A qualitative exploration of fatherhood after acquired brain injury (ABI)

References

• Baulderstone, M. J., Morgan, B. S., & Fudge, E. A. (2012). Supporting families of parents with mental illness in general practice. MJA Open, 1(Suppl 1), 11–13. https://doi.org/10.5694/mjao11.11146
   Google Scholar
• Bowen, C., Hall, T., Newby, G., Walsh, B., Weatherhead, S., & Yeates, G. (2009). The impact of brain injury on relationships across the lifespan and across school, family and work contexts. Human Systems: The Journal of Consultation and Training, 20 (1), 65–80.
   Google Scholar
• Bowen, C., Yeates, G., & Palmer, S. (2010). A relational approach to rehabilitation: Thinking about relationships after brain injury. Karnac Books.
   Google Scholar
• Braun, V., & Clarke, V. (2013). Successful qualitative research: A practical guide for beginners. Sage.
   Google Scholar
• Charles, N., Butera-Prinzi, F., & Perlesz, A. (2007). Families living with acquired brain injury: A multiple family group experience. NeuroRehabilitation, 22(1), 61–76. https://doi.org/10.3233/NRE-2007-22107
   PubMed Web of Science ®Google Scholar
• Couchman, G., McMahon, G., Kelly, A., & Ponsford, J. (2014). A new kind of normal: Qualitative accounts of multifamily group therapy for acquired brain injury. Neuropsychological Rehabilitation, 24(6), 809–832. https://doi.org/10.1080/09602011.2014.912957
   PubMed Web of Science ®Google Scholar
• Dahm, J., & Ponsford, J. (2015). Comparison of long-term outcomes following traumatic injury: What is the unique experience for those with brain injury compared with orthopaedic injury? Injury, 46(1), 142–149. https://doi.org/10.1016/j.injury.2014.07.012
   PubMed Web of Science ®Google Scholar
• Dolan, A. (2014). ‘I’ve learnt what a dad should do’: The interaction of masculine and fathering identities among men who attended a ‘dads only’ parenting programme. Sociology, 48(4), 812–828. https://doi.org/10.1177/0038038513511872
   Google Scholar
• Edwards, A. R., Daisley, A., & Newby, G. (2014). The experience of being a parent with an acquired brain injury (ABI) as an inpatient at a neuro- rehabilitation centre, 0–2 years post injury. Brain Injury, 28(13–14), 1700–1710. https://doi.org/10.3109/02699052.2014.947633
   PubMed Web of Science ®Google Scholar
• Ellis-Hill, C., Payne, S., & Ward, C. (2008). Using stroke to explore the Life Thread Model: An alternative approach to understanding rehabilitation following an acquired disability. Disability and Rehabilitation, 30(2), 150–159. https://doi.org/10.1080/09638280701195462
   PubMed Web of Science ®Google Scholar
• Evenson, E., Rhodes, J., Feigenbaum, J., & Solly, A. (2008). The experiences of fathers with psychosis. Journal of Mental Health, 17(6), 629–642. https://doi.org/10.1080/09638230701506259
   Web of Science ®Google Scholar
• Fletcher, A. J. (2017). Applying critical realism in qualitative research: Methodology meets method. International Journal of Social Research Methodology, 20(2), 181–194. https://doi.org/10.1080/13645579.2016.1144401
   Web of Science ®Google Scholar
• Freeman, A., Adams, M., & Ashworth, F. (2015). An exploration of the experience of self in the social world for men following traumatic brain injury. Neuropsychological Rehabilitation, 25(2), 189–215. https://doi.org/10.1080/09602011.2014.917686
   PubMed Web of Science ®Google Scholar
• Gill, C. J., Sander, A. M., Robins, N., Mazzei, D. K., & Struchen, M. A. (2011). Exploring experiences of intimacy from the viewpoint of individuals with traumatic brain injury and their partners. Journal of Head Trauma Rehabilitation, 26(1), 56–68. https://doi.org/10.1097/HTR.0b013e3182048ee9
   PubMed Web of Science ®Google Scholar
• Gracey, F., Evans, J. J., & Malley, D. (2009). Capturing process and outcome in complex rehabilitation interventions: A “Y-shaped” model. Neuropsychological Rehabilitation, 19(6), 867–890. https://doi.org/10.1080/09602010903027763
   PubMed Web of Science ®Google Scholar
• Gracey, F., Palmer, S., Rous, B., Psaila, K., Shaw, K., O’Dell, J., Cope, J., & Mohamed, S. (2008). ‘Feeling part of things’: Personal construction of self after brain injury. Neuropsychological Rehabilitation, 18(5–6), 627–650. https://doi.org/10.1080/09602010802041238
   PubMed Web of Science ®Google Scholar
• Gutman, S. A., & Napier-Klemic, J. (1996). The experience of head injury on the impairment of gender identity and gender role. American Journal of Occupational Therapy, 50(7), 535–544. https://doi.org/10.5014/ajot.50.7.535
   PubMed Web of Science ®Google Scholar
• Harper, D. (2012). Choosing a qualitative research method. In D. Harper & A. R. Thompson (Eds.), Qualitative research methods in mental health and psychotherapy: A guide for students and practitioners (pp. 83–97). John Wiley & Sons Ltd.
   Google Scholar
• Headway. (2017). Brain injury statistics. https://www.headway.org.uk/brain-injury-statistics.aspx
   Google Scholar
• Hermansen, S., Croninger, B., & Croninger, S. (2015). Exploring the role of modern-day fatherhood. Work, 50(3), 495–500. https://doi.org/10.3233/WOR-141955
   PubMedGoogle Scholar
• Holloway, I., & Freshwater, D. (2007). Vulnerable story telling: Narrative research in nursing. Journal of Research in Nursing, 12(6), 703–711. https://doi.org/10.1177/1744987107084669
   Google Scholar
• Holloway, M., & Tyrrell, L. (2016). Acquired brain injury, parenting, social work, and rehabilitation: Supporting parents to support their children. Journal of Social Work in Disability & Rehabilitation, 15(3–4), 234–259. https://doi.org/10.1080/1536710X.2016.1220883
   PubMed Web of Science ®Google Scholar
• Hoskins, M., & Leseho, J. (1996). Changing metaphors of the self: Implications for counseling. Journal of Counseling & Development, 74(3), 243–252. https://doi.org/10.1002/j.1556-6676.1996.tb01860.x
   Web of Science ®Google Scholar
• Hyder, A. A., Wunderlich, C. A., Puvanachandra, P., Gururaj, G., & Kobusingye, O. C. (2007). The impact of traumatic brain injuries: A global perspective. NeuroRehabilitation – An Interdisciplinary Journal, 22(5), 341–354. doi:10.3233/nre-2007-22502
   PubMed Web of Science ®Google Scholar
• Jacobsson, L. J., Westerberg, M., & Lexell, J. (2010). Health-related quality-of-life and life satisfaction 6–15 years after traumatic brain injuries in northern Sweden. Brain Injury, 24(9), 1075–1086. https://doi.org/10.3109/02699052.2010.494590
   PubMed Web of Science ®Google Scholar
• Jones, J. A., & Curtin, M. (2011). Reformulating masculinity: Traumatic brain injury and the gendered nature of care and domestic roles. Disability and Rehabilitation, 33(17–18), 1568–1578. https://doi.org/10.3109/09638288.2010.537803
   PubMed Web of Science ®Google Scholar
• Kingerlee, R. (2012). Conceptualizing men: A transdiagnostic model of male distress. Psychology and Psychotherapy: Theory, Research and Practice, 85(1), 83–99. https://doi.org/10.1111/j.2044-8341.2011.02017.x
   PubMed Web of Science ®Google Scholar
• Kingerlee, R., Precious, D., Sullivan, L., & Barry, J. (2014). Engaging with the emotional lives of men. The Psychologist, 27(6), 418–421.
   Web of Science ®Google Scholar
• Klinger, L. (2005). Occupational adaptation: Perspectives of people with traumatic brain injury. Journal of Occupational Science, 12(1), 9–16. https://doi.org/10.1080/14427591.2005.9686543
   Google Scholar
• Kreutzer, J. S., Mills, A., & Marwitz, J. H. (2016). Ambiguous loss and emotional recovery after traumatic brain injury. Journal of Family Theory & Review, 8(3), 386–397. https://doi.org/10.1111/jftr.12150
   Web of Science ®Google Scholar
• Larkin, M., Watts, S., & Clifton, E. (2006). Giving voice and making sense in interpretative phenomenological analysis. Qualitative Research in Psychology, 3(2), 102–120. https://doi.org/10.1191/1478088706qp062oa
   Google Scholar
• Leinonen, J. A., Solantaus, T. S., & Punamäki, R. L. (2003). Parental mental health and children’s adjustment: The quality of marital interaction and parenting as mediating factors. Journal of Child Psychology and Psychiatry, 44(2), 227–241. https://doi.org/10.1111/1469-7610.t01-1-00116
   PubMed Web of Science ®Google Scholar
• Levack, W. M. M., Kayes, N. M., & Fadyl, J. K. (2010). Experience of recovery and outcome following traumatic brain injury: A metasynthesis of qualitative research. Disability and Rehabilitation, 32(12), 986–999. https://doi.org/10.3109/09638281003775394
   PubMed Web of Science ®Google Scholar
• Lundwall, R. A. (2002). Parents’ perceptions of the impact of their chronic illness or disability on their functioning as parents and on their relationships with their children. The Family Journal, 10(3), 300–307. https://doi.org/10.1177/10680702010003006
   Google Scholar
• MacQueen, R., Fisher, P., & Williams, D. (2020). A qualitative investigation of masculine identity after traumatic brain injury. Neuropsychological Rehabilitation, 30(2), 298–314. https://doi.org/10.1080/09602011.2018.1466714
   PubMed Web of Science ®Google Scholar
• Masel, B. E., & Dewitt, D. S. (2010). Traumatic brain injury: A disease process, not an event. Journal of Neurotrauma, 27(8), 1529–1540. https://doi.org/10.1089/neu.2010.1358
   PubMed Web of Science ®Google Scholar
• Morriss, E., Wright, S., Smith, S., Roser, J., & Kendall, M. (2013). Parenting challenges and needs for fathers following acquired brain injury (ABI) in Queensland, Australia: A preliminary model. The Australian Journal of Rehabilitation Counselling, 19(2), 119–134. https://doi.org/10.1017/jrc.2013.15
   Google Scholar
• Muenchberger, H., Kendall, E., & Neal, R. (2008). Identity transition following traumatic brain injury: A dynamic process of contraction, expansion and tentative balance. Brain Injury, 22(12), 979–992. https://doi.org/10.1080/02699050802530532
   PubMed Web of Science ®Google Scholar
• Nochi, M. (1998). “Loss of self” in the narratives of people with traumatic brain injuries: A qualitative analysis. Social Science & Medicine, 46(7), 869–878. https://doi.org/10.1016/S0277-9536(97)00211-6
   PubMed Web of Science ®Google Scholar
• Ownsworth, T. (2014). Self-identity after brain injury. Psychology Press.
   Google Scholar
• Ownsworth, T., & Haslam, C. (2016). Impact of rehabilitation on self-concept following traumatic brain injury: An exploratory systematic review of intervention methodology and efficacy. Neuropsychological Rehabilitation, 26(1), 1–35. https://doi.org/10.1080/09602011.2014.977924
   PubMed Web of Science ®Google Scholar
• Paterson, B., & Scott-Findlay, S. (2002). Critical issues in interviewing people with traumatic brain injury. Qualitative Health Research, 12(3), 399–409. https://doi.org/10.1177/104973202129119973
   PubMed Web of Science ®Google Scholar
• Ponsford, J., Kelly, A., & Couchman, G. (2014). Self-concept and self-esteem after acquired brain injury: A control group comparison. Brain Injury, 28(2), 146–154. https://doi.org/10.3109/02699052.2013.859733
   PubMed Web of Science ®Google Scholar
• Powell, T., Ekin-Wood, A., & Collin, C. (2007). Post-traumatic growth after head injury: A long-term follow-up. Brain Injury, 21(1), 31–38. https://doi.org/10.1080/02699050601106245
   PubMed Web of Science ®Google Scholar
• Rane, T. R., & McBride, B. A. (2000). Identity theory as a guide to understanding fathers’ involvement with their children. Journal of Family Issues, 21(3), 347–366. https://doi.org/10.1177/019251300021003004
   Web of Science ®Google Scholar
• Ruppen, J., Waldvogel, P., & Ehlert, U. (2016). Implicit motives and men’s perceived constraint in fatherhood. Frontiers in Psychology, 7, 1856. https://doi.org/10.3389/fpsyg.2016.01856
   PubMed Web of Science ®Google Scholar
• Saunders, B., Sim, J., Kingstone, T., Baker, S., Waterfield, J., Bartlam, B., Burroughs, H., & Jinks, C. (2018). Saturation in qualitative research: Exploring its conceptualization and operationalization. Quality & Quantity, 52(4), 1893–1907. https://doi.org/10.1007/s11135-017-0574-8
   PubMed Web of Science ®Google Scholar
• Seidler, V. (2006). Transforming masculinities: Men, culture, bodies, power, sex and love. Routledge.
   Google Scholar
• Simpson, G., Mohr, R., & Redman, A. (2000). Cultural variations in the understanding of traumatic brain injury and brain injury rehabilitation. Brain Injury, 14(2), 125–140. https://doi.org/10.1080/026990500120790
   PubMed Web of Science ®Google Scholar
• Smith, J. A. (2011). Evaluating the contribution of interpretative phenomenological analysis. Health Psychology Review, 5(1), 9–27. https://doi.org/10.1080/17437199.2010.510659
   Web of Science ®Google Scholar
• Smith, J. A., Flowers, P., & Larkin, M. (2009). Interpretative phenomenological analysis: Theory, method and research. Sage.
   Google Scholar
• Smith, L. M., & Godfrey, H. P. D. (1995). Family support programs and rehabilitation: A cognitive–behavioural approach to traumatic brain injury. Plenum.
   Google Scholar
• Smith, J. A., & Osborn, M. (2003). Interpretative phenomenological analysis. In J. A. Smith (Ed.), Qualitative psychology: A practical guide to research methods (pp. 51–80). Sage Publications, Inc.
   Google Scholar
• Turner-Stokes, L., Pick, A., Nair, A., Disler, P. B., & Wade, D. T. (2015). Multi-disciplinary rehabilitation for acquired brain injury in adults of working age. Cochrane Database of Systematic Reviews, 12. doi:10.1002/14651858.cd004170.pub3
   Google Scholar
• Uysal, S., Hibbard, M. R., Robillard, D., Pappadopulos, E., & Jaffe, M. (1998). The effect of parental traumatic brain injury on parenting and child behaviour. Journal of Head Trauma Rehabilitation, 13(6), 57–71. https://doi.org/10.1097/00001199-199812000-00007
   PubMed Web of Science ®Google Scholar
• Vasileiou, K., Barnett, J., Thorpe, S., & Young, T. (2018). Characterising and justifying sample size sufficiency in interview-based studies: Systematic analysis of qualitative health research over a 15-year period. BMC Medical Research Methodology, 18(1), 148. https://doi.org/10.1186/s12874-018-0594-7
   PubMed Web of Science ®Google Scholar
• Weatherhead, S., & Newby, G. (2008). Supporting dads: A parenting programme for fathers with an acquired brain injury. In Clinical Psychology forum (Vol. 182, No. 1, pp. 36–39). British Psychological Society. ISSN 0269-0144
   Google Scholar
• Whiffin, C. J., Ellis-Hill, C., Bailey, C., Jarrett, N., & Hutchinson, P. J. (2017). We are not the same people we used to be: An exploration of family biographical narratives and identity change following traumatic brain injury. Neuropsychological Rehabilitation, 29(8), 1256–1272. doi:10.1080/09602011.2017.1387577
   PubMed Web of Science ®Google Scholar
• Yardley, L. (2000). Dilemmas in qualitative health research. Psychology and Health, 15(2), 215–228. https://doi.org/10.1080/08870440008400302
   Web of Science ®Google Scholar