410
Views
2
CrossRef citations to date
0
Altmetric
Reviews

Family involvement to support cardiovascular self-management care for people with severe mental illness: a systematic review

ORCID Icon, , & ORCID Icon
Pages 290-306 | Received 23 Apr 2020, Accepted 25 Aug 2020, Published online: 14 Sep 2020

References

  • ABS. (2008). A profile of carers in Australia (4448). Australian Bureau of Statistics.
  • ABS. (2013). Disability, ageing and caregivers. Australia: Summary of findings, 2012. (4430). Canberra: Australian Bureau of Statistics. Retrieved from https://www.abs.gov.au/ausstats/[email protected]/mf/4430.0
  • Aschbrenner, K., Mueser, K. T., Naslund, J. A., Gorin, A. A., Kinney, A., Daniels, L., & Bartels, S. J. (2016). Feasibility study of increasing social support to enhance a healthy lifestyle intervention for individuals with serious mental illness. Journal of the Society for Social Work and Research, 7(2), 289–313. https://doi.org/10.1086/686486
  • Aschbrenner, K. A., Naslund, J. A., Gill, L., Bartels, S. J., O’Malley, A. J., & Brunette, M. F. (2017). Preferences for smoking cessation support from family and friends among adults with serious mental illness. The Psychiatric Quarterly, 88(4), 701–710. https://doi.org/10.1007/s11126-016-9485-4
  • Aschbrenner, K., Pepin, R., Mueser, K. T., Naslund, J. A., Rolin, S. A., Faber, M. J., & Bartels, S. J. (2014). A mixed methods exploration of family involvement in medical care for older adults with serious mental illness. International Journal of Psychiatry in Medicine, 48(2), 121–133. https://doi.org/10.2190/PM.48.2.e
  • Bailey, J., Hansen, V., Wye, P. M., Wiggers, J. H., Bartlem, K. M., & Bowman, J. A. (2018). Supporting change in chronic disease risk behaviours for people with a mental illness: a qualitative study of the experiences of family carers. BMC Public Health, 18(1), 416https://doi.org/10.1186/s12889-018-5314-z
  • Bailey, J., Wye, P. M., Wiggers, J. H., Bartlem, K. M., & Bowman, J. A. (2017). Family carers: A role in addressing chronic disease risk behaviours for people with a mental illness? Preventive Medicine Reports, 7, 140–146. https://doi.org/10.1016/j.pmedr.2017.05.014
  • Bangerter, L. R., Griffin, J. M., & Dunlay, S. M. (2019). Positive experiences and self-gain among family caregivers of persons with heart failure. The Gerontologist, 59(5), e433–e440. https://doi.org/10.1093/geront/gny162
  • Bell, J. F., Whitney, R. L., & Young, H. M. (2019). Family caregiving in serious illness in the United States: Recommendations to support an invisible workforce. Journal of the American Geriatrics Society, 67(S2), S451–S456. https://doi.org/10.1111/jgs.15820
  • Brooks, H. L., Bee, P., Lovell, K., & Rogers, A. (2020). Negotiating support from relationships and resources: A longitudinal study examining the role of personal support networks in the management of severe and enduring mental health problems. BMC Psychiatry, 20(1), 50. https://doi.org/10.1186/s12888-020-2458-z
  • Chen, L., Zhao, Y., Tang, J., Jin, G., Liu, Y., Zhao, X., Chen, C., & Lu, X. (2019). The burden, support and needs of primary family caregivers of people experiencing schizophrenia in Beijing communities: A qualitative study. BMC Psychiatry, 19(1), 75. https://doi.org/10.1186/s12888-019-2052-4
  • Christakis, N. A., & Fowler, J. H. (2008). The collective dynamics of smoking in a large social network. New England Journal of Medicine, 358(21), 2249–2258. https://doi.org/10.1056/NEJMsa0706154
  • Davidson, P. M., Abshire, M. A., Paull, G., & Szanton, S. L. (2018). Family caregivers: Important but often poorly understood. Journal of Clinical Nursing, 27(23–24), 4242–4244. https://doi.org/10.1111/jocn.14654
  • DE Hert, M., Correll, C. U., Bobes, J., Cetkovich-Bakmas, M., Cohen, D., Asai, I., Detraux, J., Gautam, S., Möller, H.-J., Ndetei, D. M., Newcomer, J. W., Uwakwe, R., & Leucht, S. (2011). Physical illness in patients with severe mental disorders. I. Prevalence, impact of medications and disparities in health care. World Psychiatry: Official Journal of the World Psychiatric Association, 10(1), 52–77. https://doi.org/10.1002/j.2051-5545.2011.tb00014.x
  • Diminic, S., Hielscher, E., Lee, Y. Y., Harris, M., Schess, J., Kealton, J., & Whiteford, H. (2017). The economic value of informal mental health caring in Australia. MIND Australia.
  • England-Kennedy, E. S., & Horton, S. (2011). Everything that I thought that they would be, they weren’t:” Family systems as support and impediment to recovery. Social Science & Medicine, 73(8), 1222–1229. https://doi.org/10.1016/j.socscimed.2011.07.006
  • Happell, B., Wilson, K., Platania‐Phung, C., & Stanton, R. (2017). Filling the gaps and finding our way: Family carers navigating the healthcare system to access physical health services for the people they care for. Journal of Clinical Nursing, 26(13–14), 1917–1926. https://doi.org/10.1111/jocn.13505
  • Harvey, C., & O’Hanlon, B. (2013). Family psycho-education for people with schizophrenia and other psychotic disorders and their families. The Australian and New Zealand Journal of Psychiatry, 47(6), 516–520. https://doi.org/10.1177/0004867413476754
  • Hayes, J. F., Marston, L., Walters, K., King, M. B., & Osborn, D. P. (2017). Mortality gap for people with bipolar disorder and schizophrenia: UK-based cohort study 2000–2014. The British Journal of Psychiatry: The Journal of Mental Science, 211(3), 175–181. https://doi.org/10.1192/bjp.bp.117.202606
  • Hielscher, E., Diminic, S., Kealton, J., Harris, M., Lee, Y. Y., & Whiteford, H. (2019). Hours of care and caring tasks performed by Australian carers of adults with mental illness: Results from an online survey. Community Mental Health Journal, 55(2), 279–295. https://doi.org/10.1007/s10597-018-0244-x
  • Hill, H., Killaspy, H., Ramachandran, P., Ng, R. M. K., Bulman, N., & Harvey, C. (2019). A structured review of psychiatric rehabilitation for individuals living with severe mental illness within three regions of the Asia‐Pacific: implications for practice and policy. Asia-Pacific Psychiatry: Official Journal of the Pacific Rim College of Psychiatrists, 11(2), e12349. https://doi.org/10.1111/appy.12349
  • Hong, Q. N., Fàbregues, S., Bartlett, G., Boardman, F., Cargo, M., Dagenais, P., Gagnon, M.-P., Griffiths, F., Nicolau, B., O’Cathain, A., Rousseau, M.-C., Vedel, I., & Pluye, P. (2018). The Mixed Methods Appraisal Tool (MMAT) version 2018 for information professionals and researchers. Education for Information, 34(4), 285–291. https://doi.org/10.3233/EFI-180221
  • Keefe, R. S., & Harvey, P. D. (2012). Cognitive impairment in schizophrenia. In Novel antischizophrenia treatments (pp. 11–37). Springer.
  • Kemp, V., Fisher, C., Lawn, S., Battersby, M., & Isaac, M. K. (2014). Small steps: Barriers and facilitators to physical health self-management by people living with mental illness. International Journal of Mental Health Promotion, 16(4), 216–230. https://doi.org/10.1080/14623730.2014.931069
  • Knowles, S., Combs, R., Kirk, S., Griffiths, M., Patel, N., & Sanders, C. (2016). Hidden caring, hidden carers? Exploring the experience of carers for people with long‐term conditions. Health & Social Care in the Community, 24(2), 203–213. https://doi.org/10.1111/hsc.12207
  • Laursen, T. M., Munk-Olsen, T., & Vestergaard, M. (2012). Life expectancy and cardiovascular mortality in persons with schizophrenia. Current Opinion in Psychiatry, 25(2), 83–88. https://doi.org/10.1097/YCO.0b013e32835035ca
  • Lawn, S., McNaughton, D., & Fuller, L. (2015). What carers of family members with mental illness say, think and do about their relative’s smoking and the implications for health promotion and service delivery: A qualitative study. International Journal of Mental Health Promotion, 17(5), 261–277. https://doi.org/10.1080/14623730.2015.1080462
  • Lawn, S., Zabeen, S., Rowlands, N., & Picot, S. (2018). Hidden care: Revelations of a case‐note audit of physical health care in a community mental health service. International Journal of Mental Health Nursing, 27(6), 1742–1755. https://doi.org/10.1111/inm.12479
  • Lawrence, D., Hancock, K. J., & Kisely, S. (2013). The gap in life expectancy from preventable physical illness in psychiatric patients in Western Australia: Retrospective analysis of population based registers. BMJ, 346, f2539. https://doi.org/10.1136/bmj.f2539
  • Liberati, A., Altman, D. G., Tetzlaff, J., Mulrow, C., Gøtzsche, P. C., Ioannidis, J. P., & Moher, D. (2009). The PRISMA statement for reporting systematic reviews and meta-analyses of studies that evaluate health care interventions: Explanation and elaboration. Annals of Internal Medicine, 151(4), W94. https://doi.org/10.7326/0003-4819-151-4-200908180-00136
  • Miller, S. A., & Forrest, J. L. (2001). Enhancing your practice through evidence-based decision making: PICO, learning how to ask good questions. The Journal of Evidenced-Based Dental Practice, 1(2), 136–141. https://doi.org/10.1067/med.2001.118720
  • Muir‐Cochrane, E., Lawn, S., Coveney, J., Zabeen, S., Kortman, B., & Oster, C. (2019). Recovery college as a transition space in the journey towards recovery: An Australian qualitative study. Nursing & Health Sciences, 21(4), 523–530. https://doi.org/10.1111/nhs.12637
  • Onwumere, J., Howes, S., Shiers, D., & Gaughran, F. (2018). Physical health problems in people with psychosis: The issue for informal carers. The International Journal of Social Psychiatry, 64(4), 381–388. https://doi.org/10.1177/0020764018763684
  • Poon, A., Harvey, C., Mackinnon, A., & Joubert, L. (2017). A longitudinal population-based study of carers of people with psychosis. Epidemiology and Psychiatric Sciences, 26(3), 265–275. https://doi.org/10.1017/S2045796015001195
  • Salehi, A., Ehrlich, C., Kendall, E., & Sav, A. (2019). Bonding and bridging social capital in the recovery of severe mental illness: A synthesis of qualitative research. Journal of Mental Health (Abingdon, England), 28(3), 331–339. https://doi.org/10.1080/09638237.2018.1466033
  • Sandelowski, M., & Barroso, J. (2006). Handbook for synthesizing qualitative research. Springer publishing company.
  • Siegloff, S., & Aroni, R. (2003). Mental illness and “self”-management in rural Australia: Caregivers’ perspectives. Australian Journal of Primary Health, 9(3), 90–99. https://doi.org/10.1071/PY03029
  • Small, N., Brooks, H., Grundy, A., Pedley, R., Gibbons, C., Lovell, K., & Bee, P. (2017). Understanding experiences of and preferences for service user and carer involvement in physical health care discussions within mental health care planning. BMC Psychiatry, 17(1), 138. https://doi.org/10.1186/s12888-017-1287-1
  • Whitehead, L., Jacob, E., Towell, A., Abu‐Qamar, M. e., & Cole‐Heath, A. (2018). The role of the family in supporting the self‐management of chronic conditions: A qualitative systematic review. Journal of Clinical Nursing, 27(1–2), 22–30. https://doi.org/10.1111/jocn.13775

Reprints and Corporate Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

To request a reprint or corporate permissions for this article, please click on the relevant link below:

Academic Permissions

Please note: Selecting permissions does not provide access to the full text of the article, please see our help page How do I view content?

Obtain permissions instantly via Rightslink by clicking on the button below:

If you are unable to obtain permissions via Rightslink, please complete and submit this Permissions form. For more information, please visit our Permissions help page.