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Editorial

A role for lived experience mental health leadership in the age of Covid-19

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Pages 243-246 | Received 21 Apr 2020, Accepted 04 May 2020, Published online: 23 May 2020

References

  • Australian Government. (2020, March 29). $1.1 billion to support more mental health, Medicare and domestic violence services. Commonwealth of Australia. https://www.health.gov.au/news/11-billion-to-support-more-mental-health-medicare-and-domestic-violence-services.
  • BBC News (Producer). (2020, April 14, 16/04/2020). Extra funding to tackle mental health impact of lockdown. https://www.bbc.com/news/uk-scotland-52280857
  • Byrne, L., Roper, C., Happell, B., & Reid-Searl, K. (2019). The stigma of identifying as having a lived experience runs before me: challenges for lived experience roles. Journal of Mental Health (Abingdon, England)), 28(3), 260–266. https://doi.org/10.1080/09638237.2016.1244715
  • Carey, B. (2020, February 25). Mental-health researchers ask: What is ‘recovery’? The New York Times. https://www.nytimes.com/2020/02/25/health/mental-health-depression-recovery.html
  • Carr, S. (In Press). AI gone mental. Journal of Mental Health (Abingdon, England), 29(2), 125–130. https://doi.org/10.1080/09638237.2020.1714011
  • Daya, I., Hamilton, B., & Roper, C. (2020). Authentic engagement: A conceptual model for welcoming diverse and challenging consumer and survivor views in mental health research, policy, and practice. International Journal of Mental Health Nursing, 29(2), 299–311. https://doi.org/10.1111/inm.12653
  • Deegan, P. (1996, September 16). Recovery and the conspiracy of hope [Paper presentation]. “There’s a Person in Here”: The Sixth Annual Mental Health Services Conference of Australia and New Zealand, Brisbane, Australia. http://www.bu.edu/resilience/examples/deegan-recovery-hope.pdf
  • Farr, M., Pithara, C., Sullivan, S., Edwards, H., Hall, W., Gadd, C., Walker, J., Hebden, N., & Horwood, J. (2019). Pilot implementation of co-designed software for co-production in mental health care planning: a qualitative evaluation of staff perspectives. Journal of Mental Health (Abingdon, England)), 28(5), 495–504. https://doi.org/10.1080/09638237.2019.1608925
  • Gillard, S., Foster, R., Gibson, S., Goldsmith, L., Marks, J., & White, S. (2017). Describing a principles-based approach to developing and evaluating peer worker roles as peer support moves into mainstream mental health services. Mental Health and Social Inclusion, 21(3), 133–143. https://doi.org/10.1108/MHSI-03-2017-0016
  • Gillard, S., Holley, J., Gibson, S., Larsen, J., Lucock, M., Oborn, E., Rinaldi, M., & Stamou, E. (2015). Introducing new peer worker roles into mental health services in England: Comparative case study research across a range of organizational contexts. Administration and Policy in Mental Health, 42(6), 682–694. https://doi.org/10.1007/s10488-014-0603-z
  • Happell, B., Bennetts, W., Harris, S., Platania-Phung, C., Tohotoa, J., Byrne, L., & Wynaden, D. (2015). Lived experience in teaching mental health nursing: Issues of fear and power. International Journal of Mental Health Nursing, 24(1), 19–27. https://doi.org/10.1111/inm.12091
  • Happell, B., Bennetts, W., Tohotoa, J., Wynaden, D., & Platania-Phung, C. (2019). Promoting recovery-oriented mental health nursing practice through consumer participation in mental health nursing education. Journal of Mental Health (Abingdon, England)), 28(6), 633–639. https://doi.org/10.1080/09638237.2017.1294734
  • Happell, B., Gordon, S., Bocking, J., Ellis, P., Roper, C., Liggins, J., Scholz, B., & Platania-Phung, C. (2019). "Chipping away": Non-consumer researcher perspectives on barriers to collaborating with consumers in mental health research. Journal of Mental Health (Abingdon, England)), 28(1), 49–55. https://doi.org/10.1080/09638237.2018.1466051
  • Holmes, E. A., O’Connor, R. C., Perry, V. H., Tracey, I., Wessely, S., Arseneault, L, & Bullmore, E. (2020). Multidisciplinary research priorities for the COVID-19 pandemic: A call for action for mental health science. Lancet Psychiatry. https://doi.org/10.1016/S2215-0366(20)30168-1
  • Jackson, F., & Fong, T. (2017). Why not a peer worker. Mental Health and Social Inclusion, 21(3), 176–183. https://doi.org/10.1108/MHSI-03-2017-0018
  • Jones, N., Teague, G. B., Wolf, J., & Rosen, C. (2020). Organizational climate and support among peer specialists working in peer-run, hybrid and conventional mental health settings. Administration and Policy in Mental Health and Health, 47(1), 150–167. https://doi.org/10.1007/s10488-019-00980-9
  • McCabe, R., Whittington, R., Cramond, L., & Perkins, E. (2018). Contested understandings of recovery in mental health. Journal of Mental Health (Abingdon, England)), 27(5), 475–481. https://doi.org/10.1080/09638237.2018.1466037
  • Mead, S., Kuno, E., & Knutson, S. (2013). Intentional peer support. Vertex (Buenos Aires, Argentina), 24(112), 426–433.
  • Mead, S., & MacNeil, C. (2006). Peer support: What makes it unique? International Journal of Psychosocial Rehabilitation, 10(2), 29–37.
  • Mulfinger, N., Rusch, N., Bayha, P., Muller, S., Boge, I., Sakar, V., & Krumm, S. (2019). Secrecy versus disclosure of mental illness among adolescents: I. The perspective of adolescents with mental illness. Journal of Mental Health (Abingdon, England)), 28(3), 296–303. https://doi.org/10.1080/09638237.2018.1487535
  • NHS England. (2017). Patient and public involvement policy. NHS England. https://www.england.nhs.uk/publication/patient-and-public-participation-policy/
  • Ocloo, J., & Matthews, R. (2016). From tokenism to empowerment: Progressing patient and public involvement in healthcare improvement. BMJ Quality & Safety, 25(8), 626–632. https://doi.org/10.1136/bmjqs-2015-004839
  • Pinfold, V., Cotney, J., Hamilton, S., Weeks, C., Corker, E., Evans-Lacko, S., Rose, D., Henderson, C., & Thornicroft, G. (2019). Improving recruitment to healthcare research studies: Clinician judgements explored for opting mental health service users out of the time to change viewpoint survey. Journal of Mental Health (Abingdon, England)), 28(1), 42–48. https://doi.org/10.1080/09638237.2017.1340598
  • Robertson, S., Carpenter, D., Donovan-Hall, M., & Bartlett, R. (2019). Using lived experience to develop a personal narrative workshop programme in order to aid mental health recovery. Journal of Mental Health. Advance online publication. https://doi.org/10.1080/09638237.2019.1677877
  • Robotham, D., Wykes, T., Rose, D., Doughty, L., Strange, S., Neale, J., & Hotopf, M. (2016). Service user and carer priorities in a Biomedical Research Centre for mental health. Journal of Mental Health (Abingdon, England)), 25(3), 185–188. https://doi.org/10.1080/09638237.2016.1181299
  • Roennfeldt, H., & Byrne, L. (In Press). Skin in the game: The professionalisation of lived experience roles in mental health [Paper presentation]. Professional Futures Conference: Challenges and opportunities for 21st century professions, Gold Coast, Australia.
  • Rose, D. (2014). The mainstreaming of recovery. Journal of Mental Health (Abingdon, England)), 23(5), 217–218. https://doi.org/10.3109/09638237.2014.928406
  • Sweeney, A., & Taggart, D. (2018). (Mis)understanding trauma-informed approaches in mental health. Journal of Mental Health (Abingdon, England)), 27(5), 383–387. https://doi.org/10.1080/09638237.2018.1520973
  • The National Institue for Health and Care Excellence. (2013). Patient and public involvement policy. The National Institue for Health and Care Excellence. https://www.nice.org.uk/about/nice-communities/nice-and-the-public/public-involvement/public-involvement-programme/patient-public-involvement-policy
  • Twamley, I., Dempsey, M., & Keane, N. (2020). An open dialogue-informed approach to mental health service delivery: experiences of service users and support networks. Journal of Mental Health. Advance online publication. https://doi.org/10.1080/09638237.2020.1739238
  • van der Kolk, B. A. (2014). The body keeps the score: Brain, mind, and body in the healing of trauma. Penguin.
  • Webber, M., Treacy, S., Carr, S., Clark, M., & Parker, G. (2014). The effectiveness of personal budgets for people with mental health problems: a systematic review. Journal of Mental Health (Abingdon, England)), 23(3), 146–155. https://doi.org/10.3109/09638237.2014.910642
  • Wykes, T., Sweeney, A., & Guha, M. (2019). Can we trust observational data? Keeping bias in mind. Journal of Mental Health (Abingdon, England)), 28(6), 579–582. https://doi.org/10.1080/09638237.2019.1685083

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