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Original Article

The self-management balancing act of spousal care partners in the case of Parkinson’s disease

, , , ORCID Icon, ORCID Icon &
Pages 887-895 | Received 28 Apr 2017, Accepted 01 Dec 2017, Published online: 12 Dec 2017

References

  • Paggi ME, Jopp D, Hertzog C. The importance of leisure activities in the relationship between physical health and well-being in a life span sample. Gerontology. 2016;62:450–458.
  • Vozikaki M, Linardakis M, Micheli K. Activity participation and well-being among European adults aged 65 years and older. Soc Indic Res. 2017;131:769–795.
  • Levasseur M, Desrosiers J, St-Cyr Tribble D. Subjective quality-of-life predictors for older adults with physical disabilities. Am J Phys Med Rehabil. 2008;87:830–841.
  • Bailly F, Foltz V, Rozenberg S, et al. The impact of chronic low back pain is partly related to loss of social role: a qualitative study. Joint Bone Spine. 2015;82:437–441.
  • Ory MG, Ahn SNam, Jiang L, et al. Successes of a national study of the Chronic Disease Self-Management Program: meeting the triple aim of health care reform. Med Care. 2013; 51:992–998.
  • Tickle-Degnen L, Saint-Hilaire M, Thomas CA, et al. Emergence and evolution of social self-management of Parkinson's disease: study protocol for a 3-year prospective cohort study. BMC Neurol. 2014;14:95.
  • Miller K, Zook EG. Care partners for persons with AIDS: implications for health communication. J Appl Commun Res. 1997;25:57–74.
  • Reinhard S, Levine C, Samis S. Family caregivers providing complex chronic care to their spouses. Washington, DC: AARP Public Policy Institute; 2014.
  • Hutchinson SL, Doble S, Warner G. Lessons learned from take care: a brief leisure education intervention for caregivers. Ther Recreation J. 2011;45:121–134.
  • Won CW, Fitts SS, Favaro S, et al. Community-based 'powerful tools' intervention enhances health of caregivers. Arch of Gerontol Geriatr. 2008;46:89–100.
  • Yesufu-Udechuku A, Harrison B, Mayo-Wilson E, et al. Interventions to improve the experience of caring for people with severe mental illness: systematic review and meta-analysis. Br J Psychiatry. 2015;206:268–274. doi:10.1192/bjp.bp.114.147561
  • Keefe J, Hawkins G, Fancey P. A portrait of unpaid care in Nova Scotia. Halifax (NS): Healthy Balance Research Program 2006. Available from http://caregiversns.org/images/uploads/ACEWH_hbrp__portrait_unpaid_care_NS.pdf
  • Chaudhuri KR, Odin P, Antonini A, et al. Parkinson's disease: the non-motor issues. Parkinsonism Relat Disord. 2011; 17:717–723.
  • Parkinson’s Disease Foundation: Statistics on Parkinson’s [Internet]. New York (NY); 2017. Available from http://www.pdf.org/en/parkinson_statistics
  • Family Caregiver Alliance. Caregiver statistics Demographics. [Internet]. 2016; San Francisco (CA). Available from https://www.caregiver.org/caregiver-statistics-demographics
  • Martin SC. Psychosocial challenges experienced by partners of people with Parkinson Disease. J Neurosci Nurs. 2015;47:211–222.
  • Habermann B, Shin JY. Preferences and concerns for care needs in advanced Parkinson’s disease: a qualitative study of couples. J Clin Nurs. 2017;26:1650–1656.
  • McLaughlin D, Hasson F, Kernohan WW, et al. Living and coping with Parkinson's disease: perceptions of informal carers. Palliat Med. 2011;25:177–182.
  • Habermann B. Spousal perspective of Parkinson's disease in middle life. J Adv Nurs. 2000;31:1409–1415.
  • Hodgson J, Garcia K, Tyndall L. Parkinson's disease and the couple relationship: a qualitative analysis. Fam Syst Health. 2004;22:101–118.
  • Wressle E, Engstrand C, Granérus AK. Living with Parkinson's disease: Elderly patients’ and relatives’ perspective on daily living. Aust Occ Ther J. 2007;54:131–139.
  • Goetz CG, Tilley BC, Shaftman SR, et al. Movement Disorder Society-sponsored revision of the Unified Parkinson’s Disease Rating Scale (MDS-UPDRS): scale presentation and clinimetric testing results. Mov Disord. 2008;23:2129–2170.
  • Takahashi K, Tickle-Degnen L, Coster WJ, et al. Expressive behavior in Parkinson's disease as a function of interview context. Am J Occup Ther. 2010;64:484–495.
  • DeGroat EJ, Lyons KD, Tickle-Degnen L. Favorite activity interview as a window into the identity of people with Parkinson’s disease. OTJR 2006;26:56–58.
  • Glaser BG, Strauss AL. The discovery of grounded theory. Chicago (IL): Aldine; 1967.
  • Corbin J, Strauss A. Basics of qualitative research. 3rd ed. Thousand Oaks (CA): Sage Publications; 2008.
  • Csoti I, Jost WH, Reichmann H. Parkinson's disease between internal medicine and neurology. J Neural Transm (Vienna). 2016;123:3–17.
  • Matuska K, Christiansen C. A proposed model of life-style balance. J Occup Sci. 2008;15:9–19.
  • Mercer CJ. The impact of non-motor manifestations of Parkinson's disease on partners: understanding and application of chronic sorrow theory. J Prim Health Care. 2015;7:221–227.
  • Bhimani R. Understanding the burden on caregivers of people with Parkinson's: a scoping review of the literature. Rehabil Res Pract. 2014;2014:718527. Available from https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4179947/pdf/RERP2014-718527.pdf
  • Hiseman JP, Fackrell R. Caregiver burden and the nonmotor symptoms of Parkinson's Disease. Int Rev Neurobiol. 2017;133:479–497.
  • Oguh O, Kwasny M, Carter J, et al. Caregiver strain in Parkinson’s disease: National Parkinson Foundation quality initiative study. Parkinsonism Relat Disord. 2013;19:975–979.
  • Iso-Ahola S, Park CJ. Leisure-related social support and self-determination as buffers of stress-illness relationship. J Leis Res. 1996;28:169–187.
  • Picillo M, Kou N, Barone P, et al. Recruitment strategies and patient selection in clinical trials for Parkinson’s disease: going viral and keeping science and ethics at the highest standards. Parkinsonism Relat Disord. 2015;21:1041–1048.
  • Gunnery SD, Habermann B, Saint-Hilaire M, et al. The relationship between the experience of hypomimia and social wellbeing in people with Parkinson's Disease and their Care Partners. J Parkinsons Dis. 2016;6:625–630.

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