Evaluating the usability of a single UK community acquired brain injury (ABI) rehabilitation service website: Implications for research methodology and website design

REFERENCES

• Anson , K. and Ponsford , J. 2006a . Evaluation of a coping skills group following traumatic brain injury . Brain Injury , 20 : 167 – 178 .
   PubMed Web of Science ®Google Scholar
• Anson , K. and Ponsford , J. 2006b . Coping and emotional adjustment following traumatic brain injury . Journal of Head Trauma Rehabilitation , 21 : 248 – 259 .
   PubMed Web of Science ®Google Scholar
• Atzeni , P. , Merialdo , P. and Sindoni , G. 2002 . Websites evaluation: Methodology and case study. Conceptual Modelling For New Information Systems Technologies . Lecture Notes In Computer Science , 2465 : 253 – 263 .
   Google Scholar
• Bohman , P. 2007 . Web accessibility for cognitive and learning disabilities: A review of research-based evidence in the literature . From: http://www.paulbohman.com/accessibility/cognitive/litreview2007 [Last accessed 25 June, 2009]
   Google Scholar
• Brown , M. , Gordon , W. A. and Spielman , L. 2003 . Participation in social and recreational activity in the community by individuals with traumatic brain injury . Rehabilitation Psychology , 48 : 266 – 274 .
   Web of Science ®Google Scholar
• Campbell , C. 1988 . Needs of relatives and helpfulness of support groups in severe head injury . Rehabilitation Nursing , 13 : 320 – 325 .
   PubMedGoogle Scholar
• Carroll , L. J. , Cassidy , J. D. , Peloso , P. M. , Borg , J. , von Holst , H. , Holm , L. , Paniak , C. and Peopin , M. 2004 . Prognosis for mild traumatic brain injury: Results of the WHO Collaborating Centre Task Force on Mild Traumatic Brain Injury . Journal of Rehabilitation Medicine , 36 : 84 – 105 .
   Web of Science ®Google Scholar
• Cassidy , J. D. , Carroll , L. J. , Peloso , P. M. , Borg , J. , von Holst , H. , Holm , L. , Kraus , J. and Coronado , V. G. 2004 . Incidence, risk factors and prevention of mild traumatic brain injury: Results of the WHO Collaborating Centre Task Force on Mild Traumatic Brain Injury . Journal of Rehabilitation Medicine , 36 : 28 – 60 .
   PubMed Web of Science ®Google Scholar
• Chamberlain , D. J. 2006 . The experience of surviving traumatic brain injury . Journal of Advanced Nursing , 54 : 407 – 417 .
   PubMed Web of Science ®Google Scholar
• Department of Health . 2001 . Valuing people: A new strategy for learning disabled people in the twenty first century , From: http://www.archive.official-documents.co.uk/document/cm50/5086/5086.pdf [Last accessed 4 March 2009]
   Google Scholar
• Department of Health . 2005 . The National Service Framework for Long-Term Conditions , From: http://www.dh.gov.uk/PolicyAndGuidance/HealthAndSocialCareTopics/LongTermConditions/fs/en [Last accessed 23 February 2009]
   Google Scholar
• Disability Rights Commission (2002). From: http://www.drc-gb.org/the_law/legislation__codes__regulation/codes_of_practice.aspx [Last accessed 23 February 2009].
   Google Scholar
• Doctor , J. N. , Castro , J. , Temkin , N. R. , Fraser , R. T. , Machamer , J. E. and Dikmen , S. S. 2005 . Workers’ risk of unemployment after traumatic brain injury: A normed comparison . Journal of The International Neuropsychological Society , 11 : 747 – 752 .
   PubMed Web of Science ®Google Scholar
• Elliot , M. L. and Biever , L. S. 1996 . Head injury and sexual dysfunction . Brain Injury , 10 : 703 – 717 .
   PubMed Web of Science ®Google Scholar
• Fogg , B. and Tseng , H. 1999 . “ The elements of computer credibility. Paper presented at conference on human factors in computing systems: the CHI is the limit ” . In Proceedings of the Special Interest Group on Computer-Human Interaction 80 – 87 . New York
   Google Scholar
• Fox , S. and Rainie , L. 2004 . The online healthcare revolution: How the Web helps Americans take better care of themselves . From: http://www.pweinternet.org/pdfs/PIP_Health_Report.pdf [Last accessed 23 February 2009]
   Google Scholar
• Gustafson , D. H. , Hawkins , R. P. , Boberg , E. W. , Mctavish , F. , Owens , B. Wise , M. 2001 . CHESS: On years of research and development in consumer informatics for broad populations, including the underserved . Medical Informatics , 10 : 1459 – 1563 .
   Google Scholar
• Hammond , F. M. , Hart , T. , Bushnik , T. , Corrigan , J. D. and Sasser , H. 2004 . Change and predictors of change in communication, cognition, and social function between 1 and 5 years after traumatic brain injury . Journal of Head Trauma Rehabilitation , 19 : 314 – 328 .
   PubMed Web of Science ®Google Scholar
• HMSO . 1986 . Disabled Persons (Services, Consultation and Representation) Act 1986 (c.33) , From: www.opsi.gov.uk/ReviewedStatutes/Acts/ukpga/1986/cukpga_19860033_en_1 [Last accessed 4 March 2009]
   Google Scholar
• HMSO . 1995 . Disability Discrimination Act 1995 , From: http://www.opsi.gov.uk/acts/acts1995/1995050.htm [Last accessed 23 February 2009]
   Google Scholar
• Klockars , S. J. , Blair , M. M. , Mazur , J. N. , Ragucci , K. R. and Ferno , J. 2003 . Assessment of Web based applications for ambulatory care rotations . Annals of Pharmacotherapy , 37 : 17851 – 17888 .
   Google Scholar
• Kreutzer , J. S. , Marwitz , J. H. , Walker , W. , Sander , A. , Sherer , M. , Bogner , J. , Fraser , R. and Bushnik , T. 2003 . Moderating factors in return to work and job stability after traumatic brain injury . Journal of Head Trauma Rehabilitation , 18 : 128 – 138 .
   PubMed Web of Science ®Google Scholar
• Kreutzer , J. , Serio , C. and Bergquist , S. 1994 . Family needs after brain injury: A quantitative analysis . Journal of Head Trauma Rehabilitation , 9 : 104 – 115 .
   Web of Science ®Google Scholar
• Lang , J. R. and Collen , A. 2005 . Evaluating personal health care and health promotion websites . Methods Informatics and Medicine , 44 : 328 – 333 .
   Google Scholar
• Lannoo , E. , Brusselmans , W. , Van Eynde , L. , Van Laere , M. and Stevens , J. 2004 . Epidemiology of acquired brain injury (ABI) in adults: Prevalence of long-term disabilities and the resulting needs for ongoing care in the region of Flanders, Belgium . Brain Injury , 18 : 203 – 211 .
   PubMed Web of Science ®Google Scholar
• Lawrence Clark Accessible Health Information Report (2002). From:. http://www.leeds.ac.uk/disability-studies/archiveuk/Clark,%20Laurence/liverpool%20NHS.pdf. [Last accessed 23 February 2009].
   Google Scholar
• Lefebvre , H. , Pelchat , D. , Swaine , B. , Gelinas , I. and Levert , M. J. 2005 . The experiences of individuals with a traumatic brain injury, families, physicians and health professionals regarding care provided throughout the continuum . Brain Injury , 19 : 585 – 597 .
   PubMed Web of Science ®Google Scholar
• Mankoff , J. , Fait , H. and Fang , R. 2005 . Evaluating accessibility by simulating the experiences of users with vision or motor impairments . IBM Systems Journal , 44 : 505 – 517 .
   Google Scholar
• Mathis , M. 1984 . Personal needs of family members of critically ill patients with and without brain injury . Journal of Neurosurgery and Nursing , 16 : 36 – 44 .
   PubMedGoogle Scholar
• McCullagh , S. and Feinstein , A. 2006 . Outcome after traumatic brain injury: An examination of recruitment bias . Journal of Neurology, Neurosurgery & Psychiatry , 74 : 39 – 43 .
   Google Scholar
• Midboe , T. , Andersen , H. S. and Birket-Smith , M. 1992 . Minor head injury: Impact on general health after 1 year. A prospective follow-up study . Acta Neurologica Scandinavica , 85 : 5 – 9 .
   Google Scholar
• Montgomery , V. , Oliver , R. , Reisner , A. and Fallat , M. E. 2002 . The effect of severe traumatic brain injury on the family . Journal of Trauma-Injury Infection and Critical Care , 52 : 1121 – 1124 .
   PubMed Web of Science ®Google Scholar
• Morahan-Martin , J. and Anderson , C. D. 2000 . Information and misinformation online: Recommendations for facilitating accurate mental health information retrieval and evaluation . Cyber Psychology & Behaviour , 3 : 731 – 746 .
   Google Scholar
• Nahm , E. S. , Preece , J. , Resnick , B. and Mills , M. E. 2004 . Usability of health websites for older adults – A preliminary study . CIN-Computers Informatics Nursing , 22 : 326 – 334 .
   PubMed Web of Science ®Google Scholar
• Newby , G. and Tyerman , A. 1999 . Driving after severe head injury: The need for assessment . British Journal of General Practice , 49 ( 441 ) : 301 – 302 .
   PubMed Web of Science ®Google Scholar
• Nielsen , J. 1994 . Usability engineering , San Diego , LA : Morgan Kaufman .
   Google Scholar
• Nielsen , J. and Tahir , M. 2002 . Homepage usability: 50 websites deconstructed , Indianapolis , IN : New Riders .
   Google Scholar
• Oddy , M. and Cogan , J. 2004 . Coping with severe memory impairment . Neuropsychological Rehabilitation , 14 : 481 – 494 .
   Web of Science ®Google Scholar
• Ponsford , J. , Draper , K. and Schonberger , M. 2008 . Functional outcome 10 years after traumatic brain injury: Its relationships with demographic, injury severity and cognitive and emotional status . Journal of the International Neuropsychological Society , 14 ( 2 ) : 233 – 242 .
   PubMed Web of Science ®Google Scholar
• Riley , G. A. , Brennan , A. J. and Powell , T. 2004 . Threat appraisal and avoidance after traumatic brain injury: Why and how often are activities avoided . Brain Injury , 18 : 871 – 888 .
   PubMed Web of Science ®Google Scholar
• Rotondi , A. J. , Sinkule , J. and Spring , M. B. 2005 . An interactive web-based intervention for persons with TBI and their families: Use and evaluation by female significant others . Journal of Head Trauma Rehabilitation , 20 ( 2 ) : 173 – 180 .
   PubMed Web of Science ®Google Scholar
• Schwartz , M. F. , Brecher , A. R. , Whyte , K. W. and Klein , M. G. 2005 . A patient registry for cognitive rehabilitation research: A strategy for balancing patients’ privacy right with researcher need for access . Archives of Physical Medicine and Rehabilitation , 86 : 1807 – 1814 .
   PubMed Web of Science ®Google Scholar
• Sohlberg , M. M. , Fickas , S. , Ehlhardt , L. and Todis , B. 2005 . The longitudinal effects of accessible email for individuals with severe cognitive impairments . Aphasiology , 19 : 651 – 681 .
   Web of Science ®Google Scholar
• Todi , B. , Sohlberg , M. M. , Hood , D. and Fickas , S . 2005 . Making electronic mail accessible: Perspectives of people with acquired cognitive impairments, caregivers and professionals . Brain Injury , 19 : 389 – 401 .
   Google Scholar
• Toms , E. G. and Taves , A. R. 2004 . Measuring user perceptions of website reputation . Information Processing & Management , 29 : 1 – 317 .
   Google Scholar
• Vaccaro , M. J. , Hart , T. and Whyte , J. 2002 . Internet resources for traumatic brain injury: A selective review of websites for consumers . NeuroRehabilitation , 17 ( 2 ) : 169 – 174 .
   PubMedGoogle Scholar
• World Wide Web Consortium (W3C) (1999). From: http://www.w3.org/TR/WAI-WEBCONTENT/full-checklist.html [Last accessed 22 July 2009] .
   Google Scholar
• WebAIM . 2009 . Cognitive disabilities part 1: We still know too little, and we do even less . From: http://www.webaim.org/articles/cognitive/cognitive_too_little [Last accessed 25 June 2009]
   Google Scholar
• Webcredible (2005). From: http://www.webcredible.co.uk/user-friendly-resources/web-accessibility/uk-website-legal-requirements.shtml [Last accessed 22 July 2009] .
   Google Scholar
• Whiteneck , G. G. , Gerhart , K. A. and Cusick , C. P. 2004 . Identifying environmental factors that influence the outcomes of people with traumatic brain injury . Journal of Head Trauma Rehabilitation , 19 : 191 – 204 .
   PubMed Web of Science ®Google Scholar
• Williams , W. H. 2003 . Brain injury and emotion: An overview to a special issue on biopsychosocial approaches in neurorehabilitation . Neuropsycholgical Rehabilitation , 13 : 1 – 11 .
   PubMed Web of Science ®Google Scholar
• Wilson , B. A. 2000 . Compensating for cognitive deficits following brain injury . Neuropsychology Review , 10 : 233 – 243 .
   PubMed Web of Science ®Google Scholar
• Wilson , B. A. 2002 . Towards a comprehensive model of cognitive rehabilitation . Neuropsychological Rehabilitation , 12 : 97 – 110 .
   Web of Science ®Google Scholar
• Wilson , J. T. L. , Pettigrew , L. E. L. and Teasdale , G. M. 1998 . Structured interviews for the Glasgow Outcome Scale and the Extended Glasgow Outcome Scale: Guidelines for their use . Journal of Neurotrauma , 15 ( 8 ) : 573 – 585 .
   PubMed Web of Science ®Google Scholar
• Zeng , X. M. and Parmanto , B. 2004 . Web content accessibility of consumer health information websites for people with disabilities: A cross sectional evaluation . Journal of Medical Internet Research , 6 Art. No. e19
   Google Scholar