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Original Articles

Do stroke survivors agree with their clinicians on the extent of their post-stroke activity limitation and participation restriction?

ORCID Icon, ORCID Icon & ORCID Icon
Pages 1430-1448 | Received 02 Nov 2017, Accepted 17 Feb 2019, Published online: 15 Mar 2019

References

  • Baier, B., Geber, C., Müller-Forell, W., Müller, N., Dieterich, M., & Karnath, H. O. (2015). Anosognosia for obvious visual field defects in stroke patients. Brain Structure & Function, 220(3), 1855–1860. doi: 10.1007/s00429-014-0753-5
  • Bamford, J., Sandercock, P., Dennis, M., Warlow, C., & Burn, J. (1991). Classification and natural history of clinically identifiable subtypes of cerebral infarction. The Lancet, 337(8756), 1521–1526. doi: 10.1016/0140-6736(91)93206-O
  • Barrett, A. M., Galletta, E. E., Zhang, J., Masmela, J. R., & Adler, U. S. (2014). Stroke survivors over-estimate their medication self-administration (MSA) ability, predicting memory loss. Brain Injury, 28(10), 1328–1333. doi: 10.3109/02699052.2014.915984
  • Barskova, T., & Wilz, G. (2006). Psychosocial functioning after stroke: Psychometric properties of the patient competency rating scale. Brain Injury, 20(13-14), 1431–1437.
  • Besharati, S., Forkel, S. J., Kopelman, M., Solms, M., Jenkinson, P. M., & Fotopoulou, A. (2016). Mentalizing the body: Spatial and social cognition in anosognosia for hemiplegia. Brain, 139(3), 971–985. doi: 10.1093/brain/awv390
  • Boosman, H., Van Heugten, C. M., Winkens, I., Heijnen, V. A., & Visser-Meily, J. M. A. (2014). Awareness of memory functioning in patients with stroke who have a good functional outcome. Brain Injury, 28(7), 959–964. doi: 10.3109/02699052.2014.888763
  • Brott, T., Adams, H. P., Olinger, C. P., Marler, R., Barsan, W. G., Biller, J., … Walker, M. (1989). Measurements of acute cerebral infarction: A clinical examination scale. Stroke, 20, 864–870.
  • Dai, C. Y., Liu, W. M., Chen, S. W., Yang, C. A., Tung, Y. C., Chou, L. W., & Lin, L. C. (2014). Anosognosia, neglect and quality of life of right hemisphere stroke survivors. European Journal of Neurology, 21(5), 797–801. doi: 10.1111/ene.12413
  • Daving, Y., Andren, E., Nordholm, L., & Grimby, G. (2001). Reliability of an interview approach to the Functional Independence Measure. Clinical Rehabilitation, 15(3), 301–310. doi:10.1191/026921501669986659
  • Doig, E., & Fleming, J. M. (2015). Occupation-based, client-centered approach to goal planning and measurement. In R. J. Siegert & W. M. M. Levack (Eds.), Rehabilitation goal setting: Theory, practice and evidence (pp. 181–212). Boca Raton, FL: CRC Press.
  • Ekstam, L., Uppgard, B., Kottorp, A., & Tham, K. (2007). Relationship between awareness of disability and occupational performance during the first year after a stroke. American Journal of Occupational Therapy, 61, 503–511.
  • Fischer, S., Gauggel, S., & Trexler, L. E. (2004). Awareness of activity limitations, goal setting and rehabilitation outcome in patients with brain injuries. Brain Injury, 18(6), 547–562. doi: 10.1080/02699050310001645793
  • Fleming, J., & Strong, J. (1999). A longitudinal study of self-awareness: Functional deficits underestimated by persons with brain injury. The Occupational Therapy Journal of Research, 19(1), 3–17. doi: 10.1177/153944929901900101
  • Fleming, J. M., Strong, J., & Ashton, R. (1998). Cluster analysis of self-awareness levels in adults with traumatic brain injury and relationship to outcome. Journal of Head Trauma Rehabilitation, 13(5), 39–51.
  • Granger, C. V., Hamilton, B. B., Keith, R. A., Zielezny, M., & Sherwin, F. S. (1986). Advances in functional assessment for medical rehabilitation. Topics in Geriatric Rehabilitation, 1(3), 59–74.
  • Hartman-Maeir, A., Soroker, N., Oman, S. D., & Katz, N. (2003). Awareness of disabilities in stroke rehabilitation - a clinical trial. Disability & Rehabilitation, 25(1), 35–44.
  • Hartman-Maeir, A., Soroker, N., Ring, H., & Katz, N. (2002). Awareness of deficits in stroke rehabilitation. Journal of Rehabilitation Medicine, 34(4), 158–164.
  • Kortte, K., & Hillis, A. E. (2009). Recent advances in the understanding of neglect and anosognosia following right hemisphere stroke. Current Neurology and Neuroscience Reports, 9(6), 459–465.
  • Lam, C. S., McMahon, B. T., Priddy, D. A., & Gehred-Schultz, A. (1988). Deficit awareness and treatment performance among traumatic head injury adults. Brain Injury, 2(3), 235–242. doi: 10.3109/02699058809150947
  • Langer, K. G., & Samuels, M. C. (2008). Unawareness of disability in CVA: A comparison study with musculoskeletal patients. Cognitive & Behavioral Neurology, 21(4), 206–213.
  • Malec, J. F. (2004). The Mayo-Portland Participation Index: A brief and psychometrically sound measure of brain injury outcome1. Archives of Physical Medicine and Rehabilitation, 85(12), 1989–1996. doi:10.1016/j.apmr.2004.01.032
  • Malec, J. F., Kean, J., Altman, I. M., & Swick, S. (2012). Mayo-Portland Adaptability Inventory: Comparing psychometrics in cerebrovascular accident to traumatic brain injury. Archives of Physical Medicine and Rehabilitation, 93(12), 2271–2275. doi: 10.1016/j.apmr.2012.06.013
  • Malec, J. F., Kragness, M., Evans, R. W., Finlay, K. L., Kent, A., & Lezak, M. D. (2003). Further psychometric evaluation and revision of the Mayo-Portland Adaptability Inventory in a national sample. Journal of Head Trauma Rehabilitation, 18(6), 479–492.
  • Malec, J. F., & Lezak, M. D. (2003). Manual for the Mayo-Portland Adaptability Inventory (MPAI-4). [1st]. Retrieved from http://www.timbs.org/combi/mpai
  • Malec, J. F., Moessner, A. M., Kragness, M., & Lezak, M. D. (2000). Refining a measure of brain injury sequelae to predict postacute rehabilitation outcome: Rating scale analysis of the Mayo-Portland Adaptability Inventory. The Journal of Head Trauma Rehabilitation, 15(1), 670–682.
  • Marcel, A. J., Tegnér, R., & Nimmo-Smith, I. (2004). Anosognosia for plegia: Specificity, extension, partiality and disunity of bodily unawareness. Cortex, 40(1), 19–40.
  • Markova, I. S., & Berrios, G. E. (2006). Approaches to the assessment of awareness: Conceptual issues. Neuropsychological Rehabilitation, 16(4), 439–455. doi: 10.1080/09602010500373396
  • Noe, E., Ferri, J., Caballero, M. C., Villodre, R., Sanchez, A., & Chirivella, J. (2005). Self-awareness after acquired brain injury: Predictors and rehabilitation. Journal of Neurology, 252(2), 168–175.
  • Nurmi, M. E., & Jehkonen, M. (2014). Assessing anosognosias after stroke: A review of the methods used and developed over the past 35 years. Cortex, 61, 43–63. doi: 10.1016/j.cortex.2014.04.008
  • Orfei, M. D., Caltagirone, C., & Spalletta, G. (2009). The evaluation of anosognosia in stroke patients. Cerebrovascular Diseases, 27(3), 280–289.
  • Orfei, M. D., Robinson, R. G., Prigatano, G. P., Starkstein, S., Rüsch, N., Bria, P., … Spalletta, G. (2007). Anosognosia for hemiplegia after stroke is a multifaceted phenomenon: A systematic review of the literature. Brain, 130(12), 3075–3090. doi: 10.1093/brain/awm106
  • Ottenbacher, K. J., Hsu, Y., Granger, C. V., & Fiedler, R. C. (1996). The reliability of the functional independence measure: A quantitative review. Archives of Physical Medicine and Rehabilitation, 77(12), 1226–1232. doi: 10.1016/S0003-9993(96)90184-7
  • Ownsworth, T., Clare, L., & Morris, R. (2006). An integrated biopsychosocial approach to understanding awareness deficits in Alzheimer's disease and brain injury. Neuropsychological Rehabilitation, 16, 415–438.
  • Prigatano, G. P. (2005). Disturbances of self-awareness and rehabilitation of patients with traumatic brain injury: A 20-year perspective. Journal of Head Trauma Rehabilitation, 20(1), 19–29.
  • Prigatano, G. P., Fordyce, D. J., Zeiner, H. K., Roueche, J. R., Pepping, M., & Wood, B. C. (1986). Neuropsychological rehabilitation after brain injury. Baltimore: Johns Hopkins University Press.
  • Prigatano, G. P., & Wong, J. L. (1999). Cognitive and affective improvement in brain dysfunctional patients who achieve inpatient rehabilitation goals. Archives of Physical and Medical Rehabilitation, 80, 77–84.
  • Scobbie, L., Dixon, D., & Wyke, S. (2011). Goal setting and action planning in the rehabilitation setting: Development of a theoretically informed practice framework. Clinical Rehabilitation, 25(5), 468–482. doi: 10.1177/0269215510389198
  • Seltzer, B., Vasterling, J. J., Mathias, C. W., & Brennan, A. (2001). Clinical and neuropsychological correlates of impaired awareness of deficits in Alzheimer disease and Parkinson disease: A comparative study. Cognitive and Behavioral Neurology, 14(2), 122–129.
  • Sevy, S., Nathanson, K., Visweswaraiah, H., & Amador, X. (2004). The relationship between insight and symptoms in schizophrenia. Comprehensive Psychiatry, 45(1), 16–19. doi: 10.1016/j.comppsych.2003.09.002
  • Sherer, M., Boake, C., Levin, E., Silver, B. V., Ringholz, G., & High Jr., W. M. (1998). Characteristics of impaired awareness after traumatic brain injury. Journal of the International Neuropsychological Society, 4(4), 380–387.
  • Sherer, M., Hart, T., & Nick, T. G. (2003). Measurement of impaired self-awareness after traumatic brain injury: A comparison of the patient competency rating scale and the awareness questionnaire. Brain Injury, 17(1), 25–37.
  • Smeets, S. M., Ponds, R. W., Verhey, F. R., & van Heugten, C. M. (2012). Psychometric properties and feasibility of instruments used to assess awareness of deficits after acquired brain injury: A systematic review. The Journal of Head Trauma Rehabilitation, 27(6), 433–442. doi: 10.1097/HTR.0b013e3182242f98
  • Smith, P. M., Illig, S. B., Fiedler, R. C., Hamilton, B. B., & Ottenbacher, K. J. (1996). Intermodal agreement of follow-up telephone functional assessment using the Functional Independence Measure in patients with stroke. Archives of Physical Medicine and Rehabilitation, 77(5), 431–435.
  • Starkstein, S. E., Jorge, R. E., & Robinson, R. G. (2010). The frequency, clinical correlates, and mechanism of anosognosia after stroke. Canadian Journal of Psychiatry - Revue Canadienne de Psychiatrie, 55(6), 355–361.
  • Vocat, R., Staub, F., Stroppini, T., & Vuilleumier, P. (2010). Anosognosia for hemiplegia: A clinical-anatomical prospective study. Brain, 133(12), 3578–3597. doi: 10.1093/brain/awq297
  • Vossel, S., Weiss, P. H., Eschenbeck, P., & Fink, G. R. (2013). Anosognosia, neglect, extinction and lesion site predict impairment of daily living after right-hemispheric stroke. Cortex, 49(7), 1782–1789. doi: 10.1016/j.cortex.2012.12.011
  • World Health Organization. (2001). International classification of functioning, disability and health : ICF. Geneva: Author.

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