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Research Papers

Factors associated with symptoms of depression among informal caregivers of people with systemic sclerosis: a cross-sectional study

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Pages 394-399 | Received 09 Jan 2018, Accepted 10 Jul 2018, Published online: 19 Aug 2018

References

  • Reinhard SC, Given B, Petlick NH, et al. Supporting family caregivers in providing care. In: Hughes RG, editor. Patient safety and quality: an evidence-based handbook for nurses. Rockville (MD): Agency for Healthcare Research and Quality (US); 2008. p. 341–363.
  • Adelman RD, Tmanova LL, Delgado D, et al. Caregiver burden: a clinical review. JAMA. 2014;311:1052–1060.
  • Stenberg U, Ruland CM, Miaskowski C. Review of the literature on the effects of caring for a patient with cancer. Psychooncology. 2009;19:1013–1025.
  • Turner A, Findlay L. Informal caregiving for seniors. Health Rep. 2012;23:33–36.
  • Lilly MB, Laporte A, Coyte PC. Labor market work and home care’s unpaid caregivers: a systematic review of labor force participation rates, predictors of labor market withdrawal, and hours of work. Milbank Q. 2007;85:641–690.
  • Berg A, Palomäki H, Lönnqvist J, et al. Depression among caregivers of stroke survivors. Stroke. 2005;36:639–643.
  • Rivera HR Jr. Depression symptoms in cancer caregivers. Clin J Oncol Nurs. 2009;13:195–202.
  • Rogers NB. Family obligation, caregiving, and loss of leisure: the experiences of three caregivers. Act Adapt Aging. 2001;24:35–49.
  • Arai Y, Sugiura M, Washio M, et al. Caregiver depression predicts early discontinuation of care for disabled elderly at home. Psychiatry Clin Neurosci. 2001;55:379–382.
  • Pinquart M, Sörensen S. Differences between caregivers and noncaregivers in psychological health and physical health: a meta-analysis. Psychol Aging. 2003;18:250.
  • von Känel R, Mausbach BT, Patterson TL, et al. Increased Framingham Coronary Heart Disease Risk Score in dementia caregivers relative to non-caregiving controls. Gerontology. 2008;54:131–137.
  • Adams KB. Specific effects of caring for a spouse with dementia: differences in depressive symptoms between caregiver and non-caregiver spouses. IPG. 2008;20:508–520.
  • Beeson RA. Loneliness and depression in spousal caregivers of those with Alzheimer’s disease versus non-caregiving spouses. Arch Psychiat Nurs. 2003;17:135–143.
  • Pinquart M, Sörensen S. Spouses, adult children, and children-in-law as caregivers of older adults: a meta-analytic comparison. Psychol Aging. 2011;26:1–14.
  • Loh AZ, Tan JS, Zhang MW, et al. The global prevalence of anxiety and depressive symptoms among caregivers of stroke survivors. J Am Med Dir Assoc. 2017;18:111–116.
  • Pinquart M, Sörensen S. Associations of stressors and uplifts of caregiving with caregiver burden and depressive mood: a meta-analysis. J Gerontol B-Psychol. 2003;58:P112–P128.
  • Doyle M. Peer support and mentorship in a US rare disease community: findings from the cystinosis in emerging adulthood study. Patient. 2015;8:65–73.
  • Gowran RJ, Kennan A, Marshall S, et al. Adopting a sustainable community of practice model when developing a service to support patients with epidermolysis bullosa (EB): a stakeholder-centered approach. Patient. 2015;8:51–63.
  • Rode J. Rare diseases: understanding this Public Health Priority [Internet]. Paris (France): Plateforme Maladies Rares; [cited November 2005]. Available from: http://www.eurordis.org/IMG/pdf/princeps_document-EN.pdf
  • Maril V. Caring for a loved one with scleroderma: experiences of caregivers [dissertation]. Houston (TX): Texas Woman’s University; 2012.
  • Peay HL, Hollin I, Fischer R, et al. A community-engaged approach to quantifying caregiver preferences for the benefits and risks of emerging therapies for Duchenne muscular dystrophy. Clin Ther. 2014;36:624–637.
  • Landfeldt E, Lindgren P, Bell CF, et al. Quantifying the burden of caregiving in Duchenne muscular dystrophy. J Neurol. 2016;263:906–915.
  • Kanters TA, van der Ploeg AT, Brouwer WB, et al. The impact of informal care for patients with Pompe disease: an application of the CarerQol instrument. Mol Genet Metab. 2013;110:281–286.
  • Scleroderma [Internet]. USA: National Institutes of Health. [Updated 2009 Mar 23]. Available from: https://report.nih.gov/NIHfactsheets/ViewFactSheet.aspx?csid=68
  • Barnes J, Mayes MD. Epidemiology of systemic sclerosis: incidence, prevalence, survival, risk factors, malignancy, and environmental triggers. Curr Opin Rheumatol. 2012;24:165–170.
  • Thombs BD, van Lankveld W, Bassel M, et al. Psychological health and well‐being in systemic sclerosis: State of the science and consensus research agenda. Arthritis Care Res. 2010;62:1181–1189.
  • López‐Bastida J, Linertová R, et al. Social economic costs and health-related quality of life in patients with systemic sclerosis in Spain. Arthrit Care Res. 2014;66:473–480.
  • Kwakkenbos L, Jewett LR, Baron M, et al. The Scleroderma Patient-centered Intervention Network (SPIN) Cohort: protocol for a cohort multiple randomised controlled trial (cmRCT) design to support trials of psychosocial and rehabilitation interventions in a rare disease context. BMJ Open. 2013;3:e003563.
  • Higginson IJ, Gao W, Jackson D, et al. Short-form Zarit Caregiver Burden Interviews were valid in advanced conditions. J Clin Epidemiol. 2010;63:535–542.
  • Kroenke K, Strine TW, Spitzer RL, et al. The PHQ-8 as a measure of current depression in the general population. J Affect Disord. 2009;114:163–173.
  • Milette K, Hudson M, Baron M, et al. Comparison of the PHQ-9 and CES-D depression scales in systemic sclerosis: internal consistency reliability, convergent validity and clinical correlates. Rheumatology. 2010;49:789–796.
  • Lau C, Tang W, Wong K, et al. Predictors of the depressive symptomatology of the family caregivers of Chinese stroke patients in Hong Kong. J Psychiatr Ment Health Nurs. 2012;19:285–293.
  • Drinka TJ, Smith JC, Drinka PJ. Correlates of depression and burden for informal caregivers of patients in a geriatrics referral clinic. J Am Geriatr Soc. 1987;35:522–525.
  • Tabachnick B, Fidell LS. Using multivariate statistics. Boston: Allyn and Bacon; 2013.
  • Qutub K, Lacomis D, Albert SM, et al. Life factors affecting depression and burden in amyotrophic lateral sclerosis caregivers. Amyotroph La Scl Fr. 2014;15:292–297.
  • Takahashi M, Tanaka K, Miyaoka H. Depression and associated factors of informal caregivers versus professional caregivers of demented patients. Psychiatry Clin Neurosci. 2005;59:473–480.
  • Izawa S, Hasegawa J, Enoki H, et al. Depressive symptoms of informal caregivers are associated with those of community-dwelling dependent care recipients. Int Psychogeriatr. 2010;22:1310–1317.
  • Ory MG, Ahn S, Jiang L, et al. National study of chronic disease self-management: six-month outcome findings. J Aging Health. 2013;25:1258–1274.
  • Barg FK, Gullatte MM. Cancer support groups: Meeting the needs of African Americans with cancer. Semin Oncol Nurs. 2001;17:171–178.
  • Chien LY, Chu H, Guo JL, et al. Caregiver support groups in patients with dementia: a meta‐analysis. Int J Geriat Psychiatry. 2011;26:1089–1098.
  • Cooke D, McNally L, Mulligan K, et al. Psychosocial interventions for caregivers of people with dementia: a systematic review. Aging Ment Health. 2001;5:120–135.
  • Bakas T, Clark PC, Kelly-Hayes M, et al. Evidence for stroke family caregiver and dyad interventions. Stroke. 2014;45:2836–2852.
  • Titler MG, Visovatti MA, Shuman C, et al. Effectiveness of implementing a dyadic psychoeducational intervention for cancer patients and family caregivers. Support Care Cancer. 2017;25:3395–3406.
  • Yu H, Li L, Liu C, et al. Factors associated with the quality of life of family caregivers for leukemia patients in China. Health Qual Life Outcomes. 2017;15:11.
  • Buhse M, Della Ratta C, Galiczewski J, et al. Caregivers of older persons with multiple sclerosis: determinants of health-related quality of life. J Neurosci Nurs. 2015;47:E2–E12.

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