540
Views
5
CrossRef citations to date
0
Altmetric
ARTICLES

Towards ethically sound participatory research with marginalised populations: experiences from India

Pages 1168-1175 | Received 25 May 2010, Accepted 20 Sep 2010, Published online: 30 Nov 2011

References

  • Brehony, E., 2000. Whose practice counts? Experiences in using indigenous health practices from Ethiopia to Uganda, Development in Practice 10 (5) (2000), pp. 650–61.
  • CIHR (Canadian Institute for Health Research), 2007. CIHR Guidelines for Health Research Involving Aboriginal People. Ottawa: CIHR; 2007.
  • Centre for Development Studies, 2009. "Kottathara Panchayat Human Development Report". Thiruvananthapuram: Government of Kerala; 2009.
  • Chambers, R., 1997. Whose Reality Counts: Putting the First Last. London: Intermediate Technology; 1997.
  • Dickert, B. A., and Sugarman, J., 2005. Ethical goals of community consultation in research, American Journal of Public Health 95 (2005), pp. 1123–1127.
  • Gbadegesin, S., and Wendler, D., 2006. Protecting communities in health research from exploitation, Bioethics 20 (2006), pp. 248–53.
  • Indian Council on Medical Research, 2000. Ethical Guidelines on Biomedical Research Involving Human Subjects. New Delhi: Indian Council on Medical Research; 2000.
  • Kapoor, I., 2002. The devil's in the theory: a critical assessment of Robert Chambers' work on participatory development, Third World Quarterly 23 (2002), pp. 101–17.
  • Lurie, P., and Wolfe, S., 1997. Unethical trials of interventions to reduce perinatal transmission of the Human Immunodeficiency Virus in developing countries, New England Journal of Medicine 337 (1997), pp. 853–6.
  • Macaulay, A. C., Delormier, T., McComber, A., Cross, E., Potvin, L., Paradis, G., Kirby, R., Saad-Haddad, C., and Desroisiers, S., 1998. Participatory research with native community of Kahnawake creates innovative code of research ethics, Canadian Journal of Public Health 89 (1998), pp. 105–108.
  • Minkler, M., 1994. Ethical challenges for the “outside” researcher in community-based participatory research, Health Education & Behavior 31 (6) (1994), pp. 684–97.
  • Mohindra, K. S., Narayana, D., and Haddad, S., 2010a. 2010a, ‘“My story is like a goat tied to a hook”. Views from a marginalized tribal group in Kerala (India) on the consequences of falling ill: a participatory poverty and health assessment’, Journal of Epidemiology and Community Health 64 (6): 488–94.
  • Mohindra, K. S., Narayana, D., and Haddad, S., 2010b. 2010b, ‘Paniya voices: a participatory poverty and health assessment among a marginalized south Indian tribal population’, BMC Public Health 10: 14.
  • Narayan, D., Chambers, R., Shah, M. K., and Petesch, P., 2000. Voices of the Poor: Crying out for Change. Washington, DC: World Bank; 2000.
  • Weijer, C., 1999. Protecting communities in research: philosophical and pragmatic challenges, Cambridge Quarterly of Healthcare Ethics 8 (1999), pp. 501–13.

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.