References
- Braga LW, da Paz AC, Jr, Ylvisaker M. Direct clinician-delivered versus indirect family-supported rehabilitation of children with traumatic brain injury: a randomized controlled trial. Brain Inj. 2005;19:819.
- Chua KSG, Ng YS, Yap SGM, et al. A brief review of traumatic brain injury rehabilitation. Ann Acad Med Singap. 2007;36:31–42.
- Sherer M, Evans CC, Leverenz J, et al. Therapeutic alliance in post-acute brain injury rehabilitation: predictors of strength of alliance and impact of alliance on outcome. Brain Inj. 2007;21:663–672.
- Ergh TC, Rapport LJ, Coleman RD, et al. Predictors of caregiver and family functioning following traumatic brain injury: social support moderates caregiver distress. J Head Trauma Rehabil. 2002;17:155–174.
- Gan C, Schuller R. Family system outcome following acquired brain injury: clinical and research perspectives. Brain Inj. 2002;16:311.
- Lefebvre H, Cloutier G, Josee Levert M. Perspectives of survivors of traumatic brain injury and their caregivers on long-term social integration. Brain Inj. 2008;22:535–543.
- Reeves D, Blickem C, Vassilev I, et al. The contribution of social networks to the health and self-management of patients with long-term conditions: a longitudinal study. PloS One. 2014;9:e98340.
- ABS Survey of Disability, Ageing and Carers. cat. no. 4430.0. Australian Bureau of Statistics: Canberra; 2015.
- Deloitte Access Economics. The economic value of informal care in Australia in 2015: Carers Australia; 2015.
- Ter Meulen R, Wright K. Family solidarity and informal care: the case of care for people with dementia. Bioethics 2012;26:361–368.
- Wittenberg-Lyles E, Washington K, Demiris G, et al. Understanding social support burden among family caregivers. Health Commun. 2014;29:901–910.
- Levine C. The loneliness of the long-term care giver. N Engl J Med. 1999;340:1587–1590.
- Perlesz A, Kinsella G, Crowe S. Psychological distress and family satisfaction following traumatic brain injury: injured individuals and their primary, secondary, and teritary carers. J Head Trauma Rehabil. 2000;15:909–929.
- Manskow US, Sigurdardottir S, Røe C, et al. Factors affecting caregiver burden 1 year after severe traumatic brain injury: a prospective nationwide multicenter study. J Head Trauma Rehabil. 2015;30:411–423.
- Vassilev I, Rogers A, Blickem C, et al. Social networks, the 'work' and work force of chronic illness self-management: a survey analysis of personal communities. PloS One. 2013;8:e59723
- Bayen E, Jourdan C, Ghout I, et al. Objective and subjective burden of informal caregivers 4 years after a severe traumatic brain injury: results from the PariS-TBI study. J Head Trauma Rehabil. 2016;31:E59–E67.
- Kreutzer JS, Rapport LJ, Marwitz JH, et al. Caregivers' well-being after traumatic brain injury: a multicenter prospective investigation. Arch Phys Med Rehabil. 2009;90:939–946.
- Shippee ND, Shah ND, May CR, et al. Cumulative complexity: a functional, patient-centered model of patient complexity can improve research and practice. J Clin Epidemiol. 2012;65:1041–1051.
- Jourdan C, Bayen E, Pradat-Diehl P, et al. A comprehensive picture of 4-year outcome of severe brain injuries. Results from the PariS-TBI study. Ann Phys Rehabil Med. 2016;59:100–106.
- May CR, Eton DT, Boehmer K, et al. Rethinking the patient: using burden of treatment theory to understand the changing dynamics of illness. BMC Health Serv Res. 2014;14:281–281.
- Hammell KW, Carpenter CD. Qualitative research in evidence-based rehabilitation. Edinburgh: Churchill Livingstone; 2004.
- Braun V, Clarke V. Using thematic analysis in psychology. Qual Res Psychol. 2006;3:77–101.
- Bury M. Chronic illness as biographical disruption. Sociol Health Illn. 1982;4:167–182.
- Cutler M, Nelson MLA, Nikoloski M, et al. Mindful connections: the role of a peer support group on the psychosocial adjustment for adults recovering from brain injury. J Social Work Disabil Rehabil. 2016;15:260–284.
- Milbourn BT, McNamara BA, Buchanan AJ. Understanding the episodic everyday of disrupted lives: scoping the occupational therapy literature. Can J Occup Ther. 2014;81:144.
- Muenchberger H, Kendall E, Neal R. Identity transition following traumatic brain injury: a dynamic process of contraction, expansion and tentative balance. Brain Inj. 2008;22:979.
- Sveen U, Søberg HL, Østensjø S. Biographical disruption, adjustment and reconstruction of everyday occupations and work participation after mild traumatic brain injury. A focus group study. Disabil Rehabil. 2016;38:2296–2304.
- Chelboun S, Hux K. Support network responses to acquired brain injury. Qual Report. 2011;16:764–781.
- Curtiss G, Klemz S, Vanderploeg RD. Acute impact of severe traumatic brain injury on family structure and coping responses. J Head Trauma Rehabil. 2000;15:1113–1122.
- Gan C, Campbell KA, Gemeinhardt M, et al. Predictors of family system functioning after brain injury. Brain Inj. 2006;20:587.
- Kreutzer JS, Gervasio AH, Camplair PS. Patient correlates of caregivers' distress and family functioning after traumatic brain injury. Brain Inj. 1994;8:211–230.
- Machamer J, Temkin N, Dikmen S. Significant other burden and factors related to it in traumatic brain injury. J Clin Exp Neuropsychol. 2002;24:420–433.
- Wells R, Dywan J, Dumas J. Life satisfaction and distress in family caregivers as related to specific behavioural changes after traumatic brain injury. Brain Inj. 2005;19:1105–1115.
- Perry BL, Pescosolido BA. Social network dynamics and biographical disruption: the case of 'first-timers" with mental illness. Am J Sociol. 2012;118:134–175.
- Pescosolido BA. Of pride and prejudice: the role of sociology and social networks in integrating the health sciences. J Health Soc Behav. 2006;47:189–208.
- Rogers A, Brooks H, Vassilev I, et al. Why less may be more: a mixed methods study of the work and relatedness of 'weak ties' in supporting long-term condition self-management. Implement Sci. 2014;9:1–11.