A longitudinal, qualitative study exploring sustained adherence to a hand exercise programme for rheumatoid arthritis evaluated in the SARAH trial

References

• National Institute for Health and Clinical Excellence (NICE). CG79 Rheumatoid Arthritis. 2009 [Internet] [cited 2016 Jul 21]. Available from: www.nice.org.uk.
   Google Scholar
• Durstine JL, Moore GE, Painter PL, et al. editors. ACSM's exercise management for persons with chronic diseases and disabilities. 3rd ed. Champaign, Ill, USA: Human kinetics; 2003.
   Google Scholar
• Hurkmans E, van der Giesen FJ, Vliet Vlieland TP, et al. Dynamic exercise programs (aerobic capacity and/or muscle strength training) in patients with rheumatoid arthritis. Cochrane Database Syst Rev. 2009;CD006853.
   PubMed Web of Science ®Google Scholar
• Kettunen J, Kujala U. Exercise therapy for people with rheumatoid arthritis and osteoarthritis. Scand J Med Sci Sports. 2004;14:138–142.
   PubMed Web of Science ®Google Scholar
• Brus H, van de Laar M, Taal E, et al. Compliance in rheumatoid arthritis and the role of formal patient education. Semin Arthritis Rheum. 1997;26:702–710.
   PubMed Web of Science ®Google Scholar
• Swärdh E, Biguet G, Opava C. Views on exercise maintenance: variations among patients with rheumatoid arthritis. Phys Ther. 2008;88:1049–1060.
   PubMed Web of Science ®Google Scholar
• Wilcox S, Der Ananian C, Abbott J, et al. Perceived exercise barriers, enablers, and benefits among exercising and nonexercising adults with arthritis: results from a qualitative study. Arthritis Rheum. 2006;55:616–627.
   PubMed Web of Science ®Google Scholar
• Essery R, Geraghty AW, Kirby S, et al. Predictors of adherence to home-based physical therapies: a systematic review. Disabil Rehabil. 2016. [Epub ahead of print]. doi:10.3109/09638288.2016.1153160.
   PubMed Web of Science ®Google Scholar
• Law RJ, Breslin A, Oliver EJ, et al. Perceptions of the effects of exercise on joint health in rheumatoid arthritis patients. Rheumatology (Oxford). 2010;49:2444–2451.
   PubMed Web of Science ®Google Scholar
• Iversen MD, Eaton HM, Daltroy LH. How rheumatologists and patients with rheumatoid arthritis discuss exercise and the influence of discussions on exercise prescriptions. Arthritis Rheum. 2004;51:63–72.
   PubMed Web of Science ®Google Scholar
• Lamb SE, Williamson EM, Heine PJ, et al. Exercises to improve function of the rheumatoid hand (SARAH): a randomised controlled trial. Lancet. 2015;385:421–429.
   PubMed Web of Science ®Google Scholar
• Michie S, Rumsey N, Fussell A, et al. Improving health: changing behaviour. NHS Health Trainer Handbook. London: Department of Health; 2008.
   Google Scholar
• Adams J, Bridle C, Dosanjh S, et al. Strengthening and stretching for rheumatoid arthritis of the hand (SARAH): design of a randomised controlled trial of a hand and upper limb exercise intervention – ISRCTN89936343. BMC Musculoskelet Disord. 2012;13:230.
   PubMed Web of Science ®Google Scholar
• Heine PJ, Williams MA, Williamson E, et al. Development and delivery of an exercise intervention for rheumatoid arthritis: strengthening and stretching for rheumatoid arthritis of the hand (SARAH) trial. Physiotherapy. 2012;98:121–130.
   PubMed Web of Science ®Google Scholar
• Hammond A, Freeman K. The long-term outcomes from a randomized controlled trial of an educational-behavioural joint protection programme for people with rheumatoid arthritis. Clin Rehabil. 2004;18:520–528.
   PubMed Web of Science ®Google Scholar
• Rosenstock IM. Why people use health services. Milbank Memorial Fund Q. 1966;44:94–Su127.
   PubMedGoogle Scholar
• Gollwitzer PM. Implementation intentions: strong effects of simple plans. Am Psychol. 1999;54:493–503.
   Web of Science ®Google Scholar
• Chung KC, Pillsbury MS, Walters MR, et al. Reliability and validity testing of the Michigan Hand Outcomes Questionnaire. J Hand Surg Am. 1998;23:575–587.
   PubMed Web of Science ®Google Scholar
• Smith J, Flowers P, Larkin M. Interpretative phenomenological analysis: theory, method and research. London: SAGE Publications; 2009.
   Google Scholar
• Biggerstaff DT. A. Interpretative Phenomenological Analysis (IPA): a qualitative methodology of choice for healthcare research. Qual Res Psychol. 2008;5:172–183.
   Google Scholar
• Sinclair VG, Blackburn DS. Adaptive coping with rheumatoid arthritis: the transforming nature of response shift. Chronic Illn. 2008;4:219–230.
   PubMedGoogle Scholar
• Sanderson T, Morris M, Calnan M, et al. 'It's this whole picture, this well-being': patients' understanding of ‘feeling well' with rheumatoid arthritis. Chronic Illn. 2010;6:228–240.
   PubMedGoogle Scholar
• Cairns AP, McVeigh JG. A systematic review of the effects of dynamic exercise in rheumatoid arthritis. Rheumatol Int. 2009;30:147–158.
   PubMed Web of Science ®Google Scholar
• Ronningen A, Kjeken I. Effect of an intensive hand exercise programme in patients with rheumatoid arthritis. Scand J Occup Ther. 2008;15:173–183.
   PubMed Web of Science ®Google Scholar
• Hurkmans EJ, Maes S, de Gucht V, et al. Motivation as a determinant of physical activity in patients with rheumatoid arthritis. Arthritis Care Res (Hoboken). 2010;62:371–377.
   PubMed Web of Science ®Google Scholar
• Ehrlich-Jones L, Lee J, Semanik P, et al. Relationship between beliefs, motivation, and worries about physical activity and physical activity participation in persons with rheumatoid arthritis. Arthritis Care Res (Hoboken). 2011;63:1700–1705.
   PubMed Web of Science ®Google Scholar
• Buckworth J, Lee RE, Regan G, et al. Decomposing intrinsic and extrinsic motivation for exercise: application to stages of motivational readiness. Psychol Sport Exerc. 2007;8:441–461.
   Web of Science ®Google Scholar
• Ryan RM, Deci EL. Intrinsic and extrinsic motivations: classic definitions and new directions. Contemp Educ Psychol. 2000;25:54–67.
   PubMed Web of Science ®Google Scholar
• Daker-White G, Donovan J, Campbell R. Redefined by illness: meta-ethnography of qualitative studies on the experience of rheumatoid arthritis. Disabil Rehabil. 2014;36:1061–1071.
   PubMed Web of Science ®Google Scholar
• Morgan F, Battersby A, Weightman AL, et al. Adherence to exercise referral schemes by participants – what do providers and commissioners need to know? A systematic review of barriers and facilitators. BMC Public Health. 2016;16:227.
   PubMed Web of Science ®Google Scholar
• Verplanken B, Melkevik O. Predicting habit: the case of physical exercise. Psychol Sport Exerc. 2008;9:15–26.
   Web of Science ®Google Scholar
• Phillips LA, Cohen J, Burns E, et al. Self-management of chronic illness: the role of 'habit' versus reflective factors in exercise and medication adherence. J Behav Med. 2016. [Epub ahead of print]. doi:10.1007/s10865-016-9732-z.
   Web of Science ®Google Scholar