Family members’ needs and experiences of driving disruption over time following an acquired brain injury: an evolving issue

References

• Austroads. Assessing fitness to drive. 4th ed. Sydney (Australia): Austroads; 2012.
   Google Scholar
• Griffen JA, Rapport LJ, Bryer RC, et al. Driving status and community integration after stroke. Top Stroke Rehabil. 2009;16:212–221.
   PubMed Web of Science ®Google Scholar
• Haley WE, Roth DL, Hovater M, et al. Long-term impact of stroke on family caregiver well-being: a population-based case-control study. Neurology. 2015;84:1323–1329.
   PubMed Web of Science ®Google Scholar
• Lefebvre H, Levert MJ. The close relatives of people who have had a traumatic brain injury and their special needs. Brain Inj. 2012;26:1084–1097.
   PubMed Web of Science ®Google Scholar
• Kreutzer JS, Marwitz JH, Sima AP, et al. Efficacy of the brain injury family intervention: impact on family members. J Head Trauma Rehabil. 2015;30:249–260.
   PubMed Web of Science ®Google Scholar
• Turner BJ, Fleming J, Cornwell P, et al. A qualitative study of the transition from hospital to home for individuals with acquired brain injury and their family caregivers. Brain Inj. 2007;21:1119–1130.
   PubMed Web of Science ®Google Scholar
• Liddle J, Fleming J, McKenna K, et al. Adjustment to loss of the driving role following traumatic brain injury: a qualitative exploration with key stakeholders. Aust Occup Ther J. 2012;59:79–88.
   PubMed Web of Science ®Google Scholar
• Liang P, Fleming J, Gustafsson L, et al. Family members’ experiences of driving disruption after acquired brain injury. under review.
   Google Scholar
• Liang P, Liddle J, Fleming J, et al. Family members’ narratives of lifespace: mapping changes before and after a brain injury causing driving disruption. Aust Occup Ther J. 2016. [Epub ahead of print]. doi: 10.1111/1440-1630.12258.
   Web of Science ®Google Scholar
• Adler G, Rottunda S, Rasmussen K, et al. Caregivers dependent upon drivers with dementia. J Clin Geropsychol. 2000;6:83–90.
   Google Scholar
• Connell CM, Harmon A, Janevic MR, et al. Older adults' driving reduction and cessation: perspectives of adult children. J Appl Gerontol. 2013;32:975–996.
   PubMed Web of Science ®Google Scholar
• D'Ambrosio LA, Coughlin JF, Mohyde M, et al. Caregiver communications and the transition from driver to passenger among people with dementia. Top Geriatr Rehabil. 2009;25:33–42.
   Web of Science ®Google Scholar
• Hebert K, Martin-Cook K, Svetlik DA, et al. Caregiver decision making and driving: what we say versus what we do. Clin Gerontol. 2002;26:17–29.
   Google Scholar
• Liang P, Gustafsson L, Liddle J, et al. Family members' needs and experiences of driving disruption due to health conditions or ageing. Disabil Rehabil. 2015;37:2114–2129.
   PubMed Web of Science ®Google Scholar
• Liddle J, Fleming J, McKenna K, et al. Driving and driving cessation after traumatic brain injury: processes and key times of need. Disabil Rehabil. 2011;33:2574–2586.
   PubMed Web of Science ®Google Scholar
• Taylor BD, Tripodes S. The effects of driving cessation on the elderly with dementia and their caregivers. Accid Anal Prev. 2001;33:519–528.
   PubMed Web of Science ®Google Scholar
• Aslaksen PM, Orbo M, Elvestad R, et al. Prediction of on-road driving ability after traumatic brain injury and stroke. Eur J Neurol. 2013;20:1227–1233.
   PubMed Web of Science ®Google Scholar
• Sterns H, Sterns R, Aizeberg R, et al. Family and friends concerned about an older driver. Washington: Office of Research and Traffic Records; 2001.
   Google Scholar
• Baker A, Unsworth CA, Lannin NA. What information is provided in Australian emergency departments about fitness-to-drive after mild traumatic brain injury: a national survey. Aust Occup Ther J. 2015;62:50–55.
   PubMed Web of Science ®Google Scholar
• Classen S, Levy C, McCarthy D, et al. Traumatic brain injury and driving assessment: an evidence-based literature review. Am J Occup Ther. 2009;63:580–591.
   PubMed Web of Science ®Google Scholar
• Moore C, Leathem J. Information provision after mild traumatic brain injury (mTBI): a survey of general practitioners and hospitals in New Zealand. N Z Med J. 2004;117:U1046.
   PubMedGoogle Scholar
• Coleman RD, Rapport LJ, Ergh TC, et al. Predictors of driving outcome after traumatic brain injury. Arch Phys Med Rehabil. 2002;83:1415–1422.
   PubMed Web of Science ®Google Scholar
• Fleming J, Liddle J, Nalder E, et al. Return to driving in the first 6 months of community integration after acquired brain injury. NeuroRehabilitation. 2014;34:157–166.
   PubMed Web of Science ®Google Scholar
• Liddle J, Hayes R, Gustafsson L, et al. Managing driving issues after an acquired brain injury: strategies used by health professionals. Aust Occup Ther J. 2014;61:215–223.
   PubMed Web of Science ®Google Scholar
• Unsworth CA, Baker A. Driver rehabilitation: a systematic review of the types and effectiveness of interventions used by occupational therapists to improve on-road fitness-to-drive. Accid Anal Prev. 2014;71:106–114.
   PubMed Web of Science ®Google Scholar
• Novack T, Labbe D, Grote M, et al. Return to driving within 5 years of moderate–severe traumatic brain injury. Brain Inj. 2010;24:464–471.
   PubMed Web of Science ®Google Scholar
• Schwab KA, Gudmudsson LS, Lew HL. Long-term functional outcomes of traumatic brain injury. Handb Clin Neurol. 2015;128:649–659.
   PubMedGoogle Scholar
• Ponsford J, Downing MG, Olver J, et al. Longitudinal follow-up of patients with traumatic brain injury: outcome at two, five, and ten years post-injury. J Neurotrauma. 2014;31:64–77.
   PubMed Web of Science ®Google Scholar
• Patton MQ. Qualitative research & evaluation methods. Saint Paul (MN): Sage Publications; 2015.
   Google Scholar
• Liamputtong P. Qualitative research methods. South Melbourne (Australia): Oxford University Press; 2009.
   Google Scholar
• Dedoose. 5.0.11. Los Angeles (CA): SocioCultural Research Consultants, LLC; 2014.
   Google Scholar
• Kuipers P, Doig E, Kendall M, et al. Hope: a further dimension for engaging family members of people with ABI. NeuroRehabilitation. 2014;35:475–480.
   PubMed Web of Science ®Google Scholar
• Lohne V, Severinsson E. The power of hope: patients’ experiences of hope a year after acute spinal cord injury. J Clin Nurs. 2006;15:315–323.
   PubMed Web of Science ®Google Scholar
• Bright FA, Kayes NM, McCann CM, et al. Understanding hope after stroke: a systematic review of the literature using concept analysis. Top Stroke Rehabil. 2011;18:490–508.
   PubMed Web of Science ®Google Scholar
• Gebhardt MC, Gebhardt MC, McGehee LA, et al. Caregiver and nurse hopes for recovery of patients with acquired brain injury. Rehabil Nurs. 2012;36:3–12.
   Web of Science ®Google Scholar
• Chamberlain DJ. The experience of surviving traumatic brain injury. J Adv Nurs. 2006;54:407–417.
   PubMed Web of Science ®Google Scholar
• Nalder E, Fleming J, Cornwell P, et al. Reflections on life: experiences of individuals with brain injury during the transition from hospital to home. Brain Inj. 2013;27:1294–1303.
   PubMed Web of Science ®Google Scholar
• Shotton L, Simpson J, Smith M. The experience of appraisal, coping and adaptive psychosocial adjustment following traumatic brain injury: a qualitative investigation. Brain Inj. 2007;21:857–869.
   PubMed Web of Science ®Google Scholar
• Engstrom A, Soderberg S. Transition as experienced by close relatives of people with traumatic brain injury. J Neurosci Nurs. 2011;43:253–260.
   PubMed Web of Science ®Google Scholar
• Levack WM, Siegert RJ, Dean SG, et al. Goal planning for adults with acquired brain injury: how clinicians talk about involving family. Brain Inj. 2009;23:192–202.
   PubMed Web of Science ®Google Scholar
• Rapport LJ, Bryer RC, Hanks RA. Driving and community integration after traumatic brain injury. Arch Phys Med Rehabil. 2008;89:922–930.
   PubMed Web of Science ®Google Scholar
• Queensland Government. 2016. Travel and transport [Internet]; [cited on 2016 May 19]. Available from: http://www.qld.gov.au/disability/out-and-about/travel-transport/.
   Google Scholar
• Ing MM, Vento MA, Nakagawa K, et al. A qualitative study of transportation challenges among intracerebral hemorrhage survivors and their caregivers. Hawaii J Med Public Health. 2014;73:353–357.
   PubMedGoogle Scholar
• Montgomery RJV, Talley RC. Perspectives on caregiving across the life span: current status and future directions. In: Talley RC, Montgomery RJV, editors. Caregiving across the lifespan. New York (NY): Springer; 2013. p. 177–182.
   Google Scholar
• Jumisko E, Lexell J, Söderberg S. Living with moderate or severe traumatic brain injury: the meaning of family members' experiences. J Fam Nur. 2007;13:353–369.
   PubMed Web of Science ®Google Scholar
• Montgomery RJV, Kosloski K. Caregiving as a process of changing identity: implications for caregiver support. Generations. 2009;33:47–52.
   Web of Science ®Google Scholar