How Black and Latino young men who have sex with men in the United States experience and engage with eligibility criteria and recruitment practices: implications for the sustainability of community-based research

References

• Bauer, G. R., Mahendran, M., Braimoh, J., Alam, S., & Churchill, S. (2020). Identifying visible minorities or racialized persons on surveys: Can we just ask? Canadian Journal of Public Health= Revue Canadienne de Sante Publique, 111, 371–382. ezproxy.cul.columbia.edu/doi:10.17269/s41997-020-00325-2
   Google Scholar
• Bungay, V., Oliffe, J., & Atchison, C. (2015 June 1). Addressing underrepresentation in sex work research: Reflections on designing a purposeful sampling strategy. Qualitative Health Research, 26(7), 966–978. https://doi.org/10.1177/1049732315613042
   PubMed Web of Science ®Google Scholar
• Centers for Disease Control and Prevention. (2018). Diagnoses of HIV infection in the United States and dependent areas, 2018 (HIV Surveillance Report, Issue). Centers for Disease Control and Prevention.
   Google Scholar
• Chen, Y.-T., Bowles, K., An, Q., DiNenno, E., Finlayson, T., Hoots, B., Paz-Bailey, G., & Wejnert, C. (2018). Surveillance among men who have sex with men in the United States: A comparison of web-based and venue-based samples. AIDS and Behavior, 22(7), 2104–2112. https://doi.org/10.1007/s10461-017-1837-z
   PubMed Web of Science ®Google Scholar
• Chiu, L. F. (2008, June 1). Engaging communities in health intervention research/practice. Critical Public Health, 18(2), 151–159. https://doi.org/10.1080/09581590701771725
   Google Scholar
• Cooper, J. (2018). Organs and organisations: Situating ethics in organ donation after circulatory death in the UK. Social Science & Medicine, 209, 104–110. https://doi.org/10.1016/j.socscimed.2018.05.042
   PubMed Web of Science ®Google Scholar
• Dedoose. (2020). SocioCultural research consultants. Dedoose. www.dedoose.com
   Google Scholar
• Epstein, S. (1995). The construction of lay expertise: AIDS activism and the forging of credibility in the reform of clinical trials. Science, Technology, & Human Values, 20(4), 408–437. https://doi.org/10.1177/016224399502000402
   PubMed Web of Science ®Google Scholar
• Epstein, S. (1998). Impure science: AIDS, activism, and the politics of knowledge. University of California Press.
   Google Scholar
• Epstein, S. (2004). Bodily differences and collective identities: The politics of gender and race in biomedical research in the United States. Body & Society, 10(2–3), 183–203. https://doi.org/10.1177/1357034X04042942
   Google Scholar
• Epstein, S. (2008). The rise of recruitmentology’ clinical research, racial knowledge, and the politics of inclusion and difference. Social Studies of Science, 38(5), 801–832. https://doi.org/10.1177/0306312708091930
   PubMed Web of Science ®Google Scholar
• Ferlatte, O., Salway, T., Trussler, T., Oliffe, J. L., & Gilbert, M. (2018, October 20). Combining intersectionality and syndemic theory to advance understandings of health inequities among Canadian gay, bisexual and other men who have sex with men. Critical Public Health, 28(5), 509–521. https://doi.org/10.1080/09581596.2017.1380298
   Web of Science ®Google Scholar
• Fisher, C. B., Arbeit, M. R., Dumont, M. S., Macapagal, K., & Mustanski, B. (2016). Self-consent for HIV prevention research involving sexual and gender minority youth: Reducing barriers through evidence-based ethics. Journal of Empirical Research on Human Research Ethics, 11(1), 3–14.
   PubMed Web of Science ®Google Scholar
• Fitzgerald, J. L. (1996). Hidden populations and the gaze of power. Journal of Drug Issues, 26(1), 5–21. https://doi.org/10.1177/002204269602600102
   Web of Science ®Google Scholar
• Flicker, S., O’Campo, P., Monchalin, R., Thistle, J., Worthington, C., Masching, R., Guta, A., Pooyak, S., Whitebird, W., & Thomas, C. (2015). Research done in “a good way”: The importance of indigenous elder involvement in HIV community-based research. American Journal of Public Health, 105(6), 1149–1154.
   PubMed Web of Science ®Google Scholar
• Gagnon, M., & Guta, A. (2012, December 1). Mapping HIV community viral load: Space, power and the government of bodies. Critical Public Health, 22(4), 471–483. https://doi.org/10.1080/09581596.2012.720674
   PubMed Web of Science ®Google Scholar
• Garcia, J., Parker, R. G., Parker, C., Wilson, P. A., Philbin, M., & Hirsch, J. S. (2016). The limitations of ‘Black MSM’as a category: Why gender, sexuality, and desire still matter for social and biomedical HIV prevention methods. Global Public Health, 11(7–8), 1026–1048. https://doi.org/10.1080/17441692.2015.1134616
   PubMed Web of Science ®Google Scholar
• Glaser, B. G., & Strauss, A. L. (1967). The discovery of grounded theory: Strategies for qualitative research. Aldine de Gruyter.
   Google Scholar
• Goldsmith, L. P., Morshead, R., McWilliam, C., Forbes, G., Ussher, M., Simpson, A., Lucock, M., & Gillard, S. (2019). Co-producing randomized controlled trials: How do we work together? Frontiers in Sociology, 4 (21). https://doi.org/10.3389/fsoc.2019.00021
   PubMedGoogle Scholar
• Gyure, M. E., Quillin, J. M., Rodríguez, V. M., Markowitz, M. S., Corona, R., Borzelleca, J., Jr., Bowen, D. J., Krist, A. H., & Bodurtha, J. N. (2014, November-December). Practical considerations for implementing research recruitment etiquette. IRB, 36(6), 7–12. https://pubmed.ncbi.nlm.nih.gov/25684834https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4324645/
   PubMedGoogle Scholar
• Heimer, C. A. (2013). ‘Wicked’ethics: Compliance work and the practice of ethics in HIV research. Social Science & Medicine, 98, 371–378. https://doi.org/10.1016/j.socscimed.2012.10.030
   PubMed Web of Science ®Google Scholar
• Holt, M. (2013, December 1). Enacting and imagining gay men: The looping effects of behavioural HIV surveillance in Australia. Critical Public Health, 23(4), 404–417. https://doi.org/10.1080/09581596.2013.796038
   Web of Science ®Google Scholar
• Kingori, P., & Gerrets, R. (2019). The masking and making of fieldworkers and data in postcolonial global health research contexts. Critical Public Health, 29(4), 494–507. https://doi.org/10.1080/09581596.2019.1609650
   PubMed Web of Science ®Google Scholar
• Kuester, L. B., & Freestone, M. C. (2020). Time away is time out: Narratives of intentional reimprisonment amongst inmates living with HIV in a US setting. Critical Public Health, 1–12. https://doi.org/10.1080/09581596.2020.1737645
   Google Scholar
• MacQueen, K. M., McLellan-Lemal, E., Bartholow, K., & Milstein, B. (2007). Codebook development: Structure, process, and agreement. In G. Guest & K. M. MacQueen (Eds.), Handbook for team-based qualitative research (pp. 119–136). AltaMira Press.
   Google Scholar
• Merchant, R. C., Romanoff, J., Clark, M. A., Liu, T., Rosenberger, J. G., Bauermeister, J., & Mayer, K. H. (2017). Variations in recruitment yield and characteristics of participants recruited across diverse internet platforms in an HIV testing study of young adult men-who-have-sex-with-men (YMSM). American Journal of Men’s Health, 11(5), 1342–1357. https://doi.org/10.1177/1557988317717383
   PubMed Web of Science ®Google Scholar
• Montgomery, C. M., & Pool, R. (2017, January 1). From ‘trial community’ to ‘experimental publics’: How clinical research shapes public participation. Critical Public Health, 27(1), 50–62. https://doi.org/10.1080/09581596.2016.1212161
   Web of Science ®Google Scholar
• Mukherjea, A., & Vidal-Oritz, S. (2006). Studying HIV risk in vulnerable communities: Methodological and reporting shortcomings in the young men’s study in New York City. The Qualitative Report, 11(2), 393–416.
   Google Scholar
• Mykhalovskiy, E., Frohlich, K. L., Poland, B., Di Ruggiero, E., Rock, M. J., & Comer, L. (2019, October 20). Critical social science with public health: Agonism, critique and engagement. Critical Public Health, 29(5), 522–533. https://doi.org/10.1080/09581596.2018.1474174
   Web of Science ®Google Scholar
• Nguyen, V.-K., Bajos, N., Dubois-Arber, F., O’Malley, J., & Pirkle, C. M. (2011). Remedicalizing an epidemic: From HIV treatment as prevention to HIV treatment is prevention. AIDS, 25(3), 291–293. https://doi.org/10.1097/QAD.0b013e3283402c3e
   PubMed Web of Science ®Google Scholar
• O’Byrne, P., Orser, L., Haines, M., & Holmes, D. (2019). Active-offer PrEP for HIV prevention: Control, discipline, and public health nursing practice. Critical Public Health, 1–9. https://doi.org/10.1080/09581596.2019.1690633
   Google Scholar
• Oldenhof, L., & Wehrens, R. (2018, May 27). Who is ‘in’ and who is ‘out’? Participation of older persons in health research and the interplay between capital, habitus and field. Critical Public Health, 28(3), 281–293. https://doi.org/10.1080/09581596.2018.1435851
   Web of Science ®Google Scholar
• Philbin, M., Parker, C., Parker, R., Wilson, P., Garcia, J., & Hirsch, J. (2016). The promise of pre-exposure prophylaxis for Black men who have sex with men: An ecological approach to attitudes, beliefs, and barriers. AIDS Patient Care and STDs, 30(6), 282–290. https://doi.org/10.1089/apc.2016.0037
   PubMed Web of Science ®Google Scholar
• Pisani, E. (2008). The wisdom of whores: Bureaucrats, brothels and the business of AIDS. W.W. Norton & Company.
   Google Scholar
• Treichler, P. A. (1999). How to have theory in an epidemic: Cultural chronicles of AIDS. Duke University Press.
   Google Scholar
• True, G., Alexander, L. B., & Fisher, C. B. (2017). Supporting the role of community members employed as research staff: Perspectives of community researchers working in addiction research. Social Science & Medicine, 187, 67–75. https://doi.org/10.1016/j.socscimed.2017.06.023
   PubMed Web of Science ®Google Scholar