Factors associated with parental grief reaction following pediatric acquired brain injury

References

• Adres, I. (2010). Attachment and the two-track model of bereavement in parent loss: The contribution of the relationships with spouse, a living child, and “god” to outcome (Unpublished doctoral dissertation). Haifa: University of Haifa.
   Google Scholar
• Aiken, L. S., West, S. G., & Reno, R. R. (1991). Multiple regression: Testing and interpreting interactions. California: Sage.
   Google Scholar
• Anderson, V. (2003). Neuropsychological rehabilitation: Theory and practice. In B. A. Wilson (Ed.), Studies in neuropsychology: Development & cognition (pp. 228–240). New York: Swetz/Verlagg.
   Google Scholar
• Anderson, V., & Catroppa, C. (2006). Advances in postacute rehabilitation after childhood-acquired brain injury: A focus on cognitive, behavioral, and social domains. American Journal of Physical Medicine & Rehabilitation, 85(9), 767–778.
   PubMed Web of Science ®Google Scholar
• Beauchamp, M. H., & Anderson, V. (2013). Cognitive and psychopathological sequelae of pediatric traumatic brain injury. In O. Dulac, M. Lassonde, & H. Sarnat (Eds), Handbook of clinical neurology (Vol. 112, pp. 913–920). Amsterdam: Elsevier.
   Google Scholar
• Boss, P. (1991). Ambiguous loss. In F. Walsh & M. McGoldrick (Eds.), Living beyond loss: Death in the family (pp. 164–175).
   Google Scholar
• Boss, P. (1999). Ambiguous loss: Learning to live with unresolved grief. Cambridge, MA: Harvard University Press.
   Google Scholar
• Boss, P., & Yeats, J. R. (2014). Ambiguous loss: A complicated type of grief when loved ones disappear. Bereavement Care, 33(2), 63–69.
   Google Scholar
• Bowlby, J. (1980). Attachment and loss, volume III: Loss: Sadness and depression. Harmondsworth: Penguin.
   Google Scholar
• Braun, M., Hales, S., Gilad, L., Mikulicer, M., Rydall, A., & Rodin, G. (2012). Caregiving styles and attachment orientations in couples facing advanced cancer. Psycho-Oncology, 21(9), 935–943.
   PubMed Web of Science ®Google Scholar
• Brooks, D. N. (1991). The head-injury family. Journal of Clinical and Experimental Neuropsychology, 13, 155–188.
   Web of Science ®Google Scholar
• Brown, F. L., Whittingham, K., Boyd, R. N., McKinlay, L., & Sofronoff, K. (2014). Improving child and parenting outcomes following paediatric acquired brain injury: A randomised controlled trial of stepping stones triple P plus acceptance and commitment therapy. Journal of Child Psychology and Psychiatry, 55(10), 1172–1183.
   PubMed Web of Science ®Google Scholar
• Brown, F. L., Whittingham, K., Sofronoff, K., & Boyd, R. N. (2013). Parenting a child with a traumatic brain injury: Experiences of parents and health professionals. Brain Injury, 27(13-14), 1570–1582.
   PubMed Web of Science ®Google Scholar
• Bruce, E., & Schultz, C. (2002). Non-finite loss and challenges to communication between parents and professionals. British Journal of Special Education, 29(1), 9–13.
   Google Scholar
• Bruce, E. J., & Schultz, C. L. (2001). Nonfinite loss and grief: A psychoeducational approach. Baltimore, MD: Paul H Brookes Publishing.
   Google Scholar
• Cattelani, R., Lombardi, F., Brianti, R., & Mazzucchi, A. (1998). Traumatic brain injury in childhood: Intellectual, behavioural and social outcome into adulthood. Brain Injury, 12(4), 283–296.
   PubMed Web of Science ®Google Scholar
• Clark, A., Stedmon, J., & Margison, S. (2008). An exploration of the experience of mothers whose children sustain traumatic brain injury (TBI) and their families. Clinical Child Psychology and Psychiatry, 13(4), 565–583.
   PubMedGoogle Scholar
• Claude Blais, M., & Boisvert, J. M. (2005). Psychological and marital adjustment in couples following a traumatic brain injury (TBI): A critical review. Brain Injury, 19(14), 1223–1235.
   PubMed Web of Science ®Google Scholar
• Collings, C. (2007). That’s not my child anymore! Parental grief after acquired brain injury (ABI): Incidence, nature, and longevity. British Journal of Social Work, 38(8), 1499–1517.
   Web of Science ®Google Scholar
• Doka, K. J. (1988). Disenfranchised grief: Recognizing hidden sorrow. Lexington, MA: Lexington Books.
   Google Scholar
• Doka, K. J., & Aber, R. (2002). Psychosocial loss and grief. In K. J. Doka (Ed.), Disenfranchised grief: New directions, challenges, and strategies for practice (pp. 217–232). Champaign, IL: Research Press.
   Google Scholar
• Du Toit, C., Coetzee, Z., & Beeton, H. (2013). Mothers’ experiences of caring for a child with severe brain injury in a disadvantaged community in the Cape Flats. South African Journal of Occupational Therapy, 43(2), 17–22.
   Google Scholar
• Florian, V., & Katz, S. (1991). The other victims of traumatic brain injury: Consequences for family members. Neuropsychology, 5(4), 267–279.
   Google Scholar
• Gillett, J. (2004). The pediatric acquired brain injury community outreach program (PABICOP)–an innovative comprehensive model of care for children and youth with an acquired brain injury. NeuroRehabilitation, 19(3), 207–218.
   PubMed Web of Science ®Google Scholar
• Godress, J., Ozgul, S., Owen, C., & Foley-Evans, L. (2005). Grief experiences of parents whose children suffer from mental illness. Australian and New Zealand Journal of Psychiatry, 39(1–2), 88–94.
   PubMed Web of Science ®Google Scholar
• Guerriere, D., & McKeever, P. (1997). Mothering children who survive brain injuries: Playing the hand you’re dealt. Journal for Specialists in Pediatric Nursing, 2(3), 105–115.
   Google Scholar
• Harris, D. L., & Gorman, E. (2011). Grief from a broader perspective: Nonfinite loss, ambiguous loss, and chronic sorrow. In D. L. Harris (Ed.), Counting our losses: Reflecting on change, loss, and transition in everyday life (pp. 1–13). New York: Routledge.
   Google Scholar
• Hawley, C. A., Ward, A. B., Magnay, A. R., & Long, J. (2003). Parental stress and burden following traumatic brain injury amongst children and adolescents. Brain Injury, 17(1), 1–23.
   PubMed Web of Science ®Google Scholar
• Hayes, A. F. (2018). Partial, conditional, and moderated moderated mediation: Quantification, inference, and interpretation. Communication Monographs, 85(1), 4–40.
   Web of Science ®Google Scholar
• Hickey, L., Anderson, V., Hearps, S., & Jordan, B. (2018). Family appraisal of pediatric acquired brain injury: A social work clinical intervention trial. Developmental Neurorehabilitation, 21(7), 457–464.
   PubMed Web of Science ®Google Scholar
• Hobdell, E. (2004). Chronic sorrow and depression in parents of children with neural tube defects. Journal of Neuroscience Nursing, 36(2), 82–89.
   PubMedGoogle Scholar
• J'May, B. R., Jaffe, K. M., Polissar, N. L., Fay, G. C., Liao, S., & Martin, K. M. (1996). Predictors of family functioning and change 3 years after traumatic brain injury in children. Archives of Physical Medicine and Rehabilitation, 77(8), 754–764.
   PubMed Web of Science ®Google Scholar
• Jones, M., Hocking, C., & Clair, V. W. S. (2010). Parents caregiving for children after a traumatic brain injury: Structuring for security. New Zealand Journal of Occupational Therapy, 57(1), 4.
   Google Scholar
• Jordan, J., & Linden, M. A. (2013). ‘It’s like a problem that doesn’t exist’: The emotional well-being of mothers caring for a child with brain injury. Brain Injury, 27(9), 1063–1072.
   PubMed Web of Science ®Google Scholar
• Kirk, S., Fallon, D., Fraser, C., Robinson, G., & Vassallo, G. (2015). Supporting parents following childhood traumatic brain injury: A qualitative study to examine information and emotional support needs across key care transitions. Child: Care, Health and Development, 41(2), 303–313.
   PubMed Web of Science ®Google Scholar
• Klass, D. (1997). The deceased child in the psychic and social worlds of bereaved parents during the resolution of grief. Death Studies, 21(2), 147–176.
   PubMed Web of Science ®Google Scholar
• Knight, R. G., Devereux, R., & Godfrey, H. P. (1998). Caring for a family member with a traumatic brain injury. Brain Injury, 12(6), 467–481.
   PubMed Web of Science ®Google Scholar
• Kubler-Ross, E. (1969). On death and dying. New York: Macmillan Publishing.
   Google Scholar
• Landolt, M. A., Vollrath, M., Ribi, K., Gnehm, H. E., & Sennhauser, F. H. (2003). Incidence and associations of parental and child posttraumatic stress symptoms in pediatric patients. Journal of Child Psychology and Psychiatry, 44(8), 1199–1207.
   PubMed Web of Science ®Google Scholar
• Levin, H. S., High, W. M., Goethe, K. E., Sisson, R. A., Overall, J. E., Rhoades, H. M., … Gary, H. E. (1987). The neurobehavioural rating scale: Assessment of the behavioural sequelae of head injury by the clinician. Journal of Neurology, Neurosurgery & Psychiatry, 50(2), 183–193.
   PubMed Web of Science ®Google Scholar
• Lezak, M. D. (1986). Psychological implications of traumatic brain damage for the patient's family. Rehabilitation Psychology, 31, 241–250.
   Web of Science ®Google Scholar
• Limond, J., Dorris, L., & McMillan, T. M. (2009). Quality of life in children with acquired brain injury: Parent perspectives 1–5 years after injury. Brain Injury, 23(7-8), 617–622.
   PubMed Web of Science ®Google Scholar
• Max, J. E., Wilde, E. A., Bigler, E. D., Hanten, G., Dennis, M., Schachar, R. J., … Yang, T. T. (2015). Personality change due to traumatic brain injury in children and adolescents: Neurocognitive correlates. The Journal of Neuropsychiatry and Clinical Neurosciences, 27(4), 272–279.
   PubMed Web of Science ®Google Scholar
• Micklewright, J. L., King, T. Z., O'Toole, K., Henrich, C., & Floyd, F. J. (2012). Parental distress, parenting practices, and child adaptive outcomes following traumatic brain injury. Journal of The International Neuropsychological Society, 18(2), 343–350.
   PubMed Web of Science ®Google Scholar
• Middleton, J. A. (2001). Brain injury in children and adolescents. Advances in Psychiatric Treatment, 7(4), 257–265.
   Google Scholar
• Middleton, W., Raphael, B., Burnett, P., & Martinek, N. (1998). A longitudinal study comparing bereavement phenomena in recently bereaved spouses, adult children and parents. Australian and New Zealand Journal of Psychiatry, 32(2), 235–241.
   PubMed Web of Science ®Google Scholar
• Morris, S., Fletcher, K., & Goldstein, R. (2019). The grief of parents after the death of a young child. Journal of Clinical Psychology in Medical Settings, 26(3), 321–338.
   PubMed Web of Science ®Google Scholar
• Neimeyer, R. A. (2000). Searching for the meaning of meaning: Grief therapy and the process of reconstruction. Death Studies, 24(6), 541–558.
   PubMed Web of Science ®Google Scholar
• Neimeyer, R. A., & Sands, D. C. (2011). Meaning reconstruction in bereavement: From principles to practice. In: R. A. Neimeyer, D.L. Harris, H. R. Winokuer, & G. F. Thornton (Eds.), Series in death, dying and bereavement. Grief and bereavement in contemporary society: Bridging research and practice (pp. 9–22). New York, NY: Routledge/Taylor & Francis Group.
   Google Scholar
• Norberg, A. L., & Steneby, S. (2009). Experiences of parents of children surviving brain tumour: A happy ending and a rough beginning. European Journal of Cancer Care, 18(4), 371–380.
   PubMed Web of Science ®Google Scholar
• O’Brien, M. (2007). Ambiguous loss in families of children with autism spectrum disorders. Family Relations, 56(2), 135–146.
   Web of Science ®Google Scholar
• Olshansky, S. (1962). Chronic sorrow: A response to having a mentally defective child. Social Case Work, 43, 147–169.
   Google Scholar
• Oreo, A., & Ozgul, S. (2007). Grief experiences of parents coping with an adult child with problem substance use. Addiction Research & Theory, 15(1), 71–83.
   Web of Science ®Google Scholar
• Rando, T. A. (1983). An investigation of grief and adaptation in parents whose children have died from cancer. Journal of Pediatric Psychology, 8(1), 3–20.
   PubMedGoogle Scholar
• Robson, T., Ziviani, J., & Spina, S. (2005). Personal experiences of families of children with a traumatic brain injury in the transition from hospital to home. Brain Impairment, 6(1), 45–55.
   Google Scholar
• Rogers, C. H., Floyd, F. J., Seltzer, M. M., Greenberg, J., & Hong, J. (2008). Long-term effects of the death of a child on parents’ adjustment in midlife. Journal of Family Psychology, 22(2), 203.
   PubMed Web of Science ®Google Scholar
• Roos, S. (2002). Chronic sorrow: A living loss. New York: Brunner-Rutledge.
   Google Scholar
• Roos, S., & Neimeyer, R. A. (2007). Reauthoring the self: Chronic sorrow and posttraumatic stress following the onset of CID. In Coping with chronic illness and disability (pp. 89–106). Boston, MA: Springer.
   Google Scholar
• Roscigno, C. I., & Swanson, K. M. (2011). Parents’ experiences following children’s moderate to severe traumatic brain injury: A clash of cultures. Qualitative Health Research, 21(10), 1413–1426.
   PubMed Web of Science ®Google Scholar
• Rubin, S. S. (1992). Adult child loss and the two-track model of bereavement. OMEGA-Journal of Death and Dying, 24(3), 183–202.
   Web of Science ®Google Scholar
• Rubin, S. S. (1993). The death of a child is forever: The life course of child loss. In M. S. Stroebe, W. Stroebe, & R. O. Hansson (Eds.), Handbook of bereavement: Theory, research, and intervention (pp. 285–299). New York, NY: Cambridge University Press.
   Google Scholar
• Rubin, S. S. (1999). The two track model of bereavement: Overview, retrospect, and prospect. Death Studies, 23, 681–714.
   PubMed Web of Science ®Google Scholar
• Rubin, S. S., Bar Nadav, O., Malkinson, R., Koren, D., Goffer-Shnarch, M., & Michaeli, E. (2009). The two-track model of bereavement questionnaire (TTBQ): Development and validation of a relational measure. Death Studies, 33(4), 305–333.
   PubMed Web of Science ®Google Scholar
• Rubin, S. S., & Malkinson, R. (2001). Parental response to child loss across the life cycle: Clinical and research perspectives. In M. S. Stroebe, R. O. Hansson, W. Stroebe, & H. Schut (Eds.), Handbook of bereavement research: Consequences, coping, and care (pp. 219–240). Washington, DC: American Psychological Association
   Google Scholar
• Rubin, S. S., Malkinson, R., & Witztum, E. (2012). Working with the bereaved: Multiple lenses on loss and mourning. New York, NY: Taylor & Francis.
   Google Scholar
• Rubin, S. S., & Shechory-Stahl, M. (2013). The continuing bonds of bereaved parents: A ten-year follow-up study with the two-track model of bereavement. OMEGA-Journal of Death and Dying, 66(4), 365–384.
   Web of Science ®Google Scholar
• Sander, A. M., Maestas, K. L., Clark, A. N., & Havins, W. N. (2013). Predictors of emotional distress in family caregivers of persons with traumatic brain injury: A systematic review. Brain Impairment, 14(1), 113–129.
   Web of Science ®Google Scholar
• Sanders, C. M., Manger, P. A., & Strong, P. N. (1985). A manual for the grief experience inventory. Palo Alto: Consulting Psychologists Press.
   Google Scholar
• Stancin, T., Wade, S. L., Walz, N. C., Yeates, K. O., & Taylor, H. G. (2010). Family adaptation 18 months after traumatic brain injury in early childhood. Journal of Developmental and Behavioral Pediatrics: JDBP, 31(4), 317.
   PubMed Web of Science ®Google Scholar
• Stroebe, M. S., Hansson, R. O., Schut, H. E., & Stroebe, W. E. (2008). Handbook of bereavement research and practice: Advances in theory and intervention. Washington, DC: American Psychological Association.
   Google Scholar
• Tonks, J., Huw Williams, W., Yates, P., & Slater, A. (2011). Cognitive correlates of psychosocial outcome following traumatic brain injury in early childhood: Comparisons between groups of children aged under and over 10 years of age. Clinical Child Psychology and Psychiatry, 16(2), 185–194.
   PubMedGoogle Scholar
• Tyerman, E., Eccles, F. J., & Gray, V. (2017). The experiences of parenting a child with an acquired brain injury: A meta-synthesis of the qualitative literature. Brain Injury, 31(12), 1553–1563.
   PubMed Web of Science ®Google Scholar
• Wade, S. L., Gerry Taylor, H., Yeates, K. O., Drotar, D., Stancin, T., Minich, N. M., & Schluchter, M. (2005). Long-term parental and family adaptation following pediatric brain injury. Journal of Pediatric Psychology, 31(10), 1072–1083.
   PubMed Web of Science ®Google Scholar
• Wade, S. L., Taylor, H. G., Drotar, D., Stancin, T., & Yeates, K. O. (1998). Family burden and adaptation during the initial year after traumatic brain injury in children. Pediatrics, 102(1), 110–116.
   PubMed Web of Science ®Google Scholar
• Wechsler, D. (2003). Wechsler intelligence test for children (WISC-IV). San Antonio, TX: Psychological Corporation.
   Google Scholar
• Wechsler, D. (2008). Wechsler adult intelligence scale–fourth edition (WAIS–IV). San Antonio, TX: The Psychological Corporation.
   Google Scholar
• Whittingham, K., Wee, D., Sander, M. R., & Boyd, R. (2013). Predictors of psychological adjustment, experienced parenting burden and chronic sorrow symptoms in parents of children with cerebral palsy. Child: Care, Health and Development, 39(3), 366–373.
   PubMed Web of Science ®Google Scholar
• Worden, J. W. (1991). Grief counseling and grief therapy: A handbook for the mental health practitioner (2nd ed.). London: Routledge.
   Google Scholar
• Zinner, E. S., Ball, J. D., Stutts, M. L., & Philput, C. (1997). Grief reactions of mothers of adolescents and young adults with traumatic brain injury. Archives of Clinical Neuropsychology, 12(5), 435–447.
   PubMed Web of Science ®Google Scholar