607
Views
4
CrossRef citations to date
0
Altmetric
Original Articles

Providing on-line support to families of people with brain injury and challenging behaviour: A feasibility study

ORCID Icon, , ORCID Icon, , & ORCID Icon
Pages 392-413 | Received 08 Jul 2019, Accepted 13 Nov 2019, Published online: 28 Nov 2019

References

  • Anderson, M. I., Simpson, G. K., & Morey, P. (2013). The impact of neurobehavioural impairment on family functioning and the psychological wellbeing of male versus female caregivers of relatives with severe traumatic brain injury: Multi-group analysis. Journal of Head Trauma Rehabilitation, 28, 453–463. doi: 10.1097/HTR.0b013e31825d6087
  • Anderson, M. I., Simpson, G. K., Morey, P. J., Mok, M. M., Gosling, T. J., & Gillett, L. E. (2009). Differential pathways of psychological distress in spouses vs. parents of people with severe traumatic brain injury (TBI): Multi-group analysis. Brain Injury, 23(12), 931–943. doi: 10.3109/02699050903302336
  • Antonini, T. N., Raj, S. P., Oberjohn, K. S., Cassedy, A., Makoroff, K. L., Fouladi, M., & Wade, S. L. (2014). A pilot randomized trial of an online parenting skills program for pediatric traumatic brain injury: Improvements in parenting and child behavior. Behavior Therapy, 45(4), 455–468. doi: 10.1016/j.beth.2014.02.003
  • Antony, M. M., Bieling, P. J., Cox, B. J., Enns, M. W., & Swinson, R. P. (1998). Psychometric properties of the 42-item and 21-item versions of the Depression Anxiety Stress Scales in clinical groups and a community sample. Psychological Assessment, 10(2), 176–181. doi: 10.1037/1040-3590.10.2.176
  • Bauer, S., Lambert, M. J., & Nielsen, S. L. (2004). Clinical significance methods: A comparison of statistical techniques. Journal of Personality Assessment, 82(1), 60–70. doi: 10.1207/s15327752jpa8201_11
  • Bigler, E. D. (2001). The lesion(s) in traumatic brain injury: Implications for clinical neuropsychology. Archives of Clinical Neuropsychology, 16(2), 95–131. doi: 10.1093/arclin/16.2.95
  • Boyle, G. J., & Haines, S. (2002). Severe traumatic brain injury: Some effects on family caregivers. Psychological Reports, 90(2), 415–425. doi: 10.2466/pr0.2002.90.2.415
  • Coleman, J. J., Frymark, T., Franceschini, N. M., & Theodoros, D. G. (2015). Assessment and treatment of cognition and communication skills in adults with acquired brain injury via telepractice: A systematic review. American Journal of Speech-Language Pathology, 24(2), 295–315. doi: 10.1044/2015_AJSLP-14-0028
  • Dahm, J., Wong, D., & Ponsford, J. (2013). Validity of the Depression Anxiety Stress Scales in assessing depression and anxiety following traumatic brain injury. Journal of Affective Disorders, 151(1), 392–396. doi: 10.1016/j.jad.2013.06.011
  • Demakis, G. J., Hammond, F., Knotts, A., Cooper, D. B., Clement, P., Kennedy, J., & Sawyer, T. (2007). The personality assessment inventory in individuals with traumatic brain injury. Archives of Clinical Neuropsychology, 22(1), 123–130. doi: 10.1016/j.acn.2006.09.004
  • Devilly, G. J., & Borkovec, T. D. (2000). Psychometric properties of the credibility/expectancy questionnaire. Journal of Behavior Therapy and Experimental Psychiatry, 31(2), 73–86. doi: 10.1016/S0005-7916(00)00012-4
  • Doctor, J. N., Castro, J., Temkin, N. R., Fraser, R. T., Machamer, J. E., & Dikmen, S. S. (2005). Workers’ risk of unemployment after traumatic brain injury: A normed comparison. Journal of the International Neuropsychological Society, 11(6), 747–752. doi: 10.1017/S1355617705050836
  • Draper, K., Ponsford, J. L., & Schönberger, M. (2007). Psychosocial and emotional outcomes 10 years following traumatic brain injury. Journal of Head Trauma Rehabilitation, 22(5), 278–287. doi: 10.1097/01.HTR.0000290972.63753.a7
  • Dreer, L. E., Berry, J., Rivera, P., Snow, M., Elliott, T. R., Miller, D., & Little, T. D. (2009). Efficient assessment of social problem-solving abilities in medical and rehabilitation settings: A rasch analysis of the social problem-solving inventory-revised. Journal of Clinical Psychology, 65(7), 653–669. doi: 10.1002/jclp.20573
  • D'Zurilla, T., Nezu, A., & Maydeu-Olivares, A. (2002). Social Problem-Solving Inventory-Revised (SPSI-R): manual. North Tonawanda, NY: Multi-Health Systems.
  • Easom, L. R., Wang, K., Moore, R. H., Wang, H., & Bauer, L. (2018). Operation family caregiver: Problem-solving training for military caregivers in a community setting. Journal of Clinical Psychology, 74(4), 536–553. doi: 10.1002/jclp.22536
  • Heinicke, M. R., & Carr, J. E. (2014). Applied behavior analysis in acquired brain injury rehabilitation: A meta-analysis of single case design intervention research. Behavioral Interventions, 29, 77–105. doi: 10.1002/bin.1380
  • Henry, J. D., & Crawford, J. R. (2005). The short-form version of the Depression Anxiety Stress Scales (DASS-21): Construct validity and normative data in a large non-clinical sample. British Journal of Clinical Psychology, 44(2), 227–239. doi: 10.1348/014466505X29657
  • Jones, K. F., Dorsett, P., Briggs, L., Anderson, M., & Simpson, G. K. (2019). A study of whether individual and dyadic relations between spirituality and resilience contribute to psychological adjustment among individuals with spinal cord injuries and their family members. Clinical Rehabilitation, 33, 1503–1514. doi:10.1177/0269215519845 doi: 10.1177/0269215519845034
  • Kairy, D., Lehoux, P., Vincent, C., & Visintin, M. (2009). A systematic review of clinical outcomes, clinical process, healthcare utilization and costs associated with telerehabilitation. Disability and Rehabilitation, 31(6), 427–447. doi: 10.1080/09638280802062553
  • Kanner, A. D., Coyne, J. C., Schaefer, C., & Lazarus, R. S. (1981). Comparison of two modes of stress measurement: Daily hassles and uplifts versus major life events. Journal of Behavioral Medicine, 4(1), 1–39. doi: 10.1007/BF00844845
  • Kant, R., Duffy, J. D., & Pivovarnik, A. (1998). Prevalence of apathy following head injury. Brain Injury, 12(1), 87–92. doi: 10.1080/026990598122908
  • Kelly, G., & Parry, A. (2008). Managing challenging behaviour of people with acquired brain injury in community settings: The first 7 years of a specialist clinical service. Brain Impairment, 9(3), 293–304. doi: 10.1375/brim.9.3.293
  • Kelly, G., Todd, J., Simpson, G., Kremer, P., & Martin, C. (2006). The overt behaviour scale (OBS): A tool for measuring challenging behaviours following ABI in community settings. Brain Injury, 20(3), 307–319. doi: 10.1080/02699050500488074
  • Kladnitski, N., Smith, J., Allen, A., Andrews, G., & Newby, J. M. (2018). Online mindfulness-enhanced cognitive behavioural therapy for anxiety and depression: Outcomes of a pilot trial. Internet Interventions, 13, 41–50. doi: 10.1016/j.invent.2018.06.003
  • Kreutzer, J. S., Rapport, L. J., Marwitz, J. H., Harrison-Felix, C., Hart, T., Glenn, M., & Hammond, F. (2009). Caregivers’ well-being after traumatic brain injury: A multicentre prospective investigation. Archives of Physical Medicine and Rehabilitation, 90, 939–946. doi: 10.1016/j.apmr.2009.01.010
  • Livingston, L. A., Kennedy, R. E., Marwitz, J. H., Arango-Lasprilla, J. C., Rapport, L. J., Bushnik, T., & Gary, K. W. (2010). Predictors of family caregivers’ life satisfaction after traumatic brain at one and two years post injury: A longitudinal multicentre investigation. NeuroRehabilitation, 27, 73–81. doi: 10.3233/NRE-2010-0582
  • Lovibond, P. F., & Lovibond, S. H. (1995). The structure of negative emotional states: Comparison of the Depression Anxiety Stress Scales (DASS) with the Beck Depression and Anxiety Inventories. Behaviour Research and Therapy, 33(3), 335–343. doi: 10.1016/0005-7967(94)00075-U
  • McClure, J., & Abbott, J. (2009). How normative information shapes attributions for the actions of persons with traumatic brain injury. Brain Impairment, 10(2), 180–187. doi: 10.1375/brim.10.2.180
  • McDonald, S. (2013). Impairments in social cognition following severe traumatic brain injury. Journal of the International Neuropsychological Society, 19, 231–246. doi: 10.1017/S1355617712001506
  • McMordie, W. R., Rogers, K. F., & Barker, S. L. (1991). Consumer satisfaction with services provided to head-injured patients and their families. Brain Injury, 5(1), 43–51. doi: 10.3109/02699059108998510
  • Miller, I. W., Bishop, D. S., Epstein, N. B., & Keitner, G. I. (1985). The Mcmaster family assessment device - reliability and validity. Journal of Marital and Family Therapy, 11(4), 345–356. doi: 10.1111/j.1752-0606.1985.tb00028.x
  • Moos, R. H., & Moos, B. S. (1994). Family Environment Scale manual (3rd ed.). Palo Alto, CA: Consulting Psychologists Press.
  • Murray, H. M., Maslany, G. W., & Jeffery, B. (2006). Assessment of family needs following acquired brain injury in Saskatchewan. Brain Injury, 20(6), 575–585. doi: 10.1080/02699050600664590
  • Newby, J. M., Mackenzie, A., Williams, A. D., Mcintyre, K., Watts, S., Wong, N., & G. Andrews. (2013). Internet cognitive behavioural therapy for mixed anxiety and depression: A randomized controlled trial and evidence of effectiveness in primary care. Psychological Medicine, 43, 2635–2648. doi: 10.1017/S0033291713000111
  • Newby, J. M., Smith, J., Uppal, S., Mason, E., Mahoney, A. E. J., & Andrews, G. (2018). Internet-based cognitive behavioural therapy versus psychoeducation control for illness anxiety disorder and somatic symptom disorder: A randomised controlled trial. Journal of Consulting and Clinical Psychology, 86(1), 89–98. doi: 10.1037/ccp0000248
  • Ownsworth, T., Arnautovska, U., Beadle, E., Shum, D., & Moyle, W. (2017). Efficacy of telerehabilitation for adults with traumatic brain injury: A systematic review. Journal of Head Trauma Rehabilitation, doi: 10.1097/HTR.0000000000000350
  • Ownsworth, T., Fleming, J., Strong, J., Radel, M., Chan, W., & Clare, L. (2007). Awareness typologies, long-term emotional adjustment and psychosocial outcomes following acquired brain injury. Neuropsychological Rehabilitation, 17(2), 129–150. doi: 10.1080/09602010600615506
  • Ponsford, J. L., Olver, J. H., Curran, C., & Ng, K. (1995). Prediction of employment status two years after traumatic brain injury. Brain Injury, 9, 11–20. doi: 10.3109/02699059509004566
  • Ponsford, J., Olver, J., Ponsford, M., & Nelms, R. (2003). Long-term adjustment of families following traumatic brain injury where comprehensive rehabilitation has been provided. Brain Injury, 17(6), 453–468. doi: 10.1080/0269905031000070143
  • Ponsford, J. L., & Schonberger, M. (2010). Family functioning and emotional state two and five years after traumatic brain injury. Journal of the International Neuropsychological Society, 16(2), 306–317. doi: 10.1017/S1355617709991342
  • Rietdijk, R., Togher, L., & Power, E. (2012). Supporting family members of people with traumatic brain injury using telehealth: A systematic review. Journal of Rehabilitation Medicine, 44(11), 913–921. doi: 10.2340/16501977-1058
  • Rivera, P. A., Elliott, T. R., Berry, J. W., & Grant, J. S. (2008). Problem-solving training for family caregivers of persons with traumatic brain injuries: A randomized controlled trial. Archives of Physical Medicine and Rehabilitation, 89(5), 931–941. doi: 10.1016/j.apmr.2007.12.032
  • Robinson, B. C. (1983). Validation of a caregiver strain index. Journal of Gerontology, 38(3), 344–348. doi: 10.1093/geronj/38.3.344
  • Sabaz, M., Simpson, G. K., Walker, A. J., Rogers, J. M., Gillis, I., & Strettles, B. (2014). Prevalence, comorbidities, and correlates of challenging behavior among community-dwelling adults with severe traumatic brain injury: A multicenter study. Journal of Head Trauma Rehabilitation, 29(2), E19–E30. doi: 10.1097/HTR.0b013e31828dc590
  • Schönberger, M., Ponsford, J. L., Olver, J., & Ponsford, M. (2010). A longitudinal study of family functioning after TBI and relatives’ emotional status. Neuropsychological Rehabilitation, 20(6), 813–829. doi: 10.1080/09602011003620077
  • Simpson, G. K., McRae, P., Hallab, L., Daher, M., & Strettles, B. (2018). Participation in competitive employment after severe traumatic brain injury: New employment versus return to previous (pre-injury) employment. Neuropsychological Rehabilitation. Advance online publication. doi:10.1080/09602011.2018.1531769.
  • Simpson, G. K., Sabaz, M., Daher, M., Gordon, R., & Strettles, B. (2014). Challenging behaviours, co-morbidities, service utilisation and service access among community-dwelling adults with severe traumatic brain injury: A multicentre study. Brain Impairment, 15(1), 28–42. doi: 10.1017/BrImp.2014.7
  • Sloane, S. (2017). Understanding acquired brain injury and behaviour change: A guide for managing challenging behaviour. Sydney, Australia: ASSBI Resources.
  • Tam, S., McKay, A., Sloan, S., & Ponsford, J. L. (2015). The experience of challenging behaviours following severe TBI: A family perspective. Brain Injury, 29(7-8), 813–821. doi: 10.3109/02699052.2015.1005134
  • Tate, R. L., Broe, G. A., Cameron, I. D., Hodgkinson, A. E., & Soo, C. A. (2005). Pre-injury, injury and early post-injury predictors of long-term functional and psychosocial recovery after severe traumatic brain injury. Brain Impairment, 6, 75–89. doi: 10.1375/brim.2005.6.2.75
  • Todd, J., Loewy, J., Kelly, G., & Simpson, G. (2004). Managing challenging behaviours: Getting interventions to work in nonspecialised community settings. Brain Impairment, 5(1), 42–52. doi: 10.1375/brim.5.1.42.35398
  • Wade, S. L., Cassedy, A. E., Shultz, E. L., Zang, H., Zhang, N., Kirkwood, M. W., … Taylor, H. G. (2017). Randomized clinical trial of online parent training for behavior problems after early brain injury. Journal of the American Academy of Child and Adolescent Psychiatry, 56(11), 930–939.e932. doi: 10.1016/j.jaac.2017.09.413
  • Wade, S. L., Kurowski, B. G., Kirkwood, M. W., Zhang, N., Cassedy, A., Brown, T. M., … Taylor, H. G. (2015). Online problem-solving therapy after traumatic brain injury: A randomized controlled trial. Pediatrics, 135(2), e487–e495. doi: 10.1542/peds.2014-1386
  • Wade, S. L., Taylor, H. G., Cassedy, A., Zhang, N., Kirkwood, M. W., Brown, T. M., & Stancin, T. (2015). Long-term behavioral outcomes after a randomized, clinical trial of counselor-assisted problem solving for adolescents with complicated mild-to-severe traumatic brain injury. Journal of Neurotrauma, 32(13), 967–975. doi: 10.1089/neu.2014.3684
  • Wade, S. L., Walz, N. C., Carey, J., McMullen, K. M., Cass, J., Mark, E., & Yeates, K. O. (2012). A randomized trial of teen online problem solving: Efficacy in improving caregiver outcomes after brain injury. Health Psychology, 31(6), 767–776. doi: 10.1037/a0028440
  • Watanabe, Y., Shiel, A. D., McLellan, L., Kurihara, M., & Hayashi, K. Y. (2001). The impact of traumatic brain injury on family members living with patients: A preliminary study in Japan and the UK. Disability and Rehabilitation, 23(9), 370–378. doi: 10.1080/09638280010006647
  • Whelan-Goodinson, R., Ponsford, J. L., Schönberger, M., & Johnston, L. (2010). Predictors of psychiatric disorders following traumatic brain injury. Journal of Head Trauma Rehabilitation, 25(5), 320–329. doi: 10.1097/HTR.0b013e3181c8f8e7
  • Winter, L., Moriarty, H. J., & Short, T. H. (2018). Beyond anger: Emotion regulation and social connectedness in veterans with traumatic brain injury. Brain Injury, 32(5), 593–599. doi: 10.1080/02699052.2018.1432895
  • Woods, D. T., Catroppa, C., Godfrey, C., Giallo, R., Matthews, J., & Anderson, V. A. (2014). Challenging behaviours following paediatric acquired brain injury (ABI): The clinical utility for a manualised behavioural intervention programme. Social Care and Neurodisability, 5(3), 145–159. doi: 10.1108/SCN-03-2013-0006
  • Ylvisaker, M., & Feeney, T. J. (1998). Collaborative brain injury intervention: Positive everyday routines. San Diego: Singular Publishing Group.
  • Ylvisaker, M., Turkstra, L. S., Coehlo, C., Yorkston, K., Kennedy, M., Sohlberg, M. M., & Avery, J. (2007). Behavioural interventions for children and adults with behaviour disorders after TBI: A systematic review of the evidence. Brain Injury, 21(8), 769–805. doi: 10.1080/02699050701482470

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.