Experiences of hospital readmission and receiving formal carer services following spinal cord injury: a qualitative study to identify needs

References

• Jaglal SB, Munce SEP, Guilcher SJ, et al. Health system factors associated with rehospitalizations after traumatic spinal cord injury: a population-based study. Spinal Cord. 2009;47:604–609.
   PubMed Web of Science ®Google Scholar
• Savic G, Short DJ, Weitzenkamp D, et al. Hospital readmissions in people with chronic spinal cord injury. Spinal Cord. 2000;38:371.
   PubMed Web of Science ®Google Scholar
• Cardenas DD, Hoffman JM, Kirshblum S, et al. Etiology and incidence of rehospitalization after traumatic spinal cord injury: a multicenter analysis. Arch Phys Med Rehabil. 2004;85:1757–1763.
   PubMed Web of Science ®Google Scholar
• Gabbe BJ, Nunn A. Profile and costs of secondary conditions resulting in emergency department presentations and readmission to hospital following traumatic spinal cord injury. Injury. 2016;47:1847–1855.
   PubMed Web of Science ®Google Scholar
• Gabbe B, Nunn A. Rate, type and cost of complications experienced by spinal cord injury patients: usage of linked data sources. ISCRR Research Report, 2016 (Report number: 109-1214-R01).
   Google Scholar
• Kroll T, Neri MT. Experiences with care co-ordination among people with cerebral palsy, multiple sclerosis, or spinal cord injury. Disabil Rehabil. 2003;25:1106–1114.
   PubMed Web of Science ®Google Scholar
• McColl MA, Aiken A, McColl A, et al. Primary care of people with spinal cord injury: scoping review. Can Fam Physician. 2012;58:1207–1216.
   PubMed Web of Science ®Google Scholar
• Smith EM, Boucher N, Miller WC. Caregiving services in spinal cord injury: a systematic review of the literature. Spinal Cord. 2016;54:562–569.
   PubMed Web of Science ®Google Scholar
• Matsuda SJ, Clark MJ, Schopp LH, et al. Barriers and satisfaction associated with personal assistance services: results of consumer and personal assistant focus groups. OTJR. 2005;25:66–74.
   Web of Science ®Google Scholar
• Munce SE, Webster F, Fehlings MG, et al. Perceived facilitators and barriers to self-management in individuals with traumatic spinal cord injury: a qualitative descriptive study. BMC Neurol. 2014;14:48.
   PubMed Web of Science ®Google Scholar
• Bushnik T, Wright J, Burdsall D. Personal attendant turnover: association with level of injury, burden of care, and psychosocial outcome. Top Spinal Cord Inj Rehabil. 2007;12:66–76.
   Google Scholar
• Access Economics. The economic cost of spinal cord injury and traumatic brain injury in Australia. The Victorian Neurotrauma Initiative; 2009.
   Google Scholar
• Ritchie J, Spencer L. Qualitative data analysis for applied policy research. In: Bryman A, Burgess R, editors. Analyzing qualitative data. London, UK: Routledge; 1994. p. 173–194.
   Google Scholar
• Wallace MA, Kendall MB. Transitional rehabilitation goals for people with spinal cord injury: looking beyond the hospital walls. Disabil Rehabil. 2014;36:642–650.
   PubMed Web of Science ®Google Scholar
• Conti A, Garrino L, Montanari P, et al. Informal caregivers’ needs on discharge from the spinal cord unit: analysis of perceptions and lived experiences. Disabil Rehabil. 2016;38:159–167.
   PubMed Web of Science ®Google Scholar
• Cott C. Client-centred rehabilitation: client perspectives. Disabil Rehabil. 2004;26:1411–1422.
   PubMed Web of Science ®Google Scholar
• May L, May L, Day R, et al. Perceptions of patient education in spinal cord injury rehabilitation. Disabil Rehabil. 2006;28:1041–1049.
   PubMed Web of Science ®Google Scholar
• Sand Å, Karlberg I, Kreuter M. Spinal cord injured persons’ conceptions of hospital care, rehabilitation, and a new life situation. Scand J Occup Ther. 2006;13:183–192.
   PubMedGoogle Scholar
• Ljungberg I, Kroll T, Libin A, et al. Using peer mentoring for people with spinal cord injury to enhance self-efficacy beliefs and prevent medical complications. J Clin Nurs. 2011;20:351–358.
   PubMed Web of Science ®Google Scholar
• Jones M, Gassaway J. Peer-supported self-management to facilitate community re-entry after discharge from spinal cord injury rehabilitation: engaging peers as change agents and research partners. Arch Phys Med Rehabil. 2016;59 (Suppl.):e128–e9.
   Google Scholar
• Commonwealth of Australia. National disability insurance scheme act 2013. Canberra, Australia: Australian Government; 2013.
   Google Scholar
• Dickson A, O'Brien G, Ward R, et al. The impact of assuming the primary caregiver role following traumatic spinal cord injury: an interpretative phenomenological analysis of the spouse’s experience. Psychol Health. 2010;25:1101–1120.
   PubMed Web of Science ®Google Scholar
• Hammell KW. Quality of life after spinal cord injury: a meta-synthesis of qualitative findings. Spinal Cord. 2007;45:124–139.
   PubMed Web of Science ®Google Scholar
• van de Ven L, Post M, de Witte L, et al. Strategies for autonomy used by people with cervical spinal cord injury: a qualitative study. Disabil Rehabil. 2008;30:249–260.
   PubMed Web of Science ®Google Scholar
• Dickson A, Ward R, O'Brien G, et al. Difficulties adjusting to post-discharge life following a spinal cord injury: an interpretative phenomenological analysis. Psychol Health Med. 2011;16:463–474.
   PubMed Web of Science ®Google Scholar
• Boschen KA, Tonack M, Gargaro J. Long-term adjustment and community reintegration following spinal cord injury. Int J Rehabil Res. 2003;26:157–164.
   PubMed Web of Science ®Google Scholar
• Manns PJ, May LA. Perceptions of issues associated with the maintenance and improvement of long-term health in people with SCI. Spinal Cord. 2007;45:411–419.
   PubMed Web of Science ®Google Scholar
• Patel A, Knapp M, Evans A, et al. Training care givers of stroke patients: economic evaluation. BMJ. 2004;328:1102.
   PubMed Web of Science ®Google Scholar
• Ackery A, Tator C, Krassioukov A. A global perspective on spinal cord injury epidemiology. J Neurotrauma. 2004;21:1355–1370.
   PubMed Web of Science ®Google Scholar
• Beck L, Scroggins L. Optimizing health of individuals with tetraplegia. SCI Nurs. 2001;18:181–186.
   PubMedGoogle Scholar
• Schopp LH, Clark MJ, Hagglund KJ, et al. Evaluation of a consumer-personal assistant training project. Disabil Rehabil. 2007;29:403–410.
   PubMed Web of Science ®Google Scholar
• DeJong G, Tian W, Hsieh C-H, et al. Rehospitalization in the first year of traumatic spinal cord injury after discharge from medical rehabilitation. Arch Phys Med Rehabil. 2013;94:S87–S97.
   PubMed Web of Science ®Google Scholar
• Guilcher SJ, Craven BC, Calzavara A, et al. Is the emergency department an appropriate substitute for primary care for persons with traumatic spinal cord injury? Spinal Cord. 2013;51:202–208.
   PubMed Web of Science ®Google Scholar
• Madaris LL, Onyebueke M, Liebman J, et al. SCI hospital in home program: bringing hospital care home for veterans with spinal cord injury. Nurs Adm Q. 2016;40:109–114.
   PubMedGoogle Scholar
• Donnelly C, McColl MA, Charlifue S, et al. Utilization, access and satisfaction with primary care among people with spinal cord injuries: a comparison of three countries. Spinal Cord. 2007;45:25–36.
   PubMed Web of Science ®Google Scholar
• Bloemen-Vrencken J, Post MWM, Hendriks JMS, et al. Health problems of persons with spinal cord injury living in the Netherlands. Disabil Rehabil. 2005;27:1381–1389.
   PubMed Web of Science ®Google Scholar
• McColl MA, Forster D, Shortt SED, et al. Physician experiences providing primary care to people with disabilities. Healthc Policy. 2008;4:e129–e147.
   PubMedGoogle Scholar
• Cox RJ, Amsters DI, Pershouse KJ. The need for a multidisciplinary outreach service for people with spinal cord injury living in the community. Clin Rehabil. 2001;15:600–606.
   PubMed Web of Science ®Google Scholar