It just feels weird!: a qualitative study of how children aged 10–18 years describe neuropathic pain

References

• Treede RD, Jensen TS, Campbell JN, et al. Neuropathic pain: redefinition and a grading system for clinical and research purposes. Neurology. 2008;70:1630–1635.
   PubMed Web of Science ®Google Scholar
• Bennett M. The LANSS Pain Scale: the Leeds assessment of neuropathic symptoms and signs. Pain. 2001;92:147–157.
   PubMed Web of Science ®Google Scholar
• Bouhassira D, Attal N, Alchaar H, et al. Comparison of pain syndromes associated with nervous or somatic lesions and development of a new neuropathic pain diagnostic questionnaire (DN4). Pain. 2005;114:29–36.
   PubMed Web of Science ®Google Scholar
• Haanpaa M, Attal N, Backonja M, et al. NeuPSIG guidelines on neuropathic pain assessment. Pain. 2011;152:14–27.
   PubMed Web of Science ®Google Scholar
• Lauder GR, White MC. Neuropathic pain following multilevel surgery in children with cerebral palsy: a case series and review. Paediatr Anaesth. 2005;15:412–420.
   PubMed Web of Science ®Google Scholar
• Wilkins KL, McGrath PJ, Finley GA, et al. Phantom limb sensations and phantom limb pain in child and adolescent amputees. Pain. 1998;78:7–12.
   PubMed Web of Science ®Google Scholar
• Atherton DD, Taherzadeh O, Elliot D, et al. Age-dependent development of chronic neuropathic pain, allodynia and sensory recovery after upper limb nerve injury in children. J Hand Surg Eur Vol. 2008;33:186–191.
   PubMed Web of Science ®Google Scholar
• Ho ES, Curtis CG, Clarke HM. Pain in children following microsurgical reconstruction for obstetrical brachial plexus palsy. J Hand Surg A. 2015;4:1177–1183.
   Web of Science ®Google Scholar
• Howard RF, Wiener S, Walker SM. Neuropathic pain in children. Arch Dis Child. 2014;99:84–89.
   PubMed Web of Science ®Google Scholar
• Friedrichsdorf SJ, Nugent AP. Management of neuropathic pain in children with cancer. Curr Opin Support Palliat Care. 2013;7:131–138.
   PubMed Web of Science ®Google Scholar
• Korinthenberg R, Schessl J, Kirschner J. Clinical presentation and course of childhood Guillain-Barre syndrome: a prospective multicentre study. Neuropediatrics. 2007;38:10–17.
   PubMed Web of Science ®Google Scholar
• Vissers KC. The clinical challenge of chronic neuropathic pain. Disabil Rehabil. 2006;28:343–349.
   PubMed Web of Science ®Google Scholar
• Roth-Isigkeit A, Thyen U, Stoven H, et al. Pain among children and adolescents: restrictions in daily living and triggering factors. Pediatrics. 2005;115:e152–e162.
   PubMed Web of Science ®Google Scholar
• Huguet A, Miro J. The severity of chronic pediatric pain: an epidemiological study. J Pain. 2008;9:226–236.
   PubMed Web of Science ®Google Scholar
• Kachko L, Ben Ami S, Lieberman A, et al. Neuropathic pain other than CRPS in children and adolescents: incidence, referral, clinical characteristics, management, and clinical outcomes. Paediatr Anaesth. 2014;24:608–613.
   PubMed Web of Science ®Google Scholar
• Berger A, Dukes EM, Oster G. Clinical characteristics and economic costs of patients with painful neuropathic disorders. J Pain. 2004;5:143–149.
   PubMed Web of Science ®Google Scholar
• American Academy of Pediatrics. Committee on Psychosocial Aspects of Child and Family Health; Task Force on Pain in Infants, Children, and Adolescents. The assessment and management of acute pain in infants, children, and adolescents. Pediatrics. 2001;108:793–797.
   PubMed Web of Science ®Google Scholar
• King S, Chambers CT, Huguet A, et al. The epidemiology of chronic pain in children and adolescents revisited: a systematic review. Pain. 2011;152:2729–2738.
   PubMed Web of Science ®Google Scholar
• Khin Hla T, Hegarty M, Russell P, et al. Perception of Pediatric Pain: a comparison of postoperative pain assessments between child, parent, nurse, and independent observer. Paediatr Anaesth. 2014;24:1127–1131.
   PubMed Web of Science ®Google Scholar
• Cruccu G, Truini A. Tools for assessing neuropathic pain. PLoS Med. 2009;6:e1000045.
   PubMed Web of Science ®Google Scholar
• Callin S, Bennett MI. Diagnosis and management of neuropathic pain in palliative care. Int J Palliat Nurs. 2008;14:16–21.
   PubMedGoogle Scholar
• Bennett MI, Attal N, Backonja MM, et al. Using screening tools to identify neuropathic pain. Pain. 2007;127:199–203.
   PubMed Web of Science ®Google Scholar
• Boureau F, Doubrere JF, Luu M. Study of verbal description in neuropathic pain. Pain. 1990;42:145–152.
   PubMed Web of Science ®Google Scholar
• Krause SJ, Backonja MM. Development of a neuropathic pain questionnaire. Clin J Pain. 2003;19:306–314.
   PubMed Web of Science ®Google Scholar
• Freynhagen R, Baron R, Gockel U, et al. painDETECT: a new screening questionnaire to identify neuropathic components in patients with back pain. Curr Med Res Opin. 2006;22:1911–1920.
   PubMed Web of Science ®Google Scholar
• Portenoy R. Development and testing of a neuropathic pain screening questionnaire: ID Pain. Curr Med Res Opin. 2006;22:1555–1565.
   PubMed Web of Science ®Google Scholar
• McGrath PA, Hillier LM. Modifying the psychologic factors that intensify children’s pain and prolong disability. In: Schechter NL, Berde CB, Yaster M, editors. Pain in infants, children, and adolescents. Philadelphia, PA: Lippincott Williams & Wilkins; 2003. p 85–104.
   Google Scholar
• Neergaard MA, Olesen F, Andersen RS, et al. Qualitative description – the poor cousin of health research? BMC Med Res Methodol. 2009;9:52.
   PubMed Web of Science ®Google Scholar
• Elo S, Kyngas H. The qualitative content analysis process. J Adv Nurs. 2008;62:107–115.
   PubMed Web of Science ®Google Scholar
• Stinson JN, Luca NJ, Jibb LA. Assessment and management of pain in juvenile idiopathic arthritis. Pain Res Manag. 2012;17:391–396.
   PubMed Web of Science ®Google Scholar
• NVIVO qualitative data analysis software. Version 10. Doncaster, Australia: QSR International Pty Ltd.; 2012.
   Google Scholar
• Bouhassira D, Attal N. Diagnosis and assessment of neuropathic pain: the saga of clinical tools. Pain. 2011;152:S74–S83.
   PubMed Web of Science ®Google Scholar
• Ross DM, Ross SA. Childhood pain: the school-aged child’s viewpoint. Pain. 1984;20:179–191.
   PubMed Web of Science ®Google Scholar
• Kortesluoma RL, Nikkonen M. ‘I had this horrible pain’: the sources and causes of pain experiences in 4- to 11-year-old hospitalized children. J Child Health Care. 2004;8:210–231.
   PubMedGoogle Scholar
• Kortesluoma RL, Nikkonen M. ‘The most disgusting ever’: children’s pain descriptions and views of the purpose of pain. J Child Health Care. 2006;10:213–227.
   PubMedGoogle Scholar
• Savedra M, Tesler M, Ward J, et al. Description of the pain experience: a study of school-age children. Issues Compr Pediatr Nurs. 1981;5:373–380.
   PubMedGoogle Scholar
• Melzack R. The McGill Pain Questionnaire: major properties and scoring methods. Pain. 1975;1:277–299.
   PubMed Web of Science ®Google Scholar
• Berde CB, Lebel AA, Olsson G. Neuropathic pain in children. In: Schechter NL, Berde CB, Yaster M, editors. Pain in infants, children, and adolescents. 2nd ed. Philadelphia (PA): Lippincott Williams & Wilkins; 2003. p. 6206–6241.
   Google Scholar
• Savedra MC, Holzemer WL, Tesler MD, et al. Assessment of postoperation pain in children and adolescents using the adolescent pediatric pain tool. Nurs Res. 1993;42:5–9.
   PubMed Web of Science ®Google Scholar
• Gilron I, Watson CP, Cahill CM, et al. Neuropathic pain: a practical guide for the clinician. CMAJ 2006;175:265–275.
   PubMed Web of Science ®Google Scholar
• Jacob E, Mack AK, Savedra M, et al. Adolescent pediatric pain tool for multidimensional measurement of pain in children and adolescents. Pain Manag Nurs. 2014;15:694–706.
   PubMed Web of Science ®Google Scholar