C: A socio-cultural perspective on the effects of a new viris on a community’s health. Journal of Health Psychology, 4, 237–246.
   PubMedGoogle Scholar
• Hughes, R., & Huby, M. (2000). Life in prison: Perspectives of drug injectors. Deviant Behavior, 21, 451–479
   Web of Science ®Google Scholar
• Khaw, F. M., Stobbart, L., & Murtagh, M. (2007). ‘I just keep thinking i haven’t got it because i’m not yellow’: a qualitative study of the factors that influence the uptake of hepatitis C testing by prisoners. BMC Public Health, 7(1), 98.
   PubMedGoogle Scholar
• Krug, G. (1995). Hepatitis C: Discursive domains and epistemic chasms. Journal of Contemporary Ethnography, 24(3), 299–322.
   Web of Science ®Google Scholar
• Lafferty, L., Rance, J., Grebely, J., Lloyd, A. R., Dore, G. J., & Treloar, C. (2018b). Towards HCV elimination among the prisoner population: Understanding facilitators and barriers of HCV treatment in prison. Journal of Viral Hepatitis, doi:10.1111/jvh.12987.
   PubMedGoogle Scholar
• Lafferty, L., Rance, J., & Treloar, C. (2018a). Who goes first? Understanding hepatitis C risk among injecting networks in the prison setting. Drug and Alcohol Dependence, 183, 96–101.
   PubMed Web of Science ®Google Scholar
• Layder, D. (1988). Sociological practice: Linking theory and social research. London: Sage.
   Google Scholar
• Link, B. G., & Phelan, J. (2014). Stigma power. Social Science & Medicine, 103, 24–32.
   PubMed Web of Science ®Google Scholar
• Lloyd, A. R., Clegg, J., Lange, J., Stevenson, A., Post, J. J., Lloyd, D., … Monkley, D. (2013). Safety and effectiveness of a nurse-led outreach program for assessment and treatment of chronic hepatitis C in the custodial setting. Clinical Infectious Diseases : an Official Publication of the Infectious Diseases Society of America, 56, 1078–1084.
   PubMed Web of Science ®Google Scholar
• Martin, N. K., Vickerman, P., Grebely, J., Hellard, M., Hutchinson, S. J., Lima, V. D., … & Hickman, M. (2013). Hepatitis C virus treatment for prevention among people who inject drugs: Modeling treatment scale-up in the age of direct-acting antivirals. Hepatology, 58, 1598–1609.
   PubMed Web of Science ®Google Scholar
• Northrop, J. M. (2017). A dirty little secret: Stigma, shame and hepatitis C in the health setting. Medical Humanities.
   PubMed Web of Science ®Google Scholar
• Parker, R., & Aggleton, P. (2003). HIV and AIDS-related stigma and discrimination: A conceptual framework and implications for action. Social Science & Medicine, 57, 13–24.
   PubMed Web of Science ®Google Scholar
• Rance, J., Treloar, C., Fraser, S., Bryant, J., & Rhodes, T. (2017). “Don’t think I’m going to leave you over it”: Accounts of changing hepatitis C status among couples who inject drugs. Drug Alcohol Depend, 173, 78–84.
   PubMed Web of Science ®Google Scholar
• Rhodes, T., & Treloar, C. (2008). The social production of hepatitis C risk among injecting drug users: A qualitative synthesis. Addiction, 103, 1593–1603.
   PubMed Web of Science ®Google Scholar
• Treloar, C., Jackson, C. L., Gray, R., Newland, J., Wilson, H., Saunders, V., ... Brener, L. (2016). Multiple stigmas, shame and historical trauma compound the experience of Aboriginal Australians living with hepatitis C. Health Sociology Review, 25(1), 18–32.
   Web of Science ®Google Scholar
• Treloar, C., McCredie, L., & Lloyd, A. R. (2015). Acquiring hepatitis C in prison: The social organisation of injecting risk. Harm Reduction Journal, 12, 10.
   PubMed Web of Science ®Google Scholar
• Treloar, C., Rance, J., & Backmund, M. (2013). Understanding barriers to hepatitis C virus care and stigmatization from a social perspective. Clinical Infectious Diseases, 57, S51–S55.
   PubMed Web of Science ®Google Scholar
• Treloar, C., & Rhodes, T. (2009). The lived experience of hepatitis C and its treatment among injecting drug users: Qualitative synthesis. Qualitative Health Research, 19, 1321–1334.
   PubMed Web of Science ®Google Scholar
• Vickerman, P., Martin, N., & Hickman, M. (2011). Can hepatitis C virus treatment be used as a prevention strategy? Additional model projections for Australia and elsewhere. Drug Alcohol Depend, 113, 83–85.
   PubMed Web of Science ®Google Scholar
• Wright, N. M., Tompkins, C. N., & Farragher, T. M. (2015). Injecting drug use in prison: Prevalence and implications for needle exchange policy. International Journal of Prisoner Health, 11, 17–29.
   PubMed Web of Science ®Google Scholar
• Yap, L., Carruthers, S., Thompson, S., Cheng, W., Jones, J., Simpson, P., … Butler, T. (2014). A descriptive model of patient readiness, motivators, and hepatitis C treatment uptake among Australian prisoners. PLoS ONE, 9.
   Web of Science ®Google Scholar