Agreements and disagreements between children and their parents in health-related assessments

References

• Blakeley-Smith A, Reaven J, Ridge K, et al. Parent–child agreement of anxiety symptoms in youth with autism spectrum disorders. Res Autism Spectr Disord. 2012;6:707–716.
   Web of Science ®Google Scholar
• Upton P, Lawford J, Eiser C. Parent–child agreement across child health-related quality of life instruments: a review of the literature. Qual Life Res. 2008;17:895–913.
   PubMed Web of Science ®Google Scholar
• White-Koning M, Arnaud C, Dickinson HO, et al. Determinants of child–parent agreement in quality-of-life reports: a European study of children with cerebral palsy. Pediatrics. 2007;120:804–814.
   PubMed Web of Science ®Google Scholar
• Egilson ST, Ólafsdóttir LB, Leósdóttir T, et al. Quality of life in high-functioning children and youth with autism spectrum disorder and typically developing peers: self- and proxy-reports. Autism. 2016. [Epub ahead of print]. doi: 10.1177/1362361316630881.
   PubMed Web of Science ®Google Scholar
• Rajmil L, Lopez AR, Lopez-Aguila S, et al. Parent–child agreement on health-related quality of life (HRQOL): a longitudinal study. Health Qual Life Outcomes. 2013;11:101–111.
   PubMed Web of Science ®Google Scholar
• Cohen LL, Vowles KE, Eccleston C. Adolescent chronic pain-related functioning: concordance and discordance of mother-proxy and self-report ratings. Eur J Pain. 2010;14:882–886.
   PubMed Web of Science ®Google Scholar
• van der Ende J, Verhulst FC, Tiemeier H. Agreement of informants on emotional and behavioral problems from childhood to adulthood. Psychol Assess. 2012;24:293–300.
   PubMed Web of Science ®Google Scholar
• Van Roy B, Groholt B, Heyerdahl S, et al. Understanding discrepancies in parent–child reporting of emotional and behavioural problems: effects of relational and socio-demographic factors. BMC Psychiatry. 2010;10:56–68.
   PubMed Web of Science ®Google Scholar
• Varni JW, Burwinkle TM, Sherman SA, et al. Health-related quality of life of children and adolescents with cerebral palsy: hearing the voices of the children. Dev Med Child Neurol. 2005;47:592–597.
   PubMed Web of Science ®Google Scholar
• Klassen AF, Miller A, Fine S. Agreement between parent and child report of quality of life in children with attention-deficit/hyperactivity disorder. Child Care Health Dev. 2006;32:397–406.
   PubMed Web of Science ®Google Scholar
• Moher D, Liberati A, Tetzlaff J, et al. Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement. Int J Surg. 2010;8:336–341.
   PubMed Web of Science ®Google Scholar
• Aveyard H. Doing a literature review in health and social care: A practical guide. 2nd ed. Maidenhead: Open University Press; 2010.
   Google Scholar
• Eiser C, Morse R. Can parents rate their child's health-related quality of life? Results of a systematic review. Qual Life Res. 2001;10:347–357.
   PubMed Web of Science ®Google Scholar
• McGraw K, Wong S. Forming inferences about some intraclass correlation coefficients. Psychol Methods. 1996;1:30–46.
   Web of Science ®Google Scholar
• Sturms LM, van der Sluis CK, Groothoff JW, et al. Young traffic victims' long-term health-related quality of life: child self-reports and parental reports. Arch Phys Med Rehabil. 2003;84:431–436.
   PubMed Web of Science ®Google Scholar
• Landis JR, Koch GG. The measurement of observer agreement for categorical data. Biometrics. 1977;33:159–174.
   PubMed Web of Science ®Google Scholar
• Vroland-Nordstrand K, Krumlinde-Sundholm L. The perceived efficacy and goal setting system (PEGS), part II: evaluation of test-retest reliability and differences between child and parental reports in the Swedish version. Scand J Occup Ther. 2012;19:506–514.
   PubMed Web of Science ®Google Scholar
• Dey M, Landolt MA, Mohler-Kuo M. Assessing parent–child agreement in health-related quality of life among three health status groups. Soc Psychiatry Psychiatr Epidemiol. 2013;48:503–511.
   PubMed Web of Science ®Google Scholar
• Brunner HI, Klein-Gitelman MS, Miller MJ, et al. Health of children with chronic arthritis: relationship of different measures and the quality of parent proxy reporting. Arthritis Rheum. 2004;51:763–773.
   PubMed Web of Science ®Google Scholar
• Gutierrez-Colina AM, Eaton CK, Lee JL, et al. Health-related quality of life and psychosocial functioning in children with Tourette syndrome: parent–child agreement and comparison to healthy norms. J Child Neurol. 2015;30:326–332.
   PubMed Web of Science ®Google Scholar
• Murray CB, Holmbeck GN, Ros AM, et al. A longitudinal examination of health-related quality of life in children and adolescents with spina bifida. J Pediatr Psychol. 2015;40:419–430.
   PubMed Web of Science ®Google Scholar
• Yoo HJ, Ra YS, Park HJ, et al. Agreement between pediatric brain tumor patients and parent proxy reports regarding the pediatric functional assessment of cancer therapy-childhood brain tumor survivors questionnaire, version 2. Cancer. 2010;116:3674–3682.
   PubMed Web of Science ®Google Scholar
• Sheldrick RC, Neger EN, Shipman D, et al. Quality of life of adolescents with autism spectrum disorders: concordance among adolescents' self-reports, parents' reports, and parents' proxy reports. Qual Life Res. 2012;21:53–57.
   PubMed Web of Science ®Google Scholar
• Reuterskiöld L, Öst L-G, Ollendick T. Exploring child and parent factors in the diagnostic agreement on the anxiety disorders interview schedule. J Psychopathol Behav Assess. 2008;30:279–290.
   Web of Science ®Google Scholar
• Golubović S, Skrbić R. Agreement in quality of life assessment between adolescents with intellectual disability and their parents. Res Dev Disabil. 2013;34:1863–1869.
   PubMed Web of Science ®Google Scholar
• Frank SJ, Van Egeren LA, Fortier JL, et al. Structural, relative, and absolute agreement between parents' and adolescent inpatients' reports of adolescent functional impairment. J Abnorm Child Psychol. 2000;28:395–402.
   PubMed Web of Science ®Google Scholar
• Carlston D, Ogles B. Age, gender, and ethnicity effects on parent–child discrepancy using identical item measures. J Child Fam Stud. 2009;18:125–135.
   Web of Science ®Google Scholar
• Parsons SK, Fairclough DL, Wang J, et al. Comparing longitudinal assessments of quality of life by patient and parent in newly diagnosed children with cancer: the value of both raters' perspectives. Qual Life Res. 2012;21:915–923.
   PubMed Web of Science ®Google Scholar
• Morrow AM, Hayen A, Quine S, et al. A comparison of doctors', parents' and children's reports of health states and health-related quality of life in children with chronic conditions. Child Care Health Dev. 2012;38:186–195.
   PubMed Web of Science ®Google Scholar
• Kulkarni AV, Cochrane DD, McNeely PD, et al. Comparing children's and parents' perspectives of health outcome in paediatric hydrocephalus. Dev Med Child Neurol. 2008;50:587–592.
   PubMed Web of Science ®Google Scholar
• Janse AJ, Sinnema G, Uiterwaal CS, et al. Quality of life in chronic illness: children, parents and paediatricians have different, but stable perceptions. Acta Paediatr. 2008;97:1118–1124.
   PubMed Web of Science ®Google Scholar
• Chang PC, Yeh CH. Agreement between child self-report and parent proxy-report to evaluate quality of life in children with cancer. Psychooncology. 2005;14:125–134.
   PubMed Web of Science ®Google Scholar
• Baggott C, Cooper BA, Marina N, et al. Symptom assessment in pediatric oncology: how should concordance between children's and parents' reports be evaluated? Cancer Nurs. 2014;37:252–262.
   PubMed Web of Science ®Google Scholar
• Lim Y, Velozo C, Bendixen RM. The level of agreement between child self-reports and parent proxy-reports of health-related quality of life in boys with Duchenne muscular dystrophy. Qual Life Res. 2014;23:1945–1952.
   PubMed Web of Science ®Google Scholar
• Storch EA, Rudy BM, Wu MS, et al. Moderators of impairment agreement among parent–child dyads in pediatric obsessive-compulsive disorder. J Psychopathol Behav Assess. 2015;37:318–328.
   PubMed Web of Science ®Google Scholar
• Baxt C, Kassam-Adams N, Nance ML, et al. Assessment of pain after injury in the pediatric patient: child and parent perceptions. J Pediatr Surg. 2004;39:979–983.
   PubMed Web of Science ®Google Scholar
• Buck D, Clarke MP, Powell C, et al. Use of the PedsQL in childhood intermittent exotropia: estimates of feasibility, internal consistency reliability and parent–child agreement. Qual Life Res. 2012;21:727–736.
   PubMed Web of Science ®Google Scholar
• Feichtl RE, Rosenfeld B, Tallamy B, et al. Concordance of quality of life assessments following pediatric hematopoietic stem cell transplantation. Psychooncology. 2010;19:710–717.
   PubMed Web of Science ®Google Scholar
• Miller L, Marnane K, Ziviani J, et al. The dimensions of mastery questionnaire in school-aged children with congenital hemiplegia: test-retest reproducibility and parent–child concordance. Phys Occup Ther Pediatr. 2014;34:168–184.
   PubMed Web of Science ®Google Scholar
• Peny-Dahlstrand M, Krumlinde-Sundholm L, Gosman-Hedstrom G. Is autonomy related to the quality of performance of everyday activities in children with spina bifida? Disabil Rehabil. 2012;34:514–521.
   PubMed Web of Science ®Google Scholar
• Taylor RM, Grieve A, Gibson F, et al. Parental assessment of adolescent quality of life: can it replace self-assessment? Qual Life Res. 2011;20:1715–1720.
   PubMed Web of Science ®Google Scholar
• Zebracki K, Drotar D. Pain and activity limitations in children with Duchenne or Becker muscular dystrophy. Dev Med Child Neurol. 2008;50:546–552.
   PubMed Web of Science ®Google Scholar
• Canavera KE, Wilkins KC, Pincus DB, et al. Parent–child agreement in the assessment of obsessive-compulsive disorder. J Clin Child Adolesc Psychol. 2009;38:909–915.
   PubMed Web of Science ®Google Scholar
• Comer JS, Kendall PC. A symptom-level examination of parent–child agreement in the diagnosis of anxious youths. J Am Acad Child Adolesc Psychiatry. 2004;43:878–886.
   PubMed Web of Science ®Google Scholar
• Kramer TL, Phillips SD, Hargis MB, et al. Disagreement between parent and adolescent reports of functional impairment. J Child Psychol Psychiatry. 2004;45:248–259.
   PubMed Web of Science ®Google Scholar
• van der Meer M, Dixon A, Rose D. Parent and child agreement on reports of problem behaviour obtained from a screening questionnaire, the SDQ. Eur Child Adolesc Psychiatry. 2008;17:491–497.
   PubMed Web of Science ®Google Scholar
• Nugent KL, Kline E, Thompson E, et al. Assessing psychotic-like symptoms using the BASC-2: adolescent, parent and teacher agreement. Early Interv Psychiatry. 2013;7:431–436.
   PubMed Web of Science ®Google Scholar
• Salbach-Andrae H, Lenz K, Lehmkuhl U. Patterns of agreement among parent, teacher and youth ratings in a referred sample. Eur Psychiatry. 2009;24:345–351.
   PubMed Web of Science ®Google Scholar
• Weems CF, Feaster DJ, Horigian VE, et al. Parent and child agreement on anxiety disorder symptoms using the DISC predictive scales. Assess. 2011;18:213–216.
   PubMed Web of Science ®Google Scholar
• Clark BG, Magill-Evans JE, Koning CJ. Youth with autism spectrum disorders: self- and proxy-reported quality of life and adaptive functioning. Focus Autism Other Dev Disabil. 2015;30:57–64.
   Web of Science ®Google Scholar
• Potvin MC, Snider L, Prelock PA, et al. Health-related quality of life in children with high-functioning autism. Autism. 2015;19:14–19.
   PubMed Web of Science ®Google Scholar
• Grills AE, Ollendick TH. Issues in parent–child agreement: the case of structured diagnostic interviews. Clin Child Fam Psychol Rev. 2002;5:57–83.
   PubMed Web of Science ®Google Scholar
• De Los Reyes A, Kazdin AE. Informant discrepancies in the assessment of childhood psychopathology: a critical review, theoretical framework, and recommendations for further study. Psychol Bull. 2005;131:483–509.
   PubMed Web of Science ®Google Scholar
• Davis E, Nicolas C, Waters E, et al. Parent-proxy and child self-reported health-related quality of life: using qualitative methods to explain the discordance. Qual Life Res. 2007;16:863–871.
   PubMed Web of Science ®Google Scholar
• Ellert U, Ravens-Sieberer U, Erhart M, et al. Determinants of agreement between self-reported and parent-assessed quality of life for children in Germany-results of the German Health Interview and Examination Survey for Children and Adolescents (KiGGS). Health Qual Life Outcomes. 2011;9:102–112.
   PubMed Web of Science ®Google Scholar
• Waters E, Stewart-Brown S, Fitzpatrick R. Agreement between adolescent self-report and parent reports of health and well-being: results of an epidemiological study. Child Care Health Dev. 2003;29:501–509.
   PubMed Web of Science ®Google Scholar
• Shrout PE, Fleiss JL. Intraclass correlations: uses in assessing rater reliability. Psychol Bull. 1979;86:420–428.
   PubMed Web of Science ®Google Scholar
• UNICEF. The Convention on the Rights of the Child [Internet]. United Nations Genaral Assembly; 1989. [cited 2015 Oct 2]. Available from: http://www.ohchr.org/Documents/ProfessionalInterest/crc.pdf
   Google Scholar
• De Civita M, Regier D, Alamgir AH, et al. Evaluating health-related quality-of-life studies in paediatric populations: some conceptual, methodological and developmental considerations and recent applications. Pharmacoeconomics. 2005;23:659–685.
   PubMed Web of Science ®Google Scholar