References
- Adler, J. M. (2012). Living into the story: Agency and coherence in a longitudinal study of narrative identity development and mental health over the course of psychotherapy. Journal of Personality and Social Psychology, 102(2), 367–389. https://doi.org/https://doi.org/10.1037/a0025289
- Alsop-Shields, L. (2002). The parent-staff interaction model of pediatric care. Journal of Pediatric Nursing, 17(6), 442–449. https://doi.org/https://doi.org/10.1053/JPDN.2002.123526
- Armstrong, J. (2008). The benefits and challenges of interdisciplinary, client-centred, goal setting in rehabilitation. New Zealand Journal of Occupational Therapy, 55(1), 20–25.
- Bax, Martin, Goldstein, Murray, Rosenbaum, Peter, Leviton, Alan, Paneth, Nigel, Dan, Bernard, & Jacobsson, Bo. (2005). Proposed definition and classification of cerebral palsy, April 2005. Developmental Medicine & Child Neurology, 47(8), 571–576. https://doi.org/https://doi.org/10.1017/S001216220500112X
- Braun, V., & Clarke, V. (2006). Using thematic analysis in psychology. Qualitative Research in Psychology, 3(2), 77–101. https://doi.org/https://doi.org/10.1191/1478088706qp063oa
- Brewer, K., Pollock, N., & Wright, F. V. (2014). Addressing the challenges of collaborative goal setting with children and their families. Physical & Occupational Therapy In Pediatrics, 34(2), 138–152. https://doi.org/https://doi.org/10.3109/01942638.2013.794187
- Brock, K., Black, S., Cotton, S., Kennedy, G., Wilson, S., & Sutton, E. (2009). Goal achievement in the six months after inpatient rehabilitation for stroke. Disability and Rehabilitation, 31(11), 880–886. https://doi.org/https://doi.org/10.1080/09638280802356179
- Bury, M. (1982). Chronic illness as biographical disruption. Sociology of Health and Illness, 4(2), 167–182. https://doi.org/https://doi.org/10.1111/1467-9566.ep11339939
- Cameron, L. J., Somerville, L. M., Naismith, C. E., Watterson, D., Maric, V., & Lannin, N. A. (2018). A qualitative investigation into the patient-centered goal-setting practices of allied health clinicians working in rehabilitation. Clinical Rehabilitation, 32(6), 827–840. https://doi.org/https://doi.org/10.1177/0269215517752488
- Catroppa, C., & Anderson, V. (2009). Traumatic brain injury in childhood: Rehabilitation considerations. Developmental Neurorehabilitation, 12(1), 53–61. https://doi.org/https://doi.org/10.1080/17518420802634476
- Catroppa, C., Anderson, V. A., Morse, S. A., Haritou, F., & Rosenfeld, J. V. (2008). Outcome and predictors of functional recovery 5 years following pediatric traumatic brain injury (TBI). Journal of Pediatric Psychology, 33(7), 707–718. https://doi.org/https://doi.org/10.1093/jpepsy/jsn006
- Charmaz, K. (2014). Constructing grounded theory (2nd ed.). Sage.
- Conneeley, A. L. (2004). Interdisciplinary collaborative goal planning in a post-acute neurological setting: A qualitative study. British Journal of Occupational Therapy, 67(6), 248–255. https://doi.org/https://doi.org/10.1177/030802260406700603
- Cott, C. A. (2004). Client-centered rehabilitaion: Client perspectives. Disability and Rehabilitation, 26(24), 1411–1422. https://doi.org/https://doi.org/10.1080/09638280400000237
- Dalton, C., Farrell, R., De Souza, A., Wujanto, E., McKenna-Slade, A., Thompson, S., Liu, C., & Greenwood, R. (2012). Patient inclusion in goal setting during early inpatient rehabilitation after acquired brain injury. Clinical Rehabilitation, 26(2), 165–173. https://doi.org/https://doi.org/10.1177/0269215511405230
- D’Cruz, K., Douglas, J., & Serry, T. (2019a). Personal narrative approaches in rehabilitation following traumatic brain injury: A synthesis of qualitative research. Neuropsychological Rehabilitation, 29(7), 985–1004. https://doi.org/https://doi.org/10.1080/09602011.2017.1361844
- D’Cruz, K., Douglas, J., & Serry, T. (2019b). Narrative storytelling as both an advocacy tool and a therapeutic process: Perspectives of adult storytellers with acquired brain injury. Neuropsychological Rehabilitation, 30, 1409–1429. https://doi.org/https://doi.org/10.1080/09602011.2019.1586733
- D’Cruz, K., Unsworth, C., Roberts, K., Morarty, J., Turner-Stokes, L., Wellington-Boyd, A., Matchado, J., & Lannin, N. A. (2016). Engaging patients with moderate to severe acquired brain injury in goal setting. International Journal of Therapy and Rehabilitation, 23(1), 20–31. https://doi.org/https://doi.org/10.12968/ijtr.2016.23.1.20
- Docherty, S., & Sandelowski, M. (1999). Focus on qualitative methods: Interviewing children. Research in Nursing & Health, 22(2), 177–185. https://doi.org/https://doi.org/10.1002/(SICI)1098-240X(199904)22
- Doering, B. K., Conrad, N., Rief, W., & Exner, C. (2011). Living with acquired brain injury: Self-concept as mediating variable in the adjustment process. Neuropsychological Rehabilitation, 21(1), 42–63. https://doi.org/https://doi.org/10.1080/09602011.2010.525947
- Doig, E., Fleming, J., Cornwell, P. L., & Kuipers, P. (2009). Qualitative exploration of a client-centered, goal-directed approach to community-based occupational therapy for adults with traumatic brain injury. American Journal of Occupational Therapy, 63(5), 559–568. http://ovidsp.ovid.com/ovidweb.cgi?T=JS&PAGE=reference&D=med6&NEWS=N&AN=19785255 https://doi.org/https://doi.org/10.5014/ajot.63.5.559
- Eccleston, C., Fisher, E., Law, E., Bartlett, J., & Palermo, T. M. (2015). Psychological interventions for parents of children and adolescents with chronic illness. The Cochrane Database of Systematic Reviews, 4, CD009660. https://doi.org/https://doi.org/10.1002/14651858.CD009660.pub3
- Evans, J. J. (2012). Goal setting during rehabilitation early and late after acquired brain injury. Current Opinion in Neurology, 25(6), 651–655. https://doi.org/https://doi.org/10.1097/WCO.0b013e3283598f75
- Fay, T. B., Yeates, K. O., Wade, S. L., Drotar, D., Stancin, T., & Taylor, H. G. (2009). Predicting longitudinal patterns of functional deficits in children with traumatic brain injury. Neuropsychology, 23(3), 271–282. https://doi.org/https://doi.org/10.1037/a0014936
- Fordyce, W. E. (1981). ACRM presidential address on interdisciplinary peers. Archives of Physical Medicine and Rehabilitation, 62, 51–53.
- Giza, C. C., Kolb, B., Harris, N. G., Asarnow, R. F., & Prins, M. L. (2009). Hitting a moving target: Basic mechanisms of recovery from acquired developmental brain injury. Developmental Neurorehabilitation, 12(5), 255–268. https://doi.org/https://doi.org/10.3109/17518420903087558
- Grbich, C. (2007). Qualitative data analysis: An introduction. Sage Publications.
- Hiller, A., Guillemin, M., & Delany, C. (2015). Exploring healthcare communication models in private physiotherapy practice. Patient Education and Counseling, 98(10), 1222–1228. https://doi.org/https://doi.org/10.1016/j.pec.2015.07.029
- Holliday, R. C. (2004). Goal-Setting: Just how client-orientated are we? Therapy Weekly, Goal-setti.
- Holliday, R. C., Ballinger, C., & Playford, E. D. (2007). Goal setting in neurological rehabilitation: Patients’ perspectives. Disability and Rehabilitation, 29(5), 389–394. https://doi.org/https://doi.org/10.1080/09638280600841117
- Holliday, R. C., Cano, S., Freeman, J. A., & Playford, E. D. (2007). Should patients participate in clinical decision making? An optimised balance block design controlled study of goal setting in a rehabilitation unit. Journal of Neurology, Neurosurgery and Psychiatry, 78(6), 576–580. https://doi.org/https://doi.org/10.1136/jnnp.2006.102509
- Hunt, A. W., Le Dorze, G., Trentham, B., Polatajko, H. J., & Dawson, D. R. (2015). Elucidating a continuum of goal-setting in brain injury rehabilitation. Qualitative Health Research, 25(8), 1044–1055. https://doi.org/https://doi.org/10.1177/1049732315588759
- Jeglinsky, I., Salminen, A. L., Carlberg, E. B., Autti-Rämö, I., & Autti-Ramo, I. (2012). Rehabilitation planning for children and adolescents with cerebral palsy. Journal of Pediatric Rehabilitation Medicine, 5(3), 203–215. https://doi.org/https://doi.org/10.3233/PRM-2012-0213
- Kennedy, T. J. T., & Lingard, L. A. (2006). Making sense of grounded theory in medical education. Medical Education, 40(2), 101–108. https://doi.org/https://doi.org/10.1111/j.1365-2929.2005.02378.x
- King, G., & Chiarello, L. (2014). Family-centered care for children with cerebral palsy: Conceptual and practical considerations to advance care and practice. Journal of Child Neurology, 29(8), 1046–1054. https://doi.org/https://doi.org/10.1177/0883073814533009
- Kolehmainen, N., Maclennan, G., Ternent, L., Duncan, E. A., Duncan, E. M., Ryan, S. B., Mckee, L., & Francis, J. J. (2012). Using shared goal setting to improve access and equity: A mixed methods study of the Good Goals intervention in children’s occupational therapy. Implementation Science, 7. https://doi.org/https://doi.org/10.1186/1748-5908-7-76
- Kramer, A. M. (1997). Rehabilitation care and outcomes from the patient’s perspective. Medical Care, 35(6), JS48–JS57. https://doi.org/https://doi.org/10.1097/00005650-199706001-00009
- Law, M. C., Baptiste, S., McColl, M., Opzoomer, A., Polatajko, H., & Pollock, N. (1990). The Canadian occupational performance measure: An outcome measure for occupational therapy. Canadian Journal of Occupational Therapy, 57(2), 82–87. https://doi.org/https://doi.org/10.1177/000841749005700207
- Leach, E., Cornwell, P., Fleming, J., & Haines, T. (2010). Patient centered goal-setting in a subacute rehabilitation setting. Disability and Rehabilitation, 32(2), 159–172. https://doi.org/https://doi.org/10.3109/09638280903036605
- Levack, W. M., Siegert, R. J., Dean, S. G., & McPherson, K. M. (2009). Goal planning for adults with acquired brain injury: How clinicians talk about involving family. Brain Injury, 23(3), 192–202. https://doi.org/https://doi.org/10.1080/02699050802695582
- Liamputtong, P. (2012). Qualitative research methods (4th ed.). Oxford University Press.
- Mandy, P. (1996). Interdisciplinary rather than multidisciplinary or generic practice. British Journal of Therapy and Rehabilitation, 3(2), 110–112. https://doi.org/https://doi.org/10.12968/bjtr.1996.3.2.14871
- McCormack, B. (2003). A conceptual framework for person-centred practice with older people. International Journal of Nursing Practice, 9(3), 202–209.
- McKinlay, A., Linden, M., DePompei, R., Aaro Jonsson, C., Anderson, V., Braga, L., Castelli, E., de Koning, P., Hawley, C. A., Hermans, E., Kristiansen, I., Madden, A., Rumney, P., Savage, R., & Wicks, B. (2016). Service provision for children and young people with acquired brain injury: Practice recommendations. Brain Injury, 30(13–14), 1656–1664. https://doi.org/https://doi.org/10.1080/02699052.2016.1201592
- McPherson, K. M., Kayes, N., & Weatherall, M. (2009). A pilot study of self-regulation informed goal setting in people with traumatic brain injury. Clinical Rehabilitation, 23(4), 296–309. https://doi.org/https://doi.org/10.1177/0269215509102980
- Mead, N., & Bower, P. (2000). Patient-centredness: A conceptual framework and review of the empirical literature. Social Science and Medicine, 51(7), 1087–1110. https://doi.org/https://doi.org/10.1016/S0277-9536(00)00098-8
- Morgan, S., & Yoder, L. H. (2012). A concept analysis of person-centered care. Journal of Holistic Nursing, 30(1), 6–15. https://doi.org/https://doi.org/10.1177/0898010111412189
- Mutch, Lesley, Alberman, Eva, Hagberg, Bengt, Kodama, Kazuo, & Perat, Milivoy Velickovic. (1992). Cerebral Palsy epidemiology: Where are we now and where are we going? Developmental Medicine & Child Neurology, 34(6), 547–551. https://doi.org/https://doi.org/10.1111/j.1469-8749.1992.tb11479.x
- Øien, I., Fallang, B., & Østensjø, S. (2010). Goal-setting in paediatric rehabilitation: Perceptions of parents and professional. Child: Care, Health and Development, 36(4), 558–565. https://doi.org/https://doi.org/10.1111/j.1365-2214.2009.01038.x
- Parry, R. H. (2004). Communication during goal-setting in physiotherapy treatment sessions. Clinical Rehabilitation, 18(6), 668–682. https://doi.org/https://doi.org/10.1191/0269215504cr745oa
- Parsons, J. G. M. M., Plant, S. E., Slark, J., & Tyson, S. F. (2018). How active are patients in setting goals during rehabilitation after stroke? A qualitative study of clinician perceptions. Disability and Rehabilitation, 40(3), 309–316. https://doi.org/https://doi.org/10.1080/09638288.2016.1253115
- Pennebaker, J. W. (2000). Telling stories: The health benefits of narrative. Literature and Medicine, 19(1), 3–18. https://doi.org/https://doi.org/10.1353/lm.2000.0011
- Plant, S. E., Tyson, S. F., Kirk, S., & Parsons, J. (2016). What are the barriers and facilitators to goal-setting during rehabilitation for stroke and other acquired brain injuries? A systematic review and meta-synthesis. Clinical Rehabilitation, 30(9), 921–930. https://doi.org/https://doi.org/10.1177/0269215516655856
- Prescott, S., Fleming, J., & Doig, E. (2018). Rehabilitation goal setting with community dwelling adults with acquired brain injury: A theoretical framework derived from clinicians’ reflections on practice. Disability and Rehabilitation, 40(20), 2388–2399. https://doi.org/https://doi.org/10.1080/09638288.2017.1336644
- Prescott, S., Fleming, J., & Doig, E. (2019). Refining a clinical practice framework to engage clients with brain injury in goal setting. Australian Occupational Therapy Journal, 66(3), 313–325. https://doi.org/https://doi.org/10.1111/1440-1630.12556
- Prigatano, G. P. (1999). Principles of neuropsychological rehabilitation. Oxford University Press.
- Pritchard-Wiart, L., & Phelan, S. K. (2018). Goal setting in paediatric rehabilitation for children with motor disabilities: A scoping review. Clinical Rehabilitation, 32(7), 954–966. https://doi.org/https://doi.org/10.1177/0269215518758484
- Pritchard-Wiart, L., Thompson-Hodgetts, S., & McKillop, A. B. (2019). A review of goal setting theories relevant to goal setting in paediatric rehabilitation. Clinical Rehabilitation, 33(9), 1515–1526. https://doi.org/https://doi.org/10.1177/0269215519846220
- QSR International Pty. Ltd. (2018). NVivo qualitative data analysis Software (No. 12).
- Rosenbaum, P., & Gorter, J. W. (2011). The ‘F-words’ in childhood disability: I swear this is how we should think! Child: Care, Health and Development, 38(4), 457–463. https://doi.org/https://doi.org/10.1111/j.1365-2214.2011.01338.x
- Rosenbaum, P., King, S., Law, M., King, G., & Evans, J. (1998). Family-centred service. Physical & Occupational Therapy In Pediatrics, 18(1), 1–20. https://doi.org/https://doi.org/10.1080/J006v18n01_01
- Rosewilliam, S., Roskell, C. A., & Pandyan, A. D. (2011). A systematic review and synthesis of the quantitative and qualitative evidence behind patient-centred goal setting in stroke rehabilitation. Clinical Rehabilitation, 25(6), 501–514. https://doi.org/https://doi.org/10.1177/0269215510394467
- Shelton, T. L., Jeppson, E. S., & Johnson, B. H. (1987). Family-centred care for children with special health care needs. Association for the Care of Children’s Health.
- Shields, L. (2015). What is “family-centered care”? European Journal for Person Centered Healthcare, 3(2), 139. https://doi.org/https://doi.org/10.5750/ejpch.v3i2.993
- Steenbeek, D., Ketelaar, M., Galama, K., & Gorter, J. W. (2008). Goal attainment scaling in paediatric rehabilitation: A report on the clinical training of an interdisciplinary team. Child: Care, Health and Development, 34(4), 521–529. https://doi.org/https://doi.org/10.1111/j.1365-2214.2008.00841.x
- Tang Yan, S. H., Clemson, L. M., Jarvis, F., & Laver, K. (2014). Goal setting with caregivers of adults in the community: A mixed methods systematic review. Disability and Rehabilitation, 36(23), 1943–1963. https://doi.org/https://doi.org/10.3109/09638288.2014.884173
- Trombly, C. A., Radomski, M. V., Trexel, C., & Burnett-Smith, S. E. (2002). Occupational therapy and achievement of self-identified goals by adults with acquired brain injury: Phase II. American Journal of Occupational Therapy, 56(5), 489–498. https://doi.org/https://doi.org/10.5014/ajot.56.5.489
- Wade, D. T. (2009). Goal setting in rehabilitation: An overview of what, why and how. Clinical Rehabilitation, 23(4), 291–295. https://doi.org/https://doi.org/10.1177/0269215509103551
- Wiart, L., Ray, L., Darrah, J., & Magill-Evans, J. (2010). Parents’ perspectives on occupational therapy and physical therapy goals for children with cerebral palsy. Disability and Rehabilitation, 32(3), 248–258. https://doi.org/https://doi.org/10.3109/09638280903095890
- Ylvisaker, M., McPherson, K., Kayes, N., & Pellett, E. (2008). Metaphoric identity mapping: Facilitating goal setting and engagement in rehabilitation after traumatic brain injury. Neuropsychological Rehabilitation, 18(5–6), 713–741. https://doi.org/https://doi.org/10.1080/09602010802201832
- Yun, D., & Choi, J. (2019). Person-centered rehabilitation care and outcomes: A systematic literature review. International Journal of Nursing Studies, 93, 74–83. https://doi.org/https://doi.org/10.1016/J.IJNURSTU.2019.02.012