References
- Wingerchuk DM, Lennon VA Pittock SJ, et al. Revised diagnostic criteria for neuromyelitis optica. Neurology. 2006;66:1485–1459.
- Cabrera-Gomez M. The incidence and prevalence of NMO. Int J MS Care. 2013;15:113–118.
- Jacob A, Panicker J, Lythgoe D, et al. The epidemiology of neuromyelitis optica amongst adults in the Merseyside county of United Kingdom. J Neurol. 2013;260:2134–2137.
- Matheson L, Harcourt D, Hewlett S. ‘Your whole life, your whole world, it changes’: partners’ experiences of living with rheumatoid arthritis. Musculoskeletal Care. 2010;8:46–54.
- Mutch K. In sickness and in health: experience of caring for a spouse with MS. Br J Nurs. 2010;19:214–219.
- Akkus Y. Multiple sclerosis patient caregivers: the relationship between their psychological and social needs and burden levels. Disabil Rehab. 2011;33:326–333.
- Buchanan RJ, Huang C. Health-related quality of life among informal caregivers assisting people with multiple sclerosis. Disabil Rehab. 2011;33:113–121.
- Boland P, Levack WM, Hudson S, et al. Coping with multiple sclerosis as a couple: ‘peaks and troughs’ – an interpretative phenomenological exploration. Disabil Rehab. 2012;34:1367–1375.
- Kouzoupis AB, Paparrigopoulos T, Soldatos M, et al. The family of the multiple sclerosis patient: a psychosocial perspective. Int Rev Psychiatry. 2010;22:83–89.
- Dickson A, O’Brien G, Ward R, et al. Adjustment and coping in spousal caregivers following traumatic spinal cord injury: an interpretative phenomenological analysis. J Health Psychol. 2011;17:247–257.
- Conti A, Garrino L, Montanari P, et al. Informal caregivers’ needs on discharge from the spinal cord unit: analysis of perceptions and lived experiences. Disabil Rehabil. 2016;38:159–167.
- Mutch K, Methley A, Moore P, et al. Life on hold: the experience of living with neuromyelitis optica. Disabil Rehabil. 2014;36:1100–1107.
- Sandelowski M. Focus on qualitative methods: sample size in qualitative research. Res Nurs Health. 1995;18:179–183.
- Novak M, Guest C. Application of a multidimensional Caregiver Burden Inventory. Gerontologist. 1989;29:798–803.
- Seng BK1, Luo N, Ng WY, et al. Validity and reliability of the Zarit Burden Interview in assessing caregiving burden. Ann Acad Med Singapore. 2010;39:758–763.
- Zigmond AS, Snaith RP. The hospital anxiety and depression scale. Acta Psychiatr Scand. 1983;67:361–370.
- Bjelland I, Dahl AA, Haug TT, et al. The validity of the Hospital Anxiety and Depression Scale. An updated literature review. J Psychosom Res. 2002;52:69–77.
- Boeje H. A purposeful approach to the constant comparative method in the analysis of qualitative interviews. Qual Quant. 2002;36:391–409.
- Ritchie J, Lewis J. Qualitative research practice. A guide for social science students and researchers. London: Sage; 2007.
- Strauss AL, Corbin JM. Basics of qualitative research: grounded theory procedures and techniques. London: Sage; 1990.
- Lincoln YS, Guba EG. Naturalistic inquiry. Newbury Park (CA): Sage; 1985.
- Elliott TR, Berry JW, Richards JS, et al. Resilience in the initial year of caregiving for a family member with a traumatic spinal cord injury. J. Consult Clin Psychol. 2014;82:1072–1086.
- Department of Health. Carers at the heart of 21st-century families and communities: “A caring system on your side. A life of your own”. London: Department of Health; 2008.
- Department of Health. Carers strategy action plan 2014–16. London: Department of Health; 2012.
- Carers UK. Carers right guide to looking after someone. London: Carers UK; 2016.