Brain injury beliefs, self-awareness, and coping: A preliminary cluster analytic study based within the self-regulatory model

REFERENCES

• Ajzen , I. 1988 . Attitudes, personality, and behaviour , Chicago , IL : Dorsey Press .
   Google Scholar
• Anson , K. and Ponsford , J. 2006 . Coping and emotional adjustment following traumatic brain injury . Journal of Head Trauma Rehabilitation , 21 ( 3 ) : 248 – 259 .
   PubMed Web of Science ®Google Scholar
• Bains , B. , Powell , T. and Lorenc , L. 2007 . An exploratory study of mental representations for rehabilitation based upon the theory of planned behaviour . Neuropsychological Rehabilitation , 17 ( 2 ) : 174 – 191 .
   PubMed Web of Science ®Google Scholar
• Barco , P. P. , Crosson , B. , Bolesta , M. M. , Werts , D. and Stout , R. 1991 . “ Training awareness and compensation in postacute head injury rehabilitation ” . In Cognitive rehabilitation for persons with traumatic brain injury: A functional approach , Edited by: Kreutzer , J. S. and Wehman , P. H. Baltimore , MD : Paul H. Brookes .
   Google Scholar
• Bruns , J. and Hauser , W. A. 2003 . The epidemiology of traumatic brain injury: A review . Epilepsia , 44 ( 10 ) : 2 – 10 .
   PubMedGoogle Scholar
• Buick , D. L. 1997 . “ Illness representations and breast cancer: Coping with radiation and chemotherapy ” . In Perceptions of health & illness , Edited by: Petrie , K. J. and Weinman , J. A. Amsterdam : OPA .
   Google Scholar
• Carlisle , A. C. S. , John , A. M. H. , Fife-Schaw , C. and Lloyd , M. 2005 . The self-regulatory model in women with rheumatoid arthritis: Relationships between illness representations, coping strategies, and illness outcome . British Journal of Health Psychology , 10 : 571 – 587 .
   PubMed Web of Science ®Google Scholar
• Chervinsky , A. B. , Ommaya , A. K. , deJonge , M. , Spector , J. , Schwab , K. and Salazar , A. M. 1998 . Motivation for traumatic brain injury rehabilitation questionnaire (MOT-Q): Reliability, factor analysis, and relationship to MMPI-2 variables . Archives of Clinical Neuropsychology , 13 ( 5 ) : 433 – 446 .
   PubMed Web of Science ®Google Scholar
• Cicerone , K. D. 1991 . Psychotherapy after mild traumatic brain injury: Relation to the nature and severity of subjective complaints . Journal of Head Trauma Rehabilitation , 6 : 30 – 43 .
   Google Scholar
• Clare , L. , Goater , T. and Woods , B. 2006 . Illness representations in early-stage dementia: A preliminary investigation . International Journal of Geriatric Psychiatry , 21 : 761 – 767 .
   PubMed Web of Science ®Google Scholar
• Clatworthy , J. , Hankins , M. , Buick , D. , Weinman , J. and Horne , R. 2007 . Cluster analysis in illness perception research: A Monte Carlo study to identify the most appropriate method . Psychology and Health , 22 ( 2 ) : 123 – 142 .
   Web of Science ®Google Scholar
• Coetzer , R. 2008 . Holistic neuro-rehabilitation in the community: Is identity a key issue? . Neuropsychological Rehabilitation , 18 ( 5/6 ) : 766 – 783 .
   PubMed Web of Science ®Google Scholar
• Coetzer , B. R. and Corney , M. J. R. 2001 . Grief and self-awareness following brain injury and the effect of feedback as an intervention . Journal of Cognitive Rehabilitation , winter : 8 – 14 .
   Google Scholar
• Cooper , A. , Lloyd , G. , Weinman , J. and Jackson , G. 1999 . Why patients do not attend cardiac rehabilitation: Role of intentions and illness beliefs . Heart , 82 : 234 – 236 .
   PubMed Web of Science ®Google Scholar
• Finset , A. and Andersson , S. 2000 . Coping strategies in patients with acquired brain injury: Relationships between coping, apathy, depression and lesion location . Brain Injury , 14 ( 10 ) : 887 – 905 .
   PubMed Web of Science ®Google Scholar
• Folkman , S. and Lazarus , R. S. 1988 . The relationship between coping and emotion: Implications for theory and research . Social Science Medicine , 26 ( 3 ) : 309 – 317 .
   PubMed Web of Science ®Google Scholar
• Goldstein , L. H. , Holland , L. , Soteriou , H. and Mellers , J. D. C. 2005 . Illness representations, coping styles and mood in adults with epilepsy . Epilepsy Research , 67 : 1 – 11 .
   PubMed Web of Science ®Google Scholar
• Groarke , A. , Curtis , R. , Coughlan , R. and Gsel , A. 2005 . The impact of illness representations and disease activity on adjustment in women with rheumatoid arthritis: A longitudinal study . Psychology and Health , 20 ( 5 ) : 597 – 613 .
   Web of Science ®Google Scholar
• Hagger , M. S. and Orbell , S. 2003 . A meta-analytic review of the common-sense model of illness representations . Psychology and Health , 18 ( 2 ) : 141 – 184 .
   Web of Science ®Google Scholar
• Harman , G. and Clare , L. 2006 . Illness representations and lived experience in early-stage dementia . Qualitative Health Research , 16 ( 4 ) : 484 – 502 .
   PubMed Web of Science ®Google Scholar
• Hart , T. , Hanks , R. , Bogner , J. A. , Millis , S. and Esselman , P. 2007 . Blame attribution in intentional and unintentional traumatic brain injury: Longitudinal changes and impact on subjective well-being . Rehabilitation Psychology , 52 ( 2 ) : 152 – 161 .
   Web of Science ®Google Scholar
• Heijimans , M. 1999 . The role of patients’ illness representations in coping and functioning with Addison's disease . British Journal of Health Psychology , 4 : 137 – 149 .
   Web of Science ®Google Scholar
• Helder , D. I. , Kaptein , A. A. , van Kempen , G. M. J. , Weinman , J. , van Houwelingen , H. C. and Roos , R. A. C. 2002 . Living with Huntingdon's disease: Illness perceptions, coping mechanisms, and patients’ well-being . British Journal of Health Psychology , 7 : 449 – 462 .
   PubMed Web of Science ®Google Scholar
• Hobro , N. , Weinman , J. and Hankins , M. 2004 . Using the self-regulatory model to cluster chronic pain patients: The first step towards identifying relevant treatments? . Pain , 108 : 276 – 283 .
   PubMed Web of Science ®Google Scholar
• Jessop , D. C. and Rutter , D. R. 2003 . Adherence to asthma medication: The role of illness representations . Psychology and Health , 18 ( 5 ) : 595 – 612 .
   Web of Science ®Google Scholar
• Jopson , N. M. and Moss-Morris , R. 2003 . The role of illness severity and illness representations in adjusting to multiple sclerosis . Journal of Psychosomatic Research , 54 : 503 – 511 .
   PubMed Web of Science ®Google Scholar
• Kendall , E. , Shum , D. , Lack , B. , Bull , S. and Fee , C. 2001 . Coping following traumatic brain injury: The need for contextually sensitive assessment . Brain Impairment , 2 ( 2 ) : 81 – 96 .
   Google Scholar
• King , N. S. and Tyerman , A. 2003 . “ Neuropsychological presentation and treatment of head injury and traumatic brain damage ” . In Handbook of clinical neuropsychology , Edited by: Halligan , P. W. , Kischka , U. and Marshall , J. C. New York , NY : Oxford University Press .
   Google Scholar
• Kline , P. 2000 . A Psychometrics Primer , London , , UK : Free Association Books .
   Google Scholar
• Krpan , K. M. , Levine , B. , Stuss , D. T. and Dawson , D. R. 2007 . Executive function and coping at one-year post traumatic brain injury . Journal of Clinical and Experimental Neuropsychology , 29 ( 1 ) : 36 – 46 .
   PubMed Web of Science ®Google Scholar
• Lazarus , R. S. and Folkman , S. 1984 . Stress, appraisal and coping , New York , NY : Springer .
   Google Scholar
• Leventhal , H. , Brissette , I. and Leventhal , E. A. 2003 . “ The common-sense model of self regulation of health and illness ” . In The self-regulation of health and illness behaviour , Edited by: Cameron , L. D. and Leventhal , H. 42 – 65 . New York , NY : Routledge .
   Google Scholar
• Leventhal , H. , Meyer , D. and Nerenz , D. R. 1980 . “ The common sense representation of illness danger ” . In Contributions to medical psychology , Edited by: Rachman , S. Vol. 2 , 7 – 30 . New York , NY : Pergamon Press .
   Google Scholar
• Leventhal , H. , Nerenz , D. R. and Steele , D. J. 1984 . “ Illness representations and coping with health threats ” . In Handbook of psychology and health , Edited by: Baum , A. , Taylor , S. E. and Singer , J. E. Hillsdale , NJ : Lawrence Erlbaum Associates .
   Google Scholar
• Llewellyn , C. D. , Miners , A. H. , Lee , C. A. , Harrington , C. and Weinman , J. 2003 . The illness perceptions and treatment beliefs of individuals with severe haemophilia and their role in adherence to home treatment . Psychology and Health , 18 ( 2 ) : 185 – 200 .
   Web of Science ®Google Scholar
• Lubusko , A. A. , Moore , A. D. , Stambrook , M. and Gill , D. D. 1994 . Cognitive beliefs following severe traumatic brain injury: Association with post-injury employment status . Brain Injury , 8 ( 1 ) : 65 – 70 .
   PubMed Web of Science ®Google Scholar
• Maclean , N. , Pound , P. , Wolfe , C. and Rudd , A. 2000 . Qualitative analysis of stroke patients’ motivation for rehabilitation . British Medical Journal , 321 : 1051 – 1054 .
   PubMed Web of Science ®Google Scholar
• Malec , J. F. , Machulda , M. M. and Moessner , A. M. 1997 . Differing problem perceptions of staff, survivors, and significant others after brain injury . Journal of Head Trauma Rehabilitation , 12 ( 3 ) : 1 – 13 .
   Web of Science ®Google Scholar
• Malia , K. 1997 . Insight after brain injury: What does it mean? . Journal of Cognitive Rehabilitation , May/June : 10 – 17 .
   Google Scholar
• Malia , K. , Powell , G. and Torode , S. 1995 . Coping and psychosocial function after brain injury . Brain Injury , 9 : 607 – 618 .
   PubMed Web of Science ®Google Scholar
• Manchester , D. and Wood , R. Ll. 2001 . “ Applying cognitive therapy in neurobehavioural rehabilitation ” . In Neurobehavioural disability and social handicap following traumatic brain injury , Edited by: Wood , R. Ll. and McMillan , T. M. Hove , , UK : Psychology Press .
   Google Scholar
• Miglioretti , M. , Mazzini , L. , Oggioni , G. D. , Testa , L. and Monaco , F. 2008 . Illness perceptions, mood and health-related quality of life in patients with amyotrophic lateral sclerosis . Journal of Psychosomatic Research , 65 : 603 – 609 .
   PubMed Web of Science ®Google Scholar
• Miller , W. R. and Rollnick , S. 2002 . “ Motivational interviewing: Preparing people for change ” . New York , NY : Guilford Press .
   Google Scholar
• Moore , A. D. and Stambrook , M. 1992 . Coping strategies and locus of control following traumatic brain injury: Relationship to long-term outcome . Brain Injury , 6 ( 1 ) : 89 – 94 .
   PubMedGoogle Scholar
• Moore , A. D. and Stambrook , M. 1995 . Cognitive moderators of outcome following traumatic brain injury: A conceptual model and implications for rehabilitation . Brain Injury , 9 ( 2 ) : 109 – 130 .
   PubMed Web of Science ®Google Scholar
• Moore , A. D. , Stambrook , M. and Peters , L. C. 1989 . Coping strategies and adjustment after closed head injury: A cluster analytic approach . Brain Injury , 3 : 171 – 175 .
   PubMedGoogle Scholar
• Moore , A. D. , Stambrook , M. and Wilson , K. G. 1991 . Cognitive moderators in adjustment to chronic illness: Locus of control beliefs following traumatic brain injury . Neuropsychological Rehabilitation , 1 ( 3 ) : 185 – 198 .
   Google Scholar
• Moss-Morris , R. 1997 . “ The role of illness cognitions and coping in the aetiology and maintenance of chronic fatigue syndrome (CFS) ” . In Perceptions of health and illness , Edited by: Petrie , K. J. and Weinman , J. A. Amsterdam , , The Netherlands : OPA .
   Google Scholar
• Moss-Morris , R. , Weinman , J. , Petrie , K. , Horne , R. , Cameron , L. and Buick , D. 2002 . The revised illness perception questionnaire (Illness Perceptions Questionnaire-R) . Psychology and Health , 17 ( 1 ) : 1 – 16 .
   Web of Science ®Google Scholar
• O'Callaghan , C. , Powell , T. and Oyebode , J. 2006 . An exploration of the experience of gaining awareness of deficit in people who have suffered a traumatic brain injury . Neuropsychological Rehabilitation , 16 ( 5 ) : 579 – 593 .
   PubMed Web of Science ®Google Scholar
• Ownsworth , T. 2005 . The impact of defensive denial upon adjustment following traumatic brain injury . Neuro-Psychoanalysis , 7 ( 1 ) : 83 – 94 .
   Google Scholar
• Ownsworth , T. L. , Clare , L. and Morris , R. 2006 . An integrated biopsychosocial approach to understanding awareness deficits in Alzheimer's disease and brain injury . Neuropsychological Rehabilitation , 16 ( 4 ) : 415 – 438 .
   PubMed Web of Science ®Google Scholar
• Ownsworth , T. , Fleming , J. M. and Hardwick , S. 2006 . Symptom reporting and associations with compensation status, self-awareness, causal attributions, and emotional wellbeing following traumatic brain injury . Brain Impairment , 7 ( 2 ) : 95 – 106 .
   Google Scholar
• Ownsworth , T. , Fleming , J. , Strong , J. , Radel , M. , Chan , W. and Clare , L. 2007 . Awareness typologies, long-term emotional adjustment and psychosocial outcomes following acquired brain injury . Neuropsychological Rehabilitation , 17 ( 2 ) : 129 – 150 .
   PubMed Web of Science ®Google Scholar
• Petrie , K. J. , Cameron , L. D. , Ellis , C. J. , Buick , D. and Weinman , J. 2002 . Changing illness perceptions after myocardial infarction: An early intervention randomized controlled trial . Psychosomatic Medicine , 64 : 580 – 586 .
   PubMed Web of Science ®Google Scholar
• Port , A. , Willmott , C. and Charlton , J. 2002 . Self awareness following traumatic brain injury and implications for rehabilitation . Brain injury , 16 ( 4 ) : 277 – 289 .
   PubMed Web of Science ®Google Scholar
• Prigatano , G. P. 2005 . “ Therapy for emotional and motivational disorders ” . In Rehabilitation for traumatic brain injury , Edited by: High , W. M. Jr. , Sander , A. M. , Struchen , M. A. and Hart , K. A. Oxford , , UK : Oxford University Press .
   Google Scholar
• Prigatano , G. P. and Klonoff , P. S. 1998 . A clinician's rating scale for evaluating impaired self awareness and denial of disability after brain injury . Clinical Neuropsychologist , 12 ( 1 ) : 56 – 67 .
   Web of Science ®Google Scholar
• Riley , G. A. , Brennan , A. J. and Powell , T. 2004 . Threat appraisal and avoidance after traumatic brain injury: Why and how often are activities avoided? . Brain Injury , 18 ( 9 ) : 871 – 888 .
   PubMed Web of Science ®Google Scholar
• Saltapidas , H. and Ponsford , J. 2008 . The influence of cultural background on experiences and beliefs about traumatic brain injury and their association with outcome . Brain Impairment , 9 ( 1 ) : 1 – 13 .
   Web of Science ®Google Scholar
• Schönberger , M. , Humle , F. and Teasdale , T. W. 2006a . The development of the therapeutic alliance, patients’ awareness and their compliance during the process of brain injury rehabilitation . Brain Injury , 20 ( 4 ) : 445 – 454 .
   PubMed Web of Science ®Google Scholar
• Schönberger , M. , Humle , F. , Zeeman , P. and Teasdale , T. W. 2006b . Patient compliance in brain injury rehabilitation in relation to awareness and cognitive and physical improvement . Neuropsychological Rehabilitation , 16 ( 5 ) : 561 – 578 .
   PubMed Web of Science ®Google Scholar
• Searle , A. , Norman , P. , Thompson , R. and Vedhara , K. 2007 . A prospective examination of illness beliefs and coping in patients with type 2 diabetes . British Journal of Health Psychology , 12 : 621 – 638 .
   PubMed Web of Science ®Google Scholar
• Shotton , L. , Simpson , J. and Smith , M. 2007 . The experience of appraisal, coping and adaptive psychosocial adjustment following traumatic brain injury: A qualitative investigation . Brain Injury , 21 ( 8 ) : 857 – 869 .
   PubMed Web of Science ®Google Scholar
• Spain , L. A. , Tubridy , N. , Kilpatrick , T. J. , Adams , S. J. and Holmes , A. C. N. 2007 . Illness perception and health-related quality of life in multiple sclerosis . Acta Neurologica Scandinavica , 116 : 293 – 299 .
   PubMed Web of Science ®Google Scholar
• Teasdale , T. W. , Christensen , A. , Willmes , K. , Deloche , G. , Braga , F. Stachowiak , F. 1997 . Subjective experience in brain injured patients and their close relatives: A European brain injury questionnaire study . Brain Injury , 11 ( 8 ) : 543 – 563 .
   PubMed Web of Science ®Google Scholar
• Tennen , H. , Affleck , G. , Armeli , S. and Carney , M. A. 2000 . A daily process approach to coping: Linking theory, research, and practice . American Psychologist , 55 : 620 – 625 .
   PubMed Web of Science ®Google Scholar
• Toglia , J. and Kirk , U. 2000 . Understanding awareness deficits following brain injury . Neuro-Rehabilitation , 15 : 57 – 70 .
   Google Scholar
• van den Broek , M. D. 2005 . Why does neuro-rehabilitation fail? . Journal of Head Trauma Rehabilitation , 20 ( 5 ) : 464 – 473 .
   PubMed Web of Science ®Google Scholar
• Vaughan , R. , Morrison , L. and Miller , E. 2003 . The illness representations of multiple sclerosis and their relations to outcome . British Journal of Health Psychology , 8 : 287 – 301 .
   PubMed Web of Science ®Google Scholar
• Weinman , J. , Petrie , K. J. , Moss-Morris , R. and Horne , R. 1996 . The illness perception questionnaire: A new method for assessing the cognitive representation of illness . Psychology and Health , 11 : 431 – 445 .
   Web of Science ®Google Scholar
• Whitmarsh , A. , Koutantji , M. and Sidell , K. 2003 . Illness perceptions, mood and coping in predicting attendance at cardiac rehabilitation . British Journal of Health Psychology , 8 : 209 – 221 .
   PubMed Web of Science ®Google Scholar
• Whittaker , R. , Kemp , S. and House , A. 2007 . Illness perceptions and outcome in mild head injury: A longitudinal study . Journal of Neurology, Neurosurgery & Psychiatry , 78 : 644 – 646 .
   PubMed Web of Science ®Google Scholar
• Williams , H. W. , Evans , J. J. , Needham , P. and Wilson , B. A. 2002 . Neurological, cognitive and attributional predictors of posttraumatic stress symptoms after traumatic brain injury . Journal of Traumatic Stress , 15 ( 5 ) : 397 – 400 .
   PubMed Web of Science ®Google Scholar