Reliability and validity of the Turkish version of ABILHAND-Kids’ questionnaire in a group of patients with neuromuscular disorders

References

• Arnould C, Penta M, Renders A, Thonnard JL 2004 ABILHAND-Kids A measure of manual ability in children with cerebral palsy. Neurology 63: 1045–1052.
   PubMed Web of Science ®Google Scholar
• Aybay C, Erkin G, Elhan AH, Sirzai H, Ozel S 2007 ADL assessment of nondisabled Turkish children with the WeeFIM instrument. American Journal of Physical Medicine and Rehabilitation 86: 176–182.
   PubMed Web of Science ®Google Scholar
• Bartels B, Pangalila RF, Bergen MP, Cobben NA, Stam HJ, Roebroeck ME 2011 Upper limb function in adults with Duchenne muscular dystrophy. Journal of Rehabilitation Medicine 43: 770–775.
   PubMed Web of Science ®Google Scholar
• Beaton DE, Bombardier C, Guillemin F, Ferraz MB 2000 Guidelines for the process of cross-cultural adaptation of self-report measures. Spine 25: 3186–3191.
   PubMed Web of Science ®Google Scholar
• Brooke MH, Griggs RC, Mendell JR, Fenichel GM, Shumate JB, Pellegrino RJ 1981 Clinical trial in Duchenne dystrophy. I. The design of the protocol. Muscle and Nerve 4: 186–197.
   PubMed Web of Science ®Google Scholar
• Buffart LM, Roebroeck ME, Pesch-Batenburg JM, Janssen WG, Stam HJ 2006 Assessment of arm/hand functioning in children with a congenital transverse or longitudinal reduction deficiency of the upper limb. Disability and Rehabilitation 28: 85–95.
   PubMed Web of Science ®Google Scholar
• Cook JD, Glass DS 1987 Strength evaluation in neuromuscular disease. Neurologic Clinics 5: 101–123.
   PubMed Web of Science ®Google Scholar
• Hiller LB, Wade CK 1992 Upper extremity functional assessment scales in children with Duchenne muscular dystrophy: A comparison. Archives of Physical Medicine and Rehabilitation 73: 527–534.
   PubMed Web of Science ®Google Scholar
• James WV, Orr JF 1984 Upper limb weakness in children with Duchenne muscular dystrophy: A neglected problem. Prosthetics and Orthotics International 8: 111–113.
   PubMed Web of Science ®Google Scholar
• Jensen MP, Abresch RT, Carter GT 2005 The reliability and validity of a self-report version of the FIM instrument in persons with neuromuscular disease and chronic pain. Archives of Physical Medicine and Rehabilitation 86: 116–122.
   PubMed Web of Science ®Google Scholar
• Klingels K, Jaspers E, Van de Winckel A, De Cock P, Molenaers G, Feys H 2010 A systematic review of arm activity measures for children with hemiplegic cerebral palsy. Clinical Rehabilitation 24: 887–900.
   PubMed Web of Science ®Google Scholar
• Kurillo G, Zupan A, Bajd T 2004 Force tracking system for the assessment of grip force control in patients with neuromuscular diseases. Clinical Biomechanics 19: 1014–1021.
   PubMed Web of Science ®Google Scholar
• McCabe MA, Granger CV 1990 Content validity of a pediatric functional independence measure. Applied Nursing Research 3: 120–122.
   PubMedGoogle Scholar
• Nunnally JC, Bernstein IH 1994 Psychometric Theory (3rd ed). New York, McGraw-Hill.
   Google Scholar
• Ottenbacher KJ, Msall ME, Lyon N, Duffy LC, Ziviani J, Granger CV, Braun S, Feidler RC 2000 The WeeFIM instrument: Its utility in detecting change in children with developmental disabilities. Archives of Physical Medicine and Rehabilitation 81: 1317–1326.
   PubMed Web of Science ®Google Scholar
• Pellegrini N, Pelletier A, Orlikowski D, Lolierou C, Ruquet M, Raphael JC, Lofaso F 2007 Hand versus mouth for call-bell activation by DMD and Becker patients. Neuromuscular Disorders 17: 532–536.
   PubMed Web of Science ®Google Scholar
• Pransky G, Feuerstein M, Himmelstein J, Katz JN, Vickers-Lahti M 1997 Measuring functional outcomes in work-related upper extremity disorders. Development and validation of the Upper Extremity Function Scale. Journal of Occupational and Environmental Medicine 39: 1195–1202.
   Web of Science ®Google Scholar
• Raggi A, Leonardi M 2009 Assessing activity limitations in patients with neuromuscular diseases: Is the ACTIVLIM questionnaire linked to ICF and ICF-CY? International Journal of Rehabilitation Research 32: 148–153.
   Google Scholar
• Saperstein DS, Amato AA, Barohn RJ 2001 Clinical and genetic aspects of distal myopathies. Muscle and Nerve 24: 1440–1450.
   PubMed Web of Science ®Google Scholar
• Schoneveld K, Wittink H, Takken T 2009 Clinimetric evaluation of measurement tools used in hand therapy to assess activity and participation. Journal of Hand Therapy 22: 221–236.
   PubMed Web of Science ®Google Scholar
• Sperle PA, Ottenbacher KJ, Braun SL, Lane SJ, Nochajski S 1997 Equivalence reliability of the Functional Independence Measure for Children (WeeFIM®) administration methods. American Journal of Occupational Therapy 51: 35–41.
   PubMed Web of Science ®Google Scholar
• Terwee CB, Bot SD, de Boer MR, van der Windt DA, Knol DL, Dekker J, Bouter LM, de Vet HC 2007 Quality criteria were proposed for measurement properties of health status questionnaires. Journal of Clinical Epidemiology 60: 34–42.
   PubMed Web of Science ®Google Scholar
• Van Kampen DA, Willems WJ, van Beers LW, Castelein RM, Scholtes VA, Terwee CB 2013 Determination and comparison of the smallest detectable change (SDC) and the minimal important change (MIC) of four-shoulder patient-reported outcome measures (PROMs). Journal of Orthopaedic Surgery Research 8: 40.
   PubMed Web of Science ®Google Scholar
• Vandervelde L, Van den Bergh PY, Penta M, Thonnard JL 2010 Validation of the ABILHAND questionnaire to measure manual ability in children and adults with neuromuscular disorders. Journal of Neurology, Neurosurgery, and Psychiatry 81: 506–512.
   PubMed Web of Science ®Google Scholar
• Yilmaz O, Yildirim SA, Oksuz C, Atay S, Turan E 2010 Mothers’ depression and health-related quality of life in neuromuscular diseases: role of functional independence level of the children. Pediatrics International 52: 648–652.
   PubMed Web of Science ®Google Scholar
• Ziviani J, Ottenbacher KJ, Shephard K, Foreman S, Astbury W, Ireland P 2002 Concurrent validity of the functional independence measure for children (WeeFIM (™)) and the pediatric evaluation of disabilities inventory in children with developmental disabilities and acquired brain injuries. Physical and Occupational Therapy in Pediatrics 21: 91–101.
   PubMedGoogle Scholar
• Zupan A 1996 Assessment of the functional abilities of the upper limbs in patients with neuromuscular diseases. Disability and Rehabilitation 18: 69–75.
   PubMed Web of Science ®Google Scholar