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Research Paper

Participation restrictions among adolescents and adults with neonatal brachial plexus palsy: the patient perspective

ORCID Icon, , , , &
Pages 3147-3155 | Received 06 Jan 2017, Accepted 13 Sep 2017, Published online: 24 Sep 2017

References

  • Pondaag W, Malessy MJ, van Dijk JG, et al. Natural history of obstetric brachial plexus palsy: a systematic review. Dev Med Child Neurol. 2004;46:138–144.
  • Hoeksma AF, Wolf H, Oei SL. Obstetrical brachial plexus injuries: incidence, natural course and shoulder contracture. Clin Rehabil. 2000;14:523–526.
  • Chauhan SP, Blackwell SB, Ananth CV. Neonatal brachial plexus palsy: incidence, prevalence, and temporal trends. Semin Perinatol. 2014;38:210–218.
  • WHO. ICF 2016; [cited 2016 Jul 01]. Available from: http://www.who.int/classifications/icf/en/
  • Gilbert A, Pivato G, Kheiralla T. Long-term results of primary repair of brachial plexus lesions in children. Microsurgery. 2006;26:334–342.
  • Pondaag W, Malessy MJ. The evidence for nerve repair in obstetric brachial plexus palsy revisited. Biomed Res Int. 2014;2014:434619.
  • Hale HB, Bae DS, Waters PM. Current concepts in the management of brachial plexus birth palsy. J Hand Surg Am. 2010;35:322–331.
  • Waters PM. Update on management of pediatric brachial plexus palsy. J Pediatr Orthop B. 2005;14:233–244.
  • Lagerkvist AL, Johansson U, Johansson A, et al. Obstetric brachial plexus palsy: a prospective, population-based study of incidence, recovery, and residual impairment at 18 months of age. Dev Med Child Neurol. 2010;52:529–534.
  • Arzillo S, Gishen K, Askari M. Brachial plexus injury: treatment options and outcomes. J Craniofac Surg. 2014;25:1200–1206.
  • Thatte MR, Mehta R. Obstetric brachial plexus injury. Indian J Plast Surg. 2011;44:380–389.
  • Sarac C, Duijnisveld BJ, van der Weide A, et al. Outcome measures used in clinical studies on neonatal brachial plexus palsy: a systematic literature review using the International Classification of Functioning, Disability and Health. PRM. 2015;8:167–185. quiz 85–86.
  • Gjorup L. Obstetrical lesion of the brachial plexus. Acta Neurol Scand. 1966;42:Suppl. 18:1–80.
  • de Heer C, Beckerman H, Groot V. Explaining daily functioning in young adults with obstetric brachial plexus lesion. Disabil Rehabil. 2015;37:1455–1461.
  • Partridge C, Edwards S. Obstetric brachial plexus palsy: increasing disability and exacerbation of symptoms with age. Physiother Res Int. 2004;9:157–163.
  • Kirjavainen MO, Remes VM, Peltonen J, et al. Permanent brachial plexus birth palsy does not impair the development and function of the spine and lower limbs. J Pediatr Orthop B. 2009;18:283–288.
  • Sarac C, Bastiaansen E, Van der Holst M, et al. Concepts of functioning and health important to children with an obstetric brachial plexus injury: a qualitative study using focus groups. Dev Med Child Neurol. 2013;55:1136–1142.
  • Strombeck C, Fernell E. Aspects of activities and participation in daily life related to body structure and function in adolescents with obstetrical brachial plexus palsy: a descriptive follow-up study. Acta Paediatr. 2003;92:740–746.
  • Mader L, Post MW, Ballert CS, et al. Metric properties of the Utrecht Scale for Evaluation of Rehabilitation-Participation (USER-Participation) in persons with spinal cord injury living in Switzerland. J Rehabil Med. 2016;48:165–174.
  • Craig A, Nicholson Perry K, Guest R, et al. Adjustment following chronic spinal cord injury: determining factors that contribute to social participation. Br J Health Psychol. 2015;20:807–823.
  • Donkervoort M, Roebroeck M, Wiegerink D, et al. Determinants of functioning of adolescents and young adults with cerebral palsy. Disabil Rehabil. 2007;29:453–463.
  • van Meeteren J, Roebroeck ME, Celen E, et al. Functional activities of the upper extremity of young adults with cerebral palsy: a limiting factor for participation? Disabil Rehabil. 2008;30:387–395.
  • Videler AJ, Beelen A, van Schaik IN, et al. Limited upper limb functioning has impact on restrictions in participation and autonomy of patients with hereditary motor and sensory neuropathy 1a. J Rehabil Med. 2009;41:746–750.
  • van der Holst M, van der Wal CW, Wolterbeek R, et al. Outcome of secondary shoulder surgery in children with neonatal brachial plexus palsy with and without nerve surgery treatment history: a long-term follow-up study. J Rehabil Med. 2016;48:609–617.
  • von Elm E, Altman DG, Egger M, et al. The Strengthening the Reporting of Observational Studies in Epidemiology (STROBE) statement: guidelines for reporting observational studies. Epidemiology. 2007;18:800–804.
  • Cardol M, de Haan RJ, van den Bos GA, et al. The development of a handicap assessment questionnaire: the Impact on Participation and Autonomy (IPA). Clin Rehabil. 1999;13:411–419.
  • Cardol M, de Haan RJ, de Jong BA, et al. Psychometric properties of the Impact on Participation and Autonomy Questionnaire. Arch Phys Med Rehabil. 2001;82:210–216.
  • Cardol M, Beelen A, van den Bos GA, et al. Responsiveness of the Impact on Participation and Autonomy questionnaire. Arch Phys Med Rehabil. 2002;83:1524–1529.
  • Post MW, van der Zee CH, Hennink J, et al. Validity of the Utrecht scale for evaluation of rehabilitation-participation. Disabil Rehabil. 2012;34:478–485.
  • Aaronson NK, Muller M, Cohen PD, et al. Translation, validation, and norming of the Dutch language version of the SF-36 Health Survey in community and chronic disease populations. J Clin Epidemiol. 1998;51:1055–1068.
  • Ware J. SF-36 health survey manual and interpretation guide. Boston (MA): The Health Institute, New England Medical Center; 1994.
  • VanderZee KI, Sanderman R, Heyink JW, et al. Psychometric qualities of the RAND 36-Item Health Survey 1.0: a multidimensional measure of general health status. Int J Behav Med. 1996;3:104–122.
  • Ware JEKM, Keller SD. SF-36 physical and mental summary scales: a user’s manual. 2nd ed. Boston (MA): The Health Institute; 1994.
  • Veehof MM, Sleegers EJ, van Veldhoven NH, et al. Psychometric qualities of the Dutch language version of the Disabilities of the Arm, Shoulder, and Hand questionnaire (DASH-DLV). J Hand Ther. 2002;15:347–354.
  • Hunsaker FG, Cioffi DA, Amadio PC, et al. The American academy of orthopaedic surgeons outcomes instruments: normative values from the general population. J Bone Joint Surg Am. 2002;84-A:208–215.
  • Wason JM, Stecher L, Mander AP. Correcting for multiple-testing in multi-arm trials: is it necessary and is it done? Trials. 2014;15:364.
  • Centraal Bureau voor Statistiek (Netherlands Statistics C. Bevolking; hoogst behaald onderwijsniveau; geslacht, leeftijd en herkomst [Internet]. Centraal Bureau voor Statistiek (Netherlands Statistics, CBS); 2016; [cited 2016 Nov 29]. Available from: http://statline.cbs.nl/Statweb/publication/?DM=SLNL&PA=82275NED&D1=0&D2=0&D3=0&D4=0-1,4-5&D5=0-1,7,11&D6=60-63,65-67&VW=T
  • Yang LJ, Anand P, Birch R. Limb preference in children with obstetric brachial plexus palsy. Pediatr Neurol. 2005;33:46–49.