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Original

The social experience of aging with a chronic illness: Perspectives of older adults with multiple sclerosis

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Pages 695-705 | Accepted 07 Jan 2005, Published online: 07 Jul 2009

References

  • Compston A, Coles A. Multiple sclerosis. The Lancet 2002; 359: 1221–1231
  • Pulaski K H. Adult neurological dysfunction. Willard and Spackman's Occupational Therapy, M E Neistadt, E B Crepeau. Lippincott-Raven Publishers, Philadelphia 1998; 660–680
  • National Multiple Sclerosis Society. Just the facts: 2003 – 2004. 2003, Available at: http://www.nationalmssociety.org/Brochures-Just%20the.asp. Retrieved on 22 September 2003
  • Selder F E, Breunig K A. Living with multiple sclerosis: The gradual transition. Loss Grief Care 1990; 4: 89–98
  • Wineman N M. Adaptation to multiple sclerosis: The role of social support, functional disability and perceived uncertainty. Nursing Res 1990; 39: 294–299
  • Gulick E E. Emotional distress and activities of daily living functioning in persons with multiple sclerosis. Nursing Res 2001; 50: 147–154
  • Hakim E A, Bakheit A MO, Bryant T N, Roberts M WH, McIntosh-Michaelis S A, Spackman A J, Martin J P, McLellan D L. The social impact of multiple sclerosis – a study of 305 patients and their relatives. Disab Rehab 2000; 22: 288–293
  • O'Brien M T. Multiple sclerosis: The role of social support and disability. Clin Nursing Res 1993; 2: 67–85
  • Miles A. Some psycho-social consequences of multiple sclerosis: Problems of social interaction and group identity. Br J Med Psychol 1979; 52: 321–331
  • Power P W. Family coping behaviors in chronic illness: A rehabilitation perspective. Rehab Lit 1985; 46: 78–83
  • Miller C M. The lived experience of relapsing multiple sclerosis: A phenomenological study. J Neurosci Neurol 1997; 29: 294–230
  • Dyck I, Jongbloed L. Women with multiple sclerosis and employment issues: A focus on social and institutional environments. Can J Occupat Ther 2000; 67: 337–346
  • Mohr D C, Dick L P, Russo D, Pinn J, Boudewyn A C, Likosky W, Goodkin D E. The psychosocial impact of multiple sclerosis: Exploring the patient's perspective. Health Psychol 1999; 18: 376–382
  • Finlayson M, Van Denend T. Experiencing the loss of mobility: Perspectives of older adults with multiple sclerosis. Disab Rehab 2003; 17: 47–61
  • Atchley R C. Social forces and aging: An introduction to social gerontology. Wadsworth Publishing Company, Belmont 1996
  • Crigger N J. Testing an uncertainty model for women with multiple sclerosis. Adv Nursing Sci 1996; 18: 37–47
  • Foote A W, Piazza D, Holcombe J, Paul P, Daffin P. Hope, self-esteem and social support in persons with multiple sclerosis. J Neurosci Nursing 1990; 22: 155–159
  • McIvor G P, Riklan M, Reznikoff M. Depression in multiple sclerosis as a function of length and severity of illness, age, remissions, and perceived social support. J Clin Psychol 1984; 40: 1028–1033
  • Lehman D R, Hemphill K J. Recipients' perceptions of support attempts and attributions for support attempts that fail. J Soc Personal Relationships 1990; 7: 563–574
  • Powers B A. Social support, social networks, and the problem of loneliness in elder care. Advances in gerontological nursing: Chronic illness and the older adult, E A Swanson, T Tripp-Reimer. Springer Publishing Company, New York 1997; 136–158
  • Finalyson M. Concerns about the future among persons with multiple sclerosis. Am J Occupat Ther 2004; 58: 54–63
  • Ritvo P G, Fischer J S, Miller D M, Andrews H, Paty D W, LaRocca N G. MSQLI-Multiple sclerosis Quality of Life Inventory: A user's manual. National Multiple Sclerosis Society, New York 1997
  • Fillenbaum C G. Multidimensional functional assessment of older adults: The Duke Older Americans Resources and Services procedures. Lawrence Erlbaum Associates, Hillsdale 1988
  • Muhr T. Atlas ti: User's manual and reference. Scientific Software Development, Berlin 1997; 1–306
  • Krefting L. Rigor in qualitative research: The assessment of trustworthiness. Am J Occupat Ther 1994; 45: 214–222
  • Miles M B, Huberman A M. Qualitative data analysis: An expanded sourcebook. Sage Publications, Thousand Oak 1994
  • Bryant L L, Corbett K K, Kutner J S. In their own words: A model of healthy aging. Soc Sci Med 2001; 53: 927–941
  • Loeb S J, Penrod J, Falkenstern S, Gueldner S H, Poon L W. Supporting older adults living with multiple chronic conditions. West J Nursing Res 2003; 25: 8–29
  • Chwastiak L, Ehde D, Gibbons L, Sullivan M, Bowen J, Kraft G. Depressive symptoms and severity of illness in multiple sclerosis: Epidemiologic study of a large community sample. Am J Psychiat 2002; 159: 1862–1868
  • Long D, Miller B. Suicidal tendency and multiple sclerosis. Health Soc Work 1991; 16: 104–110
  • McLaughlin C M. Community programs and resources for persons with multiple sclerosis. MS: Rehab Approach 1998; 9: 689–702
  • Sugar J A, Marinelli R D. Healthful aging: A social perspective. Activit Adaptation Aging 1997; 21: 1–11

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